Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


afroney last won the day on January 18

afroney had the most liked content!

Community Reputation

124 Excellent

About afroney

  • Rank
    Advanced Member

Recent Profile Visitors

340 profile views
  1. Need your opinion...on Retirement disability

    Agreed. Used to weigh 350. Im a really big guy to begin with, but its still 120 too much. Having that and PD just really complicates things. I lost a bunch of weight, due to illness, but I gotta admit moving is easier with 80 less pounds. Now I'm told I need to carry an extra 20 to 30 pounds, due to my declining health. Ive found swimming and biking to be excellent exercises that PD doesn't seem to affect. Especially, swimming. Still really good at it - recently swam to the bottom of a 20 ft pond. As for disability, I was able to get another 5 years of working in once my meds were stabilized. Would still be working, but have been fighting multiple GI infections and Sepsis for the last two years. Stu, you might be able tohold out a little longer. Find the right level and type of meds.
  2. Morphine in hospice care

    Sorry to hear this. I spent some time in the hospital and then with our local home hospice group when I developed a life-threatening infection after a major surgery. I was given Dilaudid every 4 hours, and at the time, I saw it a godsend. Took away all the pain, anxiety, fears, etc. I would not hesitate to do the same for a loved one that was suffering.
  3. INcreased sense of smell?

    Yes. I've noticed heightened senses of smell after Sinemet dose increases. A few other people on this forum experience the same.
  4. NAUSEA ad nauseum?

    I take Zofran for nauesa. Most of the anti-nauesa drugs are contradicted with PD (including Zofran). So, be careful if you go the Rx route - most doctors arent even aware of these interactions. Zofran is highly effective, but is likely overkill for PD related Nausea. It is mostly perscribed for cancer patients going through chemo or patients with severe GI issues (my case) There are numerous natural alternatives for nausea. Although its not the cure all that many proclaim, MMJ works pretty damn well for treating minor to moderate nausea. I think theres a few other as well.
  5. Anti-emetics

    Thank You! I'm going to ask my Doctors about this med. In the hospital, I was given Phenergan (a potent dopamine blocker). Some very bad things happened as a result, and they switched me to Zofran. Zofran is apparently not a PD friendly drug either. Hopefully now, I have an anti nausea alternative.
  6. Other Illnesses and PD

    I believe moderate to advanced PD can interfere with surgery and recovery. I developed sepsis from Diverticulitis a year and a half ago. My stay in the hospital did not go well and I'm still trying to recover from infections and complications from having most of my colon removed. I asked this question to Dr. Okun a while back. He confirmed that PD often complicates and can get worse after surgery. My team of docs at home are also blaming PD for my lack of recovery.
  7. Neck & Shoulder Issues

    If in doubt, talk to a dr. With PD, its easy to attribute everything to the disease. I've made that mistake. I had some terrible back and neck pain recently that I thought was Parkinson's. Turned out to be severe osteoarthritis, identified by an xray. The months I spent in the hospital and bed had really aggravated an ongoing issue. Cortisone injections, physical therapy, and a short dose of steroids cleared the worst of it up.
  8. Neck & Shoulder Issues

    Yeah. Pretty typical with PD, especially as it progresses. I had the same issues pre-diagnosis. Wasnt sure what it was at the time, so the doc ordered some physical therapy. It helped tremendously. Ive been doing the perscribed stretching and exercises for years, since then, and it does alot of good.
  9. Anti-emetics

    Cool pic! I've not found a CBD oil that is highly effective with nausea. My understanding is most oil formulations either have a very low THC content or none at all. From what Ive read and experienced, THC is the component of Marijuana thats boosts appetite and supresses nausea. I have no idea if weed would work for sea sickness, though.
  10. Symptom increase in the heat???

    I'm the same way with heat. Im told that advanced PD often interferes with your body's temprature regulation processes. For me, overheating usually starts with vomiting, dizziness, and nausea. I've passed out while working in 90 degree + tempratures. Not good.
  11. I was able to continue to work for about 6 years after diagnosis. One of my last jobs was very physically demanding. 120 degree heat in the summer, 10+ miles a day of walking, and plenty of lifting, crouching, and climbing. I was able to secure several accommodations, including an air conditioned space to do computer work, a golf cart to drive around the plant, and a long lunch for short naps. The ADA requires most companies to accommodate disability, so dont be afraid to push back if your employer hassles you (and the company falls under ADA laws, some don't) As my PD advanced, I took office work. Not sure if this is a option for you. I'd still be working, if I wasn't battling long term complications from bowel surgery and a nasty infection. If you are covered under your employers long term disability plan, consider it. Mine pays 70% of my income until 67. I had to make some lifestyle adjustments, financially, but I'm a much healthier and happier person not working now.
  12. Extreme muscle tension. Dystonia?

    Baclofen is highly effective for me as well. Very few side effects.
  13. trazone

    Clonazepam, Melatonin, a hot bath before bed, and a high dose of Sinemet CR and Baclofen.
  14. Bad mornings

    Ive had issues with that as well. In my case, it means I need more Sinemet towards bedtime. I make sure to take my morning dose right when I wake up as well. I make it a point to force myself to get up and move around after my morning dose. Refill the birdfeeder, water the plants, check and empty the squirrel traps. etc. Exercise is key with PD.
  15. Building a new home & looking for suggestions

    No stairs. God, I hate stairs. (Still recovering from a nasty tumble down my basement stairs) A bathroom attached to the bedroom would also be nice. Nothing like stumbling to the bathroom in the middle of the night.