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italy52

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About italy52

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  • Birthday 10/12/1952

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  1. I started taking sinemet in 2012 10/100 3 x a day. now taking 25/100 1 1/2 tabs 3 x a day. The dyskinisa started in 2016.

    1. otolorin

      otolorin

      italy52,

      I read on this forum that mucuna puriens does not frequently cause dyskinesia like sinemet.But the problem with mucuna is how to measure the right dose that will work for you.And mucnu does not cross the blood brain barrier,so some people still take sinemet with it,at a lower dose.I am thinking of switching to mucuna p.You can ask Dr Okun and the pharmacist on this forum for other options available to control or prevent dyskinesia.One thing that baffles me is that some people have been using sinemet for more than 10years without developing dyskinesia and some have only been on it for a year before developing dyskinesia..Try and message Dr Okun.

  2. Restore Gold

    Thank You for every ones responds. It seems from what I am hearing, RG is helping more with Tremors. I don't have Tremors. In 2008 I started having trouble writing. My handwriting got so bad at times it would get smaller and smaller till almost a straight line. I had weekness in my right hand. Then my right arm wasn't swinging. It was getting harder to move. At first I thought I had a brain Tumor. I didn't know much about PD. No one in my family had it. Funny thing, a year after I was diagnosed , My 84 yr old Aunt , at the time and my Mother was also diagnosed with PD. Their symptoms were different then me. They had Tremors and problems walking. My Aunt passed away last year. My mom is still going. My biggest problem now is the dyskinesia and dystonia I get 2 1/2 hrs after I take my Sinemet . It will last about 1/2 hour. I tried Amantadine. Didn't work for me. Tried taking less dose of sinemet more frequent. Made it worse. Would love to figure out what I can do for the dyskinesia and dystonia. NP.org had an article on Mucuna Pruriens that sounded promising.
  3. Restore Gold

    Thank you MrFritz for the info. It was very informative. I was diagnosed with Pd in 2008. Held off on medicine for 4 yrs. Now after being on Sinemet for 5yrs, I have dyskinesia. I am keeping the sinemet as low as I can so I can still move. I am sure this story isn't new to anyone with PD. I only take 25/100 carbo-dopa 1 1/2 pills 3x day. Wonder if It's not to late for me. Wouldn't hurt to try! Thanks again
  4. Restore Gold

    Anyone using Restore Gold? or know anything about it. Videos claim it slows the progression of PD and helps with some symptoms.
  5. STEMCELL TREATMENT

    Saw 5 videos on facebook about stemcell treatment. It showed how people were almost cured from parkinson's and how their life changed after having it done. If its so great , why isn't it talked about more at the parkinson's websites?
  6. CBD Oil

    Been reading a lot about CBD Oil and its benefits. I want to start it for my Dystonia and dyskinsia. But there are so many choices of websites and kinds of oils. If you are taking it or know someone taking, can you please tell me what kind works for your parkinson's and a good website to purchase it. ty
  7. Cannabis CBD Oil

    I have been reading so much about CBD oil. Mostly good. I want to try it for my Dyskinesia and cramping. I don't have tremors. There are so many choices out there. Not sure whats the best kind for PD and where is the best place to purchase it. Anybody got some suggestions?
  8. starting sinemet

    I finally told my doctor where he can put the requip and miraplex and i was going to start sinemet. Well not exactly in those words, but you get the jest. Iwent to pick upp my meds yesterday and they didn't have them in stock. So they ordered them. This is Kaiser. The doctor is starting me on the lowest mg. 10mg/ something. I am to take one for 4 days then increase to 1 2x day then 1 3x day. I was hoping I could get some feed back on what to expect on how i might feel. Does anyone get nausea? and if so what do you take for it? What other side effects is anyone getting and what are you taking for them? thanks
  9. Hi!

    I'm still figuring out how this forum works.

    Regarding sinemet - if you have symptoms that impact your life, it doesn't matter how young you are. Check the Ask the Doctor section and you'll see that he says many many neurologists are going straight to sinemet - that it doesn't cause PD to progress and may in fact slow it down. See you in the forums. Go...

  10. vitamins/minerals

    There was a member who mentioned this in one of her answeres to another member. this is the first time I have heard it mentioned. Are you suppose to have more or less of vit b12,calcium and vit d. and I want to thank everyone who has posted on this web site. It has been sooooooo informative to me. I was so afraid to start medicine because of the info the dr, was feeding me.and was hoping for a cure before i had to start. Last week I finally got the courage to ask him to start meds. I wanted to start sinemet. He convinced me that i was too young to start and to take requip. Big mistake! made me feel sick and was crying at a drop of a hat. After reading all the posts I realize I have cheated myself and family of a better quality of life. next week i am going back to the dr, and tell him i am starting sinemet!
  11. Hi netgypsy's,

    Your responses are so informative.Thank you I was dignosed 4yrs ago. my biggest problem is writting. I have been putting off medication because of the false info the dr gave me..Last week the dr convinced me to start requip.

    He said I was too young to use senimet.It was awful. sick and crying all the time. never heard of monitoring vit/min. can you explain? hope to...

  12. herbal medications

    THANK YOU FOR THE INFO. SOUNDS LIKE MANY PEOPLE ARE HAPPY WITH SINEMET. WHICH IS BETTER FOR MOST, SINEMET OR SINEMET CR? AND DID YOU HAVE SIDE EFFECTS WHEN YOU FIRST STARTED IT?
  13. herbal medications

    HAS ANYONE HEARD OF OR TRIED THIS HERBAL MEDICINE? THE WEBSITE , PARKOTAB.COM, CLAIM YOU GET INSTANT RELIEF ESPECIALLY FOR THE STIFFINESS WITHOUT SIDE EFFECT. ALWAYS LIERY WHEN IT SOUNDS TO GOOD TO BE TRUE. TRIED MIRAPLEX AND WAS SO SICK. THE SIDE EFFECTS WERE WORSE THEN THE PROBLEM. TODAY I STARTED ON A VERY LOW DOSE OF ROPINIROLE. AFRAID I AM GOING TO HAVE THE SAME RESULTS WHEN I INCREASE THE DOSAGE. ANYONE HAVE GOOD RESULTS ON ROPINIROLE? DOCTOR SAIDS I AM TOO YOUNG (58YRS) TO START SINEMET BECAUSE IT LOSES IT AFFECT AFTER 5 OR 10YRS. I AM AT THE VERY EARLY STAGES. ONLY AFFECTING MY RIGHT SIDE. SLOW MOTION, CAN HARDLY WRITE. NO TREMORS YET.
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