helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

hercules957

Members
  • Content count

    163
  • Joined

  • Last visited

  • Days Won

    5

hercules957 last won the day on October 20 2016

hercules957 had the most liked content!

Community Reputation

108 Excellent

About hercules957

  • Rank
    Advanced Member
  • Birthday 08/01/1957

Profile Information

  • Gender
    Male
  • Location
    Toronto
  • Interests
    Nature walks, fitness, health research, listening to audio books, good food, stimulating conversations
    you may email me: hercules957@gmail.com
  1. The Mucuna I used is prepared for my Naturopath Dr by Signature Supplement from Canada. It is not available over the counter or direct without going through a health care provider. The Hinz protocol recommends using their own product from DHK. The Mucuna is 40% concentrated. The Now brand is from a good company but the concentration is low and it will be difficult to find a treatment dose that will have results. Self medicating is complicated and mixing too many ingredients make it difficult to determine what works and what does not.
  2. Ruth1372, Sorry I don't know.
  3. When using Mucuna in the context of Hinz Protocol therapy, no conventional drugs are used at the same time. I heard of PWP supplementing conventional drug therapy using Mucuna.
  4. My hand tremor is active when I start walking. At first I would pick up a stone and roll it between my fingers and tremors would go. I also hold my keys in the hand and play with them. But after 10 min of rigorous walking the tremor stops.
  5. I read that specialist use two main categories: Tremor dominant and PIGD (postural instability, gait disorder) dominant. We can live with PD, it is a fine juggling act. Many factors are competing to relieve or aggravate symptoms. It is not uncommon to take up to one year to reach a level of equilibrium. It is important to be well informed and not to speculate at how bad it can become and how fast this will happen. The future causes a lot of anxiety and the past brings on nostalgia. The present is where you should aim to be. Look at the positive side of things and life, it is a lot more beneficial than looking at the nasty, negative side. Exercise is part of the treatment, not an option. Reduce stress and obligations as much as possible and listen to your body when it is telling you that you need to rest. Most PWP experience cramping or pain at some time or other, some of it is relieved by medications some of it is caused by medication. Exercise and stretching often helps. It is better not to chase symptoms, they come and go, some come and stay, others never reach you. Acceptance is very critical to living with PD.
  6. Thanks for asking. I am stable. I noticed a bit of progression in tremors. I increased my dose a bit and it did not help. I went back to previous level, will stabilize the then I will reduce the dose and see what happens. I read that being over medicated causes the same symptoms as being under medicated. Addendum: I have since increased Mucuna from 13.5 g to 15.5 g and I am almost without symptoms once again. Finding the sweet spot is difficult and critical.
  7. I started MM one month ago and it helped me sleeping, cutting down on rigidity. But, I soon realized that I felt better using it during the day too. After about one week, I concluded that some dependence had developed. When I did not use my tremors were worse that before starting MM. I am going to start again and be more observant of my symptoms and not use it every day just to see. My neurologist was not surprised and stated that the shakes the next day is similar to when one takes a few too many drinks the night before. Any thoughts?
  8. If you scheduled a second opinion appointment you should keep it. Second guessing yourself will be counterproductive to your grieving process. The sooner you can accept that you have PD the easier it will be to live with it. We all react differently to medications. To some it is like a switch, hardly any symptoms left while medicated, to others, medications need be tweaked regularly. You need three things to deal with PD 1. a positive attitude, 2. medications and 3. daily exercise.
  9. I feel better because I don't have dyskinesia and I am not worried that if and when I need to increase the dose I will not get dyskinesia. Hinz trains Dr. At special seminars throughout North America. My Dr lives in Ontario Canada.
  10. You will have to contact the Hinz web site and ask for a referral https://neurosupport.com/ From my research there is no long term side effects.
  11. ndianman, I am following the Hinz protocol since May this year. The results for me are better than on conventional medication Sinemet and Selegiline.. If you search the forum you will find many replies on this subject.
  12. I am on the HInz protocol since May and I am doing better than on Sinemet/Selegiline. The reason I started was dyskinesia. Once I stopped the Carbidopa the dyskinesia went with it. Supplements are not cheap but no where near $1000/month.
  13. Sharing, not judging. I started using MM 3 weeks ago and noticed that I slept better due to less rigidity or muscle pain. It lightened up my mood and attenuated my tremors. However, I noticed that my symptoms the next day would be more pronounced. I took MM and felt better. Then it occurred to me that I was getting into a form of dependence. While on MM I felt better than when not using it. But I also need to use it periodically. I am taking a one week break from it to see how it goes, it has been 3 days and my symptoms are just like they were before I started MM. STILL a bit early to draw long term conclusion but I will say that MM helps with PD symptoms as an adjunct to levodopa. But if you don't use it regularly the body starts to demand more and causes symptoms.
  14. I am still experimenting with MM. Fortunately when ordering MM you can chose the strength of THC and CBD, I believe that trying to medicate using street MJ would be problematic. I am using one blend THC 11% CBD 7% and an other THC 0 CBD 17% They both relaxe my muscles and calm my mind, I even notice attenuation of tremors.
  15. I retired from flying 10 yrs ago. Even medicated I could not imagine being in command of an airplane. Stress brings out symptoms like sugar brings out ants. Multi-tasking ability is also impaired by PD, and flying is all about multi-tasking.