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derwin88

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About derwin88

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    Member
  • Birthday 11/20/1960

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  • Gender
    Male
  • Location
    Lafayette,La

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  • Yahoo
    Derwin244@yahoo.com
  1. This is crazy I went on disablility 1/1/2015 had a term life policy ,I didn't realize that it disability rider filed and it was harder to proof than SSD but it went through. Now since I had DBS surgery they are giving me grieve. And like I said this just pays the insurance policy! Any advice on how to handle ? Oh and the the programmer MDS Dr is also kind of missing up things with her verbage !
  2. Anybody had DBS still taken or using dopamine agonists i.e. neupro.or requip? My MDS said not to put neupro patch but find I'm having spasms without just wondering?
  3. First surgery recovery is about a week , 2nd is not so bad I don't work but you just can't lift anything over like ten pounds for 3-4 weeks! Oh by the way if you cough or sneeze you may hear a gurgle in your head it's normal it is air from displaced cranial fluids will disapate quickly but nobody tells of me and scared me the first time!
  4. Just had DBS @ Baylor in Houston! Everything going well, tweaking program for next few months but glad I did it works great!
  5. That sounds good about what I had anticipated. The visit I had off Meds was bad, kind of like a dog and pony show! Filmed off meds and then took Meds waited for them to kick in and repeated the fun! Did they say anything about how long after the implants before you can drive? I also do rock steady at our getaway in the mountains! Coming back down to the flatlands I'll have to see if I can find a place to box. Also enjoy riding my bike , it helps a lot with my gait. My tremors are not that bad it's the dystonia that kicks my butt mainly left side, from my left ear to my big toe. I take so much Meds and muscle relaxers, I end up falling asleep in the afternoon, so it will be nice to be able to cut back on Meds!
  6. Wonder how the vetting process goes and what all to expect .? Last visit to MDS Dr off Meds for two days frightened the heck out of me , first time off Meds since diagnosed in Nov 2010. Don't want to do that again, how is the pre testing and psych evaluation? What do I need to know going in?
  7. Take balofen 20mg am 20mg at noon and 40mg at nite to help sleep also just started dry needle theorpy and love it! Have done Botox for 3years and has become less effective!
  8. Has anybody hit the donut hole I did , first year on medicare have aarp supp and rx didn't under stand about donut hole til Neupro and Stalevo rx went into orbit!
  9. And also just thought about Botox ?
  10. ALT-56 /AST-44 it concerned my GP since she knows I don't drink or use drugs! Are there any other medicine to be concerned about ie mobic or typical MDS medicine
  11. Any issue with Baclofin ,Sinemet or any of the typical,MDS drugs causing elevated Liver enzymes
  12. I had real good results from acupuncture, it just was not lasting. Saw a therapist in Lafayette,La once a week for 6 mos always felt good rite after, just got to be expensive! When we were traveling ran across a good clinic in Asheville, people tried to really gear it up around the PD!
  13. I was diagnosed in 2010 with PD. Tremors are controlled with Meds but my Dystonia has been difficult to treat, up until recently Meds and botox have worked pretty good but recently last two rounds of botox has had very limited results. Dystonia is mainly on my left side effecting shoulder leg and most my foot causing severe cramping and curling in my foot. Datscan done about 10mos ago how both sides of my brain are effected. What options should I look into?
  14. I'm having trouble being fitted for new glasses, I have Dystonia mainly on my left side. It seems my left eye draws in and down mot lining up with my other eye is this common ?
  15. Rick try Botox first , I have Dystonia mostly on my left side. I get Botox injections in my EDL which makes the toes curl, forearm and shoulder. I also wear minimalus running shores like vibram barefoots or vivo barefoots! I get from a company called active gear! Ask your Neuro Dr about the Botox!