• Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


drummergirl last won the day on September 26 2014

drummergirl had the most liked content!

Community Reputation

94 Excellent

About drummergirl

  • Rank
    Advanced Member
  • Birthday 09/06/1960

Profile Information

  • Gender
  • Location
    White River Jct. Vermont
  • Interests
    Spending time outdoors, hiking, snowshoeing. My dogs, my FAMILY, working out, drumming. Working as an educator.

Recent Profile Visitors

273 profile views
  1. One thing I learned going thru the Clonazepam 6 month ordeal was/is to keep a journal. I re read your post and a red light went on for me when you said you felt like your legs were going to give out. So I read my journal and I had 21/2 weeks of feeling like crap, the worst symptom that brought me to my Pcp and Neuro was weak legs, especially in my shins., My tremors are in my legs, not my hands or arms, so leg pain weakness was awful. I thought about the generic Azilect not being as effective for tremor, but didn't connect it to the other crappy symptoms. And as I mentioned before the change to generic Azilect, my pharmacy changed from generic TEVA carb/Levo to a less expensive generic C/L, and I had 3 days of constant tremor. Lost 4lbs. I guess it took a bit to get used to them, I wonder just what that means, when your body initially reacts negatively, is that a warning sign???? I hate DRUGS! Thanks for speaking up and listing your symptoms, being specific is so important. We just had 13" of the white stuff.....Ugh...
  2. An interesting article from 2015'- I tend to be very sensitive to the fillers in medications as well. I was feeling a bit off for a few days when I started the Rasagaline. Plus my pharmacy changed generic brands of carb/levo. They had mixed some in with the old, so I didnt notice it, until I was left with just the new. I have adjusted to both. In a recent University of Cincinnati study published in Neurology, subjects with Parkinson’s Disease were given shots of two supposedly similar medications. They were told that the first was more expensive, and the second was similar in effectiveness but, because of differences in manufacturing, was much cheaper. The overall result was that patients’ motor skills after the first shot were improved 28% compared to the second shot. The one fact that the patients weren’t told: Both shots were actually just saline solution. Study authors believe patients got better because they had very high expectations, which translated into health benefits. There has been a lot of debate about the use of generic drugs vs. brand names. Are generics really as effective? It pays to be informed since, according to the FDA, “nearly 8 in 10 prescriptions filled in the United States are for generic drugs. The use of generic drugs is expected to grow over the next few years as a number of popular drugs come off patent through 2015.” What is the difference between generics and brand names? Is there a time when one is preferable over the other? We spoke with C. Michael White, Pharm.D., Professor and Head, Department of Pharmacy Practice, University of Connecticut, to get an explanation: Q: Why are brand names so much more expensive than generics? A: “Unlike the generic manufacturer, the original pharmaceutical company has to pay for more than just the actual production of that medication. The Tufts Center for the Study of Drug Development estimates that the cost to develop and win marketing approval for a new drug is $2.6 billion. It also pays for research and development for medications that failed in trials and can’t be brought to market. According to the IMS Institute for Healthcare Informatics, generics have saved Americans one trillion dollars in health care savings over the past decade—a current rate of more than one billion dollars in savings every other day.” Q: What happens when a brand name goes generic? A: “At the end of an approximately seven-year period of exclusivity, the FDA allows one specific generic to be the first to market. That generic is given a period of time of exclusivity for about six months. At the end of that time period, any manufacturer that can prove that it can achieve the same drug concentrations in the blood that the brand name does can make a generic. Manufacturers of generics aren’t required to do studies in people to prove safety. It is assumed that if they can achieve same blood concentration, they will achieve same results.” Q: Do generics have to have the same recipe, effect, side effects? A: “The generics have to have the number of milligrams of drug that is included on the label in the pills. You can take it to the bank that that does not vary. In addition, the pill needs to get you within 10 percent above or below the blood concentrations achieved with the brand for the FDA to approve the generic, and in reality, they only usually vary by 3-4 percent in one direction or another. So yes, they are very similar in terms of the active ingredient. It is possible that one generic will get you a 3 percent lower concentration than the brand and another can get you a concentration that is 3 percent above the brand and therefore the two generics can be 6% different from each other. Most people will never notice a difference. “According to the FDA, generic drugs do not need to contain the same inactive ingredients as the brand name product. Inactive ingredients are those that have nothing to do with the therapeutic action of the drug; binding materials, dyes, preservatives, and flavoring agents. That’s why sometimes a pill you have been taking will suddenly look different. It usually means a different manufacturer has made that pill than the one you had before. Also, given individual variations, a person can have an allergic reaction to an inactive ingredient in one generic and not another.”
  3. Hmm, that su***, sorry. I hope you feel better soon and figure out that it's not the generic.
  4. I hear yah on having to find a solution to everything.....I've had enough popping pills for 21 years. I'm waiting to get the go ahead from my insurance for the Duodopa pump. I cant go to bed if I'm having a wearoff, my leg tremors are all or nothing, impossible to sit or lay. So, I pace until meds kick in. I hope the sleep record keeping pays off! Sweet dreams!
  5. I use the Natures Way-it says 530 mg, I take 1 capsule. I've used lavender oils in a diffuser, I can't say it was helpful. I really should try it a few more times for an accurate answer. How did the insomnia specialists visit go?
  6. I was paying $5. now $15. I will check with my pharm for the original coupon.
  7. These look a bit different than the one I was using before it went generic to Rasagiline. Here are three that I found. Hopefully, you can utilize!!|pcrid|95296435744|pkw|azilect coupon|pmt|e|&utm_medium=search&utm_term=azilect coupon&adid=95296435744&matchtype=e&ct_Network=g&SiteTarget=&utm_campaign=uscs&utm_source=google&campaignid=401668264&adgroupid=32808619144&gclid=Cj0KEQjwk-jGBRCbxoPLld_bp-IBEiQAgJaftVWHIyeKNY9Vjqow5TBLH_NDg5LKzyInSfWrL9B_DHwaAitY8P8HAQ
  8. HI Noah, I use Valerian Root, Chamomile and I have tried Lavender essential oil. I have the best results with Valerian Root. I also sometimes use; Calm PRT, from Neuroscience- contains; Rhodiola Rosea root extract, phosphatidylserine enriched soy lecithin, glycine & taurine . You need to get this from a Physician. My naturopath orders it for me. A bit expensive, but it helps. Also, another natural powder that I have taken is; Inositol, made from rice. I get this thru Biotics or Wellevate- a reputable supplement co. my naturopath uses. You can buy inositol at health food stores, I've seen it in pill form. I have not tried the pill form, just the powder. DG
  9. MM- $430. for Azilect? Really?? I only pay $5. now. I was paying $45. with the online coupon they were offering.
  10. Hi MM, Azilect is now available as generic Rasagaline and cheaper. DG
  11. Thanks for this Johnnys I have been reading about this for a while now, as I have started having dyskinesia, now going on 22 years of Carb/levo. Along with the depletion of glutathione, 5HTP, B6, therefore significant muscle loss due to these side effects. Finding western med docs that believe in this or care has been a challenge. Now I see md 's that are naturalopaths. They get this stuff. The challenge for me is, I'm very sensitive with medications supplements. So taking 5HTP, b6, competes with med dosing. Which is every 2-2.5 hours. I have the best results taking it frequently. I'm hoping to start IV of glutathione, it means I have to travel 1.5 for this, but I need to try it. Thanks
  12. I will post when I hear.
  13. Her explanation to me was, and I did not ask for any details; NPF needed to down size and she was the only outside consultant, so it made sense for her to be let go... She hopes to start a PD nutrition blog and hopes all will visit her on Facebook for now. She is a very dedicated person and as Christie said, compassionate about what she does and how she can help.
  14. In my opinion, she was the only forward thinking health advisor...... Sadly, the majority of western medicine has been at a stand still. She researched and posted the latest studies and provided us with such personal care, like no others. I will certainly miss her here on the forum. I have visited her FB page and I will remain in touch with her.
  15. Hi friends, I haven't been on the forum for a couple of months. Does anyone know why the Ask the Nutrition forum is not available? So sad, Kathrynne was the best...