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McCall

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McCall last won the day on April 4 2014

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  1. McCall

    Social Security Disability...who has been denied w/PD?

    I suggest that the OP apply for the SSDI anyway, because if you are eventually approved you will get back pay to the time you applied, and if you don't get approved then you start collecting at 66 anyway.
  2. McCall

    Space is your best friend

    When my husband finally retired, we moved from the small house we had on Cape Cod to a 2500 sq.ft. house three stories brick, in WV for 36K. I had bought it 5 years earlier in anticipation. The idea was that my youngest son and his family would move and live with us to take care of us, since we both needed assistance. That was one reason we moved the other was financial since we now live on SS alone
  3. McCall

    Disability

    Fortunately for us my husband made it almost to full SS time before he had to leave work. So he did not have to apply for SSDI. He just started collecting his regular SS and I then collected spousal benefits against his record. However, applying for benefits is not hard it is the proving with complete medical history that is difficult.
  4. McCall

    AFFORDABLE HEALTHCARE

    By affordable healthcare do you mean Obama care? If so there are not asset restrictions, other than for a subsidy and even then it is income based Not based on Having a house or money in the bank.
  5. My husband was diagnosed in Feb. or 2012 but I think he had it for some time before we realized something was really wrong. He was 62 then and he is still working and driving a 200 mile round trip commute most every day. He is hoping to make it to 68 before retireing but at least 66 which is another year. But you just never know, he is declining slowly but steadily. I wish we could afford for him to stop right now, but we can't.
  6. McCall

    Robin Williams had early PD issues?

    He played the Dr. in Awakenings and he knew about Parkingsons. I can imagine if it were starting to affect his incredible mind, that he might think it was time to go before he was not himself anymore, but it is so horribly sad.
  7. McCall

    Sinemet personality changes?

    For my husband it has been a God send, He has had zero side affects. He had personality changes prior to being diagnosed so not from Medication, fortunately he also changed back again. There is no good reason to delay medication if it will help you live a more normal life.
  8. McCall

    splitting up meds

    you can get a watch that will remind you instead of phone if you like, just look online for alarm watches.
  9. McCall

    Dystonia Cramping - Guy Question

    Talk to a Urologist!
  10. McCall

    So frustrated I threw a temper tantrum!

    I agree with the others that PD does not move that fast and it is either related to your surgery and medications for it, OR you have been misdiagnosed and have in fact something else, likely a Parkinson's plus illness such as PSP or MSA etc. Hopefully it is the first and you are still having problems related to the surgery and meds and it will get better.
  11. McCall

    Working anyone

    Hey Noah, My husband, person with PD, works 40 hours a week plus drives 4 hours round trip a day to get there. He is trying to hang on untill he turns 66 March 28, 2016. He was diagnosed in Feb. of 2012. He is on Stalevo 5 times a day, also muscle relaxer, I forget the name, and Amantidine, he also has Diabetes.
  12. McCall

    Degrees of Parkinson

    while it is true that all levels of the illness exist and it can advance more quickly, It is more likely in such a case to be one of the Parkinsonian syndromes such as PSP or MSA etc.
  13. McCall

    The passing of Casey Kasem

    One day I got a call from the nursing home that my dad was near death and I should come. I lived a couple hours away. I came and when I entered the room he was sitting eating ice cream a nurse was feeding him. He did not recognize me. right after the dr gave him a shot and he went to sleep. At that point the decision was made to discontinue food and water, THe hospice people were that and explained to me this was the best way. So I agreed, I then sat by his bedside, he was never awake again, I sat there for eight days and watched him starve to death. I still now eight years later feel guilty about it, even though I was told that was the best to do, since giving any food or water slows the shutting down of the organs and causes more pain.
  14. McCall

    Questions about Carbidopa Levodopa

    you might ask your Neuro to increase the Carbidopa part of the medication. that is the part to help with Neusea. Perhaps 50/100's?
  15. Yes it is very common that any infection or illness makes the PD symptoms worse, this is especially true of UTI and may cause confusion etc. Even when the patient did not previously show that symptom. Usually things get better after but sometimes it can cause a sudden decline overall that doe not get better.
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