helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

SkeeterElf

Members
  • Content count

    79
  • Joined

  • Last visited

  • Days Won

    3

SkeeterElf last won the day on March 28 2015

SkeeterElf had the most liked content!

Community Reputation

32 Excellent

About SkeeterElf

  • Rank
    Advanced Member
  • Birthday 04/06/1959

Profile Information

  • Gender
    Female
  • Location
    Jacksonville, North Carolina
  • Interests
    None at this time
  1. Finally got the results of both my nerve and muscle test today over the phone of course. According to the results I have not been diagnosed with having Polyneuropathy. Nurse didn't give me anything but the spelling. I asked about scheduling an appt. and she said doctor said to keep regular appt. in June and I was like NO WAY. The numbness and pain in my foot is driving me batty that and the Tramadol for pain only muffles the pain for about 4 hours then I start hurting again. I asked about something different that would help with the symptoms and she said that he had not made mention of prescribing anything new not even for the pain. I asked too be transferred to the appointment desk to see about getting in earlier so my next appt. is now May 8th. When I looked at the causes of Polyneuropathy it was a little overwhelming as they said the word cancer, liver disease, kidney damage. infections, diabetes, etc. So to say the least I was not about to wait until June to see him as I want to get to the root of this pain right now. If things don't start changing with my doctor's lack of concern about his patients being in pain and having many questions then it may be time to search for new doctor.
  2. I like to blame it on "some timers disease" and not think about it being related to PD. I have walked into a room for something and completely forgot what I went in there for. My husband just looks at me like I'm nuts. I have had to start keeping note pads in every room so that when I think of something I need to do, I automatically write it down now. My computer desk is filled with notes that even include simple things like "remember to mail brother's card" and the card is sitting right there but if I don't write it down I will definitely forget it. I also have been misplacing things a lot here lately. I put something somewhere I know I will remember and sure enough I got looking for it and can't remember where I put it. It's maddening I tell you.
  3. I know exactly how you feel. My husband is such a ham an when I think I am smiling at him I'm actually not so he thinks that what he did I didn't find funny. I try to explain that I don't know how to show facial expressions anymore. It's a strange thing for sure. People do tend to think that something is wrong because you have the same facial expression for everything.
  4. Hey there Cap - I can attest that the forum members here are a great group of people. I'm fairly new to the group and they have been very supportive of my questions and concerns. This group and it's members will assist you any way they can - all you have to do is ask. I'm sorry for your recent diagnosis of PD but as this group has taught me - "don't let it over take or control your life". I take it one day at a time. Welcome to the group and I hope you take full advantage of all it has to offer.
  5. Cindy - Thank you. I'll be glad to find out the results myself - the sooner the better. I just want to get to the root of the problem.
  6. Dianne- Baby steps is what I'm calling it. Just learning to take one day at a time and no sense worrying or stressing about things I can't change. I know that I am hoping that this will be the last test for awhile. I have learned quickly because I have had some good teachers here in this forum. Thanks everyone!!!
  7. Tomorrow morning is the Muscle Test. Not letting it stress me out like I did the Nerve Test as everyone on here how posted, helped me tremendously in lowering my stress and anxiety level. Everyone was right with the first test so I pretty much know what to expect with this test. There may be a few "ouchy" moments if indeed he does hit a nerve but I'm going to do my best to not jump off the table and hit him.... I will be anxiously awaiting the results of the test to see what they find out is causing the pain - once I get results I will let everyone know what they found out as being the cause. Hope everyone is enjoying their weekend. Have a good day.
  8. Hey Linda - I think it's great that are you are going to follow suit and send the letter to your local newspaper and public officials. I think your last paragraph should "surprise" the readers by listing some famous people who either had or currently have Parkinson's. The list of names I would use would be people like Robin Williams (actor); Muhammad Ali (boxing champion); Michael J. Fox (actor); Johnny Cash (country singer); Estelle Getty (Golden Girls); Billy Graham (evangelist pastor);, Janet Reno (Attorney General til 2011);, Linda Ronstadt (singer) and Pope John Paul II. That would catch their attention for sure. Then I would end it with the website address www.michaeljfox.org so that the public can go online and read more about Parkinson's disease and make donations if they wanted. That's just my 2-cents..... Good luck and make sure you let us see what your finished product looks like.
  9. Thank you Island Woman - let's hope it brings some public awareness to this Military community in which I reside in. There are lot's of people doing various fundraising efforts to bring awareness to PD but I am better with pen and paper. I do however support their fundraisers with monetary donations when possible. If anyone out there is holding a special Parkinson's Awareness fundraiser let me know - I may not be able to contribute a lot but every little bit helps.
  10. I submitted the below article to our local newspaper and e-mailed it to the Mayor, Senator, and Governor in hopes of making my community more aware of Parkinson's Disease. The space given to write about a topic was limited to I did the best I could to squeeze in some major points about Parkinson's. The article should hit the newspaper either tomorrow or Monday. I have already heard back from the Mayor's office and they will either be doing a proclamation or some sort of certificate declaring April as Parkinson's Awareness Month. Let me know what you think of the article - it's long I know but hope it serves it's purpose in my community: Letter to the Editor – April is Parkinson’s Awareness Month Many of you may not be aware of this but April is Parkinson’s Awareness Month. Our support color ribbon is gray. Nearly 1 million Americans live with Parkinson’s and many of them live right here in our community. Parkinson’s is a chronic and relentlessly progressive movement disorder. It involves the malfunction and death of vital nerve cells in the brain. As Parkinson’s progresses, the amount of dopamine produced in the brain decreases, leaving a person unable to control normal movement. Some of the key motor symptoms of Parkinson’s disease are tremors of hands, arms, legs, or jaw; muscle stiffness in the arms and legs; slowness of movement; impaired balance or coordination. Other common symptoms can include, but are not limited to, pain; dementia or confusion; fatigue; sleep disturbance; depression and fear or anxiety. Symptoms vary from person to person. There is no cure for Parkinson’s disease; however there are treatment options available such as medications, and surgery which is referred to as deep brain stimulation. Parkinson’s disease is a progressive disorder, and although not considered to be a fatal disease, symptoms do worsen over time and make life difficult. People with this disease find it difficult to function physically, socially and emotionally. Every day is a challenge for them. It makes it difficult to perform simple daily functions. It causes some to become overly frustrated, feel defeated, or embarrassed to go out into the public. In some cases it takes a caring and dedicated group of healthcare workers such as Parkinson’s disease specialists, Physical Therapist, Occupational Therapist, Nutritionist, Speech Therapist, Social Workers, Psychiatrist and neurosurgeon to help improve the daily quality of live for those who suffer from Parkinson’s Disease. It saddens me to know that there are so many people affected by this disease yet we have no local support groups available in the area. Because of the lack of a hands on support group I have had to join online support groups. It’s harder getting questions answered or issues addressed through a social media support group. Maybe someone like Onslow Memorial Hospital or our local Health Department will someday offer a Parkinson’s Disease Support Group but until then I will continue on my web-searching adventures. Kathy Marks Onslow County
  11. Linda - send me a private message with your e-mail address on it and I will send you a copy of the article I wrote. Maybe it will open some eyes up here in this area and we may possibly see an organization come into our local area and start up an active Parkinson's group. That would be awesome. Hope to hear from you soon - once I get your e-mail address I will immediately send you the article.
  12. I wrote an article for our local newspaper to be printed in the "Letter to the Editor" section letting everyone know that April is "Parkinson's Awareness Month". Explained a little about what Parkinson's Disease is and how it affects us physically, emotionally and socially. I also e-mailed the same information to the Major, Senator and Governor. Heard back from the Mayor's office and they requested a copy of what I had submitted to the newspaper so that they could look at doing something like a proclamation or certificate. I was chatting with one member and he is doing a Parkinson's Charity Walk and has raised over $2,000 for the MJF Foundation. I figure that I couldn't get out and do all that so I would try to get some public awareness out there via newspaper and public officials.
  13. Just an update - doctor called and said that I can now take 2 pain pills every 6 hours now and since him doing that I have been pain free. Still have a feeling of numbness/tingling in my left foot but that is very tolerable compared to the pain I was suffering. I can now function better emotionally and physically. I also started taking Miralax the other day. Glad it doesn't have any chalky taste to it. So thanks for the advice on trying Miralax for constipation issues.
  14. Thanks NN for the information. You're right - the last thing I need is to be constipated. Got enough to deal with without adding more. Since I don't do well with swallowing would investing in some Miralax be a good 2nd choice? Want something that can be mixed with water and won't taste nasty.
  15. Back from having test done and it wasn't all that bad. There were a few times though that the shocks felt more like needles going into my leg and it definitely got my attention. I have a call in now to my family doctor to see about getting something better for the pain in my leg. Hoping he's not going to make me go back in to re-evaluate the pain because nothing has changed. I've been on the pain meds for 2 weeks and they help very little in alleviating the pain. Maybe will get lucky and family doctor will just call something in to pharmacy. He can't run any tests until the neurologist's tests come back so we'll see what they say when they call back. If family doctor doesn't do anything except want me to come back in to be re-seen then I will consider paying for a visit to a Chiropractor - if I'm going to have to spend money to get some relief then I think I use means of possibly getting relief. Am I going to need medical notes from neurologist or family doctor stating I have Parkinson's or do I just call and schedule an appt. and tell them about the nerve and muscle tests being done but that right now I am in really bad pain and pain meds aren't helping? We have several good Chiropractor's in our area so I'm willing to give it a shot.