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Dancing Bear

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Everything posted by Dancing Bear

  1. Need some help from those more enlightened than myself on this topic. Trying to reduce my costs of living in the cable department. I am on Cox Cable but would like to trim back cable expenses. Does anyone use Roku, Slingbox?, Apple TV etc. There is a wide array of equipment no doubt. We watch movies and content on some of the premium channels as well as Netflix and Amazon. My wife like her programming on the regular channels but also likes to save programs to DVR while we are traveling so that has become a hardcore "requirement". Anyone care to share their battle with the cable cord? If you use one of the streaming devices please share the positives and negatives as well. Thanks in advance! DB
  2. Finally sleeping about 8 hours - just amazing

    I am in the transition from Sinemet to Rytary so we will see how it impacts sleep patterns in the next few weeks. For the most part to date I wake up stiff on the side I sleep on-- CPAP allows me to sleep well with little movement. I have gotten some leg jitters from time to time before sleep if I watch TV in bed (Myclonic?). Linda, my avatar is temporarily a tribute to the venerable F-4 Phantom II I had the pleasure of flying early in career #1.
  3. Bible Verses....

    Without any attempt to start a thread I post a periodic Bible verse that may be the source of some strength, comfort, or inspiration to my fellow "Parkies" in the best or worst of times as we deal with our challenges. Feel free to add a verse if you wish for those so inclined on this topic. It would be helpful if you mention what bible translation your verse is from if you do post. Have a great week. Romans 8:35-39 (KJV) Paul to the church at Rome Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? As it is written, For thy sake we are killed all the day long; we are counted as sheep for the slaughter. Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
  4. Finally sleeping about 8 hours - just amazing

    I hear a healthy dose of Franklin's BBQ helps...... I have been doing well on CPAP for a couple years but lately have started waking after about 5-6 hours. Wonder if a dose of sinemet before bed might help?
  5. traveling with pd

  6. UNLV Gait Study

    Any PD folks in Vegas available? Short term 2 week participation. They need approx 8 more people. Contact Kathy directly if interested or questions Subjects Needed for Gait Training Study in Parkinson’s Disease The Neurophysiology of Movement Lab (directed by Dr. Brach Poston) and the Gait and Balance Lab (directed by Dr. Merrill Landers) at the University of Nevada Las Vegas are looking for persons with Parkinson’s disease to participate in a research study involving gait training in Parkinson’s disease. Study participants will be asked to perform a gait training protocol that involves walking on a specialized treadmill while receiving non-invasive, painless transcranial direct current stimulation of the motor cortex area of the brain. Participation in this study will require completion of 9 gait training sessions over a 2 week period each lasting about 30-45 minutes. In addition, 4 testing sessions will be done (1 on the first training day, 1 after the last training day, 1 two weeks after the two week training period ends, and 1 four weeks after the training period ends). All experiments will be performed in the Gait and Balance Lab, which is located in the BHS Building at the University of Nevada Las Vegas.  We are recruiting male and female Parkinson’s disease patients between the ages of 30 and 85 for this research.  We cannot accept persons who have suffered a neurological or peripheral injury or disease with a possible long-lasting effect on gait function.  Finally, we cannot accept people who have shrapnel or metal fragments in their head or people who have implanted medical devices such as pacemakers or deep brain stimulators. Participants will be compensated $100 cash for completing the experiment. If you are potentially interested, or for more information, please contact: RESEARCH ASSISTANT: Kathy Nagle kathleen.nagle@unlv.edu Lab Phone: 702-895-5473 Cell Phone: 216-650-3204 PRINCIPAL INVESTIGATOR: Dr. Brach Poston brach.poston@unlv.edu Office Phone: 702-895-5329
  7. Thinking of and Praying for our Fellow Americans in Houston

    Saw on the news tonight that only 15-20% of homeowners have flood insurance! The financial impact will live on long after the news reporters pack up their vans and go home. The 1000 year storm/flood just happened it seems. Prayers continue for all including the first responders. We are seeing some of the best things about America and Americans come through in this crisis.
  8. Bible Verses....

    Romans 1:16-17 (KJV) "For I am not ashamed of the gospel of Christ: for it is the power of God unto salvation to everyone who believeth; to the Jew first, and also to the Greek. For therein is the righteousness of God revealed from faith to faith: as it is written, The just shall live by faith". (Paul's writing to the church at Rome) John 17:17 (KJV) " Sanctify them through thy truth; thy word is truth." (Jesus praying to his father to keep the church pure) John 8:31-32 (KJV) Then said Jesus to those Jews which believed on him, " If ye continue in my word, then are ye my disciples indeed; And ye shall know the truth, and the truth shall make you free". There are multiple references in the New Testament to the power and truth of the gospel of Jesus Christ. Belief on him and his commandments is a saving faith. We are justified by faith and obedience to the gospel. A thorough study of Romans 3:21 and following reveals any man is justified through faith in the redemption suffered by Jesus Christ without regard to the deeds of the old law. Hope all Parkkies have a "winning" week ahead. To those involved in the education of our children at any level--administrators, support staff, teachers, and parents (education begins at home)......... my prayers go out for you for a safe and effective school year! Everyone one of you is a role model that the kids look up to. A very large responsibility! DB
  9. Sorry you are in such a predicament. Without knowing your age, what type of work you are doing, how close you are to retiring etc I can only contribute initial thoughts. I am in the boat of having PD and close to retirement. - If you have difficulty doing current job is there a less demanding position in same company to move internally? -Avoid being fired for so many reasons. Would rather leave with a letter of recommendation. -Do you have inclination and resources to start your own small business? -cognitive decline has steered me away from school as well but could probably handle short term education like real estate agent certification / licensing etc. Not sure this helps but may spur ideas. DB
  10. Bible Verses....

    Grace........God's favor in the absence of merit. Where would mankind be without it? Ephesians 2:8-9 "For by grace are ye saved through faith; and that not of yourselves: it is the gift of God. Not of works, lest any man should boast." (KJV) Grace......How do we access it? Romans 5:1-2 "Therefore being justified by faith, we have peace with God through our Lord Jesus Christ. By whom also we have access by faith into this grace wherein we stand, and rejoice in hope of the glory of God." (KJV) Justified..........just as if I had never sinned. I read a commentary on grace the other day that amplifies the concept to me. In Gore Vidal's historical novel based on the life of Lincoln, Vidal pictures a cabinet meeting when it was evident that the South would be defeated and post-war plans were being made. When asked how he planned to deal with the rebels, Lincoln said, "I will treat them as if they never left". That's grace! DB
  11. Bible Verses....

    Luke 19:10 Jesus says....."For the Son of man is come to seek and to save that which is lost" (KJV) Col 4:5-6 "Walk in wisdom toward them that are without, redeeming the time. Let your speech be always with grace, seasoned with salt, that ye may know how ye ought to answer every man" (KJV) If Christians today are Christ's disciples on earth then it is up to us to be more Christ- like in every respect. Our efforts at evangelism should reflect the same mission that Christ himself says he was on earth for if we are to be like him. Easy to forget at times. DB
  12. 23 and me Participants - general PD genetics question

    I have done the 123 and follow-on promethease analysis. Before you do the promethease analysis of the 123andme raw data, ensure you are mentally prepared for all the risk factor mutations that may be in your DNA. Some may not want to know since there is not much you can do about your genes anyway. I have some history of Alzheimers in my family and I did have a mutation risk factor for that disease. Not a worry issue for me--just good to know. There is an entire website devoted to the APOE mutation group. I do have PD but did not have the mutations for that. I had an elevated risk for prostate cancer and sure enough I did have to deal with that successfully this year. Just because you have the risk factor mutations for many maladies does not mean you will get the disease. As has been mentioned in other threads things like lifestyle, and environmental factors have an impact. I personally believe it is important to capture the data from my genetic "footprint" for my children to have and use as they see fit just like family genealogies. For what it is worth. The FDA limits the amount of analysis 123andme can divulge from what I understand. DB
  13. Sinemet, Requip ER,,Azilect

    Is anyone on this combo now? How is it working for you? I will be starting Azilect soon on top of the other two. DB
  14. Sinemet, Requip ER,,Azilect

    The sequence these meds are prescribed in seems different for each of us. I was on Sinemet to start with and after about 2 years Requip ER was added. Now after 1.3 years of that combo Rasagiline was added to help reduce tremor. Dopamine, reduction of dopamine demand, and finally preservation of available dopamine is my poor man's explanation for these meds in that sequence. I guess the objective will be to manage the strengths and frequency over time as the disease progresses. The addition of Rasagiline did help reduce tremor. I agree with Natasha. Hard to tell what is a drug side effect at times vs disease symptom. Mentally I am a bit slower but seem to have less apathy/anxiety than before. There is always the "placebo effect" in play as well.
  15. Bible Verses....

    Thanks Peace, When I reread from Matt 6:25-34, the theme seems to be that we ought to value the the eternal life ahead more than our worldly needs and desires regardless of circumstance. We need to think about the fact that "Don't worry" is as much a command from the Lord as any other command. Multiple references to this topic are made in the NT. Tough to do at times -- no argument there. I keep meaning to ask if anyone has seem the movie "The Case for Christ"? Is the movie as good as the book? Please chime in if you have seen it. Thanks, DB
  16. Just Interesting Things about This and That

    Thanks for sharing that video. So many things like this available at our fingertips on the internet! Do you still keep in touch with your college friends?
  17. Just Interesting Things about This and That

    Good morning Linda, Now I know you probably don't follow NCAA Div 1 Men's Lacrosse BUT Johns Hopkins is usually a powerhouse to be reckoned with in the final 4 and championship which is traditionally played on Memorial Day. Johns Hopkins didn't make the final four this year.... However on a positive note to start the week........Maryland won it all beating Ohio State 9-6! Thought you would want to know that for some reason..........DB
  18. Best to ask these questions on the other forums (Doctor and Pharmacy) to start with or search the other forums as Linda suggested for past postings.
  19. Fluoroquinolones (Cipro/Levaquin)

    Another PWP who is not on this forum told me to check out on google "Fluoroquinolones and Parkinson's Disease". I see where there are some possible neuro side effects in taking these types of antibiotics but nothing to indicate these antibiotics were ever identified as a cause of PD. Anyone done any research on this or have a doctor who is knowledgeable on this particular topic? DB
  20. Sensitivity to light, onscreen movement?

    PD impacts the autonomic nerve system (the nerve functions that happen involuntarily in the background) which affects things like urology, blood pressure, breathing, and eyes/pupil adjustments. Perhaps light sensitivity is a result of this? Check it out. DB
  21. Hello Forumland, Hope you are having a "winning day". Does anyone have a good website or document on PD and PD education that you would post to Social Media or send as an attachment to family and friends in the name of PD awareness? Could you post it here? Looking for something concise and informative. Thanks in advance! DB
  22. PD Awareness Month ..have any good materials?

    Yes it does Linda. Thanks to all!
  23. Linda Where Are You?

    Linda, I tried to send you a msg but can't. Is it time for an inbox cleanup? DB
  24. Numbness in foot

    Hi Doctor, Not to cause thread drift but you talk about "sides". Do all PD patients eventually have the disease spread to both sides of the body or can motor related symptoms stay on one side for the patient's lifetime (tremoring etc)?
  25. Unexplained foot/ankle pain and swelling

    No pain in ankles but swelling if on my feet for extended periods. It is a side effect of some parkinsons meds. I think the medical l term is edema. Advised to put my feet up where I can at the end of the day to reduce swelling. Welcome to the forum!