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MusicMan

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MusicMan last won the day on January 25

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About MusicMan

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    MusicMan
  • Birthday 08/05/1956

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  • Gender
    Male
  • Location
    : Lakewood Ranch, Florida
  • Interests
    Playing music, eating, avid reader of fiction (Nelson DeMille, John Sandford, Michael Connolly, Lee Childs, etc)

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  1. Diamond joins Linda Ronstadt as another celebrity with Parkinson's https://www.nytimes.com/2018/01/23/arts/neil-diamond-retires-parkinsons.html
  2. PROTEIN WITH RYTARY

    I don't understand the difference between Rytary and regular extended release sinemet???
  3. inhaled levadopa

    I've read that your body needs acid to activate the sinemet, and that taking things like Zantac, Tums, Pepcid, etc negates the absorption of levadopa. If that's not true, I'd love to know so I can take Zantac too!!!!
  4. Trying Sinemet

    There's no "cut and dried" treatment for PD, but I think it wouldn't hurt to add it at the same time. I think it has slowed down MY progression, but can't prove it...
  5. What drugs? supplements like inisine?

    I would highly question anything that says Azilect may cause you to fall asleep while driving. Ridiculous....
  6. Music and Parkinson's Disease

    I'd be interested in hearing more...
  7. inhaled levadopa

    Great! PWP will be able to eat protein high meals, maybe gain needed weight.
  8. Rasagiline and other drugs

    I get brand name Azilect from Canada....$300 for 90 day supply
  9. Are you happy with your PD healthcare

    It is what it is. There's no cure for PD, so it comes down to managing your disease the best you can. Here's the real problem.....Doctors in the USA want to make $250,000 a year (at least), so to do that, they need to see LOTS of patients........for as little time each as possible. A doctor can't spend TOO much time cradling each patient......they need to move on to the next patient. So, you are just not going to get lots of hands on care and concern for your condition. That's just the way it is.
  10. Parkinson's patient abusing opioids?

    I was on clonazepam for about 4 months, 1/2 of a pill once a day. I ended up so screwed up from that small dose that it took me 6 months to kick it. I would say that if your mom is taking 2 pills at one time, that is a problem. This is the drug that Stevie Nicks (Fleetwood Mac) got strung out on. It has a very quick "tolerance withdrawal" effect.
  11. Rasagiline and other drugs

    I think that Azilect has slowed my progression of PD, but have no proof of that. I don't notice any side effects. Start with .5mgs for 4 weeks, then up it to the 1mg....you should be fine.
  12. Parkinson's patient abusing opioids?

    You don't mention how old your mom is. PD can be painful, so give your mom a break. Clonazepam is a BAD drug, and very tough to get off of. That may need professional involvement. The opiods are another matter. You need to find out how much she is taking. A few a day is not THAT big of a problem in reality. Lots of pills is a BIG problem. So you need more info.
  13. Levodopa not really working

    I'm not sure why you are posting this question on the open forum, and not on the Ask The Doctor section, but levodopa doesn't always help tremor.
  14. Side Effect of Lorazepam?

    Also, if you take benzos for a long period of time, you will likely develop "tolerance withdrawals", meaning you need to take a higher dose just to maintain the same benefit you received from the earlier dosage. If you look at the withdrawal side effects of quitting benzos entirely, then compare them to some of the symptoms you are experiencing in general after a long period of taking benzos, you can usually find a direct correlation.
  15. Fingers Going Going, But Not Gone Yet

    Wow! I bet that Gibson banjo is worth a few bucks!!! Sorry for the way your PD is going, but at least enjoy what you can for as long as you can. No one here has any guarantees in life, so have fun while you can.
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