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Beau's Mom

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Beau's Mom last won the day on September 18

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About Beau's Mom

  • Rank
    Dianne
  • Birthday 01/23/1953

Profile Information

  • Gender
    Female
  • Location
    Seattle, WA
  • Interests
    Staying happy, joyous and free from limitations set by my own limited thinking. Even with PD, and sometimes because of PD, life can be grand!!!

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  1. Beau's Mom

    Good morning!!

    Pathfinder, hectic is an understatement! I will be thinking of you and your husband and sending healing energy your way. Dianne
  2. Beau's Mom

    duopa pump

    noah, I am very pleased with my Parkinson's experience on the Duopa gel. I, too, was tired of having oral carb/levo wear off every 2.5 hours. I had biphasic dyskinesia--jerky movements when the medication was at its peak and as it left my system--every dose. The pump can be set very specifically for maximum benefit and the least amount of dyskinesia throughout the day. Please keep us posted as you go through the process. Dianne
  3. Beau's Mom

    Good morning!!

    Good morning to all! Loved your nature story, jb. That was one intelligent coyote, using a catch one, get one free coupon. I'm sure he is very gifted and understands that anvils only exist in cartoons. Dianne
  4. Beau's Mom

    Good morning!!

    jb, I nap every day; sometimes twice. Things will get done or they won't. It feels good to let myself be exactly who and how I am in any given moment. Dianne
  5. Beau's Mom

    Getting Out

    Any stressor, positive or negative, makes both motor and non-motor symptoms worse for me. Stress relief techniques like slow, deep breathing and staying aware of my fearful thinking help me make it through most situations. I stay home more than I did in years past. I'm aware of the dangers of total isolation so I haven't become a complete recluse. Dianne
  6. Beau's Mom

    Good morning!!

    Way to go, Texas Tom! Dianne
  7. Beau's Mom

    Good morning!!

    Good morning to all. I'm slowly crawling out from under a rock of pain caused by a strained muscle in my left shoulder. I've had to take nearly double the amount of muscle relaxer for the past week. I've been using two heating pads--one for my shoulder and one for my right hip. My Parkie life goes on. Fortunately, I have a rich inner life that brings much solace and comfort, and wonderful friends who understand and bring me joy. Dianne
  8. Beau's Mom

    Shower fall!

    Would he be willing to use a shower chair? I've broken enough bones falling to place safety first. Dianne
  9. Beau's Mom

    A little something to think about

    Thanks for sharing this, LAD. Dianne
  10. Beau's Mom

    Good morning!!

    Thank you, jb. Your comment brought a smile to my face. Dianne
  11. Beau's Mom

    Good morning!!

    Peace, I'm glad you found my comments helpful. I have felt that letting-go-of-tension you described. It's amazing how much stress we carry without even knowing it. Give yourself a big hug. It takes courage to feel feelings and accept changes. Dianne
  12. Beau's Mom

    Good morning!!

    Peace, I had similar experiences when I was pushing myself to be as competent and productive as I was before PD. My body couldn't keep up with my desire to maintain the self-image I'd spent my life perfecting. I was exhausted and tears flowed easily. Seeing a Rehab Psychologist at the local Parkinson's Center of Excellence helped me through the lengthy period of learning to love and accept the revised me. I know the grief process is difficult; it's also unavoidable. Blessings on your journey, Peace. Dianne
  13. Beau's Mom

    Summer adventure season starting

    Stump, on local news stations, they are saying the smoke might start clearing out by 3 PM Wednesday afternoon here in Puget Sound. I sure hope the air quality improves quickly. It is currently unhealthy for all people, not just those with breathing problems. Folks are walking and riding bikes with carbon filter masks on. The owners of my apartment building have stopped pumping in the outside air and turned the air conditioning on in the hallways, disproving their claim of the past two years that the hallways have never been heated or air-conditioned. At any rate, I'm glad to know you've enjoyed your vacation. Western Washington will welcome you home tomorrow. Dianne
  14. Beau's Mom

    Good morning!!

    Good morning, jb and all who read this thread. I am better than good; I am at peace with every person and situation in my life so far today. Of course, that is not always true, I am fearful at times, and frustrated at other times. Thankfully, those times don't last. I went to Rock Steady Boxing again yesterday. We had ordered T-shirts and were happy to find they had arrived. My current caregiver takes me 2-3 days a week. She keeps me from falling by holding me with a gait belt. My feet shake inside my shoes these days, and my MDS has told me in no uncertain terms that I am not to fall again. I find I am steadier and stride more boldly forward than was the case six weeks ago. I have generally less pain and more stamina. I have a video and a picture to share if anyone (perhaps LAD?) could tell me which program we can use to upload them. Over the years it has changed a couple of times. I read some slides from the WPC 2016 online yesterday. The topic was non-motor symptoms. The presenter asked the question, "Does your MDS focus primarily on motor symptoms?" I was neither surprised nor dismayed to note that my non-motor symptoms are progressing along with tremor, rigidity, and bradykinesia. For example, I experience more apathy and slowed cognition than in the past. I have much more difficulty with my autonomic function now. My body can't maintain the equilibrium of blood pressure and temperature any longer. When I see my MDS in September, I will make sure we talk about both motor and non-motor symptoms! The technical term is dysautonomia if you care to research it. People without PD can experience it, too. Wishing you all inner peace with touches of joy. Dianne
  15. Beau's Mom

    Struggling with family relationships

    I am learning to listen to my body and treat myself with kindness. If someone is disappointed when I say I have to stop or rest, I let them have their feelings and do what is best for me. I have more energy for the people and activities that bring me joy when I stop worrying about others opinions. Dianne
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