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Everything posted by PatriotM

  1. Lyme induced parkinsonism

    Yes. In addition, the symptoms of PD and Lyme Disease are significantly different.
  2. Lyme induced parkinsonism

    Yes, that's correct. One neurologist and one MDS both have diagnosed me with PD. I would be surprised if either one of them know anything about Lyme induced parkinsonism.
  3. Lyme induced parkinsonism

    I had late stage, neuro Lyme for many years before being diagnosed with PD. My neuro thought that the Lyme Disease may have caused the PD. However, since no one really knows what causes PD, it's all just speculation.

    Here's the link: http://besthealthherbalcentre.com/testimonials.html They apparently not only cure Parkinson's, but ALS, COPD, Herpes, and just about everything else. Let's see...first time poster.... claims of a cure for just about everything. C'mon! Where's that eye roll Emoji???
  5. Trying Sinemet

    I'm now over 4 years since diagnosis. Exercise has been my primary medication for these past 4 years. About a year ago, my tremors were significant enough that people frequently asked what was wrong with me. The tremors made me look weak (sick), which is simply not acceptable to me. I began taking medical marijuana about a year ago and was very satisfied with the result. Not only did it improve the tremor, but it also virtually eliminated my frequent urination/urgency issue; lessened my fatigue; improved my sleep, and much more. All this improvement without side effects. Unfortunately, as time went on, I discovered several problems with using medical marijuana as the primary PD drug. None of these problems were related to medical issues, but rather legal and other practical issues. I discussed this in a recent post. Therefore, at my last MDS appointment, I discussed these issues with my MDS. He recommended trying Rimantadine. It had plenty of side effects but no effect on my tremor. He suggested trying Sinemet, which I am now doing. I'm taking one 25/100 tablet 3 times a day. One at 6:30 am. One at 11am. One at 4 pm. I was hesitant to carry medical marijuana in my vehicle and therefore often didn't take my medication on a very good schedule. With Sinemet, I can obviously keep Sinemet in my vehicle and therefore take my medication on a better schedule. The only significant side effects I've noticed with the Sinemet are nausea and vivid dreams (including nightmares). Sinemet does a surprisingly good job on my tremors, but doesn't do anything for my frequent urination/urgency issue. I also am not sleeping quite as well with Sinemet as with the MM. In summary, I believe that medical marijuana is the better drug. However, due to the legal and practical issues with marijuana, I am planning to reluctantly stick with Sinemet, at least for the foreseeable future.
  6. Bright side I guess

    Good one Stump. That's the first time I've ever seen one of these bright side of PD posts that really is a bright side!!! Not being able to smell vomit - the bright side of PD. LOL!
  7. I go to the MDS every 6 months. As for which MDS to go to, that's hard to say on the internet. Assuming they are both good doctors and up on the latest info, I would go to the closer one. The "gold standard of treatment" hasn't changed in many decades and I'm not sure what would be gained by driving the extra miles. The best treatment advice you'll get from any doctor is EXERCISE!
  8. 27 Male Frightened of YOPD.

    Honestly, I think the referral to a shrink was a good idea. This clearly doesn't sound anything like PD and a shrink might actually be able to help. I also think you need some help with your Google skills if you input rapidly changing hand pain and you got PD.
  9. Pfizerstopping R&D for PD

    The GOPTAXSCAM is going to make US corporations more competitive, which will bring more jobs and higher wages to the US. The GOPTAXSCAM will mean working class Americans will get a tax cut also. I will also be helping get out the vote this year, but you might not like the candidates I'm pushing. Almost everyone gets to keep more of what they earn. How could anyone be against that?
  10. Trying Sinemet

    Good to hear from you Christie!
  11. Stephen, It appears to me that your trial of marijuana was too erratic to be a good test. You started; you stopped; took one kind; then another; smoked; then took a tincture, etc. I think your trial would be more effective if you treated it like any other medicine. My recommendation would be to find a high quality marijuana and then make a tincture with it. Start out with a few drops and then titrate up in both dosage and frequency. For example, you might start out at 5 drops once a day for a week. Then, 10 drops once a day for a week. Follow this pattern until you notice adequate symptom improvement. Then, increase the frequency to twice a day for a week. Then, three times a day the next week. Keep up this pattern until you get adequate symptom relief without significant off periods. Obviously, if you're getting high, you're taking too much because now the marijuana is being abused and interfering with your ability to function normally instead of being a typical medication. Just my 2 cents.
  12. Loving Parent

    EVERYONE has to deal with trials in their life. You and your daughter are no exception. I just came from the family of a woman in her 40's who went to the hospital because her sugar was high and died yesterday of pneumonia. I know another person who went to the doctor not feeling well and died a month later of massive metastatic cancer. She was also in her 40's. Your daughter is alive and should be relatively healthy for years (decades) to come. The news could have been MUCH WORSE! Be thankful that it is only PD. Your daughter needs a mother who will stand behind her - not one who is in a major depression and is adding to her stress. My advice, seek medical help to fix your depression and be the mother that your daughter needs you to be. I wish you and your daughter all the best!
  13. What drugs? supplements like inisine?

    I've been taking Inosine for quite a while as it looked very promising at slowing progression in the Phase II trial. It is currently in a Phase III trial. My family doctor and my MDS are both supportive of me taking it and are monitoring my Uric Acid levels.
  14. New guy here - a journey I'd like to avoid

    One important correction: exercise is MUCH more important than medicine. PD medicine only masks the symptoms of PD. Exercise is the only thing shown to slow the progression of PD. Move it or lose it!
  15. 23 year old female worried about PD

    PD normally starts on one side - you have symptoms on both sides. Twitching is not a symptom of PD. PD progresses slowly, even if you have a bad case. It certainly doesn't get worse over a few days. I can't think of a serious disease that has twitching as a major symptom. After the doctor rules out everything serious, forget about your health and go live your life. Worrying about some sickness that you don't have is not a recipe for a happy life.
  16. 23 year old female worried about PD

    It seems to me that instead of seeing a neurologist or MDS, you should be seeing a mental health professional. By your own words, you have some sort of anxiety disorder that is causing you to think you have a serious disease. THAT is the problem that needs to be addressed.
  17. Call your senator about the awful tax bill

    Pure nonsense! The top 1% of earners pay 45% of individual income taxes. The top 20% of earners pay a whopping 84% of individual income taxes. Forty five percent of Americans pay no taxes at all. How much of a tax break should people get when they pay absolutely no taxes and when many get 'money back' (earned income tax credit, for example) when they didn't pay anything in the first place? Corporations and businesses do not pay taxes. Corporations and businesses pass their taxes on to consumers. When the corporate tax rate is higher in America than other countries, corporations move off shore so that they have lower taxes to pass on to consumers and therefore lower prices giving them a competitive advantage. I don't remember you saying a word about the national debt when Obama was President. He DOUBLED the debt. Why didn't you complain about that?
  18. 23 year old female worried about PD

    I've never heard of twitching being a symptom of PD. Also, weakness in both arms doesn't sound like PD. I would listen to your doctor. You already know that you have extreme health anxiety. Why would this be something different?
  19. Biggest Unanswered Questions in PD

    Biggest unanswered questions with PD? 1. What causes PD? 2. How do we effectively treat PD? 3. What is the cure for PD? Very little progress in MANY decades!
  20. Getting to thankfulness

    Why would anyone be thankful for being sick? No, not so thankful for a shaking hand, or PD mask, or memory problems, or word search problems, or...or...or.... Nope, not so much.
  21. Protandim

    Protandim is a Nrf2 Synergizer. It's basic purpose is to reduce oxidative stress. In other words, it basically functions as an anti-oxidant. I took it for several years as part of my Late Stage Lyme disease treatment. To the best of my knowledge, it does absolutely nothing for tremor.
  22. Attorney General Sessions hints that he may go after Medical Marijuana growers and Dispensaries. BOO! http://www.thedailysheeple.com/ag-jeff-sessions-suggests-prosecutions-for-marijuana-growers-sellers-and-users-in-legalized-states_112017
  23. I participated in the Fox Insight study. The watch and app frequently didn't stay connected and the technical support was TERRIBLE! It was a great idea but not run very well.
  24. Need help, Hate knowing its Parkinsons

    ALaurenLB1, Your symptoms don't sound like typical PD to me. PD usually starts on one side and progresses slowly, very slowly if you're in your 30's. Your symptoms seem to be on both sides, which is not typical for PD. I certainly would not tell your parents that you have PD. It doesn't sound to me like you have PD. I would not join a local PD support group. It doesn't sound to me like you have PD. I wonder if you were convinced that you had MS before it was ruled out? Take a deep breath. EXERCISE. See a MDS and let them make a diagnosis if that is appropriate. It is important that you get the RIGHT diagnosis; not just any diagnosis. If you are diagnosed with PD, you will quickly discover that there is no medication that does anything to modify the course of the disease. All we have are medications that hide the symptoms and all have side effects (some of which are worse than the disease). Good luck and let us know what the neurologist says.
  25. latest news on healthcare cuts coming

    It is absolutely inexcusable that the government (i.e. my tax dollars) are being used to pay for anyone's insurance. There is no "right" to insurance or any duty for anyone to have insurance. If a person doesn't want to pay for insurance, then they should accept the consequences. Get the government out of our insurance; out of our healthcare; and out of our lives!!!