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Everything posted by ellaangel2

  1. Good morning!!

    I am so very sorry for your loss Peace, the loss of an animal is a very hard loss to endure. The bond we form with them is so wonderful. It is hard to describe to anyone that has not experienced it. I have had many animals of different kinds, but never a horse. The few opportunities I had to pet and ride a horse brings back fond memories, they are such majestic, amazing creatures. You are very fortunate to have had the experience to bond closely with Max, how wonderful. I'm sure you have beautiful memories that you will have forever. I agree, it is much better finding that they passed away peacefully rather than having to make the decision, although, at least with domestic animals, it is fairly rare. I hope you find peace and healing.
  2. Not Diagnosed, However Need Advise

    What past medication do they thing may have altered Dopamine?
  3. Muscle weakness?

    Ask the Dr. to do an EMG & NCV test.
  4. Good morning!!

    Jb - My absolute favorite characteristic in a person is "Humility." If one accomplishes great things or has great wisdom, but is not humble, it cancels out all the good, at least for me. Then there are those that accomplish no great things and are not wise, but have egos the size of the globe. So, Jb, you are probably too humble to realize you shine as a person with my favorite characteristic..........now, don't let it go to your head! lol!
  5. Not Diagnosed, However Need Advise

    Doubleup - My advice to you is to have the test. You remind me a lot of myself. I feel you need the peace of mind and you need it now. There is no price tag on peace of mind. Some people can live without answers and take things as they come, some of us have a harder time living like that. If you need the peace of mind for quality of life, seek to get it. Without it, you may risk having it affect every part of your life, believe me, I've been there.
  6. Good morning!!

    Jb, your Mother was a very wise woman......."The apple doesn't fall far from the tree," applies here............
  7. Good morning!!

    So sorry for your loss. The more we love, the more we grieve. Grief is the price we pay for love.
  8. Good morning!!

    Cats do things that make sense to them, but not to us. Cats like to pounce on things that are moving, especially things that are kind of long and move in wiggly ways........like fingers. If I wiggle my fingers near Ella, she gets in the "attack" mode. It is a hunting instinct. They love to hunt, it is born in them and the pickins are slim in a house, so fingers will do! It all boils down to "instinct" don't take any of it personally or feel they are being "mean." Marcia, so what did kitty say he wanted when DH asked him? I'm thinking it might have been his attention. Ella will sit and stare at me and if I don't give her my direct attention, she "meows" in a demanding tone! It's their way of talking to us.
  9. Good morning!!

    Happy Thanksgiving Holiday to you Jb. Your post was so well said (as always.) Dianne - You are so right. Seems our Thanksgiving mixes into Christmas for some, I guess it is too close on the calendar. It is obviously a distinct separate Holiday with special meaning and I have always said it does not get enough attention, people seem to forget the meaning of Thanksgiving and just use it as a day to get ready for Christmas shopping. The worst is decorating for Christmas before Thanksgiving, please, let the Pilgrims have their day! I have always wanted to be Canadian. I spent a lot of time in Canada growing up, my family had cottages there and my Mother had relatives in Toronto. I have always felt a draw to Canada. Sure does seem the Canadians are not always in a political turmoil like we are in the USA. Maybe the "grass just looks greener,".......but, it sure does look that way.
  10. Good morning!!

    LAD - I just love those pics of Baxter, he is adorable.......somehow I missed him before. Just love those bravelets, I have some of the newer charm type bracelets with messages, but never saw any like those that your boys gave you, very unique, very inspirational, very lovely.
  11. Good morning!!

    jb - Your imagination is very impressive to say the least!! What a story teller you are!! You truly have a "gift!"
  12. Good morning!!

    omg, too cute for words! Actually, kind of reminds me of "Ella" in action!
  13. Good morning!!

    Wow, lots of beautiful pics to see! LAD, such nice pics of your trip to Europe, I've never been........always wanted to go to Ireland. Love your kitty pics too, such a pretty belly on that kitty, I just want to tickle it, although, I know that would be a "no-no." Jb - I just love Marco, I am sorry he gets no respect from those kitties, but he must understand, they mean no harm, they are just being "kitties." and born without much human contact makes them even more adverse to doggies, I believe. You know, I must defend those kitties or "Ella-cat" would be cross with me...... Yes, I do love the name "Ellacat!"
  14. Good morning!!

    jb - Those muffins sound wonderful! I love pineapple, and sour cream and cream cheese too! How yummy! I had a piece of homemade pineapple, sour cream pie one time! Loved it! Mums are so beautiful...........I love everything about Fall, my favorite season! Summer is my least favorite, believe it or not! Nope, not a Summer person! Hope the barn kitties got their fill............sounds like you are doing a good job taking care of them. As a matter of fact Jb, sounds like you are doing a good job doing a lot of things, you seem to always be busy! I am busy at times too, but then I slack off a lot too! lol!
  15. scared

    I don't have much more to add Scaredfor him, but I want to let you know, I empathize with your fear.......been there, done that. Fear is an awful way to live........it affects every aspect of your life. Get as many factual answers as possible and then therapy if you are still dealing with fear, believe me, you will be glad you did.
  16. Not Diagnosed, However Need Advise

    Doubleup - I did have a PetScan, I didn't mention it because it really has no significance; I had it done before the DATSCAN was passed in the US, FDA as a diagnosis for PD. The Petscan that I had done was in the experimental phase, although, they said he was accurate for PD. It was not FDA approved, insurance, did not cover. Long story short, I was desperate for an answer, and paid it out of pocket, my money and effort backfired. I had to fly to NYC from Bflo twice. Once for a Dr. in NYC to see me and write a script for the scan and then back again for the scan itself. The scan came back "normal," I was very happy and relieved. About a year later, I read that the Pet scan is not accurate for early PD diagnosis and it is still not passed by FDA for PD diagnosis.......my "bubble" burst. Not only did my bubble burst, but it sent me down the "well" yet again........... There are people that have had the DATSCAN on this site, Dr. Okun, the Dr. on this Forum reccomends it all the time for PD diagnosis, although, I have heard of a few people that have had false negatives. With that said, I still think it is as good as you can get in diagnosing PD for now; that is, if Dr. has doubts about clinical symptoms and can't diagnose you. DATSCAN approval came to US a little late for me, but for you, it may be a good option. Linda - I can feel the empathy in your words. Thank you for understanding.
  17. Good morning!!

    Jb - Just wanted to say; your posts didn't seem "negative" to me at all, just realistic. I am a very realistic person, have had people tell me to stop being so negative. Realism and negativity are two different things. I always "remind" people of this. Now, Tommy, well, he is unusually "positive".........sounds like a sweetheart!
  18. Not Diagnosed, However Need Advise

    Actually Doubleup, it's me; "EllaAngel" that came to the conclusion that I don't have PD. The reason is: my symptoms started 8 years ago, none were visible, so of course, no diagnosis. Out of the blue I started getting odd electrical type sensations all over my body, started to happen about every 4-5 minutes, then became even more frequent, about every 30 sec to 1 min. They stopped when I was sleeping. To say this stressed me out is an understatement. A neuro gave me every test imaginable, even a spinal tap.........all tests were ok. Within a month or so, I developed an internal tremor in the calf of only one leg, it was not visible, but I felt it everyday, mostly upon awakening in the morning. So.....I was absolutely convinced I had PD. I went to 3 different MDS doctors, of course no diagnosis, no symptoms could be seen. I had no slowness of movement and passed all tests related to that over a course of 2-3 years of repeat MDS visits. I was put on Gabapentin, which was excellent for me, wiped out about 80% of these sensations, but not the tremor. I was on Gab. for about 2 years, doctor said to wean off to see where I stood with the symptoms, well, lo and behold, they were 90% gone even without the Gab. Tremor took much long to go away, maybe another year. So, finally, after 8 years and no progression, and actually a decrease in symptoms, it really can't be PD. As far as "mind over matter," I must disagree; that is not accurate in my case. I was not anxious or stressed when symptoms started, as a matter of fact I was in a very good place in my life, retired, free of stress and having a relaxing day at the zoo when I got my first "bee sting" sensation. As symptoms increased to every 30-60 seconds, around the clock, (until I was put on Gabapentin,) and I got no diagnosis, yes, my anxiety went through the roof. Therefore, my symptoms stopped before my anxiety stopped. My anxiety then stopped, after symptoms stopped. To this day, I have no explanation to what caused these very odd and disturbing symptoms, and of course no explanation to why they stopped. So once I saw that symptoms had subsided so drastically without the Gabapentin, and so much time had passed, I knew I didn't have PD and yes, I feel much better mentally now. I will never forget that period in my life, I will never be the same person I was before all this started. I say that for the good and the bad. I have learned so much about PD and gained so much respect for people with PD. I have learned to be grateful for all the tests that showed "normal." Dr. thought I might have had MS. I have also learned that once one goes deep in the "well" of depression & anxiety, it is very hard to come out, very hard. So, I have much empathy for depression and anxiety. I have also learned who my friends are, my real friends, some didn't make it through with me, but that's ok, this proves, they were never my "real" friends anyway. I have also learned how vulnerable the human body is, we are basically "sitting ducks," for just about anything. I will never take my body for granted again, it is nothing short of miraculous how intricate the body is.
  19. Not Diagnosed, However Need Advise

    Thanks Stump. btw - Never got any diagnosis. Symptoms of odd sensations and internal tremors have 90% subsided, still get a few every once in awhile..........weird huh?
  20. Opinions on diagnosis

    cldm - Usually, actually, pretty much always, Parkinsons symptoms start on only one side. They can include both sides as they progress though.
  21. Opinions on diagnosis

    Is it both legs that are cramping?
  22. Not Diagnosed, However Need Advise

    Miracleseeker - Thank you for the pep talk, but I was not writing about me, I was writing about anxiety in general and specifically to defend Doubleup's inquires and worries about her symptoms.......... Believe it or not people........."I am over it!" Yes, I am! I truly know now in my heart and soul that I do not have Parkinsons! I could have bet my life savings that I had it......but, I can finally say I don't. I know a lot about PD, probably more than the average person that has PD, I "lived" it for many years. Because I lived it for so long, I feel a bond to people that have PD, I seem to understand a lot of what they say and feel. Sounds a little odd, doesn't it? Well, I'm being honest. I respect and admire people with this very misunderstood, challenging disease. I don't write often, but I felt I could relate and help support Doubleup in her journey. btw - If you all want me off of here, I'll be glad to go........I guess I really don't belong anymore, that is true. Just say so, and I'll be on my way.......
  23. Not Diagnosed, However Need Advise

    I'll admit, all good reasons above for not seeking a diagnosis early.........good reasons (on paper, that is.) The human brain also needs to know "why" sometimes. "Why" am I getting these symptoms, what is wrong with me. Too many unanswered questions can lead to extreme stress. Stress that is as unhealthy as having the disease itself. I do not agree with Waren, not all people are "surprised" when they get a PD diagnosis, some are, but not all, many have had unexplained symptoms that cannot be "seen" by Dr., have done their own research and have found their answer, well before Dr. (finally) sees 2 cardinal symptoms. It is very easy to minimize or discount someone else's anxiety, anxiety is also an illness and one that needs to be treated seriously. If getting answers will ease that anxiety, then answers are "medicine" for ones anxiety. It is not "black and white" boys, think outside the box a little. People cannot be talked out of anxiety, it is real, very real and very dangerous, affecting ones whole life. If it that easily cured (by talk) there wouldn't be countless medications for it. Wonderful for you that you have never experienced this type of anxiety, believe me, it is a serious illness, have respect for those that have it.
  24. Good morning!!

    Diane, better wash that purple out before next Dr. appointment; you think they are not listening now!! lol!
  25. Not Diagnosed, However Need Advise

    DaveN - I am not "convincing" her that she has a disease. I am merely acknowledging her symptoms and fears of a disease. I have heard of many patients that were told by Dr's and yes even MDS's that they do not have Parkinsons, that is because very early on the cardinal symptoms cannot be seen and documented as such; a doc, by law, needs to "see" 2 cardinal symptoms, because there is not accurate medical test for PD other than a DATSCAN and that is not across the board, when, in fact, a year or two later the person was diagnosed with Parkinsons. The part you don't understand DaveN, is it is hard to "live your life as best you can" when you are worried sick about something, I understand because I have been there.