• Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


swamper last won the day on November 26 2016

swamper had the most liked content!

Community Reputation

57 Excellent

About swamper

  • Rank
    Advanced Member
  • Birthday 09/12/1946

Profile Information

  • Gender
  • Location

Contact Methods

  • Yahoo

Recent Profile Visitors

273 profile views
  1. Dear Genden: I am so sorry for your pain. When my dear sister-in-law was terminal with breast cancer, she was given morphine whenever she seemed uncomfortable. It was more for us, watching her, I believe, than it was for her. I saw the same thing happen with my mother, when she died. Although it is true that morphine can depress respiration, used carefully it is a wonderful drug for relief of pain and anxiety. In my experience, once the person stops eating, there is about two weeks left and I suspect you are nearly at the end of your dh's pain and suffering. But yours will continue; You are in my thoughts and prayers. Adrienne
  2. Bless you, dear Maral! You are doing something wonderful for your DH and for the others at the center. I am grateful for your honesty and enthusiasm,. and wish you all the best. It is so good to hear of a happy result, after a very difficult decision.
  3. I have been given a real gift with prism lenses! I had been having increasing difficulty with reading and using the computer at night, which I finally figured out was due to double vision when I was fatigued. Went to my husband's ophthalmologist, who referred me to his wife, who is an orthoptist. She mostly deals with children with strabismus. But she diagnosed me and they fitted me with reading glasses with prisms built in, and now I can see and read, and life is so much better. They don't look any different from anyone else's reading glasses, and have helped me tremendously. Just thought I would post on the chance that somebody might use the information.. This has REALLY worked for me!
  4. Once again, you inspire me, NN. You go girl!!!
  5. Congratulations, Secret squirrel, on starting this great adventure! My dh and I did it, about 15 years ago, and have loved having our own home, designed with our needs in mind. A couple of things we have learned over the years since my diagnosis. First, have as few steps going into the house as possible. And even if that is two or three, put up railings so you can get into the house. Also, have grab rails in the toilet area, and be sure to have the higher toilet seats. I regret that I did not test out the height of the dishwasher, as the open door is so low I cannot easily load it. And likewise, the cabinets are low and storage of pots and pans is a problem. Of course, something has to be down low, so I am not sure how much modification one could make! I am sure there will be people with more suggestions here soon, but I would certainly look long and hard at websites and consultants about accessibility. It is so much easier to do these things ahead of time, than to have to do them after the building is complete. Best of luck to you. As I say, building a house is a great adventure, not for the faint-hearted....
  6. I have discovered Coobies, which are bras that you put on over your head . They are extremely comfortable, and only cost about $20, but I am 70 and small breasted, so they might not be comfortable for someone who is better endowed. But they come in all kinds of colors and patterns, and are fun to wear and to look at. Another win/win for this old Parkie!
  7. Linda: I follow this thread, and wonder about Shepherd's Spring Conference Center near Sharpsburg? DH and I stayed there last June for a Road Scholar trip.. It was lovely.
  8. I could have written your post, Peace, except my problem is my right hand. Odd, because my PD started on my left side, and I am predominantly left-handed. The shampoo thing drives me crazy, as does the clothes folding thing. I hate to see socks that need to be folded! ( I think I am being punished for my obsessive-compulsive tendencies) At any rate, it is always good to feel validated, as I often think I am imagining these little irritations. Thanks for that!
  9. Dear miracle seeker: first of all, you are too hard on yourself! You were not the cause of your mother's teeth falling out---you provided her relief from her dyskinesia symptoms, which I am sure she needed badly. How were you to know that she needed to brush after the almonds? I have similar mouth chewing issues as a form of dyskinesia, and have struggled to find relief. I have tried all sorts of things and have come to the conclusion that this is the price I must pay for control of my PD symptoms. Fwiw I admire your dedication to your mothers care. She is blessed indeed to have you!
  10. My dyskinesia is weird. I chew the inside of my mouth, and sometimes chew it until it is raw. It happens some days after my second dose of Rytary, and on those days, it will go on from mid afternoon until bedtime. Interestingly, I do not have the problem at night, even after my bedtime dose of Rytary. I am only four years into treatment for this disease, so am not sure if dyskinesia will progress to more typical symptoms.
  11. Exercise! Rock steady boxing! Bicycling! Keep moving! Keep involved with support groups, in person and on-line! I am not so sure about meds, but I am convinced that exercise is critical. Best of luck to you!
  12. I have had depression (familial) for nearly all my life. I took Prozac when it first came out, and was on that (40mg),sertraline and trazodone for more than 20 years.Only got off the Prozac about three years ago, when my MDS wanted to start Azilect, and was unwilling to do so with me on Prozac. I weaned off it, got on sertraline (150 mg) and trazodone, 50 mg for sleep, and have felt good ever since. I often wonder if all the fooling around with my serotonin somehow helped bring on the PD, but i feel better than I have in a long time since the med change. FWIW I would not hesitate to take sertraline, and trazodone is great for sleep. Best of luck!
  13. Thanks for posting this, LAD. Amazing work!
  14. Thanks so much for sharing this, NN. You have helped me immensely through all your posts, but this one is striking in its courage and candor. I wish you all the best--- and that none of these plans are needed, and that you will both end up with "plain old PD". In the meantime, you have given me a great deal to think about, and a road map for a future I hope never happens to any of us. You and your dh are in my thoughts and prayers.
  15. Thanks for clarifying that, nn and patriot. I stand corrected. Swamper