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waruna01 last won the day on September 15

waruna01 had the most liked content!

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About waruna01

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  1. Approved for DBS

    Vanderbilt has a great reputation. When it comes to dbs, volume matters. Ask your surgeon how many dbs surgeries he or she has completed. Ideally it needs to be over 100. Experience will reduce side effects from lead insertion such as strokes and suboptimal placement of leads. My recommendation is to wait for now until you are 100% sure you need it. and do dbs on one side when you do it which will reduce side effects by 50%. You can do the other side later if PD develops in other side later on. Greater the risk of side effects with two leads.
  2. Approved for DBS

    You can’t undo this surgery and it’s good and bad effects. Don’t do it with second thoughts about it. You seem like you are considering it for pressure. Your body and mind will tell you when you really need to consider this surgery. It’s not a marathon. So don’t rush. If you wait few more years, they will likely have more advanced dbs devices and implantion techniques by then. You can also research and learn a lot by then about good and bad side about dbs. Some thing to think about. You might even be able to get the dbs implanted by a more experienced dbs surgeon who has implanted hundreds of such devices. You will have time to research your doctors and dbs team. Get more second opinions from other dbs centers. Sierra has an excellent dbs team in Denver. UF Florida is good too.
  3. Having fun with DBS & Blood Pressure

    I would ask dr okun in this forum
  4. Constipation

    This constipation recipe has done wonders http://movementdisorders.ufhealth.org/2011/09/12/parkinsons-treatment-tips-for-constipation/
  5. Approved for DBS

    Don't have dbs if you are unsure if you need dbs. Dr okuns group don't necessarily recommend dbs if you are satisfied with meds as you can read in PDF. Some center like to persuade you to do dbs early than late. This is not very helpful given complications from dbs. Dbs come with a trade off usually with speech, balance, other emotional side effects like uncontrollable anger, depression etc etc. Only consider it when it's worth the trade off. Also consider doing 1 sided dbs as it will greatly reduce speech balance and other side effects. You may not need other side in your life time. My recommendation is Only do dbs when you really really really feel that have no other way around. Less is better with dbs or none if you can stay happy with just meds. You really don't need machine and holes drilled in your head unless you really have to.
  6. Approved for DBS

    Also read this
  7. Voice weakness

    have them tone down the frequency to 130 or below. Frequency, turning ON incorrect electrodes, mono polar settings are mostly to blame for speech issues. If her tremor is well controlled under a frequency of 130, with bi-polar settings and optimum electrodes are turned on, all the better.
  8. Voice weakness

    Your chances of speech problems goes through the roof with bilateral STN placement. If you only have PD symptoms on one side, avoid bi lateral DBS. Most centers will talk you into doing both sides saying you might need both sides in the future. Dont fall for that one unless you have equally bad symptoms on both sides. Dont anticipate future and do DBS on a side that you dont have have any PD symptoms to begin with. One side DBS may be a perfect compromise between speech and benefits of DBS. Think very carefully before doing both sides.
  9. Newest DBS system st Jude's

    Not,many people have this type of unit yet I believe. Most people are with medtronic and most programmers around the country are familiar with medtronic and it may take them years to master this new system. Something to think about. You may have limited options to get second options from other programmers in the country if you go with this type of unit
  10. Voice weakness

    I would say 50% of speech can be improved with proper programming as mentioned above.

    Read the thread

    There is also a book called DBS a patient guide written by Sierra Farris I highly recommend reading prior to DBS which can be found on Amazon

  14. New guy here - a journey I'd like to avoid

    Read my posts on