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Everything posted by MusicMan

  1. inhaled levadopa

    I've read that your body needs acid to activate the sinemet, and that taking things like Zantac, Tums, Pepcid, etc negates the absorption of levadopa. If that's not true, I'd love to know so I can take Zantac too!!!!
  2. Trying Sinemet

    There's no "cut and dried" treatment for PD, but I think it wouldn't hurt to add it at the same time. I think it has slowed down MY progression, but can't prove it...
  3. What drugs? supplements like inisine?

    I would highly question anything that says Azilect may cause you to fall asleep while driving. Ridiculous....
  4. Music and Parkinson's Disease

    I'd be interested in hearing more...
  5. inhaled levadopa

    Great! PWP will be able to eat protein high meals, maybe gain needed weight.
  6. Rasagiline and other drugs

    I get brand name Azilect from Canada....$300 for 90 day supply
  7. Are you happy with your PD healthcare

    It is what it is. There's no cure for PD, so it comes down to managing your disease the best you can. Here's the real problem.....Doctors in the USA want to make $250,000 a year (at least), so to do that, they need to see LOTS of patients........for as little time each as possible. A doctor can't spend TOO much time cradling each patient......they need to move on to the next patient. So, you are just not going to get lots of hands on care and concern for your condition. That's just the way it is.
  8. Parkinson's patient abusing opioids?

    I was on clonazepam for about 4 months, 1/2 of a pill once a day. I ended up so screwed up from that small dose that it took me 6 months to kick it. I would say that if your mom is taking 2 pills at one time, that is a problem. This is the drug that Stevie Nicks (Fleetwood Mac) got strung out on. It has a very quick "tolerance withdrawal" effect.
  9. Rasagiline and other drugs

    I think that Azilect has slowed my progression of PD, but have no proof of that. I don't notice any side effects. Start with .5mgs for 4 weeks, then up it to the 1mg....you should be fine.
  10. Parkinson's patient abusing opioids?

    You don't mention how old your mom is. PD can be painful, so give your mom a break. Clonazepam is a BAD drug, and very tough to get off of. That may need professional involvement. The opiods are another matter. You need to find out how much she is taking. A few a day is not THAT big of a problem in reality. Lots of pills is a BIG problem. So you need more info.
  11. Levodopa not really working

    I'm not sure why you are posting this question on the open forum, and not on the Ask The Doctor section, but levodopa doesn't always help tremor.
  12. Side Effect of Lorazepam?

    Also, if you take benzos for a long period of time, you will likely develop "tolerance withdrawals", meaning you need to take a higher dose just to maintain the same benefit you received from the earlier dosage. If you look at the withdrawal side effects of quitting benzos entirely, then compare them to some of the symptoms you are experiencing in general after a long period of taking benzos, you can usually find a direct correlation.
  13. Fingers Going Going, But Not Gone Yet

    Wow! I bet that Gibson banjo is worth a few bucks!!! Sorry for the way your PD is going, but at least enjoy what you can for as long as you can. No one here has any guarantees in life, so have fun while you can.
  14. planning for the future

    Do you have Long Term Care Insurance? Or do you qualify for Medicaid?
  15. Mannitol

    Well, that didn't tell me a whole lot...
  16. The Picture Post

    Thanks Linda. We are all University of Florida grads!
  17. Need help, Hate knowing its Parkinsons

    If you Google "parkinson's support groups chicago", you will find LOTS of options.
  18. The Picture Post

    A picture of me and some of my college friends at a reunion this past weekend (I'm on the right with my foot up on the bench). We are looking good for being over age 60!!!
  19. No Sleep For The Weary

    At her age Klonopin might be okay. It's a benzo, which I normally hate, but she's old enough that it can't ruin her life like a young person. It definitely WILL help her sleep. Many MDS doctors recommend it, but it is habit forming.
  20. “On” when I should be “off”

    So, the Sinemet controls your tremor pretty well? Doesn't do too much for mine, so I was thinking if I could find a good combo of MM and sinemet, maybe that would do the trick. Just not crazy about the buzz I get from MM. Also, Sinemet doesn't help my sleep at all.
  21. “On” when I should be “off”

    Yeah, I kinda wondered about traveling with MM and how practical that would be. Well, you did good for a long while there. How is the combo of Sinemet and MM? I have both, but haven't yet found a happy medium using them together....
  22. “On” when I should be “off”

    Wow, Patriot. I see you are now taking Sinemet. What was the deciding factor, and how much are you taking? I was always interested in how long you would be able to hold off with exercise alone.
  23. Boy am I new to this

    There are MANY diseases that aren't cured but are WELL CONTROLLED thru medication. That is what I'm hoping for for my near future. Not some pie in the sky CURE....just control it indefinitely (until maybe a cure can be found). Like diabetes and insulin.
  24. “On” when I should be “off”

    Do you sleep good? (if so, HOW????) I read somewhere that dopamine can be somewhat replenished overnight, or maybe stored cos you aren't using it? I used to feel great when I woke up, or at least as good as I did on sinemet. Not so much anymore. Now I sometimes take my dose, then go lay back down for 20 minutes. In any event, we are all different, so go with what works for YOU.
  25. Music and Parkinson's Disease

    I think most smart phones have pretty good audio/video capture, and could then be downloaded on your computer. Creating a Youtube channel is free and easy, and phone videos can then be uploaded to your channel to share with others. Sounds pretty easy, but it isn't if you've never done stuff like this.