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stump last won the day on April 26

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About stump

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  • Birthday 06/24/1977

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  1. Here's my lemon poppy seed bread recipe. I usually double this, and for my loaf pans that makes 3 loaves. It's pretty scaleable, so feel free to go up or down as you need. 8 Tablespoons of Butter 1 cup sugar 2 eggs at room temperature the zest of 2 -3 large lemons 1.5 cups of GF flour (I prefer King Arthur gluten free baking flour, if you can't find it Pamela's Artisan Flour is good too) 1/4 teaspoon xanthum gum 1/4 teaspoon baking soda 1/4 teaspoon baking powder 1/2 teaspoon salt scant 1/2 cup buttermilk 1/2 to 3/4 teaspoon vanilla extract scant 1/4 cup orange juice or lemon juice (I sometime do half orange half lemon) 1/4 cup poppy seeds Glaze: Juice of a lemon (or more depending on how much glaze you want) powdered sugar Preheat oven to 350 degrees. Lightly grease and flour a loaf pan. Combine buttermilk, orange/lemon juice and vanilla in a small bowl and set aside. In another bowl, combine flour, salt, xanthum gum, baking powder, and baking soda. In your mixer cream sugar and butter (beat until fluffy). Beat in eggs - one at a time - and chase it with the lemon zest and then the poppy seeds. Alternate adding the wet and dry ingredient mixtures to the batter, starting and ending with the flour. Once you start adding the flour you need to be ready to go quickly. Gluten free is really sensitive to being over-mixed. Don't go so fast you splatter the mix everywhere, but the less time the mixer is running once you start adding the flour the better. I usually stop the mixer about half way through and scrape the bottom as with my mixer as I find there is a layer of butter/sugar that doesn't mix in well if I don't do that. And I do that again at the end too. Also you don't want to leave it sitting after mixing for very long so have the loaf pans greased and ready and the oven hot. Pour the batter into the pan and smooth the top. Bake for 45 - 60 minutes, or until a tooth pick comes out clean. Baking time will depend on how thick you make the loaf. First time I made this I doubled the recipe but only used 2 loaf pans instead of 3, and as a result of the extra thickness it took over 90 minutes to finish cooking. If you make them into muffins instead of loaves the baking time will probably be less. Remove from oven and let cool for five minutes, then turn the pan upside down (over a plate!!) and tap on the bottom until the cake slides out. Continue to let cool. Combine the lemon juice and powdered sugar, stirring it into a glaze, and top the cake as desired. I found it takes an astounding amount of powdered sugar relative to the lemon juice to get the glaze thick enough. I've never measured it, but I'd guess that if you had half a cup of lemon juice you'd need at least a full cup of powdered sugar. I just keep adding sugar until the glaze gets good and thick. It should still drizzle off your spoon, but slowly. I usually coat the bread with enough glaze that you only sort of see the bread through it, and I let it drip down the sides. You may find you like it with more, or less glaze. Let the glaze dry for a while before you wrap up the bread. How long? I dunno. I just go by when the glaze cracks if you flex it. The bread does freeze well, so I like to make at least a double batch and freeze whatever won't get eaten within 2-3 days.
  2. Will do. Just give a bit until I can use my laptop instead of my phone.
  3. Yeesh, that's tough. DW has Celiac, so I get the gluten issue. If he won't voluntarily avoid gluten you're going be at the mercy of the staff to monitor him and redirect anytime he heads for the snack bar.
  4. It should. The same basic exam is used for DBS screening, disability applications, and general monitoring of disease progression. Depending on the purpose they may skip some parts I did, or include some I skipped.
  5. Never heard of that. Though about 5 years before my PD symptoms started I did take a course of Cipro along with a short course of doxycycline and a couple shots of Rocephin. The latter two are different classes of antibiotics of course, and the Cipro was used when the others had failed. Though even the Cipro didn't work. Anyway tagging to see what, if anything comes up.
  6. There are some things I smell very well. Windex is one. But lots of things I just don't smell unless they're super strong. That list includes bleach, dirty diapers, and rotting food.
  7. Everything in life involves trade offs. Meds for PD are no exception. Ive been taking carbidopa/levodopa since my Dx 19 months ago. Only side effect since then was daytime sleepiness. So I switched from the regular instant release (often called Sinemet) to an extended release version (Rytary). Same medication, just different rate of release. I feel like I did 5 years ago as a result. However I know that the trade off is a high probability of dyskenisia (bad movements) at some point in the future. However, the latest research shows that you probably aren't saving yourself much if anything by delaying those meds. It is the total dose of levodopa that causes that side effect more so than duration of taking it. There are other meds you can try too. Primarily the dopamine agonists like Requip and Mirapex. However those have their own risks, including impulse control disorders, and sleep attacks (suddenly falling asleep when that is inappropriate like while at work or driving). Some on here choose to not medicate at first. For them exercise is a key part of fighting the disease, as it really should be even if you are taking meds. It will boil down to whether the symptoms are more bothersome for you than the risks of the side effects. But the meds are not something to fear, just something to consider with deliberation.
  8. So, back at the beginning of the month I went in for a baseline neuropsychological exam. Partly it was for baselining, partly because DW was getting worried about some memory issues she was starting to notice. Anyway, for those that haven't been through the exam I thought I'd detail my experience so you'll have some idea of what to expect. To begin with, the neuropsychologist I met with (Dr Jeff Shaw at the Booth Gardner Parkinson Center at Evergreen Health in Kirkland, WA) was a very nice guy that I found to be very easy to get along with. In contrast to a lot of psychology types (my sister is one) he came across as a pretty normal person and not some esoteric academic that thought his poop smelled sweeter than everyone else's. As an aside, with a master's degree I'm the least educated of my immediate family. Both parents and my sister have PhD's, so I've grown up around academics, and most have a horrible superiority complex. Anyway, Dr Shaw and I chatted for a bit, partly about my PD, partly about just me, partly about anything that might be an issue in the future if I were to apply for disability, or for DBS. Included in that was whether I'd talked to anyone professional about the likely mild PTSD I'd had after a car accident when I was a teenager. Once we got to the main part of the test he ran through a huge range of tests. Most of them were either timed or time limited. One was part of the military entrance evaluation where he timed me connecting the dots on a sheet that were numbered 1-26. Then I had to do the same except it was 1-A-2-B, etc. Then I got a complex drawing that I had to copy. Then I had to reproduce that drawing from memory. After a few other tests were run I had to try to reproduce that drawing from memory again. Among the other tests were things like repeating back strings of numbers (starting with 3 and increasing as I did well). Then repeating back the string of numbers backwards (again starting with 3 and increasing as I did well). Then repeating back the string of numbers except in order from smallest to largest. I was read a list of words and had to repeat back as many as I could remember. Then a different list. Then he'd rattle off words and I'd have to identify whether they were on only the first list or not. Then do things like name every word I could think of that began with a particular letter. Another test was there was a page with a bunch of colored dots. I had to state the colors in the order they appeared. Then a page where the names of the colors were spelled out, but the name of the color did not match the color of the ink used and you had to name the color of the ink, not what was spelled out. Then a page like the second page, but some of the colors had a box around them and those you gave the color that was spelled out, not the ink color. A friend of mine was telling me his 10 year old daughter had been going through some cognitive therapy and did that exact same test. There was a test where I had to look at 2 shapes and then a line of other shapes and mark the one that matched one of the 2 original shapes or mark that none matched. There was matching a code to various letters or numbers. Being told a fictitious person's name, address and phone number and having to repeat it back at various points throughout the exam. A story (about 4-5 sentences) you had to repeat back as exactly as possible, and got ambushed with that again later. There were some mental math exercises, and some tests similar to what they did for my Occupational Therapy baseline exam a year or so ago. Grip strength, manual dexterity tests, etc. He skipped most of the psychological profiling since I'm not applying for disability yet. He said with disability claims the insurance companies like to try to pin your problems on mental health issues if they can since those benefits are much more severely limited. There was more, but that gives a good idea of what all you go through. Even reading through all of this, I don't think it's something that you can really prepare for. You'd have be extremely familiar with not just what the test includes, but why each test is done to be able to effectively throw the results of the exam. Especially since some parts are designed to catch malingerers, and on a publicly searchable forum I'm not about to say which. I went back last week for my follow up to discuss the results. Bottom line was the doc didn't see anything that really alarmed him or made him think I was at risk of anything in particular. I scored in the 80th percentile or higher on most categories, except memory and word finding where I scored in the 40-60th percentile (so basically average). All of those were corrected for a male with 18 years of education (masters degree). FWIW, a 50th percentile woman would have a higher score than a 50th percentile man for memory at least. As far as what that noticeably lower score on memory indicates, he said it's really hard to say as I don't have a pre-PD exam to compare against. As he said, the memory could have always been like that, but I'm smart enough to be able to compensate in other areas. It's also possible that PD is starting to affect memory. But, like most with PD, it's more a matter of immediate recall. Once something is there it might take longer to retrieve it, but it is still there.
  9. Not to say it isn't good to hear about additional options, but this is really just a repackaging of a drug already on the market. In this case it's an extended release version of Amantadine. Mind you, I'm on Rytary which just an ER version of Sinamet, and that has been a big help for me compared to instant release. So this will no doubt help some folks out.
  10. Can't help on Medicare but look up My Rytary. It's the patient assistance program that Impax (pharm co that makes it) runs. They give away quite a bit. I'm using it right now. No idea what the income threshold is for a single person household, but call and talk to them. I have to run out to do some yard work, but if I find the number this evening I'll PM you with the info.
  11. I don't think I have facial masking, but it's hard to say. I did have another picture with a better smile on my end but it was too blurry.
  12. Yesterday I got a chance to meet Beau's Mom. I was heading to my wife's aunt and uncle's to stay the night so I was closer to Evergreen for a neuropsychological exam this morning. Got to visit with Dianne for about an hour. It was certainly nice to meet someone in real life from here. Edit to add: I'm on my phone, so I'll write more when I have a real keyboard to type with.
  13. I would highly recommend you post this in the "Ask the Doctor" forum. It sometimes takes several days for him to respond, and your question won't show up on there until he does, so if you've already done that just ignore my post.
  14. I've chosen generally to stay out of this thread due to the comments by Roger and pdmanaz and similar folks. Perhaps I shouldn't stay away, but I just have so many other things to do with my time. That said, Linda - Welcome back! Very sorry to hear about your cat. It's the somewhat downside to having pets that we usually long outlive them. But, I'd rather outlive my pet than the other way around as they are so dependent on us. I've had to put down a couple dogs and my cockatiel died of extreme old age. It never gets any easier.