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Amy Voris

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About Amy Voris

  • Rank
    Newbie
  • Birthday 02/05/1963

Profile Information

  • Gender
    Female
  • Location
    Rutherfordton, North Carolina
  • Interests
    Scrapbooking, sewing
  1. Timing of speech problems

    Thank you Dr. Mahler. I thought I had sent you a response but I don't see it any where. If you have read it then some of this will be a repeat. Yes, I have idiopathic PD. I was 38 when I was diagnosed and soon to turn 53. So I have been dealing with this awful disease for awhile. I don't remember what is like to be normal. I did do the LSTV LOUD program about 2-3 years ago. I was going to ask you if there was some kind of refresher but I saw that you had answered some one else with that information. It is 2-4 one hour sessions, correct ? I just sent a message to the S/L clinician. She is the closest to me but she also offers eLOUD (telemedicine).. I would like to try that. If this doesn't work out, do you have any advice ? I am basically not talking much (which is not like me ) because no one can understand me. And I need to make phone calls which is virtually impossible right now. Thanks for your expertise and "listening" to me. Amy Voris
  2. Timing of speech problems

    Dr. Mahler, Thanks for the quick response. Yes, I have idiopathic PD. I was 38 when I was diagnosed and now I am 52. I did go through the LSTV LOUD program. I took it 2 yrs ago. My speech was not bad then. I was just starting to get short of breath at the end of a long sentence. Taking a deep breath before I speak does help me. I have to admit I don't always do that. Now my speech is garbled. Would it be beneficial to go through the LOUD program again ? Is there such a thing as a refresher ? But I do understand the purpose of doing the work for 4 days/4 weeks; the repetitiveness of it. I appreciate any advice that you have. Thank you !
  3. Best time for protein

    I have an question about the timing of when I should eat protein. The problem is that I take meds every 1 1/2 hrs. So it is very hard to time it. For example, should I take meds at 4:30 then plan on eating at 5:00 because my next dose will be due at 6:00 ? It usually takes me about 15-20 min to eat which means it would be less than an hour before my next dose. Also, is it just another PD unknown but I have no feelings of hunger ? I can go all day & never feel hungry. It also effects my sense of thirst. I have a terrible dry mouth but not that thirsty feeling except for occasionally my mouth gets so dry that I have a hard time breathing until I get some fluids. Thank you !
  4. I was reading through some of the posts & read one that is similar to me. He had asked if Sinemet was causing his speech problems. I don't think it is the Sinemet per se but when I am "off", my speech is fine & when my meds are working, my speech is terrible. I can't be understood at all - extremely garbled. I was wondering if you knew why this is happening ? Seems like when my body works, my speech goes bad. Why can't they be on the same page ? I know - it is probably yet another unknown of PD. I also have another question. What do you feel is the best system, curriculum, program (not sure what word I am looking for) for garbled speech ? I have done the LOUD program & felt that all it did was make me talk louder- at times I need that. I've also had sessions with a speech therapist & all I did was repeat (or read) words. It did not help. It is very discouraging & I have gotten to the point that I hardly talk anymore. That's not good. Any advice ? Thank you !
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