Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


stump last won the day on February 19

stump had the most liked content!

Community Reputation

502 Excellent

About stump

  • Rank
    Advanced Member
  • Birthday 06/24/1977

Profile Information

  • Gender
  • Location
    Northern Puget Sound, WA

Recent Profile Visitors

1,312 profile views
  1. Summer adventure season starting

    I'm going to raise a batch of meat chickens partly because of that book. They're supposed to arrive Thursday next week as 2 day old chicks. Trip to freezer camp set for mid-June.
  2. levodopa long release

    Cool! More options for extended/controlled/long release meds is always a good thing.
  3. Young onset PD testing

    Agree with the above responses. I'll add that not responding to levodopa doesn't rule out PD. Some significant percentage (20% IIRC) of tremor dominant PD patients never do.
  4. Questions for next Neuro visit

    A few things, though asking Dr Okun is also a great idea. The eyelid thing is unlikely to be PD related, or at least that's what my MDS said about my eyelid fluttering. Postural rather than resting tremors needs maybe a bit more of an explanation but sounds like it is not typical for PD. The heart pounding and shaking after exertion sounds more like a cardio fitness issue (the shaking in this case could be what's called enhanced physiologic tremor - something everyone is subject to with over-exertion). As to how to ask questions, I'd start by presenting everything without regard to how important you think a given issue might be and without any worries that they might mean PD or any other neurological condition. Phrase any specific questions in ways that show you want the correct answer, not just any answer. E.g. "Why is this symptom more consistent with condition X than Y?" Hope that helps.
  5. Back on sinemet

    Yes, with Sinemet you need to avoid protein for 1 hour after taking the pills, or 1.5 hours before taking them. The protein will interfere with absorption in the small portion of the small intestine where the meds can be absorbed. I found something quite small like a cookie, cracker, or anything very low protein kept nausea in check.
  6. Loss of Smell?

    Nope. Though I'm thinking my sense of smell issues might be independent of PD. My dad has a similarly poor sense of smell but hasn't developed any PD symptoms. My oldest daughter (13) also has a poor sense of smell. Might just be a family thing unconnected to PD.
  7. Bright side I guess

    Well, Tuesday by the time I got home from work 3 people were sick. The youngest was on the mend but DW, and 2 of the other kids were sick. By bed time the last of the 4 kids started puking. Wednesday morning I did my weekly telecon with India from home. Boss called later and recommended I stay home. Just as well as by mid-morning I was sick too. Took today off too. Thankfully everyone is either back to normal, or rapidly approaching normal. That was one heck of a virus. At least it was a fast burning bug and not of those slow, lingering ones.
  8. Trying Sinemet

    Can't help on the agonists as I've actively avoided them. I'm too worried about some of their side effects, particularly sleep attacks.
  9. Trying Sinemet

    To begin with, you should have started out on half a pill 3x per day. Then over the course of 3-4 weeks worked up to a higher dose every 4-5 days or so until you got relief or reached some predetermined max (likely something around 12 pills total per day). With good communication with your doc in case there were bad side effects. It's quite possible you just never got to a sufficient dose, for you, to be therapeutic. Though, as mentioned, it's also possible you are one of the unlucky group that doesn't ever respond to Sinemet. If I were you I'd look at giving it another go, but with a slower, and longer ramp up. For some people it can take up to 2 weeks just to see any effect anyway.
  10. Bright side I guess

    I'm letting DW sleep. It's almost 3AM. Just finished cleaning up after my almost 5 year old daughter threw up for the 5th time tonight since going to bed. I guess that's one bright side to PD effects like insomnia and a poor sense of smell. Poor kid. Just hope she feels better tomorrow.
  11. Trying Sinemet

    Can't speak for PatriotM, but in my case (I'm also tremor dominant) the effect was nearly instantaneous. However, I've read that there is some percentage (I want to say around 20%, but that might be way off) of tremor dominant PD patients that never respond to Sinemet. That said, some folks only see relief after titrating to a fairly high dose. What doses have you tried, and how long did you take to work up to them?
  12. Neil Diamond joins our little party

    ^^^ Yeah, that.
  13. dyskinesia free l-dopa

    It would appear that the spamming posts, at least in this thread, have been removed. Thank you, moderators!
  14. IMHO, preventing members of a group potentially more vulnerable than the general population from being taken by a snake oil salesmen is doing good for the world. You keep saying your papers are peer reviewed. I have neither the time nor inclination to go to your site and figure out where you were published or who has been on the peer review committee for those publications. But my guess is that the peer reviewers are not entirely disinterested third parties. Please, prove my hunch wrong, and I will delete this post. I will also just point out that the article in The Lancet that set off the hysteria over vaccines causing autism was peer reviewed and yet was a complete and utter fraud. Lancet very publicaly retracted the article a few years later. The "doctor" that published that paper lost his medical license over it, and I'm not positive but I think he even did jail time for the fraud. Even if he didn't go to prison he has still been expelled from the medical community.
  15. dyskinesia free l-dopa

    QFT. Thanks for saying that. I sent a similar opinion privately to the moderators.