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Beau's Mom

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Beau's Mom last won the day on March 30

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About Beau's Mom

  • Rank
    Dianne
  • Birthday 01/23/1953

Profile Information

  • Gender
    Female
  • Location
    Seattle, WA
  • Interests
    Staying happy, joyous and free from limitations set by my own limited thinking. Even with PD, and sometimes because of PD, life can be grand!!!

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  1. Happy to help.
  2. Ndayitund, For me, the snakelike tongue movements were finally resolved by taking donepezil, a medication used for Alzheimer's. An MDS in Seattle diagnosed it as dyskinesia caused by the Sinemet. Dianne
  3. Stress makes all my symptoms worse. I get more dyskinesia watching an intense movie. What works best for me is deep belly breaths. Abdominal Breathing Technique How it’s done: With one hand on the chest and the other on the belly, take a deep breath in through the nose, ensuring the diaphragm (not the chest) inflates with enough air to create a stretch in the lungs. The goal: Six to 10 deep, slow breaths per minute for 10 minutes each day to experience immediate reductions to heart rate and blood pressure, McConnell says. Keep at it for six to eight weeks, and those benefits might stick around even longer. Dianne
  4. Serenity, I suggest you track that is precise.your symptoms over time so that when your insurance starts you can hand your new PCP a printout The best free website for that is www.patientslikme.org You can use their standardized measures for tracking PD symptoms--the same ones an MDS or neurologist uses. There is a pre-visit form that shows via graphs and charts how your symptoms are changing over time. At the very least, keeping track can make you feel less anxiety. A question: Did your symptoms start on one side of your body? It is typical of PD to start one one side. Over time, symptoms affect both sides. By the time I was diagnosed, mine had spread to both sides of my body. Dianne
  5. Good morning to all. I've had a rough time this past week because it was the three-month anniversary of my son's death, followed by what would have been his 35th birthday Then Sunday was my first Mothers Day without him. I am getting a lot of emotional support and professional help during this time of deep grief. Tomorrow I'm having brunch with my Parkinson's support group to celebrate.a woman's 30 years of living with PD. I haven't been able to attend on Tuesday evenings for several months. It will be good to see old friends who understand me and my disease. I'm going to feel better soon. I have a long history of resilience. Blessings to all! Dianne
  6. A lesson learned the hard way always sticks better for me. Glad you didn't break any bones. Dianne
  7. Marcia, I often resist exercise myself. My best friend since 8th grade, Sue Who, showed me her purple Fitbit yesterday, I loved the color, if not the concept of walking 40,000 steps a day. Dianne
  8. Mornin', jb. Abilene is 140 miles west of Fort s. Worth, TX where I lived for 30 years. Way fewer trees because the more west you go, the drier it gets. Thanks for the smiles; a dose of your consistent warmth and storytelling is a great way to start any morning. Wishing each of you a day of contentment and blessings, big and small. Look for them; they are in sight. Dianne
  9. I hope you find joy in the Men's Retreat and are able to fish as often as you can, Stump! Dianne
  10. Welcome home, jb.I'm irritated with my government today, plus a few doctors and my landlord, so I am glad to know you are safely back in Canada. Dianne
  11. otolorin, there is not less risk of developing dyskinesia with Duopa. It is carb/levo in a consistently infused gel. Dyskinesia can be fine-tuned much more easily with the pump than with pills. If I'm having dyskinesia, my MDS can lower my dose to minimize dyskinesia. What Duopa means for me is no off time during the day, no med alarms going off every 2 1/2 hours to remind me to take carb/levo, which I would often turn off and forget to take the pill anyway. The Duopa pump was suggested to me after one year of oral carb/levo (2012) when it was still in clinical trials. I was not allowed to participate in the trials and had to wait until November 2015 to get the pump after it was FDA approved. I had to live without it for two months due to the development of duodenal ulcers and just got it back last week. I already feel better. Mihai, your turn. Dianne 9
  12. Watching the first episode now. Thanks. Dianne
  13. Stump, would you be willing to share your Lemon Poppy Seed Gluten-free Bread recipe? If Brillo's dad had his own treats, he might stay away from the stuff that's not good for him. Dianne
  14. I like your plan, jb. Good morning to all. T minus 21 hours, 45 minutes to surgery time tomorrow at 8:30 AM PDT. On Saturday at 7:30 AM, I will restart Duopa infusion. Here's to more consistent energy and wearing off only once a day at bedtime! Dianne
  15. I just listened to a free Parkinson's Foundation ExpertBriefing titled Is It Related to PD? Runny Noses, Skin Changes and Overlooked PD Symptoms. It will be available for viewing on April 25 at www.pdf.org. It was very informative about all aspects of PD. Dianne