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kaypeeoh last won the day on March 5

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About kaypeeoh

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  1. sleep aid with primidone

    Is Essential Tremor synonymous with Resting Tremor? BTW, I was on desyrel ten years ago; It made me affable, even jocular, but also so sleepy I couldn't drive or work.
  2. DAT

    Does this website allow files or photos to be posted with the topic? I can't see any sign for that.
  3. Dr Dioge

    I'm reading The Brain's Way of Healing by Dioge, MD. Kinda 'new age' but interesting so far.
  4. So it's PD not APS?

    So it's not APS?? Latest bloodwork shows negative cardiolipin IgG and IgM, beta-2 glycoprotien IgG and IgM nearly nil. But thrombin time 101.9 seconds while the norm is 19.5 seconds. The neuro already thinks it's not APS, instead thinks it might be Parkinson's Disease. Today I go from 1/2 tablet three times daily to a whole tablet Sinimet. http://DSC03060
  5. Back on sinemet

    He started me at 1/2 pill with the idea of raising it to one pill three times daily after a week or two. So far no increase in nausea but I haven't gone up to one pill. kevin
  6. DAT

    I wondered why the neuro went straight to sinemet rather than even mentioning the test. Thanks, kevin
  7. DAT

    Could someone explain the DATSCan?

    An elliptical forces you to use your hands for balance as your feet are planted on the pedals.
  9. Just Interesting Things about This and That

    One of my interests is raptors, eagles, owls etc. I'm a veterinarian. An elderly man died leaving two Macaws in a cage. The animal control office brought them here to be euthanized. I dawdled while trying to find other solutions. My daughter volunteered at Tracy Aviary. One of their directors said he'd take the birds. The guy drove 3 hours to see and collect the two birds. I didn't hear anything more til he left a message for me. He said when he got the birds home his dog went ape-shit crazy barking. One of the birds screamed, "SHUT THE INAPPROPRIATE UP!" And the dog did, instantly. He wanted to tell me he couldn't be happier. He built them an indoor enclosure. And if the dog acts up the birds put him in his place by calling, "SHUT..."
  10. Back on sinemet

    I'm back. Last July I was diagnosed with MS and APS: Antiphospholipid antibody syndrome. Since then I've been on two drugs, monthly Tysabri infusions for the MS and daily Pradaxa for the APS. The MS doctor was never sure about the APS so she referred me to a specialist. I'd had a tremor for months before the MS dx. Also atrocious, small hand-writing. My doctor tried sinemet. I don't remember the dose. But I never felt it helped. After a month or so the doc switched me to propranolol. I couldn't tell but people I work with said they saw a difference. But I quit using it because of tiredness. It took three months before I could be seen by the new specialist. First a Fellow did a neuro exam then the specialist repeated it. Their findings: I'm weak on my left side. They saw it on the exam and when I walked. I'm left-handed and the tremor is in my left hand/arm. They called it a resting tremor. He says all of these problems can be due to 'Parkinsonism'. For brevity's sake I haven't mentioned the other neurologic signs I've had but he said that could all be explained by PD. But says I wasn't on the proper dose. So now I'm back on sinemet. The starting dose is 1/2 pill three times daily. They cautioned it should be given on an empty stomach. But one of the side effects is nausea? It's important to avoid high-protein meals? They suggested crackers for any nausea. They drew blood for detailed APS testing. I should get results in a few days. If they say it's not APS then maybe I can stop the Pradaxa? I've seen on tv a lot of law suits over pradaxa. The specialist said yes, it is possible to have MS and Parkinsons Disease. kaypeeoh
  11. tremor vs chorea?

    Any difference between the two? Over a year ago I developed a tremor in my dominant hand. Handwriting went from poor to dismal. Then six months ago I had pain in my shoulder and chest. Then I had an attack of vertigo. In the end I was diagnosed with MS and APS. I was put on tysabri for the MS and Pradaxa for the APS: Antiphopholipid Antibody Syndrome. One of the causes of chorea is APS. So anyone know the difference? It would be nice to have a root cause for these problems. Six months later I still have PE, pulmonary emboli and still have the tremor/chorea? in my dominant arm. TIA, kaypeeoh
  12. Ultrasound for tremors

    I forgot to mention, I've also seen ads proclaiming 50% of Parkinsons patients have hallucinations. I've had olfactory hallucinations for 30 years. That's smelling odors that aren't there. One neurologist suggested those could be petit mal seizures.
  13. Ultrasound for tremors

    I keep seeing ads for a new ultrasound technique designed to stop hand tremors. The guy on the video mentioned numbness to his lip. I have that also. I was diagnosed with multiple sclerosis four months ago. TIA, kpo
  14. Acupuncture and Parkinson's

    LR3, GB34, and GV20 are the three main points mentioned in the article. I studied veterinary acupuncture. These points are specific to "wind" disorders. I guess I can try needling myself so see whether it helps. kaypeeoh
  15. Goodbye to Caffeine for a while - ET

    You sound like my wife. Some kidney problems have forced her to stop all caffeine. And she has no problems. No headaches, no stupefying tiredness. I on the other hand am on my third cup this morning. And it's snowing.