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LAD last won the day on March 24

LAD had the most liked content!

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About LAD

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    Advanced Member
  • Birthday 10/05/1968

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    York, Pennsylvania

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103 profile views
  1. glad to time you do it...close your eyes or say girls names of each letter of the those neuro pathways! This is a great exercise..,I do it every day
  2. Check these exercises for hands
  3. I do the PWR4life program and take dance lessons with my husband. My MDS says your mindset and attitude are important in your PD fight. People who have a positive outlook and hope do better. Find what makes you feel good and stick to it!
  4. My DAT scan was positive but looked close to normal if you compared it to a normal scan. But even the small difference confirmed my DX along with my symptoms. Good luck. Exercise and do what works for you - PD or no PD!! They will figure it out
  5. You are correct - they are connected. Becky Farley developed both programs. You can try to look for an instructor or class in your area via the website. Or go to their YouTube channel-it shows a lot of practical videos. I've been doing the program and taking dance lessons with my hubby. I have maintained for 2.5 years. No dopamine replacement drugs yet. I'm a firm believer in the exercise and the neuroplasticity. ( I do take a dopamine agonist ) and yes aerobic exercise to get your heart rate up is important as well. My dr told me to keep doing what I'm doing 😊💃💃 Two great YouTube channels to get ideas...
  6. I do the PWR4life program or some form of execise daily, especially balance exercises. You can incoroporate things into your daily routiine...especially the neuroplasticiy stuff....for example...button your shirt with your eyes closed or say things you observe when you are taking a walk....make faces and sing loudly when you are in your car. Look on youtube...there are tons of exercises. "Exercise is more than just fitness. It is a psychological tool in the fight against Parkinson's Disease" Becky Farley CEO and founder of LVST and PWR4life
  7. Saw my MDS today. She said your mindset & attitude can have a huge ettect on your PD. I've been exercising, and building an excercise program in my area. I'm feeling good and helping others as best as I can. She looked at me and said "you're doing great - I can tell by your posture. Keep doing what you are doing". So stay positive and stay hopeful!
  8. Get on a regular exercise program. I take dance lessons and do the PWR program. I don't take the med you are referring to.. Maybe a post in the ask a pharmacist forum? Good luck. Keep fighting!
  9. Hope things are going well!!!
  10. Look into when you finish your LVST program. You can search their site for a local certified instructor or therapist. Good luck! Becky Farley who developed both programs knows her stuff!!
  11. Where are you located?
  12. You could also post in the ask the doctor forum for advice on how to find a MDS on your own. Maybe there is a network of some sort you can look into.
  13. Start an exercise regimen now, regardless of your DX. I too had cervical neuropathy. My PD was found by accident during a procedure before my surgery to correct my neck. I too was in medical limbo for 3 months. It was awful so I can only imagine how frustrated you must be at this point. Keep a journal and take it to your PCP. Find a MDS you want to see. Be your own advocate and bring backup. I'm not as intimidated if I have someone with me who knows what my "plan" is for the appointment-tell them "don't let me leave until I ..." You can also send your records on your own to some hospitals. I sent mine and the doctors reviews them and I was contacted by the MDS best suited for me. It took awhile but it eventually happened. Don't give up.
  14. You can also find a certified therapist or instructor for the PWR4life program. It was developed by the PT who developed the LSVT program. Where are you located? Look up Parkinson wellness recovery on YouTube- lots of good videos- it's a lot of cardio,circuit & neuroplasticity exercises