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McCall last won the day on April 4 2014

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About McCall

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  1. McCall

    PD Guy - Shot Thru The Heart

    I am curious if any of you men with ED and PD ever seriously thought about penile implants? This is a serious question. My husband and I thought about it, and it might have helped for another year or two but he could not get himself to do it which since I had gotten BA for him, kind of bugged me. But it turned out just as well since my physical condition deteriorated to the point sex would have been very painful for me.
  2. McCall


    One of my husbands first symptoms was bad balance and falls. This was before he was diagnosed with anything. He has been on meds now for 7 years but they never did much for the balance. watching him walk through the house reminds me of a pin-ball game. trouble is I am not much better on balance and I don't have PD though I have several other unpleasant things.
  3. McCall

    I think I have parkinsons

    The smell thing is not a hallmark of PD. my husband was diagnosed with PD 7 years ago now and still has an acute sense of smell.
  4. McCall

    Peeved PreClinical Parkinson's Person

    I was the first to notice symptoms in my husband's case, he tended to shake a lot when under stress, or hard physical labor, I commented to my son that I wondered if he had PD. So when my husband went to see our Dr. she did a couple tests, mainly the cogwheel test and found he had that and told him he had PD. He also had been losing his balance a lot. I made an apt. for him with the head or neurology at Brigham and women's in Boston. He confirmed the PD again with just a few in office tests so in his case there was no long time till diagnosis. He was 62 than, he is 68 now. Things have progressed quite a bit but he can still eat by himself, and toilet and shower. His balance is quite bad now but he seldom uses his cane or wheelchair, except when out. He has swallowing problems as well and a lot of stiffness, constipation, and urinary incontinence, some memory problems etc. I know that some people have a great deal of trouble getting a diagnosis, but many others get it first thing.
  5. McCall

    Social Security Disability...who has been denied w/PD?

    I suggest that the OP apply for the SSDI anyway, because if you are eventually approved you will get back pay to the time you applied, and if you don't get approved then you start collecting at 66 anyway.
  6. McCall

    Space is your best friend

    When my husband finally retired, we moved from the small house we had on Cape Cod to a 2500 sq.ft. house three stories brick, in WV for 36K. I had bought it 5 years earlier in anticipation. The idea was that my youngest son and his family would move and live with us to take care of us, since we both needed assistance. That was one reason we moved the other was financial since we now live on SS alone
  7. McCall


    Fortunately for us my husband made it almost to full SS time before he had to leave work. So he did not have to apply for SSDI. He just started collecting his regular SS and I then collected spousal benefits against his record. However, applying for benefits is not hard it is the proving with complete medical history that is difficult.
  8. McCall


    By affordable healthcare do you mean Obama care? If so there are not asset restrictions, other than for a subsidy and even then it is income based Not based on Having a house or money in the bank.
  9. My husband was diagnosed in Feb. or 2012 but I think he had it for some time before we realized something was really wrong. He was 62 then and he is still working and driving a 200 mile round trip commute most every day. He is hoping to make it to 68 before retireing but at least 66 which is another year. But you just never know, he is declining slowly but steadily. I wish we could afford for him to stop right now, but we can't.
  10. McCall

    Robin Williams had early PD issues?

    He played the Dr. in Awakenings and he knew about Parkingsons. I can imagine if it were starting to affect his incredible mind, that he might think it was time to go before he was not himself anymore, but it is so horribly sad.
  11. McCall

    Sinemet personality changes?

    For my husband it has been a God send, He has had zero side affects. He had personality changes prior to being diagnosed so not from Medication, fortunately he also changed back again. There is no good reason to delay medication if it will help you live a more normal life.
  12. McCall

    splitting up meds

    you can get a watch that will remind you instead of phone if you like, just look online for alarm watches.
  13. McCall

    Dystonia Cramping - Guy Question

    Talk to a Urologist!
  14. McCall

    So frustrated I threw a temper tantrum!

    I agree with the others that PD does not move that fast and it is either related to your surgery and medications for it, OR you have been misdiagnosed and have in fact something else, likely a Parkinson's plus illness such as PSP or MSA etc. Hopefully it is the first and you are still having problems related to the surgery and meds and it will get better.
  15. McCall

    Working anyone

    Hey Noah, My husband, person with PD, works 40 hours a week plus drives 4 hours round trip a day to get there. He is trying to hang on untill he turns 66 March 28, 2016. He was diagnosed in Feb. of 2012. He is on Stalevo 5 times a day, also muscle relaxer, I forget the name, and Amantidine, he also has Diabetes.