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Everything posted by MusicMan

  1. MusicMan

    10 good years???

    Probably the "10 good years" is an average based on ALL PD patients. Many aren't diagnosed until age 75 or so, and are already on the decline in general. 10 good years for them would be great! Remember, the average of 100 people age 75 who get 2 good years and 100 people 40 years old who get 20 good years is.....11! So, don't sweat the numbers. Exercise and stay positive.
  2. MusicMan

    Shot in the dark

    Start with a neurologist. For maybe $200 he/she can give you some insight on whether you should be worried or not.
  3. Diamond joins Linda Ronstadt as another celebrity with Parkinson's https://www.nytimes.com/2018/01/23/arts/neil-diamond-retires-parkinsons.html
  4. MusicMan


    I don't understand the difference between Rytary and regular extended release sinemet???
  5. MusicMan

    inhaled levadopa

    I've read that your body needs acid to activate the sinemet, and that taking things like Zantac, Tums, Pepcid, etc negates the absorption of levadopa. If that's not true, I'd love to know so I can take Zantac too!!!!
  6. MusicMan

    Trying Sinemet

    There's no "cut and dried" treatment for PD, but I think it wouldn't hurt to add it at the same time. I think it has slowed down MY progression, but can't prove it...
  7. MusicMan

    What drugs? supplements like inisine?

    I would highly question anything that says Azilect may cause you to fall asleep while driving. Ridiculous....
  8. MusicMan

    Music and Parkinson's Disease

    I'd be interested in hearing more...
  9. MusicMan

    inhaled levadopa

    Great! PWP will be able to eat protein high meals, maybe gain needed weight.
  10. MusicMan

    Rasagiline and other drugs

    I get brand name Azilect from Canada....$300 for 90 day supply
  11. MusicMan

    Are you happy with your PD healthcare

    It is what it is. There's no cure for PD, so it comes down to managing your disease the best you can. Here's the real problem.....Doctors in the USA want to make $250,000 a year (at least), so to do that, they need to see LOTS of patients........for as little time each as possible. A doctor can't spend TOO much time cradling each patient......they need to move on to the next patient. So, you are just not going to get lots of hands on care and concern for your condition. That's just the way it is.
  12. MusicMan

    Parkinson's patient abusing opioids?

    I was on clonazepam for about 4 months, 1/2 of a pill once a day. I ended up so screwed up from that small dose that it took me 6 months to kick it. I would say that if your mom is taking 2 pills at one time, that is a problem. This is the drug that Stevie Nicks (Fleetwood Mac) got strung out on. It has a very quick "tolerance withdrawal" effect.
  13. MusicMan

    Rasagiline and other drugs

    I think that Azilect has slowed my progression of PD, but have no proof of that. I don't notice any side effects. Start with .5mgs for 4 weeks, then up it to the 1mg....you should be fine.
  14. MusicMan

    Parkinson's patient abusing opioids?

    You don't mention how old your mom is. PD can be painful, so give your mom a break. Clonazepam is a BAD drug, and very tough to get off of. That may need professional involvement. The opiods are another matter. You need to find out how much she is taking. A few a day is not THAT big of a problem in reality. Lots of pills is a BIG problem. So you need more info.
  15. MusicMan

    Levodopa not really working

    I'm not sure why you are posting this question on the open forum, and not on the Ask The Doctor section, but levodopa doesn't always help tremor.
  16. MusicMan

    Side Effect of Lorazepam?

    Also, if you take benzos for a long period of time, you will likely develop "tolerance withdrawals", meaning you need to take a higher dose just to maintain the same benefit you received from the earlier dosage. If you look at the withdrawal side effects of quitting benzos entirely, then compare them to some of the symptoms you are experiencing in general after a long period of taking benzos, you can usually find a direct correlation.
  17. MusicMan

    Fingers Going Going, But Not Gone Yet

    Wow! I bet that Gibson banjo is worth a few bucks!!! Sorry for the way your PD is going, but at least enjoy what you can for as long as you can. No one here has any guarantees in life, so have fun while you can.
  18. MusicMan

    planning for the future

    Do you have Long Term Care Insurance? Or do you qualify for Medicaid?
  19. MusicMan


    Well, that didn't tell me a whole lot...
  20. MusicMan

    The Picture Post

    Thanks Linda. We are all University of Florida grads!
  21. MusicMan

    Need help, Hate knowing its Parkinsons

    If you Google "parkinson's support groups chicago", you will find LOTS of options.
  22. MusicMan

    The Picture Post

    A picture of me and some of my college friends at a reunion this past weekend (I'm on the right with my foot up on the bench). We are looking good for being over age 60!!!
  23. MusicMan

    No Sleep For The Weary

    At her age Klonopin might be okay. It's a benzo, which I normally hate, but she's old enough that it can't ruin her life like a young person. It definitely WILL help her sleep. Many MDS doctors recommend it, but it is habit forming.
  24. MusicMan

    “On” when I should be “off”

    So, the Sinemet controls your tremor pretty well? Doesn't do too much for mine, so I was thinking if I could find a good combo of MM and sinemet, maybe that would do the trick. Just not crazy about the buzz I get from MM. Also, Sinemet doesn't help my sleep at all.
  25. MusicMan

    “On” when I should be “off”

    Yeah, I kinda wondered about traveling with MM and how practical that would be. Well, you did good for a long while there. How is the combo of Sinemet and MM? I have both, but haven't yet found a happy medium using them together....