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swamper last won the day on August 12

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About swamper

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  • Birthday 09/12/1946

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  1. Weight Loss

    I have lost 25 pounds since diagnosis, four years ago. My MDS thought it might be due to Azilect, so he had me stop that in January, and my weight has stabilized. My BMI is 18.4, and does not seem to budge, despite taking in 2000 calories daily. I figure I am destined to be skinny, and am happy that it is stable at this point,. I do not have any experience with DBS, although I have read that people often gain weight after the surgery.
  2. Not Diagnosed, However Need Advise

    I am not the best person to advise about sleep. I am retired, and so do not have to function very well during the daytime. That said, I take 50 mg trazodone at bedtime (have for years), and I go to sleep promptly most nights, at about midnight. I wake most mornings about 6 am, and that is it for the day. I rarely take a nap, which saddens me, as before PD that was one of my greatest -pleasures. But such is life, and I figure I am doing as well as can be expected, with just six hour of sleep. If I take the trazodone any earlier than 11 pm, I am up at 4 or 5, so the six hours seems to be all that I need. Retirement is a blessing!
  3. Not Diagnosed, However Need Advise

    Yes, my tremor increases with exercise, and also the muscle stiffness is difficult. I have always been very active, and find the limitations on my activity very frustrating, but I am convinced that I would be in much worse shape if I did not do my Rock Steady boxing or my gym workouts. And my mental health would be a whole lot worse as well. So keep fighting!
  4. Not Diagnosed, However Need Advise

    Dear Doubleup: Exercise! Even if you don't feel like it, or especially if you don't feel like it, exercise! That is the one thing that has been shown to slow progression of PD, and it is good for whatever ails you. Cycling, boxing, have been shown to work. But whatever you do, be sure to stick to it, and do it faithfully. My best advice to you is that. Good luck! And keep fighting!
  5. Atlanta Area MDS & Neurologist Recommendations

    I know you are very far away, Patrick, but those of us in South Georgia travel to Jacksonville Florida for care. I would heartily recommend my MDS there. If you have any interest in more info, PM me, and I will be glad to provide it. Best of luck!
  6. bra strapes

    I have found Coobie bras are wonderful, and comfortable. They go on over your head, and have pads in the front for modesty, and come in all sorts of colors and styles. I am small breasted, so am not sure how it would be on a fuller figured girl, but I really love my Coobies!
  7. This is a good summary that is understandable. https://scienceofparkinsons.com/2017/08/04/exenatide-one-step-closer-to-joblessness/ And this is a word of caution. https://scienceofparkinsons.com/2017/08/08/exenatide-an-editorial/
  8. Morphine in hospice care

    Dear Genden: I am so sorry for your pain. When my dear sister-in-law was terminal with breast cancer, she was given morphine whenever she seemed uncomfortable. It was more for us, watching her, I believe, than it was for her. I saw the same thing happen with my mother, when she died. Although it is true that morphine can depress respiration, used carefully it is a wonderful drug for relief of pain and anxiety. In my experience, once the person stops eating, there is about two weeks left and I suspect you are nearly at the end of your dh's pain and suffering. But yours will continue; You are in my thoughts and prayers. Adrienne
  9. It is Seven Months Today

    Bless you, dear Maral! You are doing something wonderful for your DH and for the others at the center. I am grateful for your honesty and enthusiasm,. and wish you all the best. It is so good to hear of a happy result, after a very difficult decision.
  10. This works for me...what works for you?

    I have been given a real gift with prism lenses! I had been having increasing difficulty with reading and using the computer at night, which I finally figured out was due to double vision when I was fatigued. Went to my husband's ophthalmologist, who referred me to his wife, who is an orthoptist. She mostly deals with children with strabismus. But she diagnosed me and they fitted me with reading glasses with prisms built in, and now I can see and read, and life is so much better. They don't look any different from anyone else's reading glasses, and have helped me tremendously. Just thought I would post on the chance that somebody might use the information.. This has REALLY worked for me!
  11. Bucket list BEGINS!

    Once again, you inspire me, NN. You go girl!!!
  12. Building a new home & looking for suggestions

    Congratulations, Secret squirrel, on starting this great adventure! My dh and I did it, about 15 years ago, and have loved having our own home, designed with our needs in mind. A couple of things we have learned over the years since my diagnosis. First, have as few steps going into the house as possible. And even if that is two or three, put up railings so you can get into the house. Also, have grab rails in the toilet area, and be sure to have the higher toilet seats. I regret that I did not test out the height of the dishwasher, as the open door is so low I cannot easily load it. And likewise, the cabinets are low and storage of pots and pans is a problem. Of course, something has to be down low, so I am not sure how much modification one could make! I am sure there will be people with more suggestions here soon, but I would certainly look long and hard at websites and consultants about accessibility. It is so much easier to do these things ahead of time, than to have to do them after the building is complete. Best of luck to you. As I say, building a house is a great adventure, not for the faint-hearted....
  13. This works for me...what works for you?

    I have discovered Coobies, which are bras that you put on over your head . They are extremely comfortable, and only cost about $20, but I am 70 and small breasted, so they might not be comfortable for someone who is better endowed. But they come in all kinds of colors and patterns, and are fun to wear and to look at. Another win/win for this old Parkie!
  14. Good morning!!

    Linda: I follow this thread, and wonder about Shepherd's Spring Conference Center near Sharpsburg? DH and I stayed there last June for a Road Scholar trip.. It was lovely.
  15. Help With Question

    I could have written your post, Peace, except my problem is my right hand. Odd, because my PD started on my left side, and I am predominantly left-handed. The shampoo thing drives me crazy, as does the clothes folding thing. I hate to see socks that need to be folded! ( I think I am being punished for my obsessive-compulsive tendencies) At any rate, it is always good to feel validated, as I often think I am imagining these little irritations. Thanks for that!