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noah

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Everything posted by noah

  1. What does it mean if the question you posted is highlighted in pink?
  2. I am still having trouble falling asleep. As I have mentioned before I saw a sleep doctor who suggested that i was spending too much time in bed and i needed to stay up later which i cant I b/c i am off. i have not been able to find a regime that will keep me on long enough to retrain my brain while at the same time not keeping me up too late.(so many of the pills have a side effect of insomonia) So as a result I am still laying there trying to sleep. i am concerned about getting up and wandering around at night for fear of falling. I am currently taking 2.5 mg melatonin and .50 ml of valderian Have you ever heard of nocturest? I was wondering if the additional herbs would be helpful Thank you for always taking the time for us!!
  3. the noratriptaline was primarily given to me for my mood. The sleep benefit was just a side bar. it really doesnt help that much for sleep . I took 25 mg benadrys and it seemed to help a little. How much is safe to take? and how long is it safe to use it for sleep Thank you for all your help you really are a blessing
  4. Anybody have any experience with stalvlo? Does it work for you and how is it different from reg sinemet
  5. I am taking nortripylin 50 mg before bed Would the trazadonde take its place?
  6. What is the difference between Trazadone and Clonazapam ? I have heard awful things about Clonazapam I would like to try the benedryl. Should I wait a day before I try it to get the other stuff out of my systrem
  7. If I w anted to try the Benadryl would I need to wait a day for the other stuff gets out of my system
  8. I accidently took too much sinemet and thought i was going to die. I had horrible dyskesia and could barely walk That wont happen again!
  9. II always take my sinemet 1 hr before eating. I can tell right away if I made a mistake.
  10. I do but am having a hard time after dinner. I take my last dose @ 5:30( 2 reg sin , 1 CR I cant take rytary @ that time b/c it keeps me awake) but I off by 8-8:30 In the past I would just go to bed. Then I was having trouble falling asleep. I went to a sleep doc who said i was going to bed too early(which I was doing b/c I was off) So I am trying to find some combination of meds that will help me stay on a little longer so I dont go to bed so early. I So pretty much I am between a rock and a hard plac Any med I would take to extend my day gives me insomnia.(so I am screwed)
  11. I am going from Boston to arizona and I am concerned about how to handle my meds. I take meds q 3 hrs. Anyone have any tips? I also will need a wheelchair or a ride on one of those carts that zoom all over the airport. Actually I would ;prefer the cart(they look kinda fun) Any idea how far in advance you would need to make these arrangements. Anybody have any tips? I feel like this concern is making it hard for me to be excited
  12. Iam using a combination of rytary, sinemet CR and sinemet for my medication,. My last dose of the day @ 5:30 has been 1 Sinemet CR, 1.5 reg sinemet and amantadine. I take rytary during the day but I cant tak it after 3 other wise i keeps me up. Back in jan the CR Sinemet was not lasting very long so I added 1/2 a CR.so now I was taking 1.5 Sinemrt CR . Back in Jan I was running out of juice . I then started having trouble falling asleep, one I got to sleep I didnt wake up. I saw a sleep MD who didnt do a study but referred me to an insomnia expert. I saw her last week and she thinks that I am going to bed too early. ( which I Am) following 1.5 reg sinamet and 1.5 of the CR i was running out of juice @ 8:30 so I to go to bed. So I was going to bed too early because I was off. So I needed to find something that will help me stay up a little longer so that when I go to bed i am going to bed b/c I am tired not b/c my medicine wore off .. So in creased my 5:30 Sinement from 1.5 to 2. Well that didnt work b/c I was awake most of the night. So increasing the CR to help me stay up longer so i can get my sleep schedule straightened out ,is actually ,making my insomnia worse. So what I need is a schedule that will keep me on alittle longer without effecting my sleep. You cant use rytary or sinemet CR since there appears to be something in the extended fomula that keeps me awake. So basically I am between a rock and a hard place. Would appreciate any ad vice
  13. Thank you for your help. My problem is that I have been having trouble falling asleep and it was suggested that i was going to bed too early. I have been going to bed because i am off. I need to stay up later so I can retrain my brain but if i stay up i get so off i i can barely move. I tried taking sinemet @8 to stay on a little longer but it doesnt matter if i take 1,2 or 2.5 sinemet i am still off at 820. Any thoughts?
  14. I will be traveling from Boston to Arizona and am concerned about the time change and my meds.I am flying out of Boston @ 6 am Which means I will be taking my first dose significantly earlier. (430-5 AM)I will also be gaining 3 hours. So if I just followed my regular schedule how do I account for the 3 hrs I gained. On the way home I will be leaving Arizona 12:30 in the afternoon but will be losing 3 hours Could you please come up with some schedule? I am so confused Thanks! This is what my pill schedule is: 6:30 :2 Rytary, 1.5 Reg Sinemet,2 Carbidopa1 amantadine,1 azilect 15 mg paxil 9:30 :3 rytary,1 sinamet,1 carbidopa 12:00 :3 Rytary 1 Sinemet 1 amantadine 1 carbidopa 3:00 2 Rytary, 1.5 sinemet, 1 carbodopa 5:30 2 sinemet. 1 CR , 1 Amantadine 1 carbidopa 8:00 2 sinemet Bedtime 50 mg ofNortriptylin
  15. Sounds like good advice but my challenge is i take my first dose @ 6:30 and my flight is at 6. so in order to move around i will have to take my 630 dose early say 5 Then when I get to arizona i will have 3 extra hours to take meds for that i usually dont.
  16. when i go out to arizona I gain 3 hours so i will need to take an extra dose. I dont take the same dose each time so I am unsure what to take I will talk to my doctor before i go. i have always been a nervous flyer and now with pd i am concern it will be worse. any tips?
  17. where would you get swallowing exercises
  18. I guess it is a matter of c hoice. Before i had DBS I could barely walk. Since dbs I can walk 4 miles. But my xspeech has been effected. I guess its a trade off
  19. Here is med schedule 6:30 :2 Rytary, 1.5 Reg Sinemet,2 Carbidopa 1 amantadine,1 azilect 15 mg paxil 9:30 :3 rytary,1 sinamet,1 carbidopa 12:00 :3 Rytary 1 Sinemet 1 amantadine 1 carbidopa 3:00 2 Rytary, 1.5 sinemet, 1 carbodopa 5:30 2 sinemet. 1 CR , 1 Amantadine 1 carbidopa 8:00 2 sinemet Bedtime 50 mg Nortriptylin My challenge is to stay up late enough to re train my brain. I have been trying the above for a few days and while sometimes it works there are other times it doesnt. Tuesday nite @ 7 wanted to treat myself with some m&m so i had a small bag well that didnt work . I took my 8:00 sinemet and kit never kicked in. Ok so maybe the m m's were to high in fat so my meds didnt get absorbed. Last night I had pasta for dinner very little protein and my 8 dose didnt kick in either Would appreciate all your help!
  20. I used to work at a diabetes center and if I am remembering correctly there were some pretty serious side effects
  21. I have posted several times re: sleep I went to see an insomnia specialist and she came up with a plan. What was happening is that my meds were running out at 7:30 so I would go to bed at like 8:30.(I was shaking) But my body wasn't ready for sleep so what would end up happening is that I would toss and turn for 2-3 hrs before falling asleep. Well that's not good. I tried to make adjustments to my meds so included not have the shakes so bad and then I would be able to stay up longer but the meds caused more insomnia. So I am between a rock and a small place. If I take more meds I won't be able to sleep if I go to bed too early because my meds wear off I won't be able to sleep either so basically I am screwed. The therapist said that I have to retrain my brain. So to do that I can't go to bed any earlier than 11:30 that way I will only be spending 6 hrs in bed. So to accomplish that I have to stay up until that time . I take my last dose of sinemet @ 8:30 since I am not taking any extra meds(because they will keep me awake) I still shake so I am trying to use meditation to get my tremors under control. It usually takes me about 1/2-1 hr to calm down my tremors. Do any of you guys know of my 30 minute guided meditations? GB (0%) of 15 GB used Manage Terms - Privacy Last account activity: 2 hours ago Details
  22. AMEN wife of PWPD I agree
  23. I cant take any extended meds after 5 , they keep me awake.
  24. I take 2.5 mg of melatonin (cant take any more other wise I am groggy the next day) I thought the max dose of valedrian root was 500 mg. So are you taking 2 pills
  25. i have been having trouble falling asleep so I went to see an insomnia specialist and she came up with a plan. What was happening is that my meds were running out at 7:30 so I would go to bed at like 8:30. But my body wasn't ready for sleep so what would end up happening is that I would toss and turn for 2-3 hrs before falling asleep. Well that's not good. I tried to make adjustments to my meds so they would last longer so I wouldnt be off( shakes so bad) and then I would be able to stay up longer but the meds caused more insomnia. So I was between a rock and a small place. If I take more meds I won't be able to sleep if I go to bed too early because my meds wear off I won't be able to sleep either.The therapist said that I have to retrain my brain. So to do that I can't go to bed any earlier than 11:30 that way I will only be spending 6 hrs in bed. So to accomplish that I have to stay up until that time . Now since I am not taking any extra meds I still shake so I am trying to use meditation to get my tremors under control.My schedule is as follows 6:30 AM 2 Rytary,1.5 Reg Sinemet , 1 Amantadine,1 Azilect, 2 carbidopa 1.5 mg paxil 9:00 3 Rytary, 1 sinemet, 1 carbidopa 12:00 3 Rytary, 1 sinemet 1 Amantadine 1 Carbidopa 3:00 2 Rytary 1.5 Sinemet 1 Carbidopa 5:30 1.5 carb/lev ER, 1.5 reg sinemet, 1 amantadine, 1 carbidopa 8:00 1.5 reg sinamet Can you suggest any medication changes that would keep me on longer without causing insomnia? I have found that I cant take rytary past 3 it keeps me awake This is true for Sinemet ER so I try gto use as little of that as possible Boy this medication stuff is so confusing! I really appreciate your input