Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

noah

Members
  • Content count

    903
  • Joined

  • Last visited

  • Days Won

    6

noah last won the day on November 25

noah had the most liked content!

Community Reputation

69 Excellent

About noah

  • Rank
    Advanced Member

Profile Information

  • Gender
    Not Telling
  1. source of protein

    Is there a difference in the affect of protein on absorption between plant vs animal Is there a liquid form of sinemet which wouldnt interfere with the absorption
  2. protein and absorption

    I cant push my 7 dose any later b/c i am off
  3. protein and absorption

    thanks for the tips. What kind of probiotic do you take? So your doc agrees it helps but just doesnt know why?
  4. nutrition

    Does anyone know how to get in touch with Kathryn??
  5. protein and absorption

    I am really struggling here. I am very sensitive to the effect of protein and medicine. I try to take my meds 1 hr before eating, for the most part it is doable. Supper and erly evening is a huge problem . I am suppose to take some meds @ 5 and then again @7. I have been eating dinner @ 5:45 ( I am 45 min away from when I took the meds and 1 hr before I have to take my next dose) No matter how hard I try it doesnt work i end up off and then i am off for the rest of the night eventho i take sinemt @ 7 Does any one have any suggestions. I have to eat as it is I have lost 10 lb in the past few months. I am at my wits end!!
  6. protein and absorption

    I am really struggling here. I am very sensitive to the effect of protein and medicine. I try to take my meds 1 hr before eating, for the most part it is doable. Supper and erly evening is a huge problem . I am suppose to take some meds @ 5 and then again @7. I have been eating dinner @ 5:45 ( I am 45 min away from when I took the meds and 1 hr before I have to take my next dose) No matter how hard I try it doesnt work i end up off and then i am off for the rest of the night eventho i take sinemt @ 7 Does any one have any suggestions. I have to eat as it is I have lost 10 lb in the past few months. I am at my wits end!!
  7. DBS Update

    I cant believed I am saying this but it wasnt as bad as i thought. My surgeon told me what was going on the entire way. Like when the drilling started that when it gets loud that means it is almost done. The nurses held my hand. I just kept saying the Our Father over and over
  8. dbs and duopa pump

    The more I think about it I have only had DBS for 2 years. Everytime I turn it up my speech gets bad,. Some of the symptoms I had before the DBS are coming back. I would have thought that I would have gotten more bang for my buck. The people that you have started on the pump that had DBS how many years did they get out of it??
  9. status of new drug

    What is the status of that film you can put under your tongue when you are off? Has it gone to the FDA Any guess when we might see it on the market
  10. planning for the future

    We have a financial planner who takes care of all that. I
  11. planning for the future

    I dont know anything about it. No I do not have long term care insurance. But my husband has a nice size pension I just dont know how i would get the process started Has anyone else thought about this
  12. planning for the future

    In trying to plan for the future when my husband wont be able to care for me. How does one get the process started for home care ect/? I would like to have an idea so when the time comes he wont feel so overwhelmed. I never thought in a million years that I would be asking this ??
  13. exercise and off times

    I always thought that exercise was good for you so i try to do as much as I can. I find on the days I exercise I am off more after I do the exercise. It seems to kinda defeat the purpose i=of exercising if you are going to be off and feel bad for hours after.
  14. rytary and sleep

    What is the max IR sinemet one can take?? I already take 3(along with the rytary) at 530, 2 @ 8
  15. rytary and sleep

    I take a combo of rytary and IR sinemet. It seems to work pretty well during the day. I am having an issue with early evening. I am off pretty much every evening. I was taking 1 Sinemet CR , 2 immediate sinemet(5-530). I have found that this only lasts until 730 sometimes earlier. I then will take 2 IR @ 8 (this doesnt seem to kick in at all and when it does it doesnt last very long. My MD suggested replacing the sinemt CR with a rytary. I did that and have found that it keeps me awake. I am still trying to find the right balance of the trazadone i am taking to sleep, so adding the rytary has just made it worse. I had tried rytary @ this time before and had the same issue( the doc said that since I am taking trazadone it shouldnt be a problem, well it is) 1. Is there any way to settle down the early evening using the immediate release sinemet? 2. I know we had talked about the trazadone. My challenge is that 25 is not enough and 50 is too much(feeling groggy the next day ) I had gone on vacation and i didnt want to change anything. I felt I needed t try something so I have been taking 3/4 of a pill . I actually think it was helping a little but then i added back the rytary and now i feel like the trazadone isnt working at all Any thoughts about to settle down the early evening? I think the sleep would be better if i wasnt so off in the evening
×