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MusicMan

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MusicMan last won the day on June 3

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About MusicMan

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    MusicMan
  • Birthday 08/05/1956

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  • Gender
    Male
  • Location
    : Lakewood Ranch, Florida
  • Interests
    Playing music, eating, avid reader of fiction (Nelson DeMille, John Sandford, Michael Connolly, Lee Childs, etc)

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  1. Yes.....very much so. At this point I can consciously will myself to relax. I wonder how long I will have the power to do this tho?
  2. I actually bought some very good (kush) pot from a friend of mine, but I didn't notice any relief from any PD symptoms. In fact, I just didn't enjoy the "high" from it either. All in all, it was kind of a waste of money, in MY opinion. Results may vary....
  3. Advice? Have as much fun while you can, and don't fret. Key thought? "You will NEVER feel better than you do today"....so, anything you want to do: travel, sports, work, love, etc, do now. Yeah, maybe they will cure it in 10 years. We can all hope. But in the mean time, live for today. I am having more fun NOW than I did 20 years ago. I am a little worse today, than this time last year. And last year I was a little worse than the year before. Don't let time sneak past you. Go out and have fun.
  4. Just returned from an 11 night Caribbean cruise and had a ball.....barely noticed my PD, and I don't think anyone else noticed it either. Danced, ate, drank, snorkeled, hiked, went to shows..........all the usual stuff. Actually, my symptoms are worse now that I'm back HOME, than they were on the cruise!
  5. Well, a few saltines versus a full breakfast of 3 eggs, toast, and grits. Or a full lunch or dinner. I would THINK there's a big difference, but maybe not...
  6. Hey MS. Maybe I am just reacting to the "empty stomach" thing. Before, food might have absorbed some of the sinemet, making the impact less noticeable. Now I'm taking it without the food interference and it's hitting me hard?
  7. Exercise and Azilect. I have seen 3 MDS, ALL of whom had said that "if it were them, they would take Azilect". THEY believe it "slows progression of the disease, even if the FDA won't let them say it".
  8. Hmmm.....I actually saw our forum doctor, Dr Okun, who last time I saw him, made his assistant verify that I indeed had a positive DATscan, because I really showed nothing but a right hand tremor. None of the three MDS doctors I've seen have said anything about any bradykinesia, but maybe they're just not telling me everything.
  9. "PD still requires you demonstrate the required clinical symptoms of bradykinesia " Is that right? I don't have any bradykinesea. I do show a tremor, and a positive DATscan. I'm not sure that bradykinesea is a absolute necessary requirement.
  10. Well, I have been making a concerted effort to avoid eating 2 hours before taking sinemet, just to test the effectiveness on a more empty stomach. Before, I didn't worry much about the timing of meds and meals. Maybe I'm one of those few who don't have to be that careful about protein interference?
  11. Possibly, but it would be highly coincidental to always happen about 15 to 30 minutes after taking the sinemet
  12. Sorry...should have said that it's the same generic I've been taking for at least 3 months. Weird, ill feeling only started roughly 3 weeks ago.
  13. After a few years now of taking generic sinemet, I'm starting to feel ill after taking it, even tho I'm taking the same amount. I usually take a few saltines with my dosage, so it's not the empty stomach thing. It's not a nausea feeling, but more of a dizzy, ill type feeling occurring about 15 minutes after taking it. Has anyone else who has been on sinemet for a while got to a point where it just made you feel sick?
  14. The only problem with this is that OJ has a LOT of acid in it, which can cause distress by itself.
  15. I definitely notice the twitchiness in your hand....