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Lindasz

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  1. I agree with genden69. I very recently went through the same issues with my husband. Hospice is wonderful. Not only are they knowledgeable, kind and caring, they will be there for your mom and you 24/7. I was exhausted physically and emotionally. With hospice, I could call them any time, day or night. They helped me to make difficult decisions plus the nurse would come to the house any time I asked.
  2. Linda Susan, from another Linda! Here's how I've learned to cope (most of the time!): I found that it's important to find a therapist for yourself so you have someone to talk with. Being on anxiety (or I guess it's anti-anxiety??) medicine has worked wonders for me; I can tolerate a lot more plus I'm much calmer. Hire a caregiver if only for one night a week. When my DH wakes me up 2-3 times per night, I'm a zombie the next day when I go to work. Luckily it's not every night but when necessary I hire someone who arrives about 9 or 10 pm and leaves around 6 am. It's a long process trying to figure what works best for both of you. Hope this helps!
  3. This happened to my DH, too, a lot When standing, the blood pressure drops. Apparently with PD, blood pressure can fluctuate many times in one day. Here's what I have learned: make sure your DH has a doctor who is knowledgeable not only about blood pressure solutions but Parkinson's. Let his neurologist know this is happening, too. Have all tests and paperwork sent to neuro doc, too. It took us about 6-8 months to get the combination correct. My DH takes two pills to keep it from going too high or too low. Once we got that under control, the fainting stopped. The Amlodipine makes him retain some fluid but not enough to "rock the boat". My other advice is whenever standing, your DH needs to stand for a minute or so allowing the blood pressure to raise. The low blood pressure and fainting can happen especially when getting out of bed and getting off the toilet. Also, buy a good blood pressure monitor, one that goes around his arm. (It's about $50 or so). You can take the measurements for a few days and then have it checked at the doctor to make sure it's measuring the same. Hope this helps!
  4. Probably the best advice I can give you is to find a good therapist, one who understands issues with movement disorders. It's very difficult to be your DH's caregiver and wife; it totally changes the dynamics of your relationship. A good therapist can help you cope with this issue. For me, it helps when the caregiver helps my DH with showering, getting dressed, etc. I have less stress and frustration and we can have some semblance of our former relationship together. I also have 3 very good friends whom I can call whenever I need to vent. Once you've explained to them about PD, I'm sure they'll be a great support to you. Zoloft or Xanax or something like those will help, too!
  5. Thanks, Dianne! I have very thick plastic on top of the mattress, then the mattress cover, then another layer of thick plastic, the top sheet and two washable bed pads on top of the sheet. Whew! Our challenge is how to stop the leakage from the Depends. My DH is really embarrassed. I have used extra absorbent liners and also cut them in half and placed them by the leg openings. Nothing seems to work. This can't be an unusual issue, right?
  6. Does anyone have any solutions to preventing leakage when my DH wears Depends while sleeping? It seems they leak out the sides. Thanks in advance for any suggestions!