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Dancing Bear

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Dancing Bear last won the day on February 16

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About Dancing Bear

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    Advanced Member

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  • Gender
    Male
  • Location
    The Great Southwest USA
  • Interests
    Flying, Reading, Travel, Family, Golf, Mentoring

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  1. Rock Steady Boxing - definitely worth looking at

    Followup.....went to a Rock Steady session yesterday and was impressed with the multi-phase regimen. It is not for everybody especially if you have bad knees etc but I found it challenging and beneficial. I plan on going for a few months to start. As others have pointed out, perhaps the biggest benefit was some comraderie with fellow Parkkies of various ages and PD stages. It dawned on me driving over there that I had never met other folks with PD before. I was encouraged and inspired by the attitudes of many. There was even a non-PD stroke victim in the class who has shown the most improvement of anyone-- interesting! I recommend a free trial session to anyone who has an opportunity nearby.
  2. Rock Steady Boxing - definitely worth looking at

    Thanks Noah
  3. Rock Steady Boxing - definitely worth looking at

    Going to a trial session of Rock Steady Boxing this week. Just curious if those that go steadily (2X/week?) find that it replaces their gym regimens? I assume that most who participate have early to mid PD cases but could be wrong. I have an elliptical at home for cardio and do PT at home. Just wondering if this program is a substitute or complement to a gym membership for strength training? Thanks in advance!
  4. Early PD and vigorous exercise

    Anyone know how much the Rock Steady Boxing program costs per week or month? I imagine some differences are geographic.
  5. Bible Verses....

    "Being born again, not of corruptible seed, but of incorruptible, by the word of God, which liveth and abideth forever. For all flesh is as grass, and all the glory of man as the flower of grass. The grass withereth, and the flower thereof falleth away: But the word of the Lord endureth for ever. And this is the word which by the gospel is preached to you." 1 Peter 1:23-25. (KJV) The Bible tells of our origins, God's enduring love for man, our purpose here on earth, and our destiny. It is the book of books. "But his delight is in the law of the Lord; and in his law doth he meditate day and night." Psalm 1:2 (KJV) Hope all have a good day!
  6. Apathy - any suggestions

    +1 on Linda's comments. Just have to go get 'er done. I may add that if it is going to get done it will in the first two thirds of the day before fatigue sets in for me! I get up relatively early and by the third cup of coffee around 8am when the news on TV starts to repeat itself I know it is time to get in gear. I try and concentrate on that one or two main "to dos" and I keep a running list for the week and cross them off as they get done. Exercise, as a natural habit< is the biggest challenge for me and my sedentary type B personality. Executive function is taking some hits here and there in the planning stage. That all being said, there are still a few things I used to care about that just don't matter to me anymore! Thats no all bad when productive time is less. DB
  7. Getting to thankfulness

    I am thankful to have been blessed with the years I have lived, the experiences I have had, and the family and people around me. PD has fined tuned my priorities and sense of time like LAD discussed. We are all going to die some day, few get to choose, and I do not take the next hour or day for granted. I am just as vulnerable to be killed in a car wreck, or due to the mistake of someone else, by some other disease yet to come-- who knows? I look ahead and not behind. PD is another personal challenge in my life and Lord willing I will continue to deal with it.
  8. PD is another one of life's challenges to be reckoned with. I was almost relieved to be diagnosed with PD since there is a streak of Alzheimers cases in my family history. Throw all your troubles in a pile with everyone else's then see what is in that pile and you might be grabbing yours back again. Reading about the PD complexities of others on this forum is enough for me to be thankful for the cards I have been dealt. Trying to show some compassion and support of others is important to me. My biggest challenges lay ahead so here in my mid 60s, with most of my marbles and physical capabilities, is still "prime time" to enjoy travel, family etc. Preparing for the future is also a priority. No time to waste. In the list above I would start out with finding another neurologist........hopefully an MDS! Using the internet and my care team to learn as much as I can about PD is a great defense for many bullets on the list. PD is not my identifier or legacy.
  9. Bible Verses....

    James Ch 1 v 19-21 Wherefore, my beloved brethren, let every man be swift to hear, slow to speak, slow to wrath. For the wrath of man worketh not the righteousness of God. Wherefore lay apart all filthiness and superfluity of naughtiness, and receive with meekness the engrafted word, which is able to save your souls. (KJV) Isaiah Ch 59 v 18-21 According to their deeds accordingly he will repay, fury to his adversaries, recompense to his enemies; to the islands he will repay recompense. So shall they fear the name of the Lord from the west, and his glory from the rising of the sun. When the enemy shall come in like a flood, the Spirit of the Lord shall lift up a standard against him. And the Redeemer shall come to Zion and unto them that turn from transgression in Jacob, saith the Lord. As for me, this is my covenant with them, saith the Lord; My spirit that is upon thee, and my words which I have put in thy mouth, shall not depart out of thy mouth, nor out of the mouth of thy seed, nor out of the mouth of thy seed's seed, saith the Lord, from henceforth and for ever. (KJV) Romans Ch 12 v 17-19 Recompense to no man evil for evil. Provide things honest in the sight of all men. If it be possible, as much as lieth in you, live peaceably with all men. Dearly beloved, avenge not yourselves, but rather give place unto wrath for it is written, Vengeance is mine; I will repay, saith the Lord. (KJV) John 16 v 33 These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world. (KJV) Charleston, Nashville, Las Vegas, Sutherland Springs, and New York City to name a few. The tragic shootings and violence in these places evoke heartbreak, anxiety, fear, and anger. These are natural human reactions to murder and evil. However, the bible says the anger of man does not accomplish God's righteousness. He says to cast our care, worries, and fears on him. Time and again we see and know that not everything is fair and just in this life as long as there is imperfect human agency and evil. The word of God and his promises are calming and of comfort in these times. He knows all and will be the final judge!
  10. planning for the future

    Don’t forget the financial planning aspects if your husband handled all that. Do you have a family member knowledgeable in your estate etc? A financial planner or advisor?
  11. Some advice please

    Sorry to hear about your dad's apparent PD progression to another level. Hopefully your dad's neurologist is also an MDS. The best thing to do is document all the symptoms and pass them along to the doc. I have been reading about Lewy body dementia and it sounds like your dad possibly has some of the common symptoms for this-- visual hallucinations, sleep issues. You may want to read up on this before your appointment. I am not a professional, just a PWP. Question the doc about this if he or she doesn't talk about it.
  12. Photography and Parkinsons

    Scott, Enjoyed your website and especially the landscape photos! Well done. I am not a professional photographer but enjoy spur of the moment shots. Most of my better landscape pics were situational during my flying career and taken at 35000 ft with an iPhone.
  13. Insurance? I'm only 57.

    Agree that you need to get insurance nailed down before proceeding further. There is a gap of info in that I don't know if you are covered through work already and can easily move between plans or if your husband is the primary covered and bread winner. Don't know if you gang has special health issues or other circumstances to stay with certain providers. I have been on my large company's plan through diagnosis and a couple years after that. I also have Tricare through military retirement as a secondary. Thankful to have both although after initial diagnosis for PD I have been cruising along with symptom control only so far as a slow progression case. My opinion is that a traditional PPO plan is better for max freedom of choice of providers ( for all my and my wife's maladies/providers) and there are some higher deductible PPOs in my company's family of plans. It really kinda depends on your current location, quality and number of providers, and what is available at least for the next insurance cycle. Next year I turn 65 and officially retire. If I want to sign up on the same company plan I have now it will be alot more costly so I will probably go with Medicare and Tricare only. I have been counseled that it is better to sign up for the company plan then suspend it. If you ever need it you can get into it again. If you refuse it it is gone for good--no opportunity to get it back again. At least for my company's plan. I think the Phoenix area had good Parkinsons support. Don't know about Tuscon, AZ
  14. Boy am I new to this

    You are in the right place on these forums. Agree with just about everything stump put out there. Attitude critical. Being in good shape a plus. Switch to an MDS if possible if you don't have one. Learn all you can about PD and be an "informed consumer" with your caregivers. There are some very educational fact sheets at www.pdf.org as well as this website. For me I have found that the disease progression on the physical movement side is on a different track than the mental cognitive side and it differs per individual of course. The drug equation requires periodic attention in terms of what your take as well as strength and frequency/interval. I did not need any drugs for first year at age 60 with a right hand tremor like yourself and have progressed from there over 4 years. There are some good discussions about meds on both the doctor and pharmacy sections of this websites forums. Every new drug introduced to me was carefully titrated up to the desired dosage. You are a cancer survivor and will deal with PD head-on and well I think once you get your bearings on this! Hang in there!
  15. Big News?

    My MDS estimated at least 15-20 years for a new drug/cure for trials and FDA approval and then if it is too expensive the drug companies may not produce it since it will not get much insurance company reimbursement interest (profits). Can anyone provide a sanity check on this estimate?
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