helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

TheDucks

Members
  • Content count

    44
  • Joined

  • Last visited

Community Reputation

4 Neutral

About TheDucks

  • Rank
    Advanced Member

Profile Information

  • Gender
    Female
  • Location
    Virginia

Recent Profile Visitors

136 profile views
  1. Dear Dr Okun, Thank you so much for your clearly stated advice. I happen to come across an article regarding the panel discussion about Blood pressure in Parkinson. The panel includes NPF in Miami, Florida. The article can be found at this web linkk https://link.springer.com/article/10.1007%2Fs00415-016-8375-x I do not see your name on the article, are you advising the panel? The panel's recommendations concur with your advice. My husband's BP highest in the range 150 /90 during sleep only between 3am-waking up (6:30-8am) are in the 150 range. He took Sinemet 25/100 at bedtime usually 12:30-1am. Would Rytary taken at bedtime lowers his high blood pressure longer ( assumed less potency) than his current short acting Sinemet 25/100?
  2. Dear Dr Okun, Thank you for your advice somehow I did not get the notice of your response at all. My husband had 24 hours Blood pressure monitor done at home. The readings confirm that he has high blood pressure (range 150s/high 90s) during sleep and low blood pressure as low as 92/43 during waking. Lowest blood pressure readings are in the morning after getting up then slowly rising and around 5-6 pm, his blood pressure readings are within 110s/ high 70s. His MD specialist explains that this pattern of blood pressure is due to Parkinson diminishing autonomic function. We mention to both his internist and his MD specialist that he will compression stockings (15-20 mmHg) for awake low BP. However we are undecided if to try a short acting medication to lower high BP readings during sleep as his doctors say the medication may lower his waking low BP further. He has sleep apnea (moderate) but unable to use CPAP machine. He took 1 Sinemet 25/100 at bed time around 12am so his BP readings seem to be ok until about 3pm until getting up around 7:30-8am. His cholesterol, weight are good and he walks at least 30 minutes daily since diagnosed with Parkinson in 2013. He has osteoporosis, DEXA done 2016 is lowest at hip = 3.2 . He checks his blood pressure daily before leaving for his walk and if below 90/60, he drinks 1-2 glasses of water. Would you recommend to start a medication to lower his high blood pressure during sleep? Which medication do you prescribe in your practice for elevated blood pressure during sleep ? Thank you for your time and insightful advice
  3. Dear Dr Okun, Thank you so much for your time and your insightful advice as always. My husband is currently taking Sinemet 25/100 ( not 100/250 previously typo error) as 1.5-1-1.5-1-1.5-1 (last daily dose is 1 Sinemet at bedtime around 12am) He is also taking Ropinirole ER 8mg at 9am. The regimen seems to control his Parkinson shaking. We have Home blood pressure readings from getting up until bedtime around 12 am but unable to get blood pressure readings during his sleep. Would you advise using 24 hours ambulatory blood pressure monitoring to get readings during sleep for Parkinson ? Is the machine still accurate in Parkinson patients?
  4. My husband has had Parkinson since 2003. His blood pressure has been widely fluctuating from 130/90 during sleep to 70/50 during waking up in the morning. He is taking Sinemet 100/250. We are thinking about changing to Rytary and wonder if anyone has experienced less fluctuating blood pressure when switching Sinemet short acting to Rytary? Dear Dr Okun, would you please advise of your experience with Rytary regarding Blood pressure less fluctuating than Sinemet short acting? Thank you in advance
  5. Dear Dr Okun I read that CoQ10 helps with muscle pain from cholesterol medication statins. My husband has parkinson and has experienced low grade muscle pain. We are looking into CoQ10 for his fatigue partly due to this systemic pain. Would you explain more in your reply " Some people in the study did improve!", which areas are the improvements? Would you give reference study as our neurologist recommends" save the money for a cruise" instead of CoQ10? Thank you for your time and expertise "
  6. Dear Dr Okun, Does the DAT scan or any test measure the Dopamine level released in the brain? if so, does the level differ if measurement done before started Sinemet treatment? or time interval to Sinemet dose? Thank you
  7. Dear Dr Okun, Do you consider Ultra sound instead of DBS a breakthrough for Parkinson? Do you know any center in USA performs the Ultrasound ? as still not approved by FDA for Parkinson? Lastly, I read somewhere on the internet that severe hearing loss is a contra-indication to Ultrasound? Why? Thank you for your time
  8. Dr Okun Would appreciate your thoughts and your experience about NOW Foods Dopa Mucuna 15% L-Dopa, 90 Vcaps sold on Amazon and made by NOW in Illinois? Thank you
  9. Has anyone tried NOW Foods Dopa Mucuna 15% L-Dopa, 90 Vcaps sold on Amazon and made by NOW in Illinois? I would also like to ask Dr Okun and K Holder about this NOW Foods Dopa Mucuna 15% L-Dopa, 90 Vcaps
  10. Dear Dr Okun I find the link about PoNS device primarily tested for balance in MS. http://www.heliusmedical.com/our-research/clinical-trials. Would appreciate your thought Thank you
  11. Dear Dr Okun, My husband has experienced some pain (aka neuropathy?). The MDS ordered vit B blood levels which were normal, no vit B supplements recommended . What would be your practice if vitamin B levels normal ? Thank you for your time and expertise
  12. Hello Katherine, I wonder if you have heard of using Vetivar Essential Oil or any Essential Oil for insomnia and Parkinson? Thank you
  13. Dear Dr Okun, I would appreciate any comment you may have about the clinical trials ExAblate Transcranial MRgFUS to treat tremor and dyskinesia in Parkinson listed at https://www.clinicaltrials.gov/ct2/show/NCT01772693?term=parkinsons+exablate&rank=1 I read that the technique has been used for years to treat Essential Tremor Thank you for your time and your expertise
  14. Hello Aep, My husband is on Sinemet 25/100 during awake and 1 tablet at bedtime (total 750 mg Levodopa ) with waking up around 4am taking 0.5 Sinemet to resume sleep. We are interested in changing bedtime Sinemet 25/100 to Rytary, would you share your Mom's experience in switching to Rytary? which Sinemet CR dose ? which Rytary dose? Thank you in advance for your time and your response
  15. Hello Mark, My husband takes 1 Sinemet 25/100 at bedtime then around 4am waking up , he takes 1/2 Sinemet to fall back to sleep. I contacted Rytary manufacturer if possible to change the above Sinemet doses to Rytary at bedtime. They said there were no study done on a single dose change so they can not recommend. Do you think it is possible to change the above Sinemet dose to Rytary 36.25/145 taken at bedtime to prolong the sleep time ? Thank you for your advice