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afroney

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afroney last won the day on January 18

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  1. It was pretty immediate for me. 20-30 minutes. I had success with Trazadone for years, then it stopped working well. It will help me fall asleep, but not stay asleep.
  2. Their pre-existing condition clause is written so vaguely that a simple tremor or report of gait issues to a physical therapist would exclude you from claiming under a new policy. PD wouldn't even have to be suspected. At least, with my policy.
  3. I was under the impression that everyone diagnosed with PD has a "probable" diagnosis until death. The only way to truly determine if the patient had PD is an autopsy of the brain. Statistically, I believe a trained neurologist has a very high accuracy rate of PD diagnosis, especially as the disease progresses.
  4. Yeah. Doctors used to give me crap about my weight. I lost 60 pounds while hospitalized (spent weeks without eating or drinking anything) The only nourishment I got was via IV or the ng tube snaked through my nose to my stomach. Glad I had a a bunch of fat to burn, though the fast food commercials on TV were driving me insane.
  5. Ambien was pretty useless for me. Works for a little while, until you build tolerance. I dont think its intended to be used for chronic insomnia associated with Parkinson's. 100mg of Trazadone worked pretty well for the first 5 years or so of my disease, not so much anymore. I take 2mg of Klonipin now for sleep issues. It works for me, but can be addicting and dangerous for alot of people and interacts poorly with alcohol and pain meds.
  6. I have to vape ALOT of hemp based CBD oil to gain any benefit for PD symptoms. Dropping it under the tounge does nothing for me. Our state has legalized low-thc CBD oil for a handful of conditions. Haven't tried the MJ based CBD oil yet. Just realized this is post 420 for me. LOL.
  7. Yep. Had all three. Still fighting CDiff. My problem started with Diverticulitis, then Sepsis after my colon ruptured. Was hospitalized and placed on heavy regiment of antibiotics, until they were able to remove most of my colon. The surgery and heavy antibiotics use resulted in me contracting CDiff while in the hospital. Been battling C-Diff for close to a year and a half now. Actually, Im posting from a hospital bed as I type.
  8. I havent found tremor relief with CBD, but it does ease my minor dyskenesias and really helps with rigidity/cramping. I find it a good sleep aid as well.
  9. I was placed on Rivastagmine about 3 years ago after neuropsychological testing revealed deficiencies that were dangerously close to that of an alzheimer's patient. It worked very well and allowed me to continue working for the next three years until a nasty infection put me out of comission for good. My most recent Neuropsych exam showed I had improved significantly - I attribute most of it to the Rivastagmine. The side effects can be quite nasty in some people. The worst I've experienced is nausea.
  10. Entirely depends on the individual how the meds will treat you. Some people react well to PD meds and some dont. I've been pretty lucky. I haven't had any unbearable side effects. Ocassional nausea and slight dyskenesia in my feet is about all that bothers me. Considering I wouldn't be able to get out of bed without Sinemet, the trade off seems worth it. Mirapex and Requip really messed with me, so I dont take them.
  11. Ive been battling stiffness at night, for a few years. The answer for me has always been more Sinemet. 2 cr tabs in the morning and night and 8 standard tabs throught the day. With this, I usually can get a solid 5-6 hours of sleep a night.
  12. Yeah. A highly stressful period in my life made my symptoms worse and pushed me to initially see a Neurologist. My PD took a major turn for the worse after battling Sepsis and Diverticulitis. Its been over a year since the surgery, and I was never able to fully recover. Its been a downhill slide since.
  13. PT was extremely beneficial for restoring some of my lost balance. I walk with a cane as well bit embarrassing, but better than falls and broken bones.
  14. I first ran into pressure sores during an extended stay in the hospital. Their beds really were terrible. The nurses tried their best to turn me frequently and assist me with occasional walks, but I was in really bad shape. I was realeased to home Hospice care. My latex foam matress is really good about not creating sores. Might be something to consider. However, a latex matress is harder to turn over in during the night. I installed a device in the ceiling that resembles a hanging trapeze bar. Really helps, as I can grab it at night to turn myself over.
  15. My first documented symptoms started when I was 21. Was having chronic insomnia and injuring myself acting out my dreams. I was diagnosed with REM Sleep Disorder during a sleep study (often one of the first indicators of PD). From 21 to 25, I was having problems with feet shuffling and slowness while walking. To the point my coworkers were noticing. Saw a ton of doctors who couldn't figure out what was going on. Around 25 the dystonia started. My body developed a "lean", I was tripping over my own feet. Neck and shoulders really started to hurt on a daily basis. Cramps in my legs and feet were waking me up at night. Finally saw a competent doctor who concluded something was off. She thought stroke or MS. MRI of my brain and neck, along with a lumbar puncture ruled both out. I noticed a loss of smell and a resting tremor around 27. Finally got to a neurologist who determined it was Parkinsons-like. Tests ruled out heavy metal poisioning, Wilsons Disease, and Lyme Disease. Got a second opinion, who confirmed the PD diagnosis. My first doses of Sinemet felt miracle-like. Do you have relatives with PD? Im told very young onset cases of PD tend to be genetic. My Dad has PD, and my Grandmother had it as well. Kind of strange having PD at a young age. People tend to stare at a 31 year old hobbling along with a cane like a 90 year old man. I'm also officially retired and will never return to work. That part is actually kind of nice, much to my surprise.