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miracleseeker last won the day on January 11

miracleseeker had the most liked content!

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About miracleseeker

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  1. miracleseeker


    Low dose of agonist? That is worse than taking C/L for people who are getting drowsy from their PD medication right?
  2. miracleseeker

    Does your size matter?

    Are there other signs to look for in addition to dyskinesia to show that the dose should be lower? Could excess drowsiness be a good indicator that it's too much now?
  3. miracleseeker

    Does your size matter?

    Dr Okun, My mother has lost a significant amount of weight the past 2 years while still taking the same doses of PD meds. Do you think that should be decreased to account for her bony frame? Should the same 200mg Stalevo for instance work the same for a 90 pound woman vs a 200 pound man?
  4. miracleseeker


    Mark - Do you know when the strip will be available?
  5. miracleseeker

    Good morning!!

    Hi Dianne, Would you free up some space on your PM please? I have to ask you something. Thank you.
  6. miracleseeker

    Medical marijuana?

    Sorry there is no cure. You have been misinformed.
  7. miracleseeker


    Yes he knows the max dose is 28mg but he thought it was too high for anyone to take based on experience and feedback he received from his colleagues and patients. It's been a week since the decrease for my mom and she seems... sleepier than usual but is strange since she lowered the dosage and not increased it. Maybe it will take a few weeks for her body to adjust and I really don't know if it's doing any good for her anyways on this med as a whole. I tried to remove it once a few years ago and she was more confused so I had her back on it again. It's a total mystery to me. Thanks for the info.
  8. miracleseeker

    Sleep Number Bed

    That's something you may need down the road so it can wait I suppose. I'm just afraid of my mom falling off the bed when it's reclined because she has poor balance. Otherwise I think it's pretty useful to have.
  9. miracleseeker

    Sleep Number Bed

    I heard Sleep number beds are very expensive. I was thinking of getting a memory foam bed with the adjustable base for mom. If you can afford it I think it's a good idea and fun too.
  10. miracleseeker


    Mark, My mom has been on 28mg XR for the past 3 years. A new family doc saw my mom yesterday at the clinic she goes to and he told me that 28mg was too much for anyone to take. He said he does not know of another doc that prescribes such a high dose so he wrote a new prescription for 21mg instead. Do you think there is much difference from 28 to 21? How long does it last in the body if I took it away from her. Is it gone after a day or does it linger for a few days? Do you have much experience with this drug? What are some common side effects you know about it? Thank you.
  11. miracleseeker

    Parkinson's Disease & Dementia

    Maral - I don't know what to say other than take care. Your husband had a great wife and companion for many years. He will indeed watch over you I'm sure. Be well.
  12. miracleseeker

    Space is your best friend

    There are only so many places that have good weather so that's not something you can do much about. Having support to me is a no brainer. The CG or PWP cannot do it alone sooner or later.
  13. miracleseeker

    Space is your best friend

    My way of thinking has always been to be close to family so they can help when needed. Hired help has been a nightmare for me from the start. I have become skeptical of the level of care they give to my mom and how the truth is that they don't give a damn about her. Carpet vs floors. Love floors for the look but I do like the feel of carpet and some are fine with wheelchairs. It's easier to keep floors clean which is why I only have floors in my house. However... they can be slippery. This is a very important topic indeed. I hope more people will chime in. Thanks.
  14. miracleseeker

    Space is your best friend

    My aunt barked after finding out that a spicy chicken sandwich at McDonalds was not under a $1. So imagine her moving out of her house of 30 years to somewhere that costs thousands a month. Reality bites.
  15. miracleseeker

    Space is your best friend

    My aunt's solution to me was that they will move to a nursing home. Really? Don't they cost over $50K a year for a private facility? People say all kinds of things because they don't think it will ever happen to them so they give an answer that is easier said than done. I know size is limited for a lot of folks but like Genden said at least see what can be done to make life easier.