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swamper

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swamper last won the day on November 26 2016

swamper had the most liked content!

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About swamper

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    Advanced Member
  • Birthday 09/12/1946

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    Female
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    Georgia

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    adriennebutler@yahoo.com

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  1. Dear miracle seeker: first of all, you are too hard on yourself! You were not the cause of your mother's teeth falling out---you provided her relief from her dyskinesia symptoms, which I am sure she needed badly. How were you to know that she needed to brush after the almonds? I have similar mouth chewing issues as a form of dyskinesia, and have struggled to find relief. I have tried all sorts of things and have come to the conclusion that this is the price I must pay for control of my PD symptoms. Fwiw I admire your dedication to your mothers care. She is blessed indeed to have you!
  2. My dyskinesia is weird. I chew the inside of my mouth, and sometimes chew it until it is raw. It happens some days after my second dose of Rytary, and on those days, it will go on from mid afternoon until bedtime. Interestingly, I do not have the problem at night, even after my bedtime dose of Rytary. I am only four years into treatment for this disease, so am not sure if dyskinesia will progress to more typical symptoms.
  3. Exercise! Rock steady boxing! Bicycling! Keep moving! Keep involved with support groups, in person and on-line! I am not so sure about meds, but I am convinced that exercise is critical. Best of luck to you!
  4. I have had depression (familial) for nearly all my life. I took Prozac when it first came out, and was on that (40mg),sertraline and trazodone for more than 20 years.Only got off the Prozac about three years ago, when my MDS wanted to start Azilect, and was unwilling to do so with me on Prozac. I weaned off it, got on sertraline (150 mg) and trazodone, 50 mg for sleep, and have felt good ever since. I often wonder if all the fooling around with my serotonin somehow helped bring on the PD, but i feel better than I have in a long time since the med change. FWIW I would not hesitate to take sertraline, and trazodone is great for sleep. Best of luck!
  5. Thanks for posting this, LAD. Amazing work!
  6. Thanks so much for sharing this, NN. You have helped me immensely through all your posts, but this one is striking in its courage and candor. I wish you all the best--- and that none of these plans are needed, and that you will both end up with "plain old PD". In the meantime, you have given me a great deal to think about, and a road map for a future I hope never happens to any of us. You and your dh are in my thoughts and prayers.
  7. Thanks for clarifying that, nn and patriot. I stand corrected. Swamper
  8. Dear Luke: Look up posts from "Newnormal" on this board. She and her husband both have PD with negative DAT scans.
  9. Done, John. Thanks for the reminder!
  10. I have been on the patch for about a year. Started very slowly, and only recently went to the 4 mg dose. I think it has helped smooth out my on times. It certainly helped me to sleep better--I routinely get a good 6 hours of sleep a night. I have mild nausea, which I manage with omeprazole twice a day. The itching is a nuisance, but not severe enough to stop the treatment. All in all, I am happy with Neupro. Hope this helps.
  11. Thanks to the new site, I am finally able to get my unread material. Thanks to you all for making it better!
  12. I read something this morning that has given me pause, and I thought it might interest people on this thread. (Including you, Linda. I hope, as do so many others, that this is a technical problem only) This is a quote from Leonardo Boff, which was put forth on "Inward/outward" this morning: "Falling Down Falling is not just a physical accident. Falling means recognizing freely and sincerely the limits of our strength in the face of situations that are beyond us and force us to submit. Falling shows our human frailty. It reveals the fragile clay of which we are made, showing us that we are neither omnipotent nor invulnerable. Confronted with such a fall, we may nurture a spirit of revolt...Or we may nurture a spirit of resignation...There is a third possibility, however: We can nurture the spirit of humility. While calmly accepting our fall, we may still trust in God, whose strength comes to reinvigorate our weakness, and get up again with renewed courage." I have thought about this all day. I hope I can have a spirit of humility the next time I fall with my PD.
  13. Dear johnnys: I want to add my thanks too. As I learn about PD it is easy to become overwhelmed and confused, and it is not often I hear someone professional who speaks so plainly and understandably. My next door neighbor has symptoms which I believe represent LBD, and it is indeed a frightening thing to contemplate, knowing we are all on the spectrum at some point. For those of you who are dealing with this problem, you have my admiration (Billrnc) and prayers (Genden69) May the Lord keep us all safe and protect us and our loved ones on this journey.
  14. A couple of thoughts, Bill. First, one week is a very short time to evaluate the dose of C/L. I would probably go at least another week or two before increasing it. Also, if you do decide to increase, I wonder about increasing by 1/2 pill, rather than to double the dose right away. I would worry about nausea and dyskinesia. Good luck, whatever you decide. Adrienne
  15. Dear nn: I will pray that you are wrong, and that we will hear that you have garden variety PD. (Such a thing to hope for!) But feel free, at any time, to vent or worry or fret or rejoice here. We get it. We really do, and you are a most valuable member of this bizarre club. Best wishes, Adrienne