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Dancing Bear

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Everything posted by Dancing Bear

  1. Dancing Bear

    Bible Verses....

    Without any attempt to start a thread I post a periodic Bible verse that may be the source of some strength, comfort, or inspiration to my fellow "Parkies" in the best or worst of times as we deal with our challenges. Feel free to add a verse if you wish for those so inclined on this topic. It would be helpful if you mention what bible translation your verse is from if you do post. Have a great week. Romans 8:35-39 (KJV) Paul to the church at Rome Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? As it is written, For thy sake we are killed all the day long; we are counted as sheep for the slaughter. Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
  2. I am a slow progression tremor dominant case that would be considered mild relatively speaking and have some degradations to "executive function", attention span, apathy. My company long term disability runs out at the end of the year as I turn 65 with one year left to Social Security FRA at 66. I was thinking of applying for SSDI. Has anyone with a milder PD case applied for SSDI and been denied ? I guess I ought to ask who has been approved as well. Thanks in advance for any "case studies". DB
  3. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Sounds like SSA has a view that if you can't do your current professional job that does not necessarily mean you are not able to do any job? Filing for Social Security Disability with a Parkinson’s Disease Diagnosis Under guidelines set forth by the Social Security Administration (SSA) in it's "Blue Book," Parkinson’s Disease is a condition that can qualify a person for Social Security Disability benefits provided that certain diagnostic criteria are met and documented whiich include: rigidity bradykinesia, or tremor in two extremities causing ongoing problems with movement gait, or ability to stand There is no single test that can provide a definitive diagnosis of Parkinson’s Disease. Diagnosis is based upon an evaluation of the symptoms present, as well as a neurological examination. Also, the presence of at least two of what are considered to be the “cardinal symptoms” of Parkinson’s (which are tremor, bradykinesia, and muscle rigidity) can be considered to be strongly indicative of the presence of the condition. Additionally, tremors of the hands that occur while the hand is at rest, symptoms that begin on one side of the body, and/or a positive response to levodopa (a standard Parkinson’s medication) are also telltale diagnostic tools. It can be assumed that these symptoms could be used as the basis for a Social Security Disability case on their own should they become serious enough to inhibit one’s ability to work. If the disease has progressed to this point, however, the patient has likely already qualified based on physical/motor symptoms.
  4. Dancing Bear

    Social Security Disability...who has been denied w/PD?

    Thanks Dan, I think I will not be severe enough by the criteria I have found through google searches today. Will just wait for FRA in one year. I have not even thought about VA since retiring from AF in 1997. DB
  5. Dancing Bear

    Bible Verses....

    A worthy read and reminder about God's love from a brother in Christ Marty Kessler who is a gospel preacher in Oklahoma. Have a great day! For my fellow Bible students..... The Bible teaches that we will all stand before the judgment seat of God. The very thought of standing before the one who knows me as I actually am, is terrifying, because I know I’ve done a lot of stupid, ungodly things for which I have no excuse. But I am not afraid. I am not afraid because of his son’s cross. “…..having forgiven us all our transgressions, having canceled out the certificate of debt consisting of decrees against us and which was hostile to us; and He has taken it out of the way, having nailed it to the cross”, Colossians 2:13-14 I am not afraid because he takes my weak, faltering faith and counts it as his own righteousness. “But to the one who does not work, but believes in Him who justifies the ungodly, his faith is reckoned as righteousness…..”, Romans 4:5 I am not afraid because God loves me in spite of my past. His love for me is not dependent on me being good, because I can’t. Instead, his love is based solely on his eternal goodness, and therefore completely reliable. “And we have come to know and have believed the love which God has for us. God is love, and the one who abides in love abides in God, and God abides in him. By this, love is perfected with us, that we may have confidence in the day of judgment; because as He is, so also are we in this world. There is no fear in love; but perfect love casts out fear, because fear involves punishment, and the one who fears is not perfected in love. We love, because He first loved us”, 1st John 4:16-19. Life without fear is freedom.
  6. Dancing Bear

    sleep apnea and cognative decline in pd

    Been on CPAP since 2014 myself. Did you change your pressure setting on your own or as a result of a new sleep study? What is myoclonus? Leg twitches while in bed?
  7. Dancing Bear

    Bible Verses....

    The resurrection of Jesus Christ from the dead is the foundation of the Christian system and is reflected on weekly by Christians. It is not an annual celebration/rememberance reserved just at Easter as some may practice. Jesus Christ's victory over death and our assurance that physical death is not the termination of human existence is indeed a cause for joy and strength. The Lord was the only perfect passover sacrifice suitable for forgiveness of our sins. A read of John 20 refreshes us on the Lord's resurrection (NASB) The Empty Tomb 1Now on the first day of the week Mary Magdalene came early to the tomb, while it was still dark, and saw the stone already taken away from the tomb. 2So she ran and came to Simon Peter and to the other disciple whom Jesus loved, and said to them, “They have taken away the Lord out of the tomb, and we do not know where they have laid Him.” 3So Peter and the other disciple went forth, and they were going to the tomb. 4The two were running together; and the other disciple ran ahead faster than Peter and came to the tomb first; 5and stooping and looking in, he saw the linen wrappings lying there; but he did not go in.6And so Simon Peter also came, following him, and entered the tomb; and he saw the linen wrappings lying there, 7and the face-cloth which had been on His head, not lying with the linen wrappings, but rolled up in a place by itself. 8So the other disciple who had first come to the tomb then also entered, and he saw and believed. 9For as yet they did not understand the Scripture, that He must rise again from the dead.10So the disciples went away again to their own homes. 11But Mary was standing outside the tomb weeping; and so, as she wept, she stooped and looked into the tomb; 12and she saw two angels in white sitting, one at the head and one at the feet, where the body of Jesus had been lying. 13And they said to her, “Woman, why are you weeping?” She said to them, “Because they have taken away my Lord, and I do not know where they have laid Him.” 14When she had said this, she turned around and saw Jesus standing there, and did not know that it was Jesus. 15Jesus said to her, “Woman, why are you weeping? Whom are you seeking?” Supposing Him to be the gardener, she said to Him, “Sir, if you have carried Him away, tell me where you have laid Him, and I will take Him away.” 16Jesus said to her, “Mary!” She turned and said to Him in Hebrew, “Rabboni!” (which means, Teacher). 17Jesus said to her, “Stop clinging to Me, for I have not yet ascended to the Father; but go to My brethren and say to them, ‘I ascend to My Father and your Father, and My God and your God.’” 18Mary Magdalene came, announcing to the disciples, “I have seen the Lord,” and that He had said these things to her. Jesus among His Disciples 19So when it was evening on that day, the first day of the week, and when the doors were shut where the disciples were, for fear of the Jews, Jesus came and stood in their midst and said to them, “Peace bewith you.” 20And when He had said this, He showed them both His hands and His side. The disciples then rejoiced when they saw the Lord. 21So Jesus said to them again, “Peace be with you; as the Father has sent Me, I also send you.” 22And when He had said this, He breathed on them and said to them, “Receive the Holy Spirit. 23“If you forgive the sins of any, their sins have been forgiven them; if you retain the sins of any, they have been retained.” 24But Thomas, one of the twelve, called Didymus, was not with them when Jesus came. 25So the other disciples were saying to him, “We have seen the Lord!” But he said to them, “Unless I see in His hands the imprint of the nails, and put my finger into the place of the nails, and put my hand into His side, I will not believe.” 26After eight days His disciples were again inside, and Thomas with them. Jesus came, the doors having been shut, and stood in their midst and said, “Peace be with you.” 27Then He said to Thomas, “Reach here with your finger, and see My hands; and reach here your hand and put it into My side; and do not be unbelieving, but believing.” 28Thomas answered and said to Him, “My Lord and my God!” 29Jesus said to him, “Because you have seen Me, have you believed? Blessed are they who did not see, and yetbelieved.” Why This Gospel Was Written 30Therefore many other signs Jesus also performed in the presence of the disciples, which are not written in this book; 31but these have been written so that you may believe that Jesus is the Christ, the Son of God; and that believing you may have life in His name.
  8. Dancing Bear

    Do any of you here sleep - I get little or none

    I have mild sleep apnea and use CPAP. Diagnosed around the time of PD diagnosis. Slept well until last few months when I would wake up around 3 am and have hard time going back to sleep. MDS recommended trying Melatonin in a 5mg dose first for a week, then 10 mg if need be. If that did not work then I am to try 1 cap of Rytary and see if that helps. Melatonin in a 5mg tab seems to work for me so far. (Last dose of Rytary is around 5pm). No ill effects. Deeper sleep will produce more dreams I think.
  9. Dancing Bear

    Bible Verses....

    https://www.christiancourier.com/articles/971-biblical-concept-of-atonement-the THE BIBLICAL CONCEPT OF ATONEMENT BY WAYNE JACKSON The English word “atonement” derives from an Anglo-Saxon term which, practically speaking, signifies “a making at one.” Though the English term “atonement” is common to the Old Testament, it is found only once in the New Testament (Romans 5:11 KJV). There the original term katallage is better rendered “reconciliation” (ASV; cf. also 2 Corinthians 5:19). The Greek word denotes the “reestablishment of an interrupted or broken relationship” (F.W. Danker, et al. 2000. Greek-English Lexicon. Chicago: University of Chicago. 521). In the biblical context, atonement has to do with the plan employed by the Lord to provide a way of salvation for sinful humanity by means of the redemptive mission of Christ. Here are the basic facts. (1) God is a perfectly holy Being (Isaiah 6:3; Revelation 4:8); sin, therefore, is contrary to his very nature (James 1:13). As a truly holy Being, the Lord cannot ignore sin, or tolerate wickedness indefinitely, in any form (Habakkuk 1:13). (2) Jehovah is also a God of justice. It is the very foundation of his rule (Psalm 89:14). Accordingly, some satisfaction for sin must be made. The principle is this: “The wages of sin is death” (Romans 6:23). (3) If, therefore, man was to be redeemed, God would have to extend mercy (cf. Ephesians 2:4) in some fashion whereby divine justice could be satisfied. Exactly how was that to be achieved? A “death” would be required to remedy the problem (Hebrews 9:22). (4) The solution is realized in the gift of Christ. Jesus lived the sinless life (John 8:29; Hebrews 4:15; 1 Peter 2:22), and therefore became qualified to function as a substitute offering on man’s behalf (cf. Hebrews 5:8-9). Through Jesus’ death, Heaven’s requirement of justice is satisfied (see Isaiah 53:11; Romans 3:22ff). Hence, the atoning offering of the Son of God became available to all men (Isaiah 53:6; John 3:16; 1 Timothy 2:4; 2 Peter 3:9 (5) Jesus is the author of eternal salvation to all who obey him (John 3:36; Romans 6:17-18; Hebrews 5:8-9). One is reconciled to God when he, through obedience, accepts Christ as his “atonement” offering. SCRIPTURE REFERENCES Romans 5:11; 1 Corinthians 5:13; Isaiah 6:3; Revelation 4:8; James 1:13; Habakkuk 1:13; Psalm 89:14; Romans 6:23; Ephesians 2:4; Hebrews 9:22; John 8:29; Hebrews 4:15; 1 Peter 2:22; Hebrews 5:8-9; Isaiah 53:11; Romans 3:22; Isaiah 53:6; John 3:16; 1 Timothy 2:4; 2 Peter 3:9; John 3:36; Romans 6:17-18 CITE THIS ARTICLE Jackson, Wayne. "The Biblical Concept of Atonement." ChristianCourier.com. Access date: March 10, 2018. https://www.christiancourier.com/articles/971-biblical-concept-of-atonement-the
  10. Dancing Bear

    Just Interesting Things about This and That

    Hi Linda......can't send you msg. Is your inbox full?
  11. Dancing Bear

    Bible Verses....

    Avbunyan, thanks for the reminder of the value of suffering from a Biblical perspective. If we are to be Christ like in the world, then Christ provided the perfect example in suffering for the sins of all mankind in all generations. In today's world we are reminded by the news media that there are Christians around the globe that suffer greatly for their faith, even to death. Our circumstances in this country are not so harsh in life and death persecution for one's faith but will it remain that way in the decades ahead? Separate Topic.. Museum of the Bible in Washington DC. Have you heard of it? It will be on the agenda for my next DC visit. Check it out at museumoftheBible.org Have a great Lord's Day!
  12. Dancing Bear

    Life Insurance Qs

    Planning on keeping my policy and just reducing death benefit / premium if nothing else new is possible. They cant kick me out.👏🏻
  13. Dancing Bear

    Life Insurance Qs

    I am getting ready to retire at year’s end. I currently have about 600k in GVUL insurance. Was thinking about getting some term insurance for a lesser amount when I retire. Will insurance companies insure Parrkies or charge more? Anyone?
  14. Dancing Bear

    Which Medicare Insurance to Choose?

    My MDS uses the UPDRS Scale (Unified PD Rating Scale). If you google it you can see all the evaluation items that get scored and go into it. This is different than the Stage 1,2,3, 4 scale/criteria. The MDS observes your performance over a range of physical tasks (toe tapping, grip strength, finger tapping etc) and there is a battery of questions relating to depression, cognition, recent falls, balance issues etc.
  15. Dancing Bear

    Which Medicare Insurance to Choose?

    My MDS used Datscan to confirm diagnosis after evaluating me using other protocols. Great tool in diagnosis. Since I will be on Medicare (with Military Tricare secondary) at the end of the year I too am researching what is covered and not covered by both plans. Anyone in forum land have a similar setup who has any advice?
  16. Dancing Bear

    Rock Steady Boxing - definitely worth looking at

    Followup.....went to a Rock Steady session yesterday and was impressed with the multi-phase regimen. It is not for everybody especially if you have bad knees etc but I found it challenging and beneficial. I plan on going for a few months to start. As others have pointed out, perhaps the biggest benefit was some comraderie with fellow Parkkies of various ages and PD stages. It dawned on me driving over there that I had never met other folks with PD before. I was encouraged and inspired by the attitudes of many. There was even a non-PD stroke victim in the class who has shown the most improvement of anyone-- interesting! I recommend a free trial session to anyone who has an opportunity nearby.
  17. Dancing Bear

    Rock Steady Boxing - definitely worth looking at

    Thanks Noah
  18. Dancing Bear

    Rock Steady Boxing - definitely worth looking at

    Going to a trial session of Rock Steady Boxing this week. Just curious if those that go steadily (2X/week?) find that it replaces their gym regimens? I assume that most who participate have early to mid PD cases but could be wrong. I have an elliptical at home for cardio and do PT at home. Just wondering if this program is a substitute or complement to a gym membership for strength training? Thanks in advance!
  19. Dancing Bear

    Early PD and vigorous exercise

    Anyone know how much the Rock Steady Boxing program costs per week or month? I imagine some differences are geographic.
  20. Dancing Bear

    Bible Verses....

    "Being born again, not of corruptible seed, but of incorruptible, by the word of God, which liveth and abideth forever. For all flesh is as grass, and all the glory of man as the flower of grass. The grass withereth, and the flower thereof falleth away: But the word of the Lord endureth for ever. And this is the word which by the gospel is preached to you." 1 Peter 1:23-25. (KJV) The Bible tells of our origins, God's enduring love for man, our purpose here on earth, and our destiny. It is the book of books. "But his delight is in the law of the Lord; and in his law doth he meditate day and night." Psalm 1:2 (KJV) Hope all have a good day!
  21. Dancing Bear

    Apathy - any suggestions

    +1 on Linda's comments. Just have to go get 'er done. I may add that if it is going to get done it will in the first two thirds of the day before fatigue sets in for me! I get up relatively early and by the third cup of coffee around 8am when the news on TV starts to repeat itself I know it is time to get in gear. I try and concentrate on that one or two main "to dos" and I keep a running list for the week and cross them off as they get done. Exercise, as a natural habit< is the biggest challenge for me and my sedentary type B personality. Executive function is taking some hits here and there in the planning stage. That all being said, there are still a few things I used to care about that just don't matter to me anymore! Thats no all bad when productive time is less. DB
  22. Dancing Bear

    Getting to thankfulness

    I am thankful to have been blessed with the years I have lived, the experiences I have had, and the family and people around me. PD has fined tuned my priorities and sense of time like LAD discussed. We are all going to die some day, few get to choose, and I do not take the next hour or day for granted. I am just as vulnerable to be killed in a car wreck, or due to the mistake of someone else, by some other disease yet to come-- who knows? I look ahead and not behind. PD is another personal challenge in my life and Lord willing I will continue to deal with it.
  23. PD is another one of life's challenges to be reckoned with. I was almost relieved to be diagnosed with PD since there is a streak of Alzheimers cases in my family history. Throw all your troubles in a pile with everyone else's then see what is in that pile and you might be grabbing yours back again. Reading about the PD complexities of others on this forum is enough for me to be thankful for the cards I have been dealt. Trying to show some compassion and support of others is important to me. My biggest challenges lay ahead so here in my mid 60s, with most of my marbles and physical capabilities, is still "prime time" to enjoy travel, family etc. Preparing for the future is also a priority. No time to waste. In the list above I would start out with finding another neurologist........hopefully an MDS! Using the internet and my care team to learn as much as I can about PD is a great defense for many bullets on the list. PD is not my identifier or legacy.
  24. Dancing Bear

    Bible Verses....

    James Ch 1 v 19-21 Wherefore, my beloved brethren, let every man be swift to hear, slow to speak, slow to wrath. For the wrath of man worketh not the righteousness of God. Wherefore lay apart all filthiness and superfluity of naughtiness, and receive with meekness the engrafted word, which is able to save your souls. (KJV) Isaiah Ch 59 v 18-21 According to their deeds accordingly he will repay, fury to his adversaries, recompense to his enemies; to the islands he will repay recompense. So shall they fear the name of the Lord from the west, and his glory from the rising of the sun. When the enemy shall come in like a flood, the Spirit of the Lord shall lift up a standard against him. And the Redeemer shall come to Zion and unto them that turn from transgression in Jacob, saith the Lord. As for me, this is my covenant with them, saith the Lord; My spirit that is upon thee, and my words which I have put in thy mouth, shall not depart out of thy mouth, nor out of the mouth of thy seed, nor out of the mouth of thy seed's seed, saith the Lord, from henceforth and for ever. (KJV) Romans Ch 12 v 17-19 Recompense to no man evil for evil. Provide things honest in the sight of all men. If it be possible, as much as lieth in you, live peaceably with all men. Dearly beloved, avenge not yourselves, but rather give place unto wrath for it is written, Vengeance is mine; I will repay, saith the Lord. (KJV) John 16 v 33 These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world. (KJV) Charleston, Nashville, Las Vegas, Sutherland Springs, and New York City to name a few. The tragic shootings and violence in these places evoke heartbreak, anxiety, fear, and anger. These are natural human reactions to murder and evil. However, the bible says the anger of man does not accomplish God's righteousness. He says to cast our care, worries, and fears on him. Time and again we see and know that not everything is fair and just in this life as long as there is imperfect human agency and evil. The word of God and his promises are calming and of comfort in these times. He knows all and will be the final judge!
  25. Dancing Bear

    planning for the future

    Don’t forget the financial planning aspects if your husband handled all that. Do you have a family member knowledgeable in your estate etc? A financial planner or advisor?
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