Jump to content
helplinedonate

Dancing Bear

Members
  • Content count

    218
  • Joined

  • Last visited

  • Days Won

    2

Dancing Bear last won the day on February 16

Dancing Bear had the most liked content!

Community Reputation

97 Excellent

About Dancing Bear

  • Rank
    Advanced Member

Profile Information

  • Gender
    Male
  • Location
    The Great Southwest USA
  • Interests
    Flying, Reading, Travel, Family, Golf, Mentoring

Recent Profile Visitors

1,791 profile views
  1. Dancing Bear

    PD is not the end

    Amen sister!
  2. Dancing Bear

    PD is not the end

    Agree with your sentiment. I have had a great life (not easy) filled with many blessings. Got my diagnosis at 61 but with slow progression I am still capable of doing many things. Just got back from a trip to help my brother out who has lymphoma. Who could have predicted our senior outcomes so to speak? I do the rock steady boxing program a few times a week and hit the elliptical trainer regularly. This past week I joined my 33 year old son in Memphis, TN at a predawn bootcamp style work out with 25 other relatively young guys-- 45 minutes of burpees, sit-ups, pushups, jumping jacks, windmills, and running. I hit several physical "walls" but finished the course in a pool of sweat. Doing that at sunrise with my son--priceless! Having no one suspect I had Parkinsons but was just a senior participant? That was exhilarating just to be one of the guys @ 64. yrs old. I have to keep challenging myself. Thankful each day, nothing taken for granted!
  3. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks all for some great insights and info. After helping my 61 yr old brother put his SSDI application in these last 2 weeks for cancer, I must say that simply applying for regular retirement benefits at 65 in a few short months holds an attraction to me. My PD case is not severe enough I think (score about 12 on UPDRS) and I am not sure my MDS would support the effort in my case. Will take another look at the blue book info then decide.
  4. Dancing Bear

    medicare coverage

    I am no insurance expert but might an insurance broker that deals in Medicare sups give you a better breakout? Just a thought if there is such a broker.
  5. Dancing Bear

    Bible Verses....

    Thanks Linda, I have heard it preached that for the faithful Christian, the last day on earth is truly the best day of their life because the passage from this imperfect sin sick world to an eternal life in heaven. Hard to get one's mind wrapped around the concept of eternity and perfection with the human mind. How is your summer going? Is your msg inbox full?
  6. Recently someone recommended a free book to me from the Phinney Foundation so I in turn highlight it here., "Every Victory Counts" is very comprehensive and downloadable in several electronic formats or in print. Helpful info on a variety of topics . Google it for the links to download.
  7. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks much all. Wrkjnky13 ...I sent you a message reference the pilot. Will probably try and give it a shot at applying for SSD. DB
  8. Dancing Bear

    Term Life Insurance -- Premiums?

    If anyone out there in forum land has been successful in obtaining term life insurance with Parkinsons as a pre-existing condition, could you share what companies you obtained the insurance from and approximately how much the premium Is (20 yr term or ?). Thanks DB
  9. Dancing Bear

    Bible Verses....

    Happy Fathers Day to all Parkkies! May you be a great example to your kids (and grown children) in dealing with life's challenges large and small. The article below reminds us of the great responsibilities parents have from a biblical perspective. The Lord shows the way in his word. PARENTS, OBEY YOUR FATHER BY JASON JACKSON Children are the most vulnerable creatures on earth. In the Encyclopedia of Biblical and Christian Ethics, the following astute observation is found: Sadly, many are not nurtured successfully. Some are the consequence of procreative irresponsibility, and many more are left to rear themselves. Children are plugged into the social engineering of a godless pop culture. Adolescent sex symbols are encouraged and popular TV sitcoms represent a lifestyle of self-indulgence — an “ideal” bed-swapping environment in which the motto is, “Oh my God, let’s have a baby.” When Paul addressed a Greco-Roman culture in which child-rearing left much to be desired, he revealed a divine truth that transcends time. God’s plan for parents will always meet the needs of children — in any age and culture. Human wisdom does, however, find its way into the hearts of even Christian parents. Let us evaluate our thinking in light of God’s Word. Parenting God’s Way The apostle wrote, “Children, obey your parents in the Lord for this is right” (Eph. 6:1). In this clear statement, Paul conveys the divine will that there is a specific relationship between children and parents. Children are to obey their parents, because God has designed the home with this order. Children are those who need nurturing, for they are developing. They require instruction and correction (Eph. 6:4). Children are not peers at this stage. There is an authority—subjection relationship in God’s family plan. This authority is delegated by God, and a parent must exercise that authority with respect to God who gives it. No parent can demand, with intrinsic authority, this or that of a child. Too many parents act as if they are “the Creator” and the child is “the creature.” Parenthood is a gift from God (Ps. 127:3). And so, faithful parents exercise limited, God-given authority for a God-given purpose. Paul also taught that God’s domestic arrangement involves a special role for parents — authority in action. They must communicate instructions and the apply correction. Children are to listen and obey. Parents must assume the role decreed by God. They must provide instruction and correction, training their children in the nurture and admonition of the Lord (Eph. 6:4; cf. Matt. 15:19). When parents are not parents, children still grow up, but their spiritual development is compromised. Paul reminds us that the Christian family includes spiritual responsibilities. The parent-child relationship and the exercise of the parental role are designed by God to mature a person who is sensitive to spiritual realities — a person who accepts his own spiritual responsibilities. Children need to learn “what is right” (Eph. 6:1). They must learn that obedience to the Lord is the ultimate motivation for all behavior (Eph. 6:1). This is accomplished by parents who regularly teach their children to obey out of a sense of duty to the Lord. Obedience is not mere compliance. Obedience means listening and doing what is required for the right reasons. According to the Lord, this is best taught early. Wouldn’t you agree? So that we may help our children learn to obey the Lord from the heart — the seat of behavior — we must teach them obedience from the earliest of years. This spiritual quality is taught by the parents who: Give clear expectations, some of which are morally inflexible. Provide consequences to disobedience that are fair and clear. Show consistent follow-through with rewards and punishment. Demonstrate a concrete example in that parents themselves are obedient to the Lord. Parental responsibility means helping your kids go to heaven. It takes time, attention, and divine insight. Be there for your children. Be a Christian parent. REFERENCES Harrison, R. K. (editor). 1992. Encyclopedia of Biblical and Christian Ethics. Revised Edition. Nashville: Thomas Nelson. SCRIPTURE REFERENCES Ephesians 6:1; Ephesians 6:4; Psalm 127:3; Matthew 15:19 CITE THIS ARTICLE Jackson, Jason. "Parents, Obey Your Father." ChristianCourier.com. Access date: June 17, 2018. https://www.christiancourier.com/articles/1190-parents-obey-your-father ©1998 – 2018 by Christian Courier Publications. All rights reserved. ISSN: 1559-2235
  10. Dancing Bear

    Exaggerated Startle Reflex

    Hello Doctor Okun Can you educate us on this Myoclonic jerking issue? Is it part of the Parkinsons family of symptoms or a separate related malady?
  11. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Sounds like SSA has a view that if you can't do your current professional job that does not necessarily mean you are not able to do any job? Filing for Social Security Disability with a Parkinson’s Disease Diagnosis Under guidelines set forth by the Social Security Administration (SSA) in it's "Blue Book," Parkinson’s Disease is a condition that can qualify a person for Social Security Disability benefits provided that certain diagnostic criteria are met and documented whiich include: rigidity bradykinesia, or tremor in two extremities causing ongoing problems with movement gait, or ability to stand There is no single test that can provide a definitive diagnosis of Parkinson’s Disease. Diagnosis is based upon an evaluation of the symptoms present, as well as a neurological examination. Also, the presence of at least two of what are considered to be the “cardinal symptoms” of Parkinson’s (which are tremor, bradykinesia, and muscle rigidity) can be considered to be strongly indicative of the presence of the condition. Additionally, tremors of the hands that occur while the hand is at rest, symptoms that begin on one side of the body, and/or a positive response to levodopa (a standard Parkinson’s medication) are also telltale diagnostic tools. It can be assumed that these symptoms could be used as the basis for a Social Security Disability case on their own should they become serious enough to inhibit one’s ability to work. If the disease has progressed to this point, however, the patient has likely already qualified based on physical/motor symptoms.
  12. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks Dan, I think I will not be severe enough by the criteria I have found through google searches today. Will just wait for FRA in one year. I have not even thought about VA since retiring from AF in 1997. DB
  13. I am a slow progression tremor dominant case that would be considered mild relatively speaking and have some degradations to "executive function", attention span, apathy. My company long term disability runs out at the end of the year as I turn 65 with one year left to Social Security FRA at 66. I was thinking of applying for SSDI. Has anyone with a milder PD case applied for SSDI and been denied ? I guess I ought to ask who has been approved as well. Thanks in advance for any "case studies". DB
  14. Dancing Bear

    Bible Verses....

    A worthy read and reminder about God's love from a brother in Christ Marty Kessler who is a gospel preacher in Oklahoma. Have a great day! For my fellow Bible students..... The Bible teaches that we will all stand before the judgment seat of God. The very thought of standing before the one who knows me as I actually am, is terrifying, because I know I’ve done a lot of stupid, ungodly things for which I have no excuse. But I am not afraid. I am not afraid because of his son’s cross. “…..having forgiven us all our transgressions, having canceled out the certificate of debt consisting of decrees against us and which was hostile to us; and He has taken it out of the way, having nailed it to the cross”, Colossians 2:13-14 I am not afraid because he takes my weak, faltering faith and counts it as his own righteousness. “But to the one who does not work, but believes in Him who justifies the ungodly, his faith is reckoned as righteousness…..”, Romans 4:5 I am not afraid because God loves me in spite of my past. His love for me is not dependent on me being good, because I can’t. Instead, his love is based solely on his eternal goodness, and therefore completely reliable. “And we have come to know and have believed the love which God has for us. God is love, and the one who abides in love abides in God, and God abides in him. By this, love is perfected with us, that we may have confidence in the day of judgment; because as He is, so also are we in this world. There is no fear in love; but perfect love casts out fear, because fear involves punishment, and the one who fears is not perfected in love. We love, because He first loved us”, 1st John 4:16-19. Life without fear is freedom.
  15. Dancing Bear

    sleep apnea and cognative decline in pd

    Been on CPAP since 2014 myself. Did you change your pressure setting on your own or as a result of a new sleep study? What is myoclonus? Leg twitches while in bed?
×