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PatriotM last won the day on July 5

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About PatriotM

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  1. Thanks for the info ShopGuy. That was an excellent explanation and exactly what I was interested to know.
  2. Why can't Linda post what she wants? If anyone doesn't like her posts, they can simply ignore them. Easy!
  3. Not true. Medicaid would DOUBLE in the next ten years under the Senate bill. Unfortunately, everything can't be free despite how much people want it to be. The last thing this country needs is another expanded entitlement. Sooner or later, the chickens will come home to roost.
  4. I'm curious about the side effects of the immunotherapy that the researchers discussed with you. Does immunotherapy cause a risk of developing cancers? Does immunotherapy cause a risk of healthy organs being attacked by the immune system? Other possible side effects? I'm curious because I see all those commercials on TV where the possible side effects for various treatments are doom and gloom. Thanks for posting on this important trial.
  5. I got pulled over a while back. The cop noticed my tremor and said that I looked nervous. I explained that I had PD and he didn't say anymore and gave me a warning. However, if he had believed that something more was wrong and demanded that I walk a straight line, I'm not sure how that would have gone. Therefore, I now carry a copy of my diagnosis in my vehicle so that I can prove that I have PD.
  6. Ditto BigRingGrinder + my left hand tremors when I write (with my right hand). Holding hands during prayer - yes. Talking to someone - yes. I don't even know that you could call these things stress. Like BigRingGrinder said, it seems more like multi-tasking to me.
  7. I don't think it matters if your hand is at rest. If you don't have a tremor, then you don't have a resting tremor. A twitch is far from being a tremor. Add 17,999 more twitches to your solitary twitch each hour and you've got yourself a tremor. My suggestion is to accept your diagnosis of Essential Tremor; go live your life; and be thankful that you don't have PD.
  8. A resting tremor occurs when you are at rest, as opposed to a tremor that occurs when some posture is held or some action is initiated. I have tremor dominate PD and my left hand tremors most of the time when I'm not doing anything (and not medicated with medical marijuana). When I do something, like working in the garden, I usually don't have a tremor. If my hand is moving, my tremor is gone, but only while my hand is moving. Within seconds of stopping the movement of my hand, my tremor returns. Also, my tremor is not a twitch, it's a continuous tremor at about 5 Hz (18,000 shakes per hour). If I'm stressed or cold, the amplitude of the tremor is increased.
  9. If a drug is causing you so many problems, why are you taking it? Surely these side effects are worse than the disease.
  10. loveya1971, The first thing I would suggest is to ask yourself if you really need medication this soon. It might be smart to start with a PD exercise program first and see how much exercise will improve your symptoms. A few months after I was diagnosed, I let the neurologist talk me into taking Pramipexole. In retrospect, I certainly didn't need it and regret letting the doctor talk me into taking it. It caused severe fatigue. I couldn't sit down without falling asleep. I would eat with my eyes closed. I would talk on the phone with my eyes closed. I was a zombie. The final straw came when I fell asleep at a stop light. I am lucky to have survived this dangerous drug. In the nearly 4 years since this incident, I have not taken any PD meds (other than a couple of months of Pramipexole) and am doing MUCH better. I now get daily exercise, including walking at least 12,000 steps a day and have found that to be critical in maintaining good health with PD.
  11. I don't spend much time sitting in the corner and I've never been stoned. If I did want to get stoned, I could just pull out what's left in my bottle of Mirapex. Mirapex just about puts me into a coma, even while driving, which is why I stopped taking it. As for marijuana being illegal in the eyes of the Federal Government (and many states), that's exactly right and completely ridiculous (like just about everything the government does). A person can legally take Mirapex, or oxycodone, or any of a hundred other dangerous prescription drugs that are minimally effective but have huge side effect, but can't legally take medical marijuana which is very effective and has no noticeable side effects.
  12. loveya1971, The first thing to do is take a deep breath. Absolutely nothing has changed simply because you were diagnosed with PD. You are no worse off the day after you were diagnosed than you were before being diagnosed. Were you crying and feeling lost in the months and years before being diagnosed? The latest thinking is that people likely have PD for 20 years before being diagnosed. You've likely had PD for 2 decades and didn't even know it. Nothing has changed, you still have PD. Next, realize that you can and should get BETTER! That's right, better! Now that you know you have PD, you can start treatment. No, I'm not talking about taking any of the dangerous PD drugs that are often worse than the disease itself. I'm talking about EXERCISE, which is the only thing shown to slow the progression of PD. Furthermore, starting a PD exercise program should improve your symptoms and help you to feel better than you have in years. When I was first diagnosed with PD, I walked like a 90 year old man. I had to hold both rails to walk down the stairs in the morning. Daily exercise fixed that. I now walk a MINIMUM of 12,000 steps a day (about 5 1/2 miles) and usually walk a lot more than that. Last week, I had two days that I hit 30,000 steps. When you are diagnosed with PD, you have a choice. You can sit in the corner and cry; go get a handicap sticker; buy a walker; and decide that your life is over. OR, you can decide to take your life in your own hands and fight!!! You can start a PD exercise program; eat healthy; maintain a positive attitude; and live your life normally. The choice is YOURS!
  13. Yes, it was hemp based and didn't do anything that I could discern. The downside of medical marijuana is that it is not legal everywhere. Therefore, if you use it as a primary treatment for PD, you are limited where you can go, or have to go without your medicine, or are risking criminal penalties. It's beyond ridiculous!!! I can legally take Mirapex which causes severe fatigue, hallucinations and more (very dangerous for driving). I could legally take Amantadine which also has nasty side effects. I could legally take a prescription narcotic for pain. However, in many places you can't take medical marijuana which, as far as I can tell, has absolutely no side effects and is very effective. RIDICULOUS!
  14. I tried CBD oil and couldn't see any benefit at all. A marijuana tincture relieves my tremor, urinary frequency/urgency, sleep problems, fatigue and more.
  15. There are no cuts being proposed. Only slight decreases in the massive projected increases. There will still be massive increases in spending on Medicaid, Medicare, and just about every other government program.