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Gardener last won the day on October 23 2016

Gardener had the most liked content!

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  1. Noah, I started taking 50mg of Trazadone about 2 weeks ago. I'm now sleeping 7-8 hours a night. No side effects so far. I can't believe how much better I feel during the day. After months of 3-4 hours of sleep and sometimes less, I can't believe the difference. I hope it works for you! Gardener
  2. You really need to discuss with your PD doctor. Often insomnia can be addressed by adding PD medication at night. I have been struggling with the same issue and recently started Trazadone 50mg at bedtime. It is working but it has only been about a week so I'm not ready to proclaim success yet. Ambien was also mentioned as a possible solution but my doctor wanted to try Trazadone first. Good luck! Gardener
  3. Hi Shakes, I haven't felt moved to respond to posts lately but your difficulties cognitively are very close to my own so I know what it feels like to lose the person you once were and adjust to the very different person you have become. I'm having a tough time with social interactions whether it is family, friends, or strangers. I feel comfortable in my own surroundings with my husband but beyond that it is hard for me to interact. I have noticed that I do not easily make eye contact and I'm aware that my facial expression is not revealing what I'm feeling inside. I have a hard time coming up with things to say to people so I tend to ask the same questions (boring!!). Unlike Alzheimer disease, I am aware of these difficulties which seems to make the problem worse. I'm quite a bit older than you and can easily avoid social interactions - it must be very difficult for you at your age with a young family. Make sure that the people you are closest with understand that the disease is likely masking your inner feelings and ability to engage socially. Hang in there. Gardener
  4. Hi MM- Interesting discussion. Has Sinemet helped you with tremor? I find it really curious that you don't report any other symptoms. What about non-movement symptoms? I have also been told that a positive Datscan is not conclusive for PD. I've been offered the scan three times by three different MDS but declined as the medication has a profound positive effect on my symptoms and I don't see any point in wasting money (mine or insurance) on a scan. Gardener
  5. Good Morning, My levels of Calcium and Magnesium were borderline high on my last bloodwork check. Doc asked me to go off calcium supplement for three months and do a recheck. The recheck showed a very slight decrease in Calcium level (10.3 to 10.1) and the same Magnesium level. I then put my thinking cap on and realized that it was probably the 2TBS of Milk of Mag. that I take every day for constipation. (It's in my medical chart but Doc did not make the connection.) Is it a problem to have borderline high Magnesium levels and if so, what do you recommend to replace the Milk of Mag. ? I've tried bulk laxatives and the prune juice/applesauce/bran mixture with no success. I drink lots of fluids and get daily exercise but its not enough. Thanks for your help. Gardener
  6. Noah, I'm having the same sleep issues so I was really interested to read your post. I go to bed 8:30-9:00pm. Last dose of Sinemet is a 50/200CR at bedtime. Lay awake for hours, sleep comes 3am or so. So, your expert said to postpone bedtime until later. I'm really tired by 8:30 but being tired and falling asleep are two very different things. I'm going to try the suggestion and will post my results. I've tried the glass of wine idea and it does not bring about sleep for me (not giving up though). I'm hoping that my MDS will prescribe a sleep medication at my next appointment. Sweet dreams, Gardener
  7. Hi SoCalGal, I haven't had DBS, but I have done a lot of experimentation with c/l. For what it's worth, I find that if my brain is used to a particular schedule of c/l then symptoms will break through prior to or close to the next dose. Anxiety or a feeling that I need to take pills is part of that experience. I've gone completely off medication and have found that overall my functioning is impaired but I no longer have the "roller coaster" feelings that I experience when I stick to a strict 3 hour dose schedule. As Roger said, you might want to push through that anxiety and see if you can go longer until the next dose. Best to you, Gardener
  8. Hello Dr. Okun, Of course, there is no way to know for certain if pesticide exposure was the cause of my PD dx, but if it was and pesticide use/exposure was stopped would that slow or stop the progression of the disease? Would continued exposure have any effect on progression? Thank you for the time you take to answer all of our questions. Gardener
  9. I have this also. It doesn't hurt or bother me but it is a curiosity!
  10. Thanks, Benyamin, for putting together this promising information for us. Gardener
  11. Hi John, I had myoclonic jerks of the jaw before dx (I didn't know what they were at the time and referred to them as jaw tremor). The Sinemet took care of them. Recently, I've been experimenting with reducing my medication and have noticed a return of the jaw jerks. They happen most frequently when I am eating or talking. I have come close to cracking my front tooth. I would like to know more about the prevalence of these movements in PD but can find very little information when searching the internet. Do you experience them in your mouth? Take care, Gardener
  12. Hello Dr. Okun, A few months ago I developed a fullness/clicking/echo/ringing in my right ear and doc treated it with prednisone (she said my tube was not draining properly). The prednisone worked quickly and for a couple of months everything was okay but I am now plugged again in the same ear. I don't want to keep taking prednisone for this problem. Could this be PD related? Thank you. Gardener
  13. Hi DayneE, I can understand how restaurant work could be difficult at any stage of PD and especially for a server. SSDI will look at your previous work to see if it might be possible for you to perform a less physical job. Have you thought about trying office or some other type of work? When I was finally dx, I had already been off work for a few years as a full-time caregiver for a family member. My SSD benefit window to apply was to expire in three months so I had to apply. It took a full three years to get approved. My age (58 at the time) helped my case. My attorney said that the Judge would take that into consideration. All in all, it was a very frustrating and sometimes humiliating experience. In retrospect, I think I would have been happier spending those early years engaged in something more productive and enjoyable. When your life is full and balanced, you have less time to dwell on the disease. Best wishes, Gardener
  14. Hi Bill, You will know if the Sinemet is working if you start moving more freely. Your pace may pickup, your arms might swing more, and overall you feel less stiff. I especially notice a difference when walking down my basement steps. You are still on a very low dose so you may not notice a difference until you titrate up. By the way, you have a wonderful attitude about life. Take care, Gardener
  15. NN, Could you elaborate on the tests performed to dx MSA. I surely hope that your gut feeling is wrong. Thanks for sharing. Gardener