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swamper last won the day on August 12 2017

swamper had the most liked content!

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About swamper

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  • Birthday 09/12/1946

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  1. Akathesia, is this present in your off?

    This was a real "aha" moment for me. I have had trouble with my right leg wanting to be elevated when I am standing still for a couple of years It is worse now and noticeable to others. I will be standing still, usually in the evening, and have to flex my hip and elevate my right leg. I am finding it happens more and more during the day now, and no longer find it a wearing off phenomenon. My MDS initially thought it might be a form of dyskinesia, but I now think it is akathisia, and will bring it up with him at my next visit in May. There is no pain associated with this but I cannot seem to control what my leg is doing. I also have found that in the evenings I have trouble keeping my right leg still when sitting, and keep crossing and uncrossing my legs. In my case, I believe it is a part of progression of the PD, as I have noticed it increasing over a period of time when my Rytary dose has been steady. As always, you have helped me sort out something that has been puzzling for a while. Thanks, everyone!
  2. Good morning!!

    What a big week it has been for birthdays in the PD world. A couple of regulars on Patients Like Me have just celebrated 60 as well. Y'all are young whippersnappers! Happy happy birthday, JB from the swamp!
  3. Washington Post article on marathon runner with PD

    Thanks for posting this, Super.. I have sent the link to our support group members.
  4. Parkinson's Disease & Dementia

    @maral77 Please accept my sincere condolences also. You were indeed a wonderful helpmate for your dh, and I am sure he knew that. You will be in my thoughts and prayers. Thanks for all of your help on this site.
  5. Neupro patch

    I have been on Neupro for about a year. Started very slowly, and now am on 6 mg, and I find that the nausea has mostly gone away. I have itching where the patch was for a day or two, but that is manageable. It has smoothed out my med doses (Rytary four times a day), and has helped me get a solid six hours of sleep. I have noticed some mild leg swelling at night, but also have put on a couple of pounds, which I needed to do. All in all, it has been a good thing for me. I wish you luck with it. r
  6. Early PD and vigorous exercise

    I pay $70 per month, or $15 per session, at the program in Amelia Island, Florida. The program we are starting in Blackshear GA will be free in the beginning, except for the cost of the gym membership. But our coaches are all volunteers. My understanding is it varies depending on the location as well as the set up.
  7. Welcome to the club

    Superdecooper: Now you are an ideal candidate for vigorous exercise! Start boxing, or biking! We look forward to seeing you not progress!
  8. Good morning!!

    jb49: I have lurked and lurked on this thread for way too long--but now my cover is blown! The Swamper comes from my geographic location, in the Okefenokee Swamp. I never heard of the term being used as you mentioned--I wonder if it is a Canadian thing? At any rate, now I must let everybody know that I am lurking. If I could only type a little better (darn PD!) I would offer many more comments.
  9. Good morning!!

    Peace, for you and the family, Diane. You are in my thoughts and prayers.
  10. Weight Loss

    I have lost 25 pounds since diagnosis, four years ago. My MDS thought it might be due to Azilect, so he had me stop that in January, and my weight has stabilized. My BMI is 18.4, and does not seem to budge, despite taking in 2000 calories daily. I figure I am destined to be skinny, and am happy that it is stable at this point,. I do not have any experience with DBS, although I have read that people often gain weight after the surgery.
  11. Not Diagnosed, However Need Advise

    I am not the best person to advise about sleep. I am retired, and so do not have to function very well during the daytime. That said, I take 50 mg trazodone at bedtime (have for years), and I go to sleep promptly most nights, at about midnight. I wake most mornings about 6 am, and that is it for the day. I rarely take a nap, which saddens me, as before PD that was one of my greatest -pleasures. But such is life, and I figure I am doing as well as can be expected, with just six hour of sleep. If I take the trazodone any earlier than 11 pm, I am up at 4 or 5, so the six hours seems to be all that I need. Retirement is a blessing!
  12. Not Diagnosed, However Need Advise

    Yes, my tremor increases with exercise, and also the muscle stiffness is difficult. I have always been very active, and find the limitations on my activity very frustrating, but I am convinced that I would be in much worse shape if I did not do my Rock Steady boxing or my gym workouts. And my mental health would be a whole lot worse as well. So keep fighting!
  13. Not Diagnosed, However Need Advise

    Dear Doubleup: Exercise! Even if you don't feel like it, or especially if you don't feel like it, exercise! That is the one thing that has been shown to slow progression of PD, and it is good for whatever ails you. Cycling, boxing, have been shown to work. But whatever you do, be sure to stick to it, and do it faithfully. My best advice to you is that. Good luck! And keep fighting!
  14. I know you are very far away, Patrick, but those of us in South Georgia travel to Jacksonville Florida for care. I would heartily recommend my MDS there. If you have any interest in more info, PM me, and I will be glad to provide it. Best of luck!
  15. bra strapes

    I have found Coobie bras are wonderful, and comfortable. They go on over your head, and have pads in the front for modesty, and come in all sorts of colors and styles. I am small breasted, so am not sure how it would be on a fuller figured girl, but I really love my Coobies!