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jsaltsgaver

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About jsaltsgaver

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  1. jsaltsgaver

    The period at the end of the sentence.

    Wow -- you have somehow put into words what many of us feel. I really hope you can somehow find joy in your life, because you have been a really exceptional spouse.
  2. jsaltsgaver

    The period at the end of the sentence.

    Genden, Please accept my condolences. You have been a great help in sharing your experiences. I am one of the many on the same journey. May you find rest and peace knowing that you did a great service to your husband.
  3. jsaltsgaver

    Evening restlessness

    Thanks Gardener. I just can't come to any conclusions with my husband.
  4. jsaltsgaver

    Evening restlessness

    Hey Gardener, Have you been to the doc yet and asked about the evening restlessness?
  5. jsaltsgaver

    Those diagnosed over 60 and their experiences

    My husband was diagnosed at 65. His major symptom was tremor in left arm and some anxiety. He did great for 5 years, mentally and physically. He could have lived by himself. He had some surgery that drastically changed his mental status. He was still fine physically, but could not have managed mentally. Everyone is different, but make sure your father exercises as much as possible, because I think it really helps.
  6. jsaltsgaver

    Evening restlessness

    I know what you mean -- we haven't been given a great explanation either. Our MDS initially thought it was too much dopamine, but we've found that the restlessness (mostly pacing and not being able to sit down) stops about an hour after his levodopa dose. The restlessness is almost an anxiety issue that seems to be alleviated by a very small amount of sinemet. My husband only does this after dinner, not after breakfast or lunch.
  7. jsaltsgaver

    Evening restlessness

    Gardner, My husband is very restless in the evening. If we try to go to dinner, he can't sit still after he finishes eating and usually gets up to walk around. It makes it really hard to go out. At home, he gets up and starts pacing. I think I've decided it is a wearing off issue, but I'm not really sure. I'm anxious to hear what your doc says.
  8. jsaltsgaver

    Morphine in hospice care

    My husband has gone from 190 to 132 in a short period of time. So far, he still eats OK, but I agree with you Genden -- it seems like he is still losing weight even with a reasonable amount of calorie intake.
  9. jsaltsgaver

    Cannabis CBD Oil

    Was your CBD oil hemp based? It is my understanding that hemp based CBD oil is the only legal form across the country. I've also been told that hemp based CBD oil is not strong enough for PWP.
  10. On the constipation side, have you tried magnesium (the citrate kind)?
  11. jsaltsgaver

    For caregivers only

    As you know from our private conversations, my husband also has pretty severe psychosis. We tried Nuplazid, which improved, but did not eliminate, his psychosis. It helped quite a bit with the delusions, but not hallucinations. The insurance company decided they wouldn't cover the cost any more, so we're fumbling around again. The hallucinations have been reduced by substantially lowering his levodopa dose. Fortunately, although his motor skills suffered by the reduction, he is still able to manage OK, except things requiring small motor skills, like tying his shoes. I will try just about anything to make our lives a little better, so we are now experimenting with MM. We're early in the experiment, so it's hard to say whether it will help. Next week we will celebrate our 32nd anniversary. I'm so unhappy that the guy I married is no longer here. In fact, he sometimes doesn't know who I am or thinks there are several of "us". I can relate to everything you write about how emotionally draining it is. It is also a very lonely experience, because as much as non-caregivers think they know what is going on, they really don't. I am much more sympathetic to anyone who is dealing with a remotely similar circumstance. Please know that I think about you often.
  12. jsaltsgaver

    Parkinson's and violent behavior

    My husband has never experienced dyskinesia, which is basically caused by too much meds. Another well known result of having too much dopamine is aggressive behavior. I can only speak about personal experience. Sugar definitely affects my husband's behavior -- either the sugar itself or chemically increases dopamine. http://mentalhealthdaily.com/2015/04/01/high-dopamine-levels-symptoms-adverse-reactions/
  13. jsaltsgaver

    Parkinson's and violent behavior

    My husband has had violent outbursts after he has a high dose of sugar. After this started becoming a pattern, I read this https://www.ncbi.nlm.nih.gov/pubmed/8082998
  14. jsaltsgaver

    Rytary

    My husband experiences hallucinations. It started the afternoon he had surgery. He was not taking Rytary at the time. I've been told by his doc that it could be the result of medicine or the result of PD progression. Either way, it stinks. I would make sure he doesn't have a UTI.
  15. jsaltsgaver

    Nuplazid Interactions

    We're expecting my husband to try Nuplazid in a few days. He currently takes Ashwagandha in the morning and 25 mg of Seroquel at night. The Seroguel did not help much with delusions and hallucinations, but really helps my husband get a full night's sleep. Is the supplement and the bedtime dose of Seroquel OK to take with the morning dose of Nuplazid?
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