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Everything posted by swva

  1. Trying Sinemet

    C/L reduces my tremor, relaxes my muscles, eliminates my anxiety, keeps me from chocking on my saliva when I nap. Pretty much makes me feel better.
  2. Got my 23andme results

    I used the site below to get additional information based on my 23 and Me data. It doesn't cost much and you get your reports back in minutes. https://promethease.com/
  3. I see a neurologist every 12 months and any time in between visits if there is a problem with my meds.
  4. Early Symptoms

    I never really noticed any slowness prior to my diagnosis. Tremor, stiffness, foot spasms, swallowing issues, and a little shuffling of the feet were my symptoms.
  5. Tremors only -- could it be YOPD?

    Early tremors in both hands and legs do not sound like PD or MS to me. I have PD and my wife has MS and neither of us have experienced those symptoms before.
  6. What drugs? supplements like inisine?

    Your doctor may have wanted to try you on an agonist rather than Azilect. Those do have warnings for sudden sleep issues.
  7. maybe PD?

    I am not aware of any recent studies that show that you end up worse after taking meds. The meds stay the same, but those of us with PD continue to loose dopamine cells. It would be great if you don't need meds, but don't be afraid to take them. They are life changing for many.
  8. http://www.pjstar.com/news/20171226/nick-in-am-golf-channel-features-richwoods-graduates-battle-vs-parkinsons
  9. alcohol and tremors

    My tremor usually really calms down after about 3 beers.
  10. Great Club

    You don't have to quit all protein when taking levadopa. Just don't eat a burger an hour before taking your meds. Take your Levodopa, wait at least 30 minutes and then eat the protein. It is also better to eat smaller meals. Big meals (and I mean the big holiday meals) don't seem to clear enough before the next dose.
  11. Coffee, tea or alcohol?

    I drink about 4 cups of strong coffee every day and have an occasional beer or mixed drink. Never have any problem unless the drink turns into 7 or 8. Then the next day is a little rough.
  12. Welcome to the club

    I second adams' comments.
  13. Promising trial from Down Under

    Bad news from the clinical trial. This one failed. https://stockhead.com.au/columnists/whats-next-living-cell-failed-clinical-trial/ Chairman’s Address to the 2017 Annual General Meeting We are all extremely disappointed that the outcome of the Phase IIb trial of NTCELL® for Parkinson’s disease has not shown a statistically significant difference between the patients who received NTCELL and those who had sham surgery. I will talk about what those results mean for the future of the company in more depth shortly, but to set those in context, first I’d like to highlight some of the activities from the past 12 months. http://www.lctglobal.com/news/asx-announcements
  14. There are a few links related to this in the Nutritionist forum and the Spanish forum. http://www.businesswire.com/news/home/20160126006784/en/NTCELL%C2%AE-Continues-Reverse-Progression-Parkinson%E2%80%99s-Disease-%E2%80%93
  15. Summer adventure season starting

    Stump started this thread discussing fishing, kayaking, and hunting. Here's a thought! How about at the first inkling that you see something you don't like, stop reading and move on to the next post. What is wrong with people in today's society that thinks that everyone else should change to suit them? People post stuff online every day that I don't agree with. If I don't like it, I don't read it. Stump, keep on posting. I don't hunt much anymore, but I love eating game that my sister and niece bring home. They both got 8 point whitetails this weekend.
  16. Timing of Sinemet vs increased dose

    I had to increase me Sinemet dosage a few months ago to one 25/100 Sinemet ER and half of a regular 25/100 Sinemet every four hours. This worked for a while, but I had to go back to my neurologist this week to increase my dosage to one regular Sinemet and one Sinemet per dose every four hours. I am somewhat concerned that I am increasing my meds too quickly. I realize that everyone progresses and responds to meds differently, but I would like to know if there have been any studies that show the average daily levadopa dosage versus the time since diagnosis. Are you aware of any such studies? Thanks for your help.
  17. 23 and Me update

  18. Insomnia

    I get the 3 am wake up most nights, but I can usually fall asleep again until I get up at 5:30. Some nights are tougher than others depending on the tremors. Some nights I have to lay on my affected side to reduce the tremors. CPAP. Has helped some. I normally get 7 hours of sleep now. I don't function well on less than that.
  19. Diagnosed 2.5 years ago at 45. My finger tremor had progressed to my entire hand in the two months before I was diagnosed. Never stopped taking Sinemet after my Sinemet trial for diagnosis. I have had to increase my meds to 6 - 25/100's per day. Never really tried to keep my diagnosis a secret or had any regrets starting meds. I really can't concentrate on my work when the tremors and stiffness kick in.

    Because none of the treatments have been proven to help PD. Any that claim to help are snake oil salesmen and are only out to get your money.
  21. I uploaded my results to https://promethease.com/ It had a lot more information than 23& me and from what I remember, it was fairly cheap and I got my reports within minutes.
  22. Hand tremor when nervous, anyone else?

    Nervous, cold, using other hand, working out. They all make my tremors worse. My tremors are mostly in my hand, but a couple of times when presenting to a board meeting, I could feel my backside shaking. Bet the audience behind me got quite a show!
  23. Morning Stiffness?

    For years I couldn't sleep late because my mid and low back would be too stiff to stay in bed. Haven't had as much problem since starting Sinemet, until the last couple of weeks. I slept wrong, woke up with a stiff neck and have been sore in my neck ad mid back ever since. It seems to take forever for things to get better on my PD side.
  24. tensing of muscles

    Arm, hip, and calf muscles for me. Usually when the meds wear off.