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Benyamin

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Benyamin last won the day on June 11

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About Benyamin

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  • Birthday 08/08/1984

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    Shanghai, China

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  1. Part 4 - Edinburgh https://tmrwedition.com/2017/07/13/journey-round-my-brain-part-4-edinburgh/
  2. Hi Lonnise, for all the latest on PD as an autoimmune disorder I'd suggest this blog... https://scienceofparkinsons.com/2017/06/25/the-autoimmunity-of-parkinsons-disease/ Anecdotally I can tell you that I suffered from migraines all throughout my childhood and believe that that inflammation may have triggered an autoimmune response that may have played a role in the early onset of this disease for me. But of course, there's no way of knowing for sure. Glad to connect, good luck navigating the murky waters of PD.
  3. Part 3.... https://tmrwedition.com/2017/07/01/journey-round-my-brain-part-3-england/
  4. Here is part 2.... https://tmrwedition.com/2017/06/09/journey-round-my-brain-part-2-israel/ Next stop, UK. Anyone in London, Cambridge or Edinburgh?
  5. https://tmrwedition.com/2017/04/30/a-journey-round-my-brain/
  6. I'm actually wondering if anyone has heard of any device that mimics Parkinson's tremors, allowing other people to experience what it is like to have Parkinson's tremors. Anyone hear of anything like that? I think it could be a great way to raise awareness.
  7. Put together a list of treatments that may be available in the future... https://tmrwedition.com/2017/03/23/the-future-of-parkinsons-disease-therapies/ Anybody know any I missed?
  8. Next stops, Washington D.C.(21st to 26th) and San Diego(26th to 1st), anyone around?
  9. Update: Had an awesome time in Austin with Tom and his fellow combatants at The Rock Steady Class. It was my first rock steady class and I was definitely impressed, if anybody has one close to them I would definitely encourage you to attend. From there I went to Vancouver and spent a full day at the Centre For Brain Health at UBC. I've visited a lot of different clinics but I think this one did the best job of ensuring the interdisciplinary approach that treatment of this disease requires. Next stop on the tour will likely be the Boston area towards the end of this month, if anyone is in the area and would like to meet up please let me know. Mihai, I may include a stop in Cleveland on this trip, I will be sure to let you know if I do. Sunbird, interesting finding, another thing to add to the ever-growing list of things I probably should be doing
  10. Sunbird, never really heard of that before, where can I learn more? Texas Tom, a Rocksteady class in Austin would be perfect!
  11. Greetings forum community, My name is Benjamin, I am an independent science and tech researcher as well as a Parkinson's disease patient advocate. I have recently been touring some of the top labs in the world looking into the latest developments in PD research among other things and writing about my experiences. I also try and meet with as many PD people as I can along the way. You can find my story here... https://tmrwedition.com/my-pd-journey/ I will be continuing my tour throughout 2017, I don't have a detailed schedule, I like to keep things loose, but I will post here as it comes and if anybody is in any of the places I will be going and would like to meet up I would be happy to see you. I'm based in Toronto but will be in Austin, Texas from the 26th to the 31st of January and Vancouver from the 31st to the 7th of February. If you prefer you can send me an email at benjaminstecher@gmail.com More places and dates to come Hope to hear from you soon, Take care, Ben
  12. Don't try to forget it, that's impossible, accept it for what it is and move on to the next thing.
  13. Thanks Linda, appreciate the support. Papa57, nutrition is definitely an important piece of the puzzle, unfortunately it is incredibly complex and not entirely well understood. I don't think anyone can say anything definitive about exactly what you should or should not eat but I think the best rule of thumb is keep a balanced diet and whenever possible stay away from processed foods, eat plenty fresh vegetables and limit sugar intake. Dan, agree with everything you said, focusing on what you can do and not what limits you seems to be key to getting over just about any of the difficulties life may throw at you.
  14. https://tmrwedition.com/my-pd-journey/
  15. There are all sorts of voice to text apps and tools, Google assistant is a big help. Of course it doesn't help with everything, particularly when you have to take hand written notes or type, but it definitely helps with text messaging, emails, and basically anything you use your phone for.