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Gardener

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Gardener last won the day on August 16

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About Gardener

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    Advanced Member

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    Female
  • Location
    Ohio

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  1. Gardener

    Working with Parkinson's?

    Hi Everett, Based on everything you wrote, I would bet that you have an excellent chance of working well into your 60s. Sounds like you are doing everything right and your job conditions are ideal. My own experience has taught me that not moving makes most symptoms worse. Good luck. Gardener
  2. Gardener

    Who's on your healthcare team?

    My "team" is a movement disorder specialist and I try to go as little as possible. I really don't like getting sucked into the medical industrial complex. Just another point of view - not meant to be critical of those who like going to the doctor. Gardener
  3. Gardener

    Phantom smells???

    Doesn't everyone with Parkinson's disease also have Lewy Body pathology (not necessarily dementia)? I don't have any visual hallucinations. Gardener
  4. Gardener

    Phantom smells???

    I've been experiencing this phantom smell thing for several months not knowing what was causing it - finally found this thread and its exactly as others have described. I've had a diminished sense of smell for a long time but this is different. This phantom smell (difficult to describe - sweet/smoky) has taken over my olfactory system. Strong smells (like my grandson's diaper, coffee, etc.) will intensify this distortion and almost everything smells like this phantom sweet/smoky smell. For those who responded, will this go away? Gardener
  5. Gardener

    Struggling with family relationships

    Hi Kai, You are right - this has more to do with my own expectations than those of others. I wish I could take care of my grandson so he didn't have to go to daycare and I miss going on sister vacations. When I was diagnosed my younger sister, who has down syndrome, was living with me. She was like a daughter to me but I had to make the difficult decision to have her go with another family member. I don't have visible tremor (I do have internal tremor) so my most troubling symptoms are not apparent to others. Thank you for your thoughts and good luck on this journey. Gardener
  6. Gardener

    Sharp intermittent pains part of PD?

    Hi Ellen, I have unexplained random sharp pains with no explanation but not at the frequency you describe. It must be very uncomfortable. Hope others weigh in on this. Gardener
  7. Gardener

    26m with a few questions

    Hello Namaste, No need to apologize for posting - this is a supportive group and most will take your concerns seriously and do their best to help. Since you have a troubled and stressed past, your symptoms could well be related to other issues. It might be helpful to focus on the four cardinal symptoms of PD: tremor, rigidity, slowness and postural instability. If you begin noticing these symptoms then a trip to a movement disorder specialist might be a good idea. Until then put the thought of Parkinson's disease out of your mind and try to live your life fully. Gardener
  8. Gardener

    Struggling with family relationships

    Thank you all for your responses - there is help in each of them. I'll ask about Rytary at my next appt. And, yes, Sinemet does make me sleepy. Patriot, you are right and that is why I keep pushing myself. One day at a time... Gardener
  9. Seven years from diagnosis I'm struggling with expectations of family and friends. I'm the type of person who doesn't dwell on the disease and have tried to live as normal a life as possible but the fatigue is really getting the best of me and I just don't know how to let others know that I don't have the energy to do the things I have done for so many years. Instead, I keep trying to keep up - maybe because I know if I stop then I'm giving up. I would like to hear from anyone who is a spouse, parent, grandparent, etc. who is dealing with this struggle. Gardener
  10. Gardener

    Do any of you here sleep - I get little or none

    Noah, You might ask your doctor about an increase in the Trazadone. The 100mg worked for a short while for me before my doctor increased it to 150mg. I've been on that dose for a year and it is still working. I hope you find relief soon. Gardener
  11. Gardener

    Morning weakness

    Hi Fred, Are you getting enough sleep? If not, it might take extra dopamine to get you going. Before I started Trazadone (which has been a miracle drug for me to help with sleep) the mornings were really rough. I'm still slow for the first couple of hours after awakening - it seems like that first dose just takes a little longer. Gardener
  12. Gardener

    Ask the Doc

    The subject is "swelling." I have noticed that this has happened to others who have posted a question in the doc forum. It doesn't happen very often - maybe I should just repost the question.
  13. Gardener

    Ask the Doc

    Forum Administrator, If it is only visible to me why does it appear in the doc forum and currently has 46 views? Gardener
  14. Gardener

    prescribed pramipexole

    Hi Fred, In year two after dx I was on a similar dose of Sinemet along with pramipexole. I experienced impulse control issues as well as insomnia. I stopped the pramipexole and slowly shortened the intervals of Sinemet to eliminate wearing off. This strategy has worked well for me. As LAD said, everyone is different and there is probably not too much downside to trying it - just be aware of the potential side effects. Gardener
  15. Gardener

    Ask the Doc

    Thank you, Linda. I'll wait and see what happens next.
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