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waruna01

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waruna01 last won the day on October 22

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About waruna01

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  1. 23 year old female worried about PD

    Most people only have PD symptoms on one side and it some times takes decades for Parkinson’s to develop on other side. Also note that more you keep reading about Parkinson’s, even reading this forum, more you will think you have it. You are way to young to get Parkinson’s. 23 is not an age you should worrying about Parkinson’s. Go live your life. I recommend you curtail your internet usage until your anxiety cools off. Try going off internet for a month or two and interact with real people instead. You will be surprised how much anxiety is tied to internet use
  2. 23 year old female worried about PD

    Also try out some Ashwaghnda. It might help you with your anxiety issues
  3. 23 year old female worried about PD

    Some threads you might want to read
  4. 23 year old female worried about PD

    Do you still have your smell? Can you smell a banana, cofee etc? If yes, chances of you having PD at this age is virtually none. Good thing is you became aware of PD at a young age so you can take steps to prevent it later on by exercising regularly, eating brain healthy foods etc etc.
  5. Newest DBS system st Jude's

    It takes few years to get dbs settings optimized provided they implanted leads with millimeter precision. Don’t make any judgements until at least 6 moths. Go to an expert programmer like Sierra Farris in Denver if side effects worsen
  6. Infinity DBS system - issue

    It takes few years to get dbs settings optimized provided they implanted leads with millimeter precision. Don’t make any judgements until at least 6 moths. Go to an expert programmer like Sierra Farris in Denver if side effects worsen
  7. Approved for DBS

    You should ideally only only do dbs when you have nothing to lose. Be warned of possible speech and balance trade off
  8. Mucus built up in throat after dbs?

    Cut down on diary, milk, , sugar including candy and cold foods. Drink hot water as a habit all the time and drastically reduce or eliminate all sugar intake. eat warm foods all the time. Mucus will go away. Spirometer helps too. Reducing dbs frequency to 130 or below and pulse width to 60 might help too. Bi polar settings another option to try. Key is to turn ON correct electrodes for stimulation
  9. Take Rasagiline or wait?

    It may delay your PD. So yes I would take it.also consider Ashwaghnda, Shankhapushpi. They are excellent brain tonics. Don’t forget to exercise too
  10. Approved for DBS

    Vanderbilt has a great reputation. When it comes to dbs, volume matters. Ask your surgeon how many dbs surgeries he or she has completed. Ideally it needs to be over 100. Experience will reduce side effects from lead insertion such as strokes and suboptimal placement of leads. My recommendation is to wait for now until you are 100% sure you need it. and do dbs on one side when you do it which will reduce side effects by 50%. You can do the other side later if PD develops in other side later on. Greater the risk of side effects with two leads.
  11. Approved for DBS

    You can’t undo this surgery and it’s good and bad effects. Don’t do it with second thoughts about it. You seem like you are considering it for pressure. Your body and mind will tell you when you really need to consider this surgery. It’s not a marathon. So don’t rush. If you wait few more years, they will likely have more advanced dbs devices and implantion techniques by then. You can also research and learn a lot by then about good and bad side about dbs. Some thing to think about. You might even be able to get the dbs implanted by a more experienced dbs surgeon who has implanted hundreds of such devices. You will have time to research your doctors and dbs team. Get more second opinions from other dbs centers. Sierra has an excellent dbs team in Denver. UF Florida is good too.
  12. Having fun with DBS & Blood Pressure

    I would ask dr okun in this forum
  13. Constipation

    This constipation recipe has done wonders http://movementdisorders.ufhealth.org/2011/09/12/parkinsons-treatment-tips-for-constipation/
  14. Approved for DBS

    Don't have dbs if you are unsure if you need dbs. Dr okuns group don't necessarily recommend dbs if you are satisfied with meds as you can read in PDF. Some center like to persuade you to do dbs early than late. This is not very helpful given complications from dbs. Dbs come with a trade off usually with speech, balance, other emotional side effects like uncontrollable anger, depression etc etc. Only consider it when it's worth the trade off. Also consider doing 1 sided dbs as it will greatly reduce speech balance and other side effects. You may not need other side in your life time. My recommendation is Only do dbs when you really really really feel that have no other way around. Less is better with dbs or none if you can stay happy with just meds. You really don't need machine and holes drilled in your head unless you really have to.
  15. Approved for DBS

    Also read this
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