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Beau's Mom

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Beau's Mom last won the day on March 15

Beau's Mom had the most liked content!

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About Beau's Mom

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  • Birthday 01/23/1953

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    Seattle, WA
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    Staying happy, joyous and free from limitations set by my own limited thinking. Even with PD, and sometimes because of PD, life can be grand!!!

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  1. Good morning!!

    A partly cloudy day turned into light rain showers this evening in Seattle. One of my caregivers stopped working with me abruptly last week after a devastating third cancer diagnosis. Please pray for Debbie Flannery. As to your statement, jb:
  2. Thanks for sharing this. There are similar microfibers in fish and shellfish from the waters of Puget Sound where I live, so we are eating plastic as well. I don't know if it's related to PD or not. I stopped using bottled water years ago. I try to buy natural fiber clothing, sheets and towels because the microfibers break down and are washed down the drain. Dianne
  3. Single with PD

    I discussed the experience of dyskinesia at the peak of the carb/levo dose as well as when a dose is wearing off. He called it biphasic dyskinesia. I had it until I began using Duopa gel and stopped oral carb/levo. I have recently noticed tremors in my feet and ankles. It affects my balance even though I always use my walker. Very sturdy shoes help. Dianne
  4. Reaction to increased Levodopa

    Sherrie, the dyskinesia I experienced in 2012 was due to having been prescribed way too much carbidopa/levodopa for several weeks. When the dosage was suddenly reduced, my body reacted with more severe dyskinesia than I had when the dose was too high. I later learned that I have biphasic dyskinesia; I become dyskinetic at the peak of the c/l dose and as the c/l leaves my body. Dianne
  5. Recent Diagnosis, and a lot of confusion

    Dr. Okun, the MDS who answers questions in the Ask the Doctor section of this forum, is in Florida. He could point you in the right direction. Dianne
  6. Sinemet Question

    Sinemet can control symptoms for several years. You could ask Dr. Okun in the Ask the Doctor part of the Forum for a more complete answer. Exercise is best for delaying disease progression. PD is a snowflake disease, with each person reacting and progressing differently. Dianne
  7. Recent Diagnosis, and a lot of confusion

    Welcome, Nikki. You've been on a merry-go-round in the past year! It sounds like you need to see a Movement Disorders Specialist (MDS) to get things sorted out. Check to see if your insurance will cover one. MDS are neurologists with extra years of training in PD and other movement disorders. You can call the PD Helpline listed on the home page of this website to get assistance in finding one that your insurance will cover. Best wishes, Dianne
  8. Good morning!!

    O happy day when you were born, jb! Dianne
  9. Good morning!!

    Good afternoon. Somehow the morning slipped away. LAD, your son is very talented. I enjoyed his singing. It is amazing how quickly he can switch from one song to the next without missing a beat! Sheila, I sure can relate to the PD progression topic. Breaking out of the isolation is difficult for me, too. I was released from the hospital last evening after several days of IV antibiotics for an infection around the site of my peg-j tube. It was a very strange experience. They had only a few items on the menu that I could eat. The first doctor I saw told me I would have to have food brought in from home because they are not equipped to feed patients with special dietary needs. Fortunately one of my caregivers was able to bring a few items in. I was in isolation so there was no way to heat the food up once it was in my room. I lived on gluten-free banana muffins and peanut butter cookies, tangerines, and sliced bananas with lukewarm tea for three days. I had a stunning view of downtown Seattle and Elliot Bay from the window in my room. I will try to upload a picture if I can figure it out. JB, I feel sad about the delay in your DBS surgery. I've seen it help many people. It will happen exactly when it is meant to. Hang in there. Dianne
  10. Q About Arm Swing

    The stiffness in my right shoulder predated my diagnosis by two years. The lack of arm swing predated my diagnosis by 12 years. The muscles were gradually tightening the entire time. I began PD specific physical therapy shortly after my 2010 diagnosis. Although neither arm was swinging anymore, I was able to regain arm swing through PT and at-home exercises. Ask for a referral to a PT who specializes in PD. Some lost function can be regained. Dianne
  11. Loss of Smell?

    In a word, no. Dianne
  12. Life Insurance Qs

    Is the GVUL life insurance that pays after you die or is it Long Term Care insurance? If you've been diagnosed, I doubt any company would sell you a new policy that doesn't cost an arm and a leg. Dianne
  13. Botox injections, anyone?

    Yes, I use Duopa (carb/levo gel) and take Baclofen 4x a day. When the pain gets bad enough, your fear of needles will lessen, I'm sure. Don't forget to use deep breathing techniques, meditation/relaxation podcasts and exercise to help prevent dystonia. I use all of the above, plus CBD oil, PT, and prescription pain medication for relief from the pain from dystonia. I have been dealing with dystonia since well before my diagnosis in 2010. Dianne
  14. Bright side I guess

    Stump, I'm happy to hear everyone is on the mend. Take good care. Dianne
  15. Jonny, may I quote you on this? Well, I guess I just did! Dianne