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miracleseeker

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miracleseeker last won the day on June 24

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  1. Bladder control

    Depends is not that thick. I use Abena pull ups with a tena pull up over it for mom. She also sleeps on the disposable liners. I got tired of washing the real ones. It's a daily thing. She will leak out every night without fail but more protection means less mess to clean up. Sorry to interrupt.
  2. Best way to lift someone off the floor when you are alone

    My mom was in a daycare for 8 years and it was not a good experience. Anytime I complained or questioned something that was done they would see me as a trouble maker. I felt helpless because I couldn't afford to hire someone to watch my mom full time back then. I would take her there and a helper would pick her up and stay with her until I got home from work. 3 years ago they kicked her out. They said my mom was not benefiting from being there so they felt it would be in her best interest to leave them even if it means she would end up in a home. Sorry to disappoint them but she's still in MY home. I saw one of the workers yell at my mom when she wouldn't eat when that woman fed her. She didn't know I was behind them. As I got closer and she saw me she then changed her tone and became very loving. I was sick to my stomach. I hope you will have better luck with your place.
  3. Best way to lift someone off the floor when you are alone

    Awesome! Thanks a bunch.
  4. Best way to lift someone off the floor when you are alone

    Hi Moops! I would kiss you if I can reach you right now. This is genius!!! I always wanted something like this but couldn't find it. The closest thing I could think of was an inflatable bed that you can put under the person and have it pump that person to at least a sitting position but they could fall due to balance problems. I really need to look this up but are you in the UK where this video seems originate? I'll have to check out the cost and if it can ship to the U.S. where I am. Welcome to the forum and thank you so much for bringing this to my attention. I'm sure others here will find this a life saver too. Oh.. and this tip about electrolyte sounds sensible enough but I always give my mom Gatorade and it doesn't really give her any energy. Darn! I would love more from you though. Don't be shy and every advice is welcomed.
  5. It makes me wonder what happens to the body to take a drug that was made for one problem and you take it for another. For example people were told to take a high blood pressure pill called Dynacirc to slow down PD. Wouldn't that lower the BP and cause you to feel dizzy and pass out if it wasn't high to begin with? What if one day someone discovers that C/L can help with something else. How would people feel taking the C/L when they don't have a dopamine deficiency?
  6. Too much or too little Stalevo?

    Mark, My mom is constantly walking with her knees bent. Is this a sign of too much or too little Stalevo? I have increased it slightly and it didn't seem to help after 2 weeks. It's all too confusing to know what the signs are for when you need more or less. Do we go up or down? Any clue or personal experience with that?
  7. Restore Gold

    That's wonderful!!! Could people on this forum who cannot afford it send you a PM to get them for free?
  8. Restore Gold

    We are all busy people but we all try and take time out to help and give opinions when we can. You have a lot of knowledge and you do extensive research on this disease. We can really learn from what you know but if you can do so without selling your products then it's a win win for us all. However if you feel you have better use of your time then we understand.
  9. Restore Gold

    I hear what you are saying Fred. Hopefully you can even decrease the C/L although I remember you said before that you didn't want to rock the boat so you will keep things the way they are. Time will tell how this will work out. More power to you. Dave - I know you have gone through quite a bit of trial and error to finally fine tune the meds to keep you going. You also have one of the best doctors out there. Please keep us in the loop of what he knows is coming through the pipeline that he would be enthusiastic about for the rest of us. Thanks.
  10. Morphine in hospice care

    Afroney - you give hope to others in hospice. Stay strong.
  11. Restore Gold

    We know you mean well but Dave has an excellent point here. Your opinion is tainted due to your affiliation with the company that makes it so sorry about that.
  12. Restore Gold

    Fred, My mom was on less PD meds than you before she hit the 5 year mark. I think the true test for you is how you will progress from here on out with or without UDCA. Good luck to you!
  13. Restore Gold

    Worthless opinion #2 - I think your size matters too. If you weigh less than 100 pounds you may feel it more than someone who weighs 200 pounds. Everything factors in when it is taken internally.
  14. Restore Gold

    If this company is already in the red then this supplement will be gone sooner or later. What happens to everyone who think they benefit from it including yourself? Aside from the cost of buying and maintaining this there is also the likelihood of it getting taken away just as your body is getting used to it. People who don't care about their symptoms or it progressing shouldn't take it? That would be no one so what you are saying then is that everyone should take it if they care. Looks like TUDCA would be more cost effective and readily available IF anyone chose to take it. Good luck.
  15. Restore Gold

    The same can be said about the people who think they show improvements from taking this. They also can be on other medications/supplements that are making them feel better. I'm not dismissing this supplement but I just think people should not join the band wagon and or trick their brains into thinking it works because it's suppose to work based on other's testimony. $100 a bottle is nothing to sneeze at. People are desperate to find relief. Unless there is a money back guarantee for this purchase I don't think it's something I would consider for my mom.
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