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jb49

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Everything posted by jb49

  1. jb49

    Good morning!!

    Thanks for all of this Tom, happy camping to you. jb
  2. jb49

    Good morning!!

    Good Morning World. Happy Canada Day to us Canadians, Matt, Canada Shakes, K-Man from Ottawa, Lady from Kitchener, Bev, Trevor,Alberta Girls, anyone else. Enjoy the Holiday. Our Michael J. Fox has been awarded the Order of Canada medallion for his acting career and more importantly for us; his work on behalf of Parkinsons. If you Americans run into him down there tell him to come home and get his medal. Emma, have a better day today. Everyone have a safe and happy day. Remember that smiling releases good chemicals into your bloodstream. I know it is corny, but I like watching Americas Funniest Videos. j
  3. jb49

    Good morning!!

    Thanks for all the good wishes everyone. I have been getting lots of advice from a man in our parky group that lives not that far away. He tells me too that I need to slow down and recover. I should know that too. Sorry for the panic attack. His name is Rob and he had the same opration as I did, at the same hospital at the same clinic. I did get my stitches (wire ) out yesterday in town. I have lots of help here at my house with neighbours cutting my grass. I still have trouble with my sore shoulders and that is an old problem. And .today was a better day. I slept better last nite and that clears up my head as well. I still have a long wait until it is programmed and turned on. I look forward to that day. In the meantime , I need to get the pill routine down to a better scedule which seems to be a bit less than I was taking before. Thanks everyone for your help.
  4. jb49

    Good morning!!

    I am having some trouble gettiing my thinking and work skills back together.
  5. jb49

    Good morning!!

    nd
  6. jb49

    Good morning!!

    ps. i never thought it was She Ra. Mereille, "first DBS?" . you have had two?
  7. jb49

    Good morning!!

    Good morning and thanx for the encouragement Mireille. And from you too Emma. The bit of time in the hospital in which I did feel free of parkinsons despite feeling trussed up like a chicken was worth the effort. My wife could see the relief in my face and posture the next day. But it didn't last as long as one would hope. :I hope that i get back on that cloud when the dbs gets turned on in July. For now, the pill container and this nagging shoulder thing. I have been here before always having worked building trades and installing drywall overhead and repetative strain, and other things. You had this too I see Emma, thats too bad. At the hospital, hitching myself on stiff arms from bed to bed to O.R. tables, to MRI stretchers and back to recovery stretchers trying to find that comfortable position in bed all took its toll. Anyways, I will get over this shoulder thing; and be ok. Awkward to type is all. I have had it before M, I don't think it was the operation although, I agree with you: there was a share of tension on the table. My surgery was done in two parts. The first was awake and alert with no levodopa,and local freezing for about 4 hrs to place the tubes. The second day was a full sedation and the battery pack was put in place. It was quickly done in about an hour. #1 thing. I felt good coming home from the hospital, ready to get going. #2, I was as weak as a kitten. give yourself some time.! Take care you all.
  8. jb49

    Good morning!!

    Hi Ya All! Back AGAIN for awhile I hope. I came home from Toronto feeling pretty good, too good maybe.. I never slept very well getting ready to go to Toronto for the dbs operation. I have my own little quirks when it comes to sleeping. I stacked one bad nite after another. I was quite amazed how little sleep I was actually getting. But in the morning. with stuff to do, I was getting up and starting my day. This morning at 5 a.m., having decided that I was not able to sleep anymore, I got up and started to get some coffee and cereal together for breakfast. I found that my shoulders were bothering me so badly that I couldn't ignore them anymore. I googled them with the question, "why do my shoulders hurt so badly in the morning.". I took a look at those first things and I worked at it today. I went back to bed and slept the rest of the morning and into the afternoon.. I definitely was having trouble with my shoulders and today I started working the tightness out of them. Now I am going to bed, but tomorrow, I should be able to wake up and actually do something. Good nite, jb ---
  9. jb49

    Good morning!!

    Hi everyone., I am back. sorta. I got home on Friday and sure felt good to step into my house. The hospital was great but it was not home. I brought home some headache that was expected but not too bad. I did have a little break from Parkinsons with the operation and the little honeymoon that goes with this surgery sometimes. The takehome pill for pain is a little bit much I think. I feel a little bit dizzy today I think. thanks to everyone. Your support has been great. Have to close this now. jb
  10. jb49

    Good morning!!

    sorry bout that big blank. I am back but still tired. Thanks for all your support! jb
  11. jb49

    Passing out

    According to what I was taking, you have lots of room for more requip.. I didn't take much else along with it, Check that as well with your doctor.
  12. jb49

    Passing out

    Hello Hiker, I found an old empty pill bottle that had been a requip rx container. I was about 170 pounds at the time and requip was my maim pill. The prescription allowed me 4- 2mg tabs of requip 3 times a day for a max dosage of 24 mg per day. Which is the maxuimum daily total allowed. And again, medicine that works for someone may not work for yourself. john
  13. jb49

    Passing out

    Here is my input. When I was first on requip, an agonist, I thought it was great. But, 3 things, I would be with a small group or maybe even one other person, and I would be teetering on the sleep attack, eyes open and begin a line of conversation. The sound of my voice would awaken me and I would realize that I had fallen into that requip snooze again. Embarassed but trying to be normal, I would attempt to gather up the threads of conversation that I had heard and try to weave what I had just blurted out into the conversation while looking into the questioning eyes of the people I was with. two, I don't know how many times my wife gave me a cup of tea, that I would hold in my hands and perhaps be watching TV and without warning fall into the Requip sleep only to awaken to the flush of heat as my cup of tea tipped over onto my lap. 3rd I realized that I would have to go off Requip to something else while driving one day on a pretty quiet stretch of country highway. I suddenly was aware that I was in the wrong lane approaching another truck, who was questioning my driving ability by pulling off the road. It was not very close, the distance between us was still great, but I became very alert for the rest of the drive. That scared me really bad. Take care everyone jb
  14. Hello everyone, I never intended for that line to be in bold strokes. I Guess i just entered the room with confidence. Debstan, my Motion Disorder Doctor asked me one time if I was depressed. I said sorta, I didn't like having PD. He replied that I shouldn't like it, it was ok to be sad about PD because it is a nasty disease. He questioned if I was sad about other things and I answered no, just the Pd stuff. He declared me to be normal and not depressed. He said that depressed was when you are sad about things that should make you happy. He told me to take my pd medicine, remain active, and don't waste your day thinking about what ifs.; The truth is, as others have pointed out above, there are diseases that have worse outcomes. Good luck to you. Being Bubbly will make your day a better one. And I bet there are people who are missing Bubbly Deb! Fist to the sky, be tough Bubbles. jb ps, fist to the sky. Wasn't that The Paper Bag Princess. Where is she?
  15. jb49

    Good morning!!

    Good morning everyone. , Wow Swampette, if you said all that to me sitting in a room, I would be looking over my shoulder, uncertain if you were aiming such kind words to me or perhaps some one behind me. Thank you, I try to help as best I can. Back to the van in Toronto, driven up a busy sidewalk, killing 10 people last week. 15 years ago, I started to do work for a Lady who left the city looking for a quieter life out in the country and bought an old farm about ten miles from our place. I did a lot of work for her in the ensuing years repairing old barns and building new shelters for her animals. It was a nice place to work for me and we became good friends. Her Mom, 80 years plus still lived back in Toronto, but not now. She was one of the last victims of the van and its driver to be identified. So many violent and sickening things happen in the daily news that I don't have to do anything more than shake my head in disbelief. This time, I will have to try to help my friend grieve and come to a point of acceptance that life can be cruel but when all is considered, life is sweet. But we all know that sweet doesn`t make the lead story on the six oclock news. A week from now I will be be in the hospital, the day after surgery, with probes into my grey stuff that the Parkinson Dude has made black and rather useless. I am amazed at the skill and confidence, knowledge and under standing that the doctors at the hospital have of the Brainus Maximus and other body parts. My body right now is really feeling the symptoms of Parkinsons worse than I ever have. Maybe my Body thinks that surgery is going to fix all things, so quit struggling. I know that Surgery will help with a programmed dbs in place,. but I`m not expecting miracles. I better get at my job list titled HORSEFEATHERS. (Household Organization Required Suddenly, Effecting Family Entering And Tending Home`s Environmental Resources Systems). I hope everybody has a stellar day today. I am planning on it. jb
  16. jb49

    Good morning!!

    Thanks Peace, lady rancher from the Midwest. Keep that penny close! Lad, I watched the video, he is an entertainer. I hope you see him up on stage in the bright lights one day soon. dIANNE, i chuckle at the thoughts of "John's Adventure". Thank you Pathfinder and Linda for good thoughts. Linda, I wish good health for you. (and everyone else as well of course) She Ra, When I pulled out the map of the USA I realized that I had something messed up cause you would of been commuting hundreds of miles to work every day. Nice to hear from you. A week from now, I will have fancy new directional propes in my brain base. The second part follows 2 days later when the battery pack gets installed and wires are hooked up. Then I go about 6 weeks before the main switch gets thrown and I jump up and dance. Or whatever. That will be a long wait. Hope everyone hasa good day. jb.
  17. jb49

    Good morning!!

    Hello Mireille I really appreciate your support. All the way from France even. I am nervous about the whole thing. I don't take it lightly. I am also definitely sure that I want this procedure and I look forward to recovery and rehabilitation. I am ready, mentally prepared and I am hopeful that I have good results. I will keep you posted. Thank you again. John
  18. jb49

    Good morning!!

    Thankyou, Sean and Em for your concern. Thanks Linda for painting a nice picture of hopmecoming. I think things went well in Toronto. trains, schedules, hotels, restauraunts and such things tire me out. We returned home on Sunday. Monday was a write off. But I think everything is ready for surgery on May 8 to install probes and then on May10 they will install the power pack in my chest and connect the wiring. Today is Tuesday. I will be in the OR 2 weeks from right now. So in the next 2 weeks I will get my suitcase packed, some books picked out to read. Squirrel away some snacks into my backpack, um lots of gum I think. Also I will try to get some of the springtime jobs completed around here. Maybe even get some potatoes planted in the garden. Sadness in Toronto today. A young man for unknown reasons drove a rented van up onto the sidewalk along Yonge street yesterday and killed 10 people and injured many more. I shake my head in disbelief. Be strong and diligent my friends.
  19. jb49

    This & that!

    Hello everyone, Exercise and then exercise some more. Go for a walk to the store instead of driving and take the long way. I always found that my lazy days where I had little activity lead to my most uncomfortable nights. I used to say an hours robust activity was worth a handful of pills. Having said all that, it can be very difficult for some to even get out of bed for a meal. That is the catch 22. you need to excercise to move free, but you have to be able to move to exercise. TAKE CARE. JB
  20. jb49

    Good morning!!

    Hi everyone. We know that you are close Pathfinder. Thanks SoCalGal. After a flurry of phonecalls, head scratching and "waiting to hear", two metal hip replacements that I had done 10 years ago have been deemed safe for the MRI image that I am booked for this weekend. Yesterday I arranged transport, lodging and farmsitting and tomorrow I do a pre op meeting and blood testing and signing on the line for surgery in a couple weeks. Saturday night they put me in the capsule and MRI my head. Concerns were raised over my hips and whether they would perhaps get too warm with a 3T (MRI machines are mostly 1.5 but the new generation of them are upgraded to 3. as I understand them) The technical people reviewing the composition of my inserts have decided that my hips will be far away from my head and therefore safe from overheating. I trust them. I hope that they don't assume I am 6'6 tall or something. I'm a shorty at 5'7 and that shortens the distance. MRIs are strange. I would not be surprised if when the thing stops, and I emerge, I will be stepping onto the surface of the moon. Gotta run, calls to make things to do. later, take care, jb
  21. jb49

    Good morning!!

    Good morning everyone, Linda, I wish al the best for you. As you deserve it! THANKS go out to you Linda and everyone else who follow our lives and care about the outcomes. I am humbled by the concern shown for each other here on this forum. All the best to all of you and I thank each of you. jb
  22. jb49

    Good morning!!

    Good Morning everyone. Hello Mireille, well, as it turns out, things have been accelerated. Get your running shoes on and hang onto your hat I say to myself. I asked my Neurologist last year if he would pass me along to the Toronto Western Hospital for a DBS procedure. After a wait of only about a couple months, I was contacted by Movement Disorder Clinic and was given a date to come to Toronto for an assesment to see if I fit the "Candidate Profile". That first meeting took place in September of last year, 2017. It was a 2 hour test and interview at the clinic by a neurology Resident Doctor. I was not available for a scheduled followup appointment in the fall, and with the Christmas break approaching I was put over into the new year. The next meeting was a 2 day Neurological testing session that took place in January of this year. It also had a testing of my motor skills with no drugs in my system. We stayed at a nearby hotel, I took my regular levodopa at about 7 in the evening and arrived to be tested at about 9 the next morning. After doing the motor tests that you all have done , I was given my regular tablets of levodopa. We waited for them to absorb into my bloodstream to gush out my arteries and back through my veins as my heart pushed the blocks of Dopa into my waiting brain where they were assembled and waited like a bunch of couriers, awaiting thier turn to deliver a message to my muscles. I repeated the motor tests, scored much higher, and that was a good thing. DBS is more effective on candidates who respond well to Levodopa. Later that day, after the extensive brain power testing to establish my cognative ability, or lack thereof, the assessment team told me that I would be discussed at a meeting but I was 95% into the que for DBS. At that time, August was suggested as the date. They would be in touch. And they were with a phone call asking me to attend a meeting with the surgical team in two days to replace an appointment time that another person had to cancel,. That was about March 3. At that time it was thought that the summer would impact the schedule and I should look towards late September, perhaps even October cautioned a resident as I was leaving. Two weeks ago they contacted me with an appointment for an MRI. I wondered why so early and when I enquired about that a week ago, I was told that the surgeon had been alloted more surgery hours, a schedule had been redrawn and could I be available for the DBS on May 8th. I just learned this at the end of last week. I have to go to my family doctor tomorrow for pre admission documentation, to Toronto on Friday for pre op teaching and blood testing, and posssibly an mri on Saturday. It seems a bit sudden now, but it will eliminate a summertime of worrying about it. I have lots of support here for rides to Toronto and help at the farm. The surgeon and his team inspire me with confidence and there is a wonderful Lady in the DBS department at the hospital who has control of the calendar to co ordinate all things. I am getting a Boston Scientific unit with the new style of directional leads which will hopefully allow the programers even tighter control of the stimulations. I am also taking part in a research trial as to the effectiveness of the new directional leads. I am hoping that I get good results, as in a smoothing out of my off and on cycle of drugs. I hope that I can remain still, and calm for the operation. It will be in 2 parts with the leads being installed into the "gray matter" on the 8th of May and the control implanted into my waiting chest 2 days later on the 10th. At that time I guess they will also be pushing the wires under the skin of my neck and between my scalp and skull right up to my new attenaes, still freshly rooted into my brain. That means 2 operations but it will eliminate the 12 hour marathon. I am a little worried about it all. I would be crazy if I wasn't worried some. But I also am happy that this should improve my life, help the doctors learn new skills and methods and hopefully I won't be as drug dependent. Worried a bit yes, but I am approaching this with a positive outlook for treatment of what is proving to be a nasty disease. I gotta get busy here, things to do. Like shovel snow off my steps.! What rotten weather we have had the last 3 days. Be safe everyone, jb
  23. jb49

    Good morning!!

    Em, I felt like giving the James Taylor Carolina song a listen today. I hope I can get it to link up here for others to hear it as well. Tis no wonder that our resident Lady Superhero, Shera, who works by day in Atlanta but resides in her cabin in South Carolina and whoaa? Oh, I just checked that out on a map, and that looks like a lot of driving, maybe I got that wrong. Anyways, this video is very nice to watch and no wonder People enjoy North and South Carolina. Now, if I can make the link work. .https://www.youtube.com/watch?v=4z8lS--AyBU
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