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stump

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stump last won the day on November 28

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About stump

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  • Birthday 06/24/1977

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    Northern Puget Sound, WA

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  1. DBS Update

    Yay!!
  2. Rasagiline and other drugs

    The other idea is to call Teva and/or whoever is making generic versions. Often they'll have patient assistance programs to provide the meds at low or no cost to the patient based on income. That's how I'm able to afford Rytary (made by Impax) which would otherwise be $700/month.
  3. Just got the news 😕

    Welcome to the club. Not that you wanted to join. I was diagnosed at 38. I have 4 kids, a career, and at the time I was also half way through an MBA program (I did finish it, on time even). So I can fully empathize with where you are. That said, anger and stress are not going to help you. I've never taken any anti-depressants so I can't help you much there. If you need to talk PM me your phone number. Happy to tell you my story, listen to yours, and hopefully help you process things.
  4. Rasagiline and other drugs

    I probably had the worst reaction to Azilect of anyone active here. Started taking it shortly after I was diagnosed a couple years ago. Within a few weeks I was experiencing short term memory problems, agitation, and then hallucinations. Quit taking it once the hallucinations started. That said, most people seem to tolerate it very well. So I wouldn't avoid it necessarily because one person reported that reaction. But I would keep a close eye on it for similar issues.
  5. Parkinson's patient abusing opioids?

    PD meds do require a fairly strict schedule. Opioids are an "as needed" drug and other than pain increasing there's no downside to minor delays in administration. I don't take benzos but I thought those were once, maybe twice a day at most. If so she shouldn't be soooo worried about that coming on a strict schedule. I would suggest you call something like a nurse helpline and find out what your legal options are to get a handle on the medications. Without a medical power of attorney you can't force anything to happen. As someone above mentioned if there's a "favorite" sibling that your parents (or at least your dad) will actually listen to you might be able to get him to do something productive. At least figure out if she really is abusing the opioids.
  6. protein and absorption

    I had a bad reaction, but most have better experiences with the MAO-B Inhibitors. Have you tried any of them (e.g. Azilect)? They are supposed to prolong the time the dopamine stays in your brain. If you can tolerate them well that might give you the extra time between C/L doses to get the chance to eat normally.
  7. protein and absorption

    Unfortunately I think any of the controlled/extended release will be worse for you as they need as much or more separation.
  8. protein and absorption

    Can you maybe protein load earlier in the day and then eat something very low protein between 5 and 7?
  9. 23 year old female worried about PD

    If it makes you feel better you can see a neurologist and get a more definitive answer than we can, but from what you described you most likely do NOT have PD. Your symptoms, as described, are not consistent with PD. Those twitches you described are not tremors. I highly recommend you put PD out of your mind and go live your life. Take a vacation, find a way to de-stress, or something. Maybe reduce the course load for a semester or two.
  10. 23 year old female worried about PD

    Not really. Twitching and tremors are different things, and twitching is not a PD symptom at all.
  11. 23 year old female worried about PD

    Onset in early 20's is much less common than in the 30's and older. But not unheard of either. That said, you sound more like you need a vacation than an appointment with a neurologist. My best advice would be to find some better coping mechanisms for your stress and anxiety and to stay away from Dr Google.
  12. 23 year old female worried about PD

    Don't take this the wrong way. I really am just hoping to help you out. I saw a presentation given by an MDS in the Seattle area (not my doc, but one I considered until finding out she was out of network for my insurance) where she said that anytime she sees a young woman presenting with PD-like tremors she screens for psychogenic causes. Not that she thinks all young women with PD-like symptoms have psychiatric issues causing their symptoms as there clearly are young women with PD. But the cold hard truth is that A) PD is 2:1 in affecting men vs women, B.) young onset is already only 5% or so of PD cases, and C) 80+% of psychogenic tremors occur in young women. What she is trying to do by screening those women for psychogenic causes is to try to limit the risk that they are mis-diagnosed, and for that demographic the most common mis-diagnosis is to assume PD when it's really a psychogenic cause. PD meds are nothing to trifle with, so if you don't need them you are massively better off not taking them. So right there the odds that what you have is something other than PD is quite high. Add in that you admit to having health anxiety and I'd put $5 on your issues being anxiety or other mental health issues rather than PD. When I was going through the diagnosis process I hoped like heck it would turn out to be stress related, or some previously un-diagnosed psychiatric issue (and I had zero history of anything like that). Because the alternative to that was PD, or something even worse than PD (all the things less bad than PD had been ruled out by testing). If I'm right about your issues that would be really good news for you. Why? The good news if that is true is that your issues are curable. PD is a progressive, degenerative neurological disorder. There is no cure, no treatment that does anything more than mask symptoms, no hope beyond the vague predictions of researchers begging for more grant money that something more beneficial can be found. Now, all that being said, I'd consider a new primary care doctor if your description of their reaction to you is accurate. If they openly laugh at you that shows a lack of professionalism and a lack of compassion. They might ultimately be right, but by not seriously considering what you are telling them they are not doing their proper due diligence in determining what you real problem might be.
  13. Gluten?

    Nope. I will just point out that a gluten free diet is actually not a great choice unless you really need it (e.g. celiac disease). Unless you just cut the gluten rather than replace it anyway. Reason is that gluten free substitutes are higher carbs and higher glycemic index. Plus it's about 4x the cost. DW has Celiac's, so we've been in the middle of this for years.
  14. Biggest Unanswered Questions in PD

    This is the biggest one in my book, at least as far as PD research goes.
  15. The absolute best exercise program is one you like and will actually stick with. Great to hear you found one that meets that description for you, and one that is effective for your particular PD related issues! Always good to share things like that. Likely there are plenty of people who are going to find inspiration from that experience.
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