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PatriotM last won the day on March 18

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About PatriotM

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  1. In 2013, when this thread started, my UPDRS score was 42 without meds.. Now, 5 years later, my score is 32 with meds.
  2. PatriotM

    Lyme induced parkinsonism

    I got Lyme Disease in 1989. Lyme Disease didn't escape the Plum Island weapons lab until 1975, so it was relatively new in 1989 and certainly here in the Midwest. To make a long story short, I wasn't diagnosed for a LONG time and developed Chronic Neuro Lyme disease. It was NASTY and in many ways worse than PD. My neuro thinks that it's very possible that my PD was caused by Lyme. I didn't really start getting better until many years later when I discovered a MD/ND that specialized in Lyme Disease. She finally got it under control and I seem to be in long term remission at this point. Lyme disease is not a single infection. Ticks carry MANY infections and you have to beat them all to get better. There is a lot of discussion in Lyme Disease circles about Lyme being transmitted sexually.
  3. Try to realize that you're not the only one that is sick. How many people do you know that have a serious disease? I know a woman who lost her leg below the knee to diabetes. I know another that lost all the toes on his foot. I had a tenant that went to the doctor thinking that she had aches and pains, and was diagnosed with terminal cancer. She died a couple of months later. A guy at our Church got pancreatic cancer and died soon thereafter. A huge number of people are living with things more serious that PD. Being diagnosed with terminal cancer is something to be depressed about. PD, not so much!
  4. PatriotM

    I think I have parkinsons

    I agree with Dave N. It doesn't sound like Parkinson's.
  5. PatriotM

    Lyme induced parkinsonism

    Yes. In addition, the symptoms of PD and Lyme Disease are significantly different.
  6. PatriotM

    Lyme induced parkinsonism

    Yes, that's correct. One neurologist and one MDS both have diagnosed me with PD. I would be surprised if either one of them know anything about Lyme induced parkinsonism.
  7. PatriotM

    Lyme induced parkinsonism

    I had late stage, neuro Lyme for many years before being diagnosed with PD. My neuro thought that the Lyme Disease may have caused the PD. However, since no one really knows what causes PD, it's all just speculation.
  8. PatriotM


    Here's the link: http://besthealthherbalcentre.com/testimonials.html They apparently not only cure Parkinson's, but ALS, COPD, Herpes, and just about everything else. Let's see...first time poster.... claims of a cure for just about everything. C'mon! Where's that eye roll Emoji???
  9. PatriotM

    Bright side I guess

    Good one Stump. That's the first time I've ever seen one of these bright side of PD posts that really is a bright side!!! Not being able to smell vomit - the bright side of PD. LOL!
  10. I go to the MDS every 6 months. As for which MDS to go to, that's hard to say on the internet. Assuming they are both good doctors and up on the latest info, I would go to the closer one. The "gold standard of treatment" hasn't changed in many decades and I'm not sure what would be gained by driving the extra miles. The best treatment advice you'll get from any doctor is EXERCISE!
  11. PatriotM

    27 Male Frightened of YOPD.

    Honestly, I think the referral to a shrink was a good idea. This clearly doesn't sound anything like PD and a shrink might actually be able to help. I also think you need some help with your Google skills if you input rapidly changing hand pain and you got PD.
  12. PatriotM

    Pfizerstopping R&D for PD

    The GOPTAXSCAM is going to make US corporations more competitive, which will bring more jobs and higher wages to the US. The GOPTAXSCAM will mean working class Americans will get a tax cut also. I will also be helping get out the vote this year, but you might not like the candidates I'm pushing. Almost everyone gets to keep more of what they earn. How could anyone be against that?
  13. PatriotM

    Trying Sinemet

    Good to hear from you Christie!
  14. Stephen, It appears to me that your trial of marijuana was too erratic to be a good test. You started; you stopped; took one kind; then another; smoked; then took a tincture, etc. I think your trial would be more effective if you treated it like any other medicine. My recommendation would be to find a high quality marijuana and then make a tincture with it. Start out with a few drops and then titrate up in both dosage and frequency. For example, you might start out at 5 drops once a day for a week. Then, 10 drops once a day for a week. Follow this pattern until you notice adequate symptom improvement. Then, increase the frequency to twice a day for a week. Then, three times a day the next week. Keep up this pattern until you get adequate symptom relief without significant off periods. Obviously, if you're getting high, you're taking too much because now the marijuana is being abused and interfering with your ability to function normally instead of being a typical medication. Just my 2 cents.
  15. PatriotM

    Loving Parent

    EVERYONE has to deal with trials in their life. You and your daughter are no exception. I just came from the family of a woman in her 40's who went to the hospital because her sugar was high and died yesterday of pneumonia. I know another person who went to the doctor not feeling well and died a month later of massive metastatic cancer. She was also in her 40's. Your daughter is alive and should be relatively healthy for years (decades) to come. The news could have been MUCH WORSE! Be thankful that it is only PD. Your daughter needs a mother who will stand behind her - not one who is in a major depression and is adding to her stress. My advice, seek medical help to fix your depression and be the mother that your daughter needs you to be. I wish you and your daughter all the best!