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About michelleee

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  1. Namenda

  2. Namenda

    Just a quick note on Namenda. After weeks of use, my husband became more and more confused. He's no longer taking the drug. I'm wondering if tapering off Sinemet slowly and adding Azilect would help. My husband is hovering between stage 3 and stage 4 and I do believe he's become overly sensitive to excess Sinemet. When he gets up in the AM he can walk and dress himself, he's not confused but perhaps fuzzy from just waking up. As the day goes on he takes 25/100 Sinemet every hour and a half due to wearing off. Each hour and a half is a roller coaster filled with problems from the "waxing and waning" of Sinemet. Looking for suggestions to take with us when we see his neurologist. I like to go prepared Thanks so much Mark! One more question, wondering if a liquid form has become available in the US ******* Copied from NCBI****** The liquid effervescent levodopa formulation of melevodopa (methyl-ester levodopa) plus carbidopa is a prodrug with a high solubility (about 250 times more than L-Dopa) in small volume of water, and it is able to reach quickly the small intestine where it is absorbed in a more regular and rapid way compared to solid formulations [26]. One clinical advantage of this formulation is that it avoids erratic absorption and the related unpredictability in the plasma L-Dopa concentration curve [27]. The drug is approved in certain European countries and currently under phase II investigation in the US. It's a pleasure to have this wonderful resource Thanks again Mark! Michelle
  3. Namenda

    Thanks Mark. So far so good with Namenda. Best, Michelle
  4. Namenda

    So far Namenda is working well for my husband. He's currently on 10.mg per day. Fingers crossed the drug continues to provide relief from hallucinations and memory loss. thanks once again! Michelle
  5. Namenda

    Hello Mark, Wondering what your thoughts may be on Namenda for Parkinson's Dementia (Lewy Body Dementia) Husband's advancing Parkinson's disease is becoming difficult to manage due to some pretty serious hallucinations and delusions. Trying Seraquil, and it helps but I read an article at one point suggesting the success of Namenda for memory and even hallucinations. Any comments? Thank you very much for your time! Michelle
  6. Pronoran

    Dear Mark, Hope all is well with your family, and that things turned out well for you all! And I'm sorry I wrote twice about this question, I honestly thought it got passed over or I did something wrong. I didn't know that you are the moderator (I was thinking there's another person who reads questions first before passing on to you!) I'm taking Prevagin off the list. Your answer was exactly what I thought it might be. Sounds like hype and lots of TV commercials! Pronoran actually sounds great! But not being available in the US puts an end to that for my husband. He's been dx'd with Parkinson's dementia/Lewy Body at UCSF. He's going downhill very rapidly, and I'm always looking for a "cure" or at the very least, something to slow down the progression as he's only 63 ....... 64 this month. I do very much appreciate your time on this. And I'm so sorry that I seemed impatient. I'm actually not. Just misunderstood how this works. Best to you. Michelle
  7. Pronoran

    Dear Mark, I'm terribly sorry, I meant this for the moderator as I felt they missed my question. It was showing "waiting for approval by a moderator" or something like that. I feel terrible ... Please accept my apology and my best to you and your family. Take care, Michelle
  8. Pronoran

    Wondering if any person has read my question? Is there a problem? Thanks, Michelle Bechtol
  9. Pronoran

    Dear Mark, Doing a little reading and discovered "Pronoran" for Parkinson's disease helps with cognitive issues and more. My husband is pretty advanced now, after having Parkinson's for 15 years. Doctors think he's developing LBD too. I'm looking to reduce Sinemet and stumbled upon Pronoran but never heard of this medicine before. Can you shine a light on this for me, please? Also, What do you think of the supplement "Prevagen" for cognitive issues? I'm hearing good things!! Thanks for your time!! Michelle
  10. rivastigmine

    Since my husband has Parkinson's Dementia, couldn't hurt to try it, I hope!! Thanks for your reply!
  11. rivastigmine

    Hello Mark, Can you read the attached article and share any thoughts you may have? www.sciencedaily.com/releases/2016/01/160112214405.htm Thanks, Michelle
  12. What they may never tell you

    Brian, Yes we'll try to be patient. I'll let you know! Thanks-- Michelle
  13. What they may never tell you

    oops, just noticed your name is Brian. Hi Brian! LOL!
  14. What they may never tell you

    Hello-- Wish I knew your name so I can address you personally-- I really enjoyed reading this and it has inspired me to go buy some nicotine patches for my husband who suffers with on off crashes all day, every day. Mike (my husband) is in his 15th or so year with Parkinson's -- he's now 62 and has progressed slow until now. He no longer can walk without the aid of a walker and has mild cognitive impairment. Anyhow, your story made me laugh and I felt I could relate in many ways and I'm happy to hear you have found a solution of sorts. So- headed out to get those patches!! Take care, Michelle (Mike's wife)
  15. Side Effects!! Only Side Effects!!

    Thank you so much....and yes it does help. Looks like my hubby will have to drink beer instead of wine!!