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Gardener

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Gardener last won the day on March 13

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About Gardener

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    Female
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    Ohio

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  1. Gardener

    Dyskinesia vs Akinesia

    Hi Otolorin, A couple of years ago, I was taking 1,000mg of c/l a day and experienced wiggly feet and involuntary movement in my hand. Over the past two years I've slowly reduced my medication to 650mg and almost never have dyskinesia. I do have more PD symptoms now but I've adjusted and very happy to be on less medication. I have a question for you - do you experience any tremor at all? Gardener
  2. Gardener

    Dyskinesia vs Akinesia

    Hi PD, Maybe these are questions for the Doc, but it is my understanding that dyskinesia can be present with both tremor and non tremor PD types as it is a symptom of excess dopamine. Akinesia is a defining symptom of PD and I believe can be present in both types as well. I am not tremor dominant and have experienced both symptoms. Gardener
  3. Gardener

    Loosing My Mind

    Hi Rayb, I'm afraid I don't have much help to offer but I'm here to lend support. Everyone experiences this disease a little differently and what you describe sounds like apathy. I also struggle with it and find socializing very difficult. Maybe because I am much older than you, I'm not too distressed about it except for the times when it affects those close to me. Have you tried an antidepressant? Some here report that it helps - I tried Celexa for several years and didn't feel much different but it might be worth looking into. Also, you don't say if you are taking medication yet but you might find some relief once your meds are optimized. Hang in there! Gardener
  4. Gardener

    Tremor when nervous?

    Hi Em, Yes, I can relate. The mouth tremor is the symptom that landed me in an MDS office and resulted in a diagnosis on my first visit. The tremor is fine like a shivering. The triggers are feeling cold and social situations when I am talking with someone and try to make eye contact. They are worse at the end of a dose of medication. What are yours like? Take care, Gardener
  5. Gardener

    I think I have parkinsons

    Waruna01, I also have my sense of smell, though somewhat diminished. W01, it is not helpful to continue to categorically state that people who have their sense of smell do not have PD. It simply is not true and both Dr. Okun and many members on this forum have attested to that. Gardener
  6. Gardener

    Feeling worse with Rasageline

    Sinemet - but, if your symptoms are not bad and you are able to exercise it might be worth trying no medication until symptoms affect quality of life. Gardener
  7. Gardener

    Are you happy with your PD healthcare

    Hi John, I'm trying a new MDS on my next appointment. I had a very good experience with the NP who saw me for most of my follow-ups for five years. When she left, I haven't had anyone who I am comfortable with (the doctors I have seen spend 95% of their time typing on the computer - very little eye contact, rushed examination, no scoring of symptoms, and really don't want to hear about non-motor issues). I fear it's only going to get worse. Gardener
  8. Gardener

    Are you happy with your PD healthcare

    Hi John, I haven't tried Comtan or Stalevo but it was mentioned a year or so ago by my MDS. At the time I was having some mild dyskinesia so decided to lower my Sinemet. I was told that the addition of those two drugs might increase dyskinesia. I'll probably bring it up again at my next appointment this summer. I saw the video that you posted to Dr. Okun. That is quite a myoclonic jerk (if that's what it is). I have a single myoclonic jerk of the jaw which was much stronger in intensity before I was dx but with treatment it has nearly disappeared or when it does surface, it is less intense so my teeth are no longer crashing together. When I have them it is almost always at the end of a dose. Let us know if you find out any more about your "jerk." Thanks for reaching out to me - I really appreciate the help especially from someone who has been at this a bit longer than I have. Gardener
  9. Gardener

    Sinemet Question

    Hi Tjon, I have to disagree with the above post - Sinemet is not like Ibuprofen (take only when you have pain). My understanding is that Sinemet has a long duration effect and a short duration effect. It works best if taken on a regular schedule regardless of symptoms at the time of your next dose. Some people (including me) find that it keeps them awake at night and adjust their schedule so that the last dose of the day is not too close to bedtime. I use an extended release at bedtime which seems to help with that problem. I'm in my 7th year since diagnosis and, like Adams, get almost total relief of symptoms unless I'm under stress or very tired. Good luck and keep us posted. Gardener
  10. Gardener

    DAT

    Adam, That's a thorough answer and very helpful though I think that in your last sentence you may have intended to say "It will not tell your doctor if you have Parkinson's ..... My understanding is that the test is not a diagnostic tool for PD. Regards, Gardener
  11. Gardener

    Strange sensations

    Dr. Okun, It's been over a year since I asked about these chill sensations. They have increased since then so I started taking my temperature when they are occurring and discovered that my body temperature is registering between 95 -96.2. Can I assume that my body temperature is causing the chills and, if so, would PD cause fluctuations in body temperature? Thank you for your time - I get so much information from your forum. Gardener
  12. Gardener

    Evening restlessness

    No, I haven't but I'm beginning to develop an educated guess and believe, at least for me, that it is the build-up of medication in my system rather than wearing off. I'm tapering my late afternoon and evening dosage and so far there is some improvement. I especially notice that I'm not flopping around like a fish the first hour or so after going to bed. Need more time to work on this.
  13. Gardener

    Good morning!!

    Thank you "N" for the response. I'll try the gel drops along with the wetting drops - I have worn contacts for almost 50 years but haven't been able to wear them because of this issue. Would love to use them again as my correction is very high.
  14. Gardener

    Good morning!!

    Hi all, I often read this thread but haven't posted here. Anyway, I was interested in the dry eye issue as I have been struggling with this for at least two years. Do you know if it is a side effect of the medication or caused by PD? I also use the wetting drops all day but they really don't help much. My eye doctor wants to prescribe medication for this but the options are expensive and I really don't want to add any more pills to my system. It's one of the most difficult symptoms to deal with. Take care, Gardener
  15. Hi Fred, Trazadone has been around for a long time and was used as an antidepressant but is now more commonly prescribed for insomnia. It has been a life saver for me and since starting it I have been getting 6-8 hours of sleep. Gardener
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