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PatriotM

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PatriotM last won the day on May 11

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  1. Serenity, There are many symptom differences between Lyme and PD. You identified at least 3 of them. To begin with, many people exhibit a "bullseye" rash when first bitten by a Lyme infected tick. There is no such "bullseye" rash with PD. Flu like symptoms are another example, although not to the same extent in my experience. Third, loss of arm swing is typical in PD and I've never heard of that with Lyme. In my experience, PD progresses very gradually. Lyme disease symptoms occur very suddenly and severely. For example, with Lyme you can wake up one day with significant joint pain. It's like you were hit by a truck overnight. A few weeks later, it may disappear as quickly as it started. While a frozen shoulder is common in PD, other joints are commonly affected with Lyme, including the knee, hip, and elbow. In addition, Lyme has the capability to take different forms and can hide in the body from antibiotics and other treatments. In my case, I had a large painful lump develop in my Achilles tendon. My Lyme disease doctor said it was Lyme and that she could fix it. I was VERY skeptical. She was right and she did make it disappear with herbal treatment. I also had serious pain in my neck and shoulders. She called it Lyme meningitis and again was able to successfully treat it with the Cowden Protocol, an herbal treatment. As for the expense, being treated for Lyme is somewhat expensive. Many Lyme disease doctors, including mine, do not accept any insurance. She literally takes cash only. The upside is that I have an hour long appointment with her every time and get to thoroughly discuss my issues. Well worth the money in my opinion!
  2. Both, although my Lyme Disease has been largely in remission for the past few years. Many of the symptoms of PD and Lyme Disease are quite different. Lyme Disease symptoms are closer to MS than PD.
  3. Here is a good article about Lyme Disease: https://medlineplus.gov/ency/article/001319.htm In many cases, including mine, I did not have a rash or even know when I had been bitten by the tick that caused my Lyme Disease. Therefore, I was not treated for Lyme Disease while in an early stage. I did have bouts of flu-like symptoms, stiff neck, joint pain and swelling, tendon pain, numbness and tingling in my hands and legs, and a significant cardiac dysrhythmia. Unlike typical PD, the onset of Lyme Disease symptoms in late stage Lyme Disease is very fast. I would feel relatively normal one day and wake up the next day feeling like I had a serious injury to my knee or elbow. After MANY months of symptoms; MANY visits to various neurologists with conflicting opinions; various tests (mostly abnormal); and a lot of frustration; my family doctor finally decided that intervention was needed and put me on the Burrascano Protocol for Lyme DIsease. I had a PIC line inserted and then six weeks of IV antibiotics, followed by months of oral antibiotics. My symptoms finally began to improve. Over the next ten years, my symptoms would occasionally come and go, but weren't as bad as they initially were. Around the year 2000, my symptoms returned with a vengeance. I walked with a limp; had numbness and tingling in my extremities; a significant cardiac dysrhythmia; swollen joints; and a large lump on my left Achilles Tendon. By this time, Al Gore had invented the internet. I did some research and discovered that there was a Lyme Disease Specialist only 100 miles from where I live. I went to see her and she did a bunch of blood tests. I had more than 50 (fifty) tubes of blood drawn on my first visit, including the blood sample she sent to Igenex (the reference lab for Lyme Disease). It was positive for Lyme Disease and the other blood tests showed a few other co-infections. My Lyme Disease doctor was both a MD and a ND (naturopathic doctor). She offered more oral antibiotics or an herbal treatment. She said that she had excellent results with the herbal treatment and I decided to give it a try. The herbal treatment is called the Cowden Protocol and I followed it to the letter. She said that the treatment would improve my symptoms and I have to admit that I was skeptical. My symptoms gradually improved and I have basically been in remission for the past few years (although I'm currently having neck pain and stiffness which I can't decide is the result of PD or Lyme Disease). Late stage Lyme Disease is bad, but in my opinion it's better than PD. With late stage Lyme Disease, at least there is the possibility of effective treatment of the disease, not just the symptoms. With late stage Lyme Disease, a cure is even possible, albeit not that likely. Many of these neurological diseases have similar symptoms. I'm absolutely sure that many people are misdiagnosed. For many months, the neurologists suspected that I had MS, when in fact I had Lyme Disease. Please feel free to ask if you have any questions. I'll be happy to help as much as I can.
  4. If you want a quality Lyme Disease test, your ILADS certified physician should send your blood test to IGenex, which is the gold standard of Lyme Disease labs. It is also imperative that you see an ILADS certified physician, as the typical doctor is clueless when it comes to Lyme Disease. I've got something to do this morning, but I'll try to describe my Lyme Disease experience later today.
  5. EXERCISE!
  6. New Normal is now saying that she has been diagnosed with Parkinsonism, not PD. That is clearly consistent with her multiple negative Datscans.
  7. Parkinsonism is basically a set of symptoms that include tremor, bradykinesia, rigidity, and postural instability that could stem from a number of conditions, including toxins, taking some medications, and Parkinson's disease. Parkinson's disease is the same set of symptoms caused by a degenerative neurological disease.
  8. I agree! The government should stop mandating insurance and get out of our lives to the maximum extent possible.
  9. The purpose of insurance is to protect the purchaser of the insurance from risks. If a prior sexual assault raises the risk, then the premiums must be higher. This is no different than a person that was hit by a drunk driver and has a pre-existing injury. Or, a person that was shot in a home invasion and has a pre-existing injury. Or, a person that has developed Parkinson's Disease. In all these cases, the person was not at fault for their injury or illness, yet they still have a pre-existing condition that would necessitate higher premiums to cover the increased risk. Like many others on this forum, I do not support the bill the Republicans just passed. I don't support it because the government is still involved in insurance and healthcare. I think the Republicans should have kept their word and simply repealed Obamacare, followed by passing legislation to get the government completely out of the insurance industry and the healthcare industry.
  10. Quietstill, You either missed my point or didn't want to address it. My point is that "insurance" is something you buy to protect yourself from a future peril. By definition, it is not insurance if you can wait until you experience a peril and then buy "insurance". That is the reason Obamacare failed - because people were able to buy insurance after they experienced a major peril. This made it necessary for the insurance companies to drastically raise their premiums, which drove even more people from the market. Insurance can not work if insurance companies can not raise premiums to match the risk they represent. The only solution is to get the government out of insurance and health care and let the market work.
  11. Dear Mr. Congressman/Congresswoman/Congresstransgenderperson, Please vote no on the healthcare bill because I don't think it's fair that I have to buy insurance before I get sick. It makes a lot more sense to wait until I'm sick before buying insurance. While you're at it, I also don't think that I should have to buy car insurance unless I have an accident. It's just plain crazy that I need to buy homeowner's insurance before the house burns down. You've given me a free Section 8 house; free utilities; free food; free money; and even a free Obama phone. Now I want free insurance!!! Thanks for the freebies!
  12. I think you should be concerned about all meds that you take. Doctors and drug interactions kill at least 783,000 people each year. The big problem is that doctors are taught to prescribe a pill for just about everything. The side effects from many of these drugs are much worse than the benefit they provide. When I was first diagnosed with PD, my neurologist prescribed Mirapex, which is a dopamine agonist. In all fairness, the Mirapex did somewhat improve my symptoms, but the most disturbing side effect was that it would cause EXTREME fatigue. I quit taking it when I fell asleep at a stop light. I could have easily been killed while driving as a side effect of this drug. The Mirapex was MUCH more dangerous than the PD. All of the PD meds have side effects. Prolonged use of Sinemet in PD patients causes dyskinesia, which is the uncontrolled movement that you see in people that are taking the drug. Is the side effect worse than the PD? In the opinion of my MDS and many others, the answer is yes. My MDS recommends treating PD with exercise and only starting PD meds when they are really needed. Many other neurologists and MDSs prescribe PD meds like candy. The motivation in prescribing many of these drugs is money. Just watch TV for an hour. The two predominant commercials are for drugs and lawyers. In many cases, the law commercials are advertising suing doctors and drug companies - LOL! I was diagnosed more than 3 1/2 years ago and don't take any PD drugs. I have no intention of starting any time soon. I do take a medical marijuana tincture, which helps with the tremors; sleeping difficulties; urinary urgency and frequency; fatigue; and more. The medical marijuana has no side effects that I can see. The medical marijuana is not pushed by my MDS or big pharma because they don't make any money from it.
  13. I can't smell anything.
  14. The other big problem with health insurance is that it is being used for routine care, which is not what insurance is intended to be. Does your homeowner's insurance pay to fix a leaky faucet? Does your car insurance pay for an oil change? Why should your health insurance pay for a routine doctor's office visit?
  15. Quite the contrary, Trump is the first president in modern history to do exactly what he promised during the campaign. I think that he's doing GREAT! The only way that health insurance will ever work is for the government to get out of it completely and let market forces work. Ditto for healthcare! Homeowner's insurance would not work if people could wait to buy insurance after their house burnt down. Car insurance would not work if people could wait to buy insurance after their car was destroyed in an accident. Health insurance does not work if people can wait to buy insurance after they have a serious illness.