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Dancing Bear

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Dancing Bear last won the day on September 11

Dancing Bear had the most liked content!

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About Dancing Bear

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    Advanced Member

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  • Gender
    Male
  • Location
    The Great Southwest USA
  • Interests
    Flying, Reading, Travel, Family, Golf, Mentoring

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  1. Boy am I new to this

    You are in the right place on these forums. Agree with just about everything stump put out there. Attitude critical. Being in good shape a plus. Switch to an MDS if possible if you don't have one. Learn all you can about PD and be an "informed consumer" with your caregivers. There are some very educational fact sheets at www.pdf.org as well as this website. For me I have found that the disease progression on the physical movement side is on a different track than the mental cognitive side and it differs per individual of course. The drug equation requires periodic attention in terms of what your take as well as strength and frequency/interval. I did not need any drugs for first year at age 60 with a right hand tremor like yourself and have progressed from there over 4 years. There are some good discussions about meds on both the doctor and pharmacy sections of this websites forums. Every new drug introduced to me was carefully titrated up to the desired dosage. You are a cancer survivor and will deal with PD head-on and well I think once you get your bearings on this! Hang in there!
  2. Big News?

    My MDS estimated at least 15-20 years for a new drug/cure for trials and FDA approval and then if it is too expensive the drug companies may not produce it since it will not get much insurance company reimbursement interest (profits). Can anyone provide a sanity check on this estimate?
  3. Shifting subjects....who has cut the cable cord?

    Thanks for the info posted so far. I am researching the different boxes right now (Roku etc) and have found several useful comparisons online through the magic of Google. Roku seems to be the best for content selection ala carte. Still pursuing a DVR option to record programs.There is definitely some opportunity to save money. I will always have Cox for the internet service alone and may transfer my local phone service to Cox to save about 45.00/month from what I pay now. I could go cel phone only if I can convince my partner....... DB
  4. Need some help from those more enlightened than myself on this topic. Trying to reduce my costs of living in the cable department. I am on Cox Cable but would like to trim back cable expenses. Does anyone use Roku, Slingbox?, Apple TV etc. There is a wide array of equipment no doubt. We watch movies and content on some of the premium channels as well as Netflix and Amazon. My wife like her programming on the regular channels but also likes to save programs to DVR while we are traveling so that has become a hardcore "requirement". Anyone care to share their battle with the cable cord? If you use one of the streaming devices please share the positives and negatives as well. Thanks in advance! DB
  5. Finally sleeping about 8 hours - just amazing

    I am in the transition from Sinemet to Rytary so we will see how it impacts sleep patterns in the next few weeks. For the most part to date I wake up stiff on the side I sleep on-- CPAP allows me to sleep well with little movement. I have gotten some leg jitters from time to time before sleep if I watch TV in bed (Myclonic?). Linda, my avatar is temporarily a tribute to the venerable F-4 Phantom II I had the pleasure of flying early in career #1.
  6. Finally sleeping about 8 hours - just amazing

    I hear a healthy dose of Franklin's BBQ helps...... I have been doing well on CPAP for a couple years but lately have started waking after about 5-6 hours. Wonder if a dose of sinemet before bed might help?
  7. traveling with pd

  8. UNLV Gait Study

    Any PD folks in Vegas available? Short term 2 week participation. They need approx 8 more people. Contact Kathy directly if interested or questions Subjects Needed for Gait Training Study in Parkinson’s Disease The Neurophysiology of Movement Lab (directed by Dr. Brach Poston) and the Gait and Balance Lab (directed by Dr. Merrill Landers) at the University of Nevada Las Vegas are looking for persons with Parkinson’s disease to participate in a research study involving gait training in Parkinson’s disease. Study participants will be asked to perform a gait training protocol that involves walking on a specialized treadmill while receiving non-invasive, painless transcranial direct current stimulation of the motor cortex area of the brain. Participation in this study will require completion of 9 gait training sessions over a 2 week period each lasting about 30-45 minutes. In addition, 4 testing sessions will be done (1 on the first training day, 1 after the last training day, 1 two weeks after the two week training period ends, and 1 four weeks after the training period ends). All experiments will be performed in the Gait and Balance Lab, which is located in the BHS Building at the University of Nevada Las Vegas.  We are recruiting male and female Parkinson’s disease patients between the ages of 30 and 85 for this research.  We cannot accept persons who have suffered a neurological or peripheral injury or disease with a possible long-lasting effect on gait function.  Finally, we cannot accept people who have shrapnel or metal fragments in their head or people who have implanted medical devices such as pacemakers or deep brain stimulators. Participants will be compensated $100 cash for completing the experiment. If you are potentially interested, or for more information, please contact: RESEARCH ASSISTANT: Kathy Nagle kathleen.nagle@unlv.edu Lab Phone: 702-895-5473 Cell Phone: 216-650-3204 PRINCIPAL INVESTIGATOR: Dr. Brach Poston brach.poston@unlv.edu Office Phone: 702-895-5329
  9. Thinking of and Praying for our Fellow Americans in Houston

    Saw on the news tonight that only 15-20% of homeowners have flood insurance! The financial impact will live on long after the news reporters pack up their vans and go home. The 1000 year storm/flood just happened it seems. Prayers continue for all including the first responders. We are seeing some of the best things about America and Americans come through in this crisis.
  10. Bible Verses....

    Romans 1:16-17 (KJV) "For I am not ashamed of the gospel of Christ: for it is the power of God unto salvation to everyone who believeth; to the Jew first, and also to the Greek. For therein is the righteousness of God revealed from faith to faith: as it is written, The just shall live by faith". (Paul's writing to the church at Rome) John 17:17 (KJV) " Sanctify them through thy truth; thy word is truth." (Jesus praying to his father to keep the church pure) John 8:31-32 (KJV) Then said Jesus to those Jews which believed on him, " If ye continue in my word, then are ye my disciples indeed; And ye shall know the truth, and the truth shall make you free". There are multiple references in the New Testament to the power and truth of the gospel of Jesus Christ. Belief on him and his commandments is a saving faith. We are justified by faith and obedience to the gospel. A thorough study of Romans 3:21 and following reveals any man is justified through faith in the redemption suffered by Jesus Christ without regard to the deeds of the old law. Hope all Parkkies have a "winning" week ahead. To those involved in the education of our children at any level--administrators, support staff, teachers, and parents (education begins at home)......... my prayers go out for you for a safe and effective school year! Everyone one of you is a role model that the kids look up to. A very large responsibility! DB
  11. DB, your message box seems full....Cannot accept new messages, FI.

  12. Sorry you are in such a predicament. Without knowing your age, what type of work you are doing, how close you are to retiring etc I can only contribute initial thoughts. I am in the boat of having PD and close to retirement. - If you have difficulty doing current job is there a less demanding position in same company to move internally? -Avoid being fired for so many reasons. Would rather leave with a letter of recommendation. -Do you have inclination and resources to start your own small business? -cognitive decline has steered me away from school as well but could probably handle short term education like real estate agent certification / licensing etc. Not sure this helps but may spur ideas. DB
  13. Bible Verses....

    Grace........God's favor in the absence of merit. Where would mankind be without it? Ephesians 2:8-9 "For by grace are ye saved through faith; and that not of yourselves: it is the gift of God. Not of works, lest any man should boast." (KJV) Grace......How do we access it? Romans 5:1-2 "Therefore being justified by faith, we have peace with God through our Lord Jesus Christ. By whom also we have access by faith into this grace wherein we stand, and rejoice in hope of the glory of God." (KJV) Justified..........just as if I had never sinned. I read a commentary on grace the other day that amplifies the concept to me. In Gore Vidal's historical novel based on the life of Lincoln, Vidal pictures a cabinet meeting when it was evident that the South would be defeated and post-war plans were being made. When asked how he planned to deal with the rebels, Lincoln said, "I will treat them as if they never left". That's grace! DB
  14. Bible Verses....

    Luke 19:10 Jesus says....."For the Son of man is come to seek and to save that which is lost" (KJV) Col 4:5-6 "Walk in wisdom toward them that are without, redeeming the time. Let your speech be always with grace, seasoned with salt, that ye may know how ye ought to answer every man" (KJV) If Christians today are Christ's disciples on earth then it is up to us to be more Christ- like in every respect. Our efforts at evangelism should reflect the same mission that Christ himself says he was on earth for if we are to be like him. Easy to forget at times. DB
  15. 23 and me Participants - general PD genetics question

    I have done the 123 and follow-on promethease analysis. Before you do the promethease analysis of the 123andme raw data, ensure you are mentally prepared for all the risk factor mutations that may be in your DNA. Some may not want to know since there is not much you can do about your genes anyway. I have some history of Alzheimers in my family and I did have a mutation risk factor for that disease. Not a worry issue for me--just good to know. There is an entire website devoted to the APOE mutation group. I do have PD but did not have the mutations for that. I had an elevated risk for prostate cancer and sure enough I did have to deal with that successfully this year. Just because you have the risk factor mutations for many maladies does not mean you will get the disease. As has been mentioned in other threads things like lifestyle, and environmental factors have an impact. I personally believe it is important to capture the data from my genetic "footprint" for my children to have and use as they see fit just like family genealogies. For what it is worth. The FDA limits the amount of analysis 123andme can divulge from what I understand. DB
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