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MusicMan

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MusicMan last won the day on October 18

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About MusicMan

  • Rank
    MusicMan
  • Birthday 08/05/1956

Profile Information

  • Gender
    Male
  • Location
    : Lakewood Ranch, Florida
  • Interests
    Playing music, eating, avid reader of fiction (Nelson DeMille, John Sandford, Michael Connolly, Lee Childs, etc)

Recent Profile Visitors

1,011 profile views
  1. Boy am I new to this

    There are MANY diseases that aren't cured but are WELL CONTROLLED thru medication. That is what I'm hoping for for my near future. Not some pie in the sky CURE....just control it indefinitely (until maybe a cure can be found). Like diabetes and insulin.
  2. “On” when I should be “off”

    Do you sleep good? (if so, HOW????) I read somewhere that dopamine can be somewhat replenished overnight, or maybe stored cos you aren't using it? I used to feel great when I woke up, or at least as good as I did on sinemet. Not so much anymore. Now I sometimes take my dose, then go lay back down for 20 minutes. In any event, we are all different, so go with what works for YOU.
  3. Music and Parkinson's Disease

    I think most smart phones have pretty good audio/video capture, and could then be downloaded on your computer. Creating a Youtube channel is free and easy, and phone videos can then be uploaded to your channel to share with others. Sounds pretty easy, but it isn't if you've never done stuff like this.
  4. Music and Parkinson's Disease

    Jeez....it changes every month. I just learned "This Guy's In Love With You" by Burt Baccarat (old song, but still cool). Before that it was New York State Of Mind (Billy Joel), I Can't Make You Love Me (Bonnie Raitt), and Tin Man (Miranda Lambert's version). Plus, I'm trying to write a song for my daughter's wedding in February. It's a good hobby that keeps my brain active...
  5. Interesting cannabis study

    I tried smoking pot for 8 straight days and didn't find any beneficial changes. You'd think by the 8th day maybe I would appreciate something from it, but I didn't. Now I try it occasionally, but don't get anything either. I will say, I feel much better after drinking some alcohol, so for me, the "mind altering" effects of alcohol just seems to make me feel less pain. I believe that alcohol is a type of muscle relaxant, so that is probably why I feel looser and less rigid.
  6. Muscle weakness?

    Uh....yeah. My MDS always checks my grip strength and leg strength, I guess because if it weakens, my PD is getting worse. As of my last visit I was fine, but I think my next visit will be slightly different. I seem to be getting a bit weaker, but it's been over 3 years since diagnosis, so I suppose that's to be expected.
  7. Music and Parkinson's Disease

    Thx, Linda. Ok, here's another one from a few years ago.
  8. traveling with pd

    Nashville is incredible if you like live music. The artists you can see in bars on music row for FREE will blow your mind. People playing for what they can get in tips passing around a hat are better than you will PAY for in any other city. It's nuts, but really fun.
  9. Music and Parkinson's Disease

    Yes, J....Share your music with us. If not now, when? Every day seems to get a little harder for me, so I decided that I need to record stuff for the memories I can leave for my daughter. Thx Linda and J. Yes, Carole King wrote it. I have never heard JT sing Too Late, but he did sing another big song of hers, "You've Got A Friend".
  10. Music and Parkinson's Disease

    One of my latest music videos. Probably better to listen to than watch, since it doesn't show a lot. I tend to get stressed with a camera pointed at my face, versus pointed at my hands
  11. Interesting cannabis study

    It IS interesting, but it's also coming from a source with a vested interest in a positive outcome. I still try pot every now and then, but haven't received any great results when I do. I actually tend to feel worse, but it could be the strain, or just me.
  12. Similarities between Essential Tremor and PD

    Jeez.....
  13. Big News?

    I am cautiously optimistic. There are some VERY smart people doing state of the art research on PD (as well as other neurological disorders). Progress WILL be made. How timely will it be? Who knows? I think PD is a disease that will have much better treatments in the years ahead, but many of us here will not be able to benefit from said treatments.
  14. Parkinson and treatment drugs

    Ha!!!! Me too! Love ya, D.
  15. Yeah, I'm 6' and about 156 lbs, and have been for the lat 10 years or so. Eat like crazy but can't gain weight
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