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About queenie1

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  • Birthday 10/02/1947

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  1. Hello Mark. I have not posted here in quite some time. But PD continues to work its "magic" and after 11 years of trying to stay one step ahead of it, I am now seriously considering DBS surgery. I am discovering that requirements even for the evaluation vary from one center to another. The center to whom I am now talking would like me to stop taking Ropinirole XL for 3 days before my dbs evaluation as well as 24 hrs. for carbidopa-levadopa (all forms). I am concerned about stopping a dopamine agonist cold turkey for this length of time. Am I being overly cautious? Please weigh in-your advice has been spot on whenever I've written to you in the past. Thanks so much.
  2. queenie1

    Carbidopa-Levodopa CR

    Thank you for the input. I decided to give the CR one more try-and so far I am having better success. I think you were absolutely correct about the strength of the dose being stronger than I needed at the time. That was my thinking also. Thanks for manning this forum-it has been a super resource for me over the past ten years.
  3. queenie1

    Carbidopa-Levodopa CR

    Hello Mark, It's been awhile since I have contacted you. But I'm hoping you might have some idea as to the reason why I find myself "wired" after using CL CR several nights in a row. It's like I have had much too much caffeine. This has happened each time I have attempted to use it. I take CL immediate release during the day, but I find it inconvenient at best to take it at night, Any thoughts? I am at a loss. Thanks so much.