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Everything posted by LAD

  1. I posted this twice - sorry if that annoys anyone....feel free to add positive thoughts ponder as we go on this journey.... LAD
  2. Found it
  3. here you go JB49...I found this online...not sure it's the exact one 😊 lad
  4. Words of pope John Paul II who had PD.... The pontiff continued in English, speaking in a slow but thoughtful cadence: “To be human, we can expect suffering. And God gave us that suffering for a purpose. Suffering and hardship brings forth character in man. It brings out the best in man’s humanity. It makes an empathetic person. It makes us realistic and less self-centered and helps us because of our experience to want to help others.
  5. Give credit to the turtle! But I agree with him! And you are spot on...choose to be happy! My son was amazed at my neuro evaluation-my DR uses the UPDRS. My "score " was the same as last year so I'm holding steady! I made an iMovie of our dance moves and my DR loved it especially since he was the DR who suggested dance lessons. I'll post it sometime. But I was a very proud mama - my DR talked to me and Adam. He was as he says "adulting" Happy Friday!!! LAD
  6. Food, their phone/ipad and sleep...that's a 17 year old boys mind...unless there is a girl involved then it's a bit different. My 17 year old eats 2 dinners at dinner and one again when he gets home from his rehearsal at 10pm. Food is most definely on their minds:) LAD
  7. Get her into a PD specific exercise's one of the best things she can do. There are lots out there. I do a program called PWR! can get info about it at love it and it's training for your body and your mind...and definitely easily modified for any fitness level. I'm not sure where your mom is located but the website has a place to search for instructors/therapists in your area. Good luck... LAD
  8. Not sure where you are located but Hopkins has some clinical trials with PD & anxiety. You can find info on MJ Fox Foundation trial finder. LAD
  9. Did you try the sea bands you wear on your wrists or the fisherman oil you put behind your ears? I did both on a cruise. LAD
  10. Thanks for noticing my quotes. I can't control most things about PD but I can try to control how I respond to it. I think attitude has a huge impact on overall wellness. I refuse to give up. I may fall down or slow down but I'm not stopping. LAD
  11. This reminded me of one of my favorite stories.,,When my oldest son was around 5..., my husband took him to the men's room at the mall. My son came bolting out to me at the table I had snagged st the very crowded food court. While still a good 5ft away from the table he yells "daddy just peed in the sink! " my husband laughed and said "he's never seen a urinal " after picking myself up off the floor, I realized he was usually with me and the ladies room doesn't have them😊 And JB - when my mom went away with me, I asked her who was going to wash my dads clothes. She replied "he's got clothes and I put out his old underwear and told him to throw them away." 😂 Hapoy saturday all! LAD
  12. This fell out of my book today.... peace- LAD THE PRAYER BE AT PEACE (By Saint Francis De Sales) Do not look forward in fear to the changes in life; rather, look to them with full hope that as they arise, God, whose very own you are, will lead you safely through all things; and when you cannot stand it, God will carry you in His arms. Do not fear what may happen tomorrow; the same understanding Father who cares for you today will take care of you then and every day. He will either shield you from suffering or will give you unfailing strength to bear it. Be at peace, and put aside all anxious thoughts and imaginations.
  13. He's worth the wait - just know that going in😀
  14. I did. My therapist was great.... I've got breathing techniques etc.... I know what's happening and my reaction is the physical shaking. It's bizarre. I just get through it. I know it goes away. LAD
  15. “Keep your thoughts positive because your thoughts become your words. Keep your words positive because your words become your behavior. Keep your behavior positive because your behavior becomes your habits. Keep your habits positive because your habits become your values. Keep your values positive because your values become your destiny.” Mahatma Gandhi Keep fighting...never give up!! LAD
  16. Hello all- Well...I finally got the courage to bring my son (who will be graduating as a Physician Assistant) with me to my yearly neuro exam. He's never seen a complete workup and mine tend to be pretty intense. Plus, I will be starting an oberservational clinical trial that day as well. As much as I wanted to shield my kids from my PD, I think it's important to educate others - especially those in the medical field who don't specialize in neuro. My son will be a hospitalist so he may have PD patients and actually be helpful in a hospital setting. I also know that he is well aware of my PD and all the meds I take....ugh....I guess I will count my blessings and hug my kid for coming home to escort dear ol' mom to her appointment. I do however have a tango video to show my MDS:) Good night all.... Muffet...GInger
  17. we never danced either ...we take private lessons...however we now will dance in public and we can fool everyone:)
  18. I want to do the retreat next year is not for sissies true! LAD
  19. As someone said- go to website and search your zipcode. If the PT you know is willing ask them to look into getting certified...they have workshops all over. I asked my friend & trainer to do it so she could train me and then it evolved into a program for others. I started by buying the book online and a therapist just helped me. What zip code are you? I can look it up for you if you need help. I also recommend dancing. My husband and I started when my MDS told us to learn the Argentine tango ... you can't start with the AT... we started with ballroom and stayed with it. We got to the tango now! We have fun too! I honestly forgot I have PD when we are busting a move! sorry I already told you to go dance... LAD
  20. All of the above ! See a neurologist--try to get a movement disorder specialist if possible. Exercise!!!!
  21. As a YOPD.... I am so scared to think of my husband and my kids becoming overwhelmed by being my caregiver. Trying now to make sure we do some things to make it easier-we will be in a one level condo within the next few years. I don't need it now but I'm doing it anyway. Prayers for you all on that part of the PD journey. LAD
  22. Mine are bad in the cold.
  23. Not sure if anyone saw American ninja warrior and jimmy choi..... This was posted online about his courageous run.... LAD
  24. "You will never be in complete control of your life. It just isn’t possible. You want to feel completely safe and secure. But even if you plan out every detail, the world will mess up your plans. So just stop trying to be in control. Stop trying to make your life completely safe and predictable—and boring! Instead, grab My hand and jump in with both feet." —Jesus Calling for Kids by Sarah Young "Look at the new thing I am going to do. It is already happening. Don’t you see it? I will make a road in the desert. I will make rivers in the dry land." —Isaiah 43:19 (ICB) #JumpIn #BothFeet #JesusCallingKids