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adams234 last won the day on May 12

adams234 had the most liked content!

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About adams234

  • Rank
    Advanced Member
  • Birthday 02/20/1979

Profile Information

  • Gender
  • Location
    Rochester, NY
  • Interests
    Home Repair, Camping, Outdoors.

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391 profile views
  1. Welcome Chief, I was diagnosed at age 35, 8 months after I started my current job. I was up front with them during the whole process. I am lucky because I work in a Nursing home so they understand what was happening. Each persons is different. If you think that you are going to have a had time at your current job with your current symptoms then maybe disclosing is a good thing. This can stop any rumors from forming. If you think you will be able to work with out issue then no need to tell. I have only told my direct boss and the department I work with. If word has gone to HR they have said nothing. In the last 3 years at this job I have seen no change in the way they treated me. Good luck Adam
  2. Thanks, The Mayo Clinic is in Minnesota. We have University of Rochester, Just as big as the Mayo Clinic.
  3. I live in a small city in New York state USA called Rochester. It is about the size of Salamanca Spain. Rochester is where Kodak cameras were created. Because my city is on Lake Ontario we like to say we are from the north shore of the United States.
  4. I love Spain. My husband speaks Spanish fluently and has spent many years in Spain. He first studied in Barcelona, then in Salamanca. Unfortunately I studied French so my Spanish is not that good. Hola, and Me llamo Adam, is about the extent of my Spanish. I will have to start learning it again. I am glad to have met you and I hope this forum continues to be helpful.
  5. Bluemoon, You write English very well. I have heard of many women having babies while on meds. I think the ones that cause the most problems are the agonist. Check with your MDS when you get in to see them. Just curious. What country are you from?
  6. Bluemoon, Welcome. I was diagnosed at age 35 almost 3 years ago. I understand how you feel and what you thoughts are. I took me a good year before I could honestly say that I had accepted what was happening to me. Now 2.5 years later I am happier now than I have ever been. The biggest thing is don't stop anything until you have had a chance to work with your new reality for awhile. Just because you finally have a label for the problems you have been noticing does not change the fact you have been coping with those problems for many months or even years before now. This disease is slow progressing. Trust me you have time to processes and change you mind set before you make any quick decisions. For now maintain a healthy diet, keep you fiber up so you can keep your bowl regular. Keep active and exercise when ever possible. It helps and make a big difference. Don't let the PD monster kill your entire future. It is still your future. It just might not be the way we thought it would be. Take time, reflect on where you have been and where you want to be. You will still get there. For me researching treatment and getting to know this disease intimately has really helped me decide when and what meds I want to take. There will be hurdles. Just like your past there were hurdles you had to overcome. Some tougher than others. Celebrate those accomplishments daily. Every morning I wake up and my legs are stiff, my feet are hurting and my head wants to pull down to my right shoulder. I slowly stretch, slip on my clothes, hobble down the stairs and let the dog out. As the dog is doing her business I take a moment and celibate the fact that I did all that without taking my first dose of meds. Every time I do something that takes a lot of fine motor skill and concentration I celebrate that I was able to do it. It sound cheesy but the more moments you can find to be happy the happier you will be. Feel free to contact me if you need anything Sorry you had to join our club but glad you found us. Blessings Adam
  7. Noah. I asked my doctor about this, She told me if I needed to adjust my first dose because of special events then just adjust the timing for the rest of the day. She also said it was ok to take an extra pill on a day of travel because of time changes. Double check with you doc. just to be sure. Hope this helps Adam
  8. Best advice I got and I used and continue to use is this. If you flight is during the day take your dose on your starting time zone. Once you arrive at your destination stay on the time zone you just came from till you go to bed. When you get up take meds at the new time zone to the schedule you where using. Then do the reverse when you go back. I did this when I flew to Iceland and it worked well for me. (5 hour change) my flight was overnight. I took my last pills boarded the plane and then tried to sleep. Once we arrived in Iceland I took my regular morning dose at 7am Iceland time. I found I had no issue doing it that way. When we came home I stayed on the Iceland time zone and took an extra pill because we gained 5 hours. When I went to bed that night I made sure to go to bed at my regular time. Then put my self on my regular schedule the following morning. Hope this helps Blessing
  9. Manolo, Welcome the club you never wanted to be a part of. I started out using diet and exercise. When my symptoms became to bothersome I started out with Azilect. It helped a small amount. It relieved some stiffness, my mood got better, and did nothing for my tremor. After that my MDS and I decided to use Cardopa/Levodopa 25/100 AKA sinement. It has made the world of difference for me. With the azilect and sinement combo I am feeling better than ever. Nobody can tell I have any problems. Remember results will very. One thing I caution is using agonist. They have a tendency to have the most side effects than any thing else. Exercise is the best medicine. Blessings
  10. Glad to see others with PD are out enjoying life as much as possible. I have found when I am traveling and doing what I love my symptoms are less severe and overall I feel a lot better. Good luck.
  11. Lad, your positivity is infectious. Keep it up. I often tell people that I am happier now than I have every been. I have a whole view on the world I finally know why my body reacts the way it was. I will live to my fullest potential every chance I get. Blessings
  12. Mark, welcome to the forum. I know I am kind a late to the party here. I saw 3 Neurologist, 2 of them were MDS's before I could accept what was going on fully. I even had a positive DatScan as well. I hope your feb appointment was productive. Blessings Adam
  13. In Buddhist tradition they believe the first sound made was om. Not sung but vibrated. Here is a definition that I found. Om ( listen (help. · info), IAST: Auṃ or Oṃ, Sanskrit: ॐ) is a sacred sound and a spiritual icon in Hindu religion. It is also a mantra in Hinduism, Buddhism, Jainism, and Sikhism. It is used in eastern religious tradition to center the body and spirit and let the world slip away so the body can relax. This is done by taking a deep breath and letting the sound Om vibrate out of your mouth on a slow exhale. Deep breath in, slowly out while saying OOOooooooooommmmmmmmmmmmmmm, then repeat till you feel relaxed and centered. There is tons of chants online you can do this with on You Tube. Deva Premal has a nice one. If this is to "out there" for you beliefs I apologize. I figure anything is worth a shot with this disease. Blessings Adam
  14. Noah. Not sure if you have ever tried Om-ing. I have a 1/2 om chant that I use once in awhile. Making the sound om helps with voice and it also give the brain something to do. The repetitive om helps to calm the body and I find my tremor, and tightness relax a bit. best of luck Adam
  15. I totally agree Johnnys, Rochester used to be the home of innovation, Lots of ideas grew out of this city. Now you have to work in health care or education if you want a ok paying job. It is sad to watch my history lessons come to life.