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Beau's Mom

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Beau's Mom last won the day on March 15

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About Beau's Mom

  • Rank
    Dianne
  • Birthday 01/23/1953

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  • Gender
    Female
  • Location
    Seattle, WA
  • Interests
    Staying happy, joyous and free from limitations set by my own limited thinking. Even with PD, and sometimes because of PD, life can be grand!!!

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  1. Dr. Okun, I had an overnight oxygen sat test done; it showed no problems. After more research, I'm convinced these are myoclonic jerks. They are occurring with greater frequency throughout the day. Can you tell me if anything can be done to relieve them? Dianne
  2. Beau's Mom

    Ask a Physical Therapist?

    We could all write to the Administrators and ask for that. We used to have an Ask the Dietitian (or was it Ask the Nutritionist?). It never hurts to ask. Dianne
  3. Beau's Mom

    Missing Meals?

    Linda, I'm happy to report that my rooftop Pea Patch is chock-full of spinach, mustard greens, arugula, scallions, green beans, miners lettuce, Vietnamese coriander, purple bok choy, Foxley and lemon thyme, parsley, tomatoes and two kinds of potatoes. Organic produce is so much more delicious than what one finds in the produce aisle at the supermarket. Fresh from the garden is even better. Dianne
  4. Beau's Mom

    Missing Meals?

    In a word, stress. Whether we're aware of it or not, stress (positive or negative) always increases my PD symptoms. Family and caregiver conflicts are the biggest stressors for me. Dianne
  5. Beau's Mom

    Good morning!!

    jb, I will add my wishes for a strong, steady, and wholly successful recovery. Thank you for sharing even the difficult parts with us. The only advice I will offer is that offered to us on each of your posts: Don't be hard on yourself, try your best and stay strong. Dianne
  6. Beau's Mom

    insomnia

    Read up on sleep hygiene. Suggestions are using the bed for sleep and sex only. No TV or electronics in bed. The screens put out a type of light that interferes with sleep. Go to bed and wake up at the same time has already been mentioned. If you don't fall to sleep or wake up during the night, try to relax for 20 minutes. If you still can't sleep, get up and read an unexciting book or magazine by lamplight. Do not watch TV or use any electronics. Have a light snack or warm decaffeinated beverage. As soon as you feel sleepy, return to bed and try sleeping again. I use an app named iSleep Easy from the app store. I created a playlist that works for me. There is one titled Wee Hours Rescue for waking up in the middle of the night. This allows me to sleep 7 to 8 hours each night. Sweet dreams! Dianne
  7. Beau's Mom

    Good morning!!

    To jb and all who have undergone DBS, I applaud your strength and courage! It sounds like a good time to practice the principle of One Day (or one moment) at a Time. I wish you all the best life has to offer. ✨ Dianne
  8. Beau's Mom

    Good morning!!

    She-Ra, I smiled at the thought of having a post-it from 12 years ago turn up. It brought to mind how many pieces of paper I've tucked away for safekeeping and never found again. If someone collected them all after I passed, I wonder what they would deduce about my life. Dianne
  9. Beau's Mom

    When do you tell your customers you have PD?

    Andy, Superdecooper's advice is excellent. I have a Type-A personality and it took quite awhile for me to realize that perfection is not a choice when we have PD. I stressed myself into more severe symptoms for several years before I recognized that fear of a disastrous ending kept me from having any joy at all. Pat yourself on the back for having hung on for this long, and for asking for help. We are happy to share our experience, strength, and hope. Dianne
  10. Beau's Mom

    Good morning!!

    Still holding you in a huge hug, jb. Thanks for checking in with us! Dianne
  11. Beau's Mom

    Swedish Hospital

    Robert, Because of insurance issues, my friend did not have DBS at Swedish Hospital in Seattle. It was done at the University of Washington Medical Center. She reports excellent results. She has her programming done at Virginia Mason Medical Center, also in Seattle. I was in Swedish First Hill in March for an infection and received less than stellar care. I hope I never have to be admitted there again. My friend suggests you contact Suzanna Eller at Swedish Neuroscience Specialists. Her number is (206) 320-5331. Dianne
  12. Beau's Mom

    When do you tell your customers you have PD?

    Welcome, Andy from a fellow Seattleite. That's a tough situation to be in. I don't have any immediate answers, rather I have a question. Have you connected with any Seattle PD support groups? There are several available. Many are facilitated by a woman from the NW APDA named Suzanna Eller. She is a great resource. If you would like to get more information please send me a PM (private message) through this Forum. I'd be happy to share local information with you and share my own experience with you. I hope someone who is in the same position as you being self-employed will have suggestions for what to tell your largest customer. Owning a home in Seattle is a huge plus for you right now. Don't panic while you wait for more responses. Beau's Mom (Dianne)
  13. Beau's Mom

    Swedish Hospital

    I live in Seattle and have a friend who had DBS at Swedish last year. I just emailed her to ask permission to share her email address with you. As soon as she gets back to me I will let you know. Dianne
  14. Beau's Mom

    Good morning!!

    Dear jb, A turn of the page caused me to miss the distressing news about your neighbor's mother. You are so filled with kindness it brings tears to my eyes. I'm sure you're in bed early tonight because tomorrow is DBS Day. May angels surround you and your loved ones tomorrow and every day. Dianne
  15. Beau's Mom

    New to Sinemet

    Adam, I suggest you report your symptoms to your doctor. The racing thoughts might be hypomania. There is a c/l pill with only 10 mg of levodopa. Ask your doctor if you need to start even lower to see if you can build up a tolerance to it. PD would be a miserable experience without any medication. Dianne
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