Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


DaveN last won the day on December 22 2017

DaveN had the most liked content!

Community Reputation

433 Excellent

About DaveN

  • Rank
    Advanced Member

Profile Information

  • Gender
  • Location
    Northern Virginia

Recent Profile Visitors

1,082 profile views
  1. Sleep Number Bed

    My wife and I decided not to purchase the adjutable frame. It’s too expensive $3,000+. That part of the purchase has a no return policy. Way too much money to spend on something you don’t even know if you’ll like. As for the sleep number mattress, we will be buying a new one. We’ve had ours for 15+ years and with the exception with the edge of the bed on my side, it’s like the day we bought it. The newer bed has a better design where I will be less likely to wear out the edge. I sleep walk/sit on the side of the bed, hence I’ve worn out my side of the bed. We’re giving our current sleep number to our oldest daughter. Dave
  2. Sleep Number Bed

    Do any of you have a sleep number bed with the adjustable base? My wife and have had a sleep number for the last 15 years and like it but are considering upgrading to the adjustable base. Looking for reviews and experience with this type of bed as it relates to Parkinson’s. Thanks. Dave

    SmallOwnGuy, I’ve been taking Rytary for several years now. My dosing times are 6:00, 10:30, 3:00, 9:00. As you can see my times are scheduled in a way to not interfere with my meals. The only times I notice when the Rytary is ineffective is when I’m constipated. Let me know if you need anything else. Dave
  4. My input on this subject is going to be rather blunt. If you are unsure about driving in the snow whether you have or do not have PD, do us a favor and stay home. It’s hard enough navigating my daily commute with the drivers who do not know the rules of the road. An unsure driver is a danger to everyone and should refrain from operating a motor vehicle. Dave
  5. What drugs? supplements like inisine?

    Hiker, I've never heard that Azilect causes drowsiness. Lack of sleep will cause it. Azilect can be used as a starter drug and may or may not help with your symptoms. Most tolerate the drug without any side effects. There are exceptions and I'm sure they will add their two cents in. Dave
  6. Evening restlessness

    Gardener, Usually, it shows up in my right hand. My hand will have a mind of its own. It’ll open and close and basically move on its own. It’s sorta of like having restless leg syndrome in my hand. The other day it hit me while driving on a road trip where it primarily was in my shoulders. It’s mostly annoying when it happens. My doctor witnessed it first hand and said it was wearing off dyskinesia. That type of dyskinesia is not common, so yay I’m special. Dave
  7. This & that!

    How are you doing is usually a rhetorical question. Nobody really wants to hear the real answer to the question.
  8. Evening restlessness

    Gardener, I occasionally have this problem here and there. For me it’s associated with wearing off. I take Rytary and when I’m low on dopamine, I experience wearing off dyskinesia. You should touch base with your doctor to see what he thinks. Dave
  9. CWBuddah, Sorry to be blunt but there currently is no cure for Parkinson’s. It progresses slowly in each person at different rates. It normally takes many years before you become disabled from the disease. The only thing known to slow the progression is a vigorous exercise program. The best option to combat the symptoms is to take the prescriptions your doctor gives you when your symptoms begin to disrupt your life. It’s extremely difficult to manage with natural ingredients. Dave
  10. Parkinson's patient abusing opioids?

    If your mother s in pain, your not going to be able to take her pain meds away. Jus because she’s asking them does not mean she is abusing them. The doctors are not going to over prescribe pain meds. All of the doctors can see what she is taking without talking to each other. Based on the current war on opioids, her doctors are going to be very stingy in prescribing them. My suggestion would be to talk to her about your concerns. If she wants to share, great, otherwise leave it be. Dave
  11. New guy here - a journey I'd like to avoid

    S, Sent you a PM in regards to your last post. Dave
  12. Levodopa not really working

    Mical, You need to talk to his doctor. He may need to increase his C/L dose. Tremor is the hardest thing to capture. Dave
  13. Internal Tremors

    I doubt you’re here to really help. Your link is just one abstraction from selling a product. Everyone here is already doing a vigorous excercise program and frankly I don’t see the ladies taking testosterone. Give it a rest. Dave
  14. What caused your Doc to suggest DBS?

    So you say, where’s your stats to say otherwise?
  15. What caused your Doc to suggest DBS?

    Not true. I recently had my spinal cord stimulator replaced, upgraded. The only reason my doctor did a general was because we switched manufactures and there was a chance that the leads would need to be replaced. Next it’ll be done under a local. Replacing the battery is a simple procedure. He usually does battery replacements with a local if they’re not replacing the leads. Dave