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PatriotM

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PatriotM last won the day on June 6

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  1. I don't think it matters if your hand is at rest. If you don't have a tremor, then you don't have a resting tremor. A twitch is far from being a tremor. Add 17,999 more twitches to your solitary twitch each hour and you've got yourself a tremor. My suggestion is to accept your diagnosis of Essential Tremor; go live your life; and be thankful that you don't have PD.
  2. A resting tremor occurs when you are at rest, as opposed to a tremor that occurs when some posture is held or some action is initiated. I have tremor dominate PD and my left hand tremors most of the time when I'm not doing anything (and not medicated with medical marijuana). When I do something, like working in the garden, I usually don't have a tremor. If my hand is moving, my tremor is gone, but only while my hand is moving. Within seconds of stopping the movement of my hand, my tremor returns. Also, my tremor is not a twitch, it's a continuous tremor at about 5 Hz (18,000 shakes per hour). If I'm stressed or cold, the amplitude of the tremor is increased.
  3. If a drug is causing you so many problems, why are you taking it? Surely these side effects are worse than the disease.
  4. loveya1971, The first thing I would suggest is to ask yourself if you really need medication this soon. It might be smart to start with a PD exercise program first and see how much exercise will improve your symptoms. A few months after I was diagnosed, I let the neurologist talk me into taking Pramipexole. In retrospect, I certainly didn't need it and regret letting the doctor talk me into taking it. It caused severe fatigue. I couldn't sit down without falling asleep. I would eat with my eyes closed. I would talk on the phone with my eyes closed. I was a zombie. The final straw came when I fell asleep at a stop light. I am lucky to have survived this dangerous drug. In the nearly 4 years since this incident, I have not taken any PD meds (other than a couple of months of Pramipexole) and am doing MUCH better. I now get daily exercise, including walking at least 12,000 steps a day and have found that to be critical in maintaining good health with PD.
  5. I don't spend much time sitting in the corner and I've never been stoned. If I did want to get stoned, I could just pull out what's left in my bottle of Mirapex. Mirapex just about puts me into a coma, even while driving, which is why I stopped taking it. As for marijuana being illegal in the eyes of the Federal Government (and many states), that's exactly right and completely ridiculous (like just about everything the government does). A person can legally take Mirapex, or oxycodone, or any of a hundred other dangerous prescription drugs that are minimally effective but have huge side effect, but can't legally take medical marijuana which is very effective and has no noticeable side effects.
  6. loveya1971, The first thing to do is take a deep breath. Absolutely nothing has changed simply because you were diagnosed with PD. You are no worse off the day after you were diagnosed than you were before being diagnosed. Were you crying and feeling lost in the months and years before being diagnosed? The latest thinking is that people likely have PD for 20 years before being diagnosed. You've likely had PD for 2 decades and didn't even know it. Nothing has changed, you still have PD. Next, realize that you can and should get BETTER! That's right, better! Now that you know you have PD, you can start treatment. No, I'm not talking about taking any of the dangerous PD drugs that are often worse than the disease itself. I'm talking about EXERCISE, which is the only thing shown to slow the progression of PD. Furthermore, starting a PD exercise program should improve your symptoms and help you to feel better than you have in years. When I was first diagnosed with PD, I walked like a 90 year old man. I had to hold both rails to walk down the stairs in the morning. Daily exercise fixed that. I now walk a MINIMUM of 12,000 steps a day (about 5 1/2 miles) and usually walk a lot more than that. Last week, I had two days that I hit 30,000 steps. When you are diagnosed with PD, you have a choice. You can sit in the corner and cry; go get a handicap sticker; buy a walker; and decide that your life is over. OR, you can decide to take your life in your own hands and fight!!! You can start a PD exercise program; eat healthy; maintain a positive attitude; and live your life normally. The choice is YOURS!
  7. Yes, it was hemp based and didn't do anything that I could discern. The downside of medical marijuana is that it is not legal everywhere. Therefore, if you use it as a primary treatment for PD, you are limited where you can go, or have to go without your medicine, or are risking criminal penalties. It's beyond ridiculous!!! I can legally take Mirapex which causes severe fatigue, hallucinations and more (very dangerous for driving). I could legally take Amantadine which also has nasty side effects. I could legally take a prescription narcotic for pain. However, in many places you can't take medical marijuana which, as far as I can tell, has absolutely no side effects and is very effective. RIDICULOUS!
  8. I tried CBD oil and couldn't see any benefit at all. A marijuana tincture relieves my tremor, urinary frequency/urgency, sleep problems, fatigue and more.
  9. There are no cuts being proposed. Only slight decreases in the massive projected increases. There will still be massive increases in spending on Medicaid, Medicare, and just about every other government program.
  10. I forgot one little detail. NONE of these "cuts" are cuts at all. They are cuts in the anticipated increases in these programs. For example, Medicare will nearly double over the next ten years under Trump. Likewise, Medicaid spending will also dramatically increase under Trump. Only in Washington D.C. are dramatic increases in spending called a "cut".
  11. SNAP (food stamps) is one of the most abused programs in this country. Many people receiving SNAP sell their card and then pickup their food at the food bank. Cutting 30% isn't nearly enough. Yes, it's acceptable to me. A huge percentage of people on Medicaid are just plain lazy. I see it every day. CUT IT! People like Trump that are in real estate often pay little or no income tax. However, they pay huge property taxes that hourly workers don't pay.
  12. I have many tenants that have 100% of their Section 8 rent paid by the government. They get a utility allowance. They get "free" food from the food bank. They have a "free"Obama phone. They have "free" healthcare. The waiting list is about 3 years here for Section 8. I could easily see that they would have more disposable income than someone making $60,000 a year and paying their own way. Here in the USA, we have the richest "poor" people in the world. They also have the largest big screen TV's on the planet.
  13. What advancement in medical science? Are we not still using the same "gold standard" drug (levodopa) for PD that has been used for decades? The cure has been right around the corner for 50 years, yet the scientists still don't even know what causes PD. Has there been even a single disease modifying drug discovered in the past 50 years? The cure is right around the corner and the check is in the mail. LOL!
  14. Adam, I disagree that Natasha's research is based on old data. Many neurologists and MDS's recommend waiting to start C/L until a person really needs it. IMO, that's good advice with any drug. I see a MDS at a major neuroscience center and he doesn't recommend starting any PD drugs until really needed. Before that, I saw a local neurologist who advised against C/L until really needed. Dyskinesia is caused by taking C/L for PD. If you don't take C/L, you don't have the dyskinesia.
  15. Serenity, There are many symptom differences between Lyme and PD. You identified at least 3 of them. To begin with, many people exhibit a "bullseye" rash when first bitten by a Lyme infected tick. There is no such "bullseye" rash with PD. Flu like symptoms are another example, although not to the same extent in my experience. Third, loss of arm swing is typical in PD and I've never heard of that with Lyme. In my experience, PD progresses very gradually. Lyme disease symptoms occur very suddenly and severely. For example, with Lyme you can wake up one day with significant joint pain. It's like you were hit by a truck overnight. A few weeks later, it may disappear as quickly as it started. While a frozen shoulder is common in PD, other joints are commonly affected with Lyme, including the knee, hip, and elbow. In addition, Lyme has the capability to take different forms and can hide in the body from antibiotics and other treatments. In my case, I had a large painful lump develop in my Achilles tendon. My Lyme disease doctor said it was Lyme and that she could fix it. I was VERY skeptical. She was right and she did make it disappear with herbal treatment. I also had serious pain in my neck and shoulders. She called it Lyme meningitis and again was able to successfully treat it with the Cowden Protocol, an herbal treatment. As for the expense, being treated for Lyme is somewhat expensive. Many Lyme disease doctors, including mine, do not accept any insurance. She literally takes cash only. The upside is that I have an hour long appointment with her every time and get to thoroughly discuss my issues. Well worth the money in my opinion!