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About scottwh

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    Advanced Member
  • Birthday 04/13/1964

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    philadelphia pa

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187 profile views
  1. What caused your Doc to suggest DBS?

    I had good luck with my dbs the thing to remember is its brain surgery and will take time to recover
  2. Just diagnosed at age 40

    I'm very sorry ,I remember being scared too still-- joint pain? I'm not familiar with that being associated with pd at least not at begining anyone else?
  3. Approved for DBS

    and of course you could have a hard recovery(6 to 12 months) or a easy one (jump up and go) or most likely somewhere in the middle! S
  4. Approved for DBS

    sorry that was a little harsh! my understanding is those symptums that respond to ei dopa will respond to dbs that is unique to the individual and since progression continues those that don't will get worse complicating this is you will be able to exersize more so that may delay progression there is a 2-3% chance the operation will go badly ,that's not high but its not nothing either hope this helps S
  5. Approved for DBS

    lol my speech and balance are much improved what is your objective in scaring people waruna your best source of info is a neuurologist s
  6. Approved for DBS

    When I choose dbs I felt I had nothing to lose the meds where not working I increased dosage and had side effects that required physical therapy the operation was not so bad, did both sides at once, the recovery was long but not longer than i was told it would be the good news is it was very successful,I never thought i would feel this good again so, yes its a gamble but theres a possibility of a big win and the odds are in your favor any questions you have I would be glad to answer S

    My understanding is it always works but your progression continues anyway lol I think 10 yrs is about right It really worked for me but recovery from the surgery is major when they say 3-6 months they mean 3-6 months but for me it meant no more pills or dyskinesia just get up and go again
  8. Balance

    try wearing hiking boots silly but works for me S
  9. Ive had pd for about 10 yrs deep brain about a year ago, no more meds ,what a relief I've recently had a lot of fatigue I've tried nuvigil with some success but wondered what others with pd related are doing thanks in advance S
  10. DBS Benefits & Un-Benefits

    this is totally nutty,do you have any evidence for your claim or is it all a conspiracy
  11. medical marijuana

    ok ill start if you can reduce your simenet dosage its worth it
  12. medical marijuana

    Why not describe your own experience using medical mara I know I would be interested in details of your experience
  13. When to quit work?

    I worked in a foundry as well when I got diagnosis for pd. Have you considered if it is safe for you to remain in that environment,solvents,welding fumes,ect. sorry too add to your worries. S
  14. Taking sinemet, body twitching

    Hi I hate to say but maybe time for second look at your doctor thats a lot of simenet to take in one dose I take half a pill every hour and a half If I took that much id have problems too gluck S
  15. My understanding is loss of smell is a typical parkinsons sympton often a early warning of it S