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stump

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Everything posted by stump

  1. stump

    Working with Parkinson's?

    PD is usually pretty slow to develop. I'd say you should keep working just as you have been as long as you can or until you would have retired anyway. Most likely you'll be fine to keep working until 65 if not older.
  2. stump

    Lymes Disease Mimics PD Symptoms

    Lyme is devilishly hard to accurately diagnose. I think there's only one or two labs with a reputation of getting it right. If you can get that test done it might give you peace of mind. That said, not everyone responds well to any given PD medication. Being on my phone I can't see if your signature block lists meds, but if you can post what meds you have tried, including dose and frequency that might help. Including non-PD meds helps too.
  3. stump

    Anniversary

    Remember that PD is supposed to be diagnosed based on bradykinesia plus one or more of resting tremors, rigidity, and postural instability. If he's seeing bradykinesia plus rigidity in your leg (and/or other extremities), even though you are walking seemingly correctly that would be enough. What is APS?
  4. stump

    Early DBS Study

    ShopGuy - there's also the consideration of advancing technology in DBS. My last appointment my MDS said that even if I were getting close to her recommending DBS she would want me to wait as she saw a LOT of advances coming in the next few years. While some of that is in the controller, which can be replaced with the battery after several years, some is also going to be in the electrodes themselves. Hard to get an upgrade there. Basically her advice was that unless it was now or never to wait.
  5. stump

    Early DBS Study

    Cool info! Though I'm still not sure I'd be up for participating in that study (almost at 3 years diagnosed so I'd qualify in that regard). I'd not be able to conceal PD from my employer anymore if I do, plus I'm not sure I'd want to be subject to those risks yet. Though, if I was able to go med free it would be nice to not worry about timing of protein consumption...
  6. stump

    Who's on your healthcare team?

    Not really. More my choice, combines with knowing there's not really any great data on any particular diet or exercise being better for PD, so I just follow general health guidelines. By the time I'm mid-50's to early 60's I'll need to get hooked up with a cardiologist. Both grandfathers died of heart attacks in the morning doing yard work/gardening (one at 69 one at 74), one grandmother had a massive stroke at 70 followed by a heart attack (she somehow lived to 80). Plus my dad and one of his sisters had to get multiple stents at 69-70. My dad's other sister had a major stroke in her 40's, though that was due to a blood clot that formed after a serious accident.
  7. stump

    Who's on your healthcare team?

    My MDS wants me to come in 3x per year. Between the drive and the cost (deductible on my insurance) I'm not going more than twice a year, unless something comes up that compels an extra visit. Other than that, to SDC's question, I have a family doc that I rarely see for myself (kids go in each year though). Chiropractor that's unfortunately just as far away as my MDS, so I can't get in nearly as often as I otherwise would (did go just a couple days ago as I'd apparently sprained my neck playing golf for the first time in almost a decade). I don't have a PT, or a nutritionist. There is a neuropsychiatrist that is part of my MDS's group, but thus far I've seen him once, and that was just for a baseline evaluation. Similar to the PT, ST and OT groups. I'll only see those folks for an acute need if one comes up, or perhaps every 5 years to document progression.
  8. So, one of my bucket list items is catching and landing a 100+lbs halibut from my kayak. Last several years I've been frustrated by such things as new babies and grad school keeping me from having the time during Washington State's absurdly short halibut season to get out and fish for them. We typically get around 3-4 days a year to chase halibut. I was all set to head out to Neah Bay right up until yesterday when the forecast (which hasn't changed since then) was calling for 5-8ft surf and 7-8ft swells. Being in a kayak, for where I intended to fish, it's a beach launch through the surf zone to get out to the fishing grounds. Even if I was willing to brave 7-8ft swells (and that's beyond my comfort zone) that surf height would almost guarantee I'd get flipped on the way back in. I've never gotten hurt doing that (yet at least), but I have broken equipment. So that's a no-go. Grrr. Just have to hope those conditions keep enough power boats in port to leave enough catch quota remaining for them open it up again next week. Meantime, since I can't go to the coast I'm going to go to my church's annual men's retreat. It will be a great chance to spend quality time with my best friend and many other good men from the church. Bonus that it's on the south end of Whidbey Island, and there's a couple bays just 15 minutes from the retreat location that are supposed to be good for halibut fishing. So, I'm bringing the kayak and fishing gear, and early in the morning on Saturday (halibut is open Thursday and Saturday this week) I'll head out there for a couple/three hours and see if I can luck into one. If not I may try again Saturday evening if time permits. I'll also try fishing for ling cod on Friday after work on my way to the retreat, and possibly on Sunday after the retreat wraps up. Might as well have a go. Never know if I'll get to fish halibut next week until Tuesday or Wednesday anyway. Other trips planned for the summer include a bunch of crabbing from the kayaks with my family, and once the salmon are in I'll try to get out a few times a week before or after work for a couple hours each time. Plus there's the Oregon Rockfish Classic (kayak fishing tournament) I've gone to the last several years that will be July 15 this year. Later in the summer I'll head up to scout a new area for deer hunting, and since there's a decent chance for a bear I'll bring my rifle and bear tag along. That spot will involve 14 miles of paddling my kayak plus a 1.5 mile portage in the middle of the paddle, and a 3 mile hike with 4000ft of elevation gain (each way). Hopefully I'll get to take each of the 2 older kids camping and trout fishing at some point this summer too. Then there is deer hunting in mid-October, and elk hunting in early November. I'll try to update this thread throughout the summer with pictures and stories. Hope I can be of some inspiration to other PWP's out there, and if not, I hope you all at least enjoy the reports.
  9. stump

    Summer adventure season starting

    Another hurricane heading our way. Lane is currently a category 4. Luckily I should be able to get home before it hits. Assuming nothing causes major problems with the flights. Though I'll get to come home to seriously smokey conditions due to the western wildfires.
  10. stump

    Struggling with family relationships

    While Patriot is correct that might not be the most useful way of stating that. Consider switching to Rytary if you either have insurance coverage for it or meet the income guideline to get it free from Impax (300% of federal poverty level for your family size). I found my day time sleepiness was significantly reduced when I made the switch.
  11. stump

    Summer adventure season starting

    No fish today. Got massive take down on my rod, but it was probably a giant trevally. Took the bait hard, but by the time I got the rod out of the holder it probably ran into a rock or coral hole and that cut the line. Surf launch was the hardest I've ever done. Took several tries and many soakings to get through the surf zone. Once past the breakers though it was fine. Almost kept the kayak right side up on the landing until the extra wave broke with me a little sideways. Will post a picture in a bit.
  12. stump

    Summer adventure season starting

    Hector is about 400-500 miles south of Kauai and going nearly due west last I saw. It's impacting swells here, but other than maybe some extra rain the hurricane is a non-event.
  13. stump

    Summer adventure season starting

    Fishing Sunday, weather permitting. Checked the swell forecast and, to me at least it looks good to go. Winds are a little iffy. We shall see what the local guy says tomorrow.
  14. stump

    levodopa challenge

    Everyone is different in how they react. Some (tremor dominant) PWP never get benefit from levodopa. Others only get benefit once they reach a relatively high dose. Some, like me, got immediate relief even from low doses. So, give it time. If you are getting some benefit now you should get more benefit as you ramp up to full tablets if it is PD and not a placebo effect.
  15. stump

    Summer adventure season starting

    Hawaii bound! Sitting in SFO waiting for our (delayed) flight. TSA in Seattle was fine at least. With 4 kids they were reasonably accommodating.
  16. This article states that the man in question had PD, and due to that was at greater risk of that infection. I'm unaware of anything about PD per se that makes us more vulnerable to infectious disease. I'm also unaware of any of the more common PD meds compromising the immune system. Am I missing something, or is that article full of bull with respect to PD? Of course, I sure hope that man recovers quickly and without permanent damage to his limbs. http://www.foxnews.com/health/2018/07/10/nj-dad-may-lose-all-4-limbs-after-contracting-bacterial-infection-while-crabbing.amp.html
  17. stump

    Dizzy

    Been dealing with that too. Thus far upping hydration has been enough. While that might help for you sounds like it may not be enough. Even if it doesn't do much for the OH it will help in other ways.
  18. stump

    Summer adventure season starting

    We'll be on Kauai. I'm sure we'll be doing a lot of hikes. Not to mention beach time. Hopefully I'll be able to post some good pictures.
  19. stump

    Summer adventure season starting

    I've been to New Zealand 3 times, including my year as an exchange student. Otherwise, besides a weekend in Toronto when I was maybe 5-6, and a couple trips to Mexican border towns, I haven't been outside the country. This will be my first time ever to Europe, and India of course. I also get my first ever trip to Hawaii in just a few weeks. Really hoping to hook into a BIG yellow fin tuna (ahi) from a kayak. August is when the 100-200lb ahi show up over there. That alone would make that trip for me.
  20. stump

    Summer adventure season starting

    Well, Roald Amumdsen said "adventure is just bad planning." 😉 Anyway looks like India the last week of September and Netherlands/Belgium early October is a go. Going to meet a college buddy that lives near Munich now, and hopefully a guy I was friends with when we were both exchange students in New Zealand 24 years ago (he lives in Sweden now). They'll both meet me in Amsterdam for a weekend.
  21. stump

    Term Life Insurance -- Premiums?

    Call Zander Insurance. They're a company that shops you to insurance companies for the best rate. They are the company recommended by Dave Ramsey. I haven't bought a policy since my Dx, but I think we asked them since then and they said for a young otherwise healthy person with PD the premiums were not "super preferred" but only about 1 step down, so comparable to someone with slightly high blood pressure, or slightly out of whack HDL vs LDL or something like that.
  22. stump

    PD and immune system response

    Do you know what the blood test usually costs? With my high deductible, even if it is "covered", I'm likely to be out of pocket for a test like that. And I'm not exactly flush with cash.
  23. stump

    PD and immune system response

    Interesting. I am usually the least likely between my wife and kids and I to get sick. Though given DaveN's response I wonder if I should ask to get tested for IgX levels.
  24. stump

    Dropping Things

    Until I started on the meds I dropped things quite a bit. With meds that is significantly reduced, though not eliminated. I think it is directly related to the bradykinesia. You feel something starting to slip and the fingers just won't react fast enough to the command to grip tighter so the object just falls from the hand.
  25. stump

    Summer adventure season starting

    India trip has been moved up to the last week of September. Should be 4 days working in Pune, plus a day trip to Bangalore for other work related meetings. Hoping my DW can come out for a week after the work part is done. If so we will likely go to New Delhi and Agra (Taj Mahal), plus one of the tea regions. Either before or after the India portion looks like I'll also stop over to spend a few days at the European division which has offices in the Netherlands and Belgium. Applied for my passport yesterday. Been over 8 years since it expired, so high time to replace it. I've tossed my hat in the ring for a job at our India location. Low odds I'd get it, but it would be the step up I have trying to get for a long time. It would be a 3 year stint if I get it. I'd get enough trips back here that I can probably just keep my current MDS for most things. But even if not, that's problem #32. Problem #1 is getting the position to start with.
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