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swva

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swva last won the day on February 10

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About swva

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  1. Nervous, cold, using other hand, working out. They all make my tremors worse. My tremors are mostly in my hand, but a couple of times when presenting to a board meeting, I could feel my backside shaking. Bet the audience behind me got quite a show!
  2. For years I couldn't sleep late because my mid and low back would be too stiff to stay in bed. Haven't had as much problem since starting Sinemet, until the last couple of weeks. I slept wrong, woke up with a stiff neck and have been sore in my neck ad mid back ever since. It seems to take forever for things to get better on my PD side.
  3. Arm, hip, and calf muscles for me. Usually when the meds wear off.
  4. https://www.nytimes.com/interactive/2017/06/06/well/patient-voices-parkinsons.html?_r=0
  5. I get an electric like feeling in my arm near my elbow some mornings. It doesn't cause my arm to move or anything, but it feels like current running through my muscles.
  6. I think taking drugs really depends on whether the symptoms are affecting your daily life. My tremor and "off" feeling we're bad enough to make me feel like I wouldn't be able to work very long after my diagnosis. I have had to double my Levodopa dosage to 600 mg recently to take care of my symptoms.
  7. Thanks so much. I will discuss increasing my dose at my next appointment.
  8. When adjusting a patients dosage, do you try to increase the dosage to completely eliminate tremor, or do you only increase it enough to make the tremor manageable? My first dose of the day is 1 25/100 Sinemet CR with a half 25/100 Sinemet, and the remaining 3 doses are 1 pill every four hours with the last dose at 5:30 pm. I have almost no tremor during the first dose, but my tremor increases for the rest of the day, but most times it is manageable. I sometimes take an extra half dose if it becomes bothersome at work. Would you suggest to try an increased dosage to 1.5 pills for each dose? I will need to discuss with my neurologist at my next appointment in order to adjust my prescription if I do try an increased dosage. Thank you for your help.
  9. Same here. I can smell some things and others that should have a strong smell I cannot.
  10. I think most doctors probably say essential tremor initially because it is more prevalent than PD, especially for young onset patients. I was pretty open with my family during the whole diagnosis period. I personally believe that knowledge is the best coping mechanism.
  11. Scott and Murray, I hate that you guys both ended up with infections. It almost seemed that DBS was getting to be a routine surgery and then two people on this forum have major complications within a couple of months. Hope both of you recover quickly and the next DBS goes great.
  12. I cannot even find the view new contact button. I always use my phone to check activity on the forums and a couple of days ago it seems to have switched to a mobile version rather than the online version. Still trying to find out how to switch back.
  13. The ketogenic diet has also shown some benefit for PD. I try to stay in ketosis, but it is really difficult to stay away from chocolate and ice cream for a long time.
  14. I don't take any at night, but I would think that one 25/100 would be sufficient either at bedtime or when you wake at night. There have been a few times that I have taken a half a dose to fall back to sleep.
  15. I have been on Sinemet since my diagnosis about 2 years ago and switched to Isradipine for my BP soon after. I have increased my Sinemet to 4.5 25/100's per day to manage tremor and stiffness. I am not sure if the Isradipine is helping, but I plan on staying on it until the trials are complete. If it doesn't show any benefit in the trial, I will probably stop taking it due to it causing leg edema.