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MusicMan

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Everything posted by MusicMan

  1. Fingers Going Going, But Not Gone Yet

    Wow! I bet that Gibson banjo is worth a few bucks!!! Sorry for the way your PD is going, but at least enjoy what you can for as long as you can. No one here has any guarantees in life, so have fun while you can.
  2. planning for the future

    Do you have Long Term Care Insurance? Or do you qualify for Medicaid?
  3. Mannitol

    Well, that didn't tell me a whole lot...
  4. The Picture Post

    Thanks Linda. We are all University of Florida grads!
  5. Need help, Hate knowing its Parkinsons

    If you Google "parkinson's support groups chicago", you will find LOTS of options.
  6. The Picture Post

    A picture of me and some of my college friends at a reunion this past weekend (I'm on the right with my foot up on the bench). We are looking good for being over age 60!!!
  7. No Sleep For The Weary

    At her age Klonopin might be okay. It's a benzo, which I normally hate, but she's old enough that it can't ruin her life like a young person. It definitely WILL help her sleep. Many MDS doctors recommend it, but it is habit forming.
  8. “On” when I should be “off”

    So, the Sinemet controls your tremor pretty well? Doesn't do too much for mine, so I was thinking if I could find a good combo of MM and sinemet, maybe that would do the trick. Just not crazy about the buzz I get from MM. Also, Sinemet doesn't help my sleep at all.
  9. “On” when I should be “off”

    Yeah, I kinda wondered about traveling with MM and how practical that would be. Well, you did good for a long while there. How is the combo of Sinemet and MM? I have both, but haven't yet found a happy medium using them together....
  10. “On” when I should be “off”

    Wow, Patriot. I see you are now taking Sinemet. What was the deciding factor, and how much are you taking? I was always interested in how long you would be able to hold off with exercise alone.
  11. Boy am I new to this

    There are MANY diseases that aren't cured but are WELL CONTROLLED thru medication. That is what I'm hoping for for my near future. Not some pie in the sky CURE....just control it indefinitely (until maybe a cure can be found). Like diabetes and insulin.
  12. “On” when I should be “off”

    Do you sleep good? (if so, HOW????) I read somewhere that dopamine can be somewhat replenished overnight, or maybe stored cos you aren't using it? I used to feel great when I woke up, or at least as good as I did on sinemet. Not so much anymore. Now I sometimes take my dose, then go lay back down for 20 minutes. In any event, we are all different, so go with what works for YOU.
  13. Music and Parkinson's Disease

    I think most smart phones have pretty good audio/video capture, and could then be downloaded on your computer. Creating a Youtube channel is free and easy, and phone videos can then be uploaded to your channel to share with others. Sounds pretty easy, but it isn't if you've never done stuff like this.
  14. Music and Parkinson's Disease

    Jeez....it changes every month. I just learned "This Guy's In Love With You" by Burt Baccarat (old song, but still cool). Before that it was New York State Of Mind (Billy Joel), I Can't Make You Love Me (Bonnie Raitt), and Tin Man (Miranda Lambert's version). Plus, I'm trying to write a song for my daughter's wedding in February. It's a good hobby that keeps my brain active...
  15. Interesting cannabis study

    I tried smoking pot for 8 straight days and didn't find any beneficial changes. You'd think by the 8th day maybe I would appreciate something from it, but I didn't. Now I try it occasionally, but don't get anything either. I will say, I feel much better after drinking some alcohol, so for me, the "mind altering" effects of alcohol just seems to make me feel less pain. I believe that alcohol is a type of muscle relaxant, so that is probably why I feel looser and less rigid.
  16. Muscle weakness?

    Uh....yeah. My MDS always checks my grip strength and leg strength, I guess because if it weakens, my PD is getting worse. As of my last visit I was fine, but I think my next visit will be slightly different. I seem to be getting a bit weaker, but it's been over 3 years since diagnosis, so I suppose that's to be expected.
  17. Music and Parkinson's Disease

    Thx, Linda. Ok, here's another one from a few years ago.
  18. traveling with pd

    Nashville is incredible if you like live music. The artists you can see in bars on music row for FREE will blow your mind. People playing for what they can get in tips passing around a hat are better than you will PAY for in any other city. It's nuts, but really fun.
  19. Music and Parkinson's Disease

    Yes, J....Share your music with us. If not now, when? Every day seems to get a little harder for me, so I decided that I need to record stuff for the memories I can leave for my daughter. Thx Linda and J. Yes, Carole King wrote it. I have never heard JT sing Too Late, but he did sing another big song of hers, "You've Got A Friend".
  20. Music and Parkinson's Disease

    One of my latest music videos. Probably better to listen to than watch, since it doesn't show a lot. I tend to get stressed with a camera pointed at my face, versus pointed at my hands
  21. Interesting cannabis study

    It IS interesting, but it's also coming from a source with a vested interest in a positive outcome. I still try pot every now and then, but haven't received any great results when I do. I actually tend to feel worse, but it could be the strain, or just me.
  22. Similarities between Essential Tremor and PD

    Jeez.....
  23. Big News?

    I am cautiously optimistic. There are some VERY smart people doing state of the art research on PD (as well as other neurological disorders). Progress WILL be made. How timely will it be? Who knows? I think PD is a disease that will have much better treatments in the years ahead, but many of us here will not be able to benefit from said treatments.
  24. Parkinson and treatment drugs

    Ha!!!! Me too! Love ya, D.
  25. Yeah, I'm 6' and about 156 lbs, and have been for the lat 10 years or so. Eat like crazy but can't gain weight
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