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MurrayPD2

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MurrayPD2 last won the day on December 10

MurrayPD2 had the most liked content!

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About MurrayPD2

  • Rank
    Advanced Member
  • Birthday 05/26/1971

Profile Information

  • Gender
    Male
  • Location
    Texas
  • Interests
    Biking (if able), home improvement, electronics

Recent Profile Visitors

806 profile views
  1. 23 year old female worried about PD

    I wouldn't even worry about little things even if you do have it. Early treatment just means an expensive medical treatment begins. I look back and know I had Symptoms in my 30s that I can recognize or remember. Even if I did have it earlier, I am glad I didn't have tis diagnosis hanging over my head. When I was diagnosed in my 40s, I was happy to know I could find relief and help. My symptoms seem to "stair step" over time. Maybe because I would fight it, then couldn't anymore. Yet still, I am working with 3 kids at home.
  2. DBS Update

    I just had my second programming after a year of DBS in- DBS out - DBS back in. I found out that Entacapone was giving me trouble afterwards. as far as my mental health goes. I am totally off that medication and down to half the CL and Amantadine and I have more energy (recently). So far, it has been worth it. I am typing easier too!
  3. Problems that repeat

    Yeah, my MDS' nurse knows a lot and is helpful. So, I believe I have what I need to know. The VA pharmacy would just defer me to the doctor .
  4. Problems that repeat

    I did contact my MDS.. Turns out she is leaving the VA practice soon and she is currently in surgery. I was going to programmed with my DBS Friday, but that was cancelled. So, I talked to her nurse; which shared notes my MDS did not share I am taking a lower dose of C/L and Amantadine, and I am experiencing improvement. My thinking is clearer and so is my focus. I am moving ok also. I have been eating healthier and this may mean I need less C/L now. Not sure.
  5. Gulf War Veterans with pd.

    I have filed for PD(twice), but was denied, but given only 10% for TBI.. Are you saying that PD after service should be service connected if I had a Positive DATscan?
  6. Boy am I new to this

    I am lucky that my first doc was very optimistic and told me of exercise benefits and programs available. He gave me lots of hope with treatment and exercise plans. Being in my 40s, it was something I was carrying around for years already and I was pretty frustrated. I recommend keeping the meds at the lowest dose you are comfortable with. My first MDS asked me if I was where I wanted to be. I was satisfied where I was, but didn't exactly have everything perfect. SO, she pushed more meds on me, and I took it as prescribed. It was great first, but mental stability worsened and I am now working on tapering off. I get programmed for my DBS Friday. So, I hope that will help me taper off as much as possible. This PD medication is helpful, but can be dangerous if not taken carefully.
  7. Boy am I new to this

    I am lucky that my first doc was very optimistic and told me of exercise benefits and programs available. He gave me lots of hope with treatment and exercise plans. Being in my 40s, it was something I was carrying around for years already and I was pretty frustrated. I recommend keeping the meds at the lowest dose you are comfortable with. My first MDS asked me if I was where I wanted to be. I was satisfied where I was, but didn't exactly have everything perfect. SO, she pushed more meds on me, and I took it as prescribed. It was great first, but mental stability worsened and I am now working on tapering off. I get programmed for my DBS Friday. So, I hope that will help me taper off as much as possible. This PD medication is helpful, but can be dangerous if not taken carefully.
  8. Problems that repeat

    It is difficult to be specific, but It seems I am not "healed" after the agonist. It's as if it changed me.
  9. Problems that repeat

    thank you LAD
  10. CBD Oil--Does This Work?

    I just tried some today that is 0%THC. It is oderless and tasteless (like me). I feel great already at only a half drop. I reduced my C/L by 1/3 just because I feared taking too much in combination. I think I am going to like this
  11. Problems that repeat

    thanks for making fun of my post even though it doesn't make sense. I see no double questions. I am seriously suffering and its a wonder I would ever come back here. Geez!!
  12. Problems that repeat

    I am curious about odd behavior I am experiencing. last year, I had a Hypersexuality and ICD issue with Agonists. I immediately quit it one night and never took again The odd part is about a year later, I find myself doing things and I don't know why. It seems irrational. Has anybody ever heard of this?
  13. Problems that repeat

    I am curious about odd behavior I am experiencing. last year, I had a Hypersexuality and ICD issue with Agonists. I immediately quit it one night and never took again The odd part is about a year later, I find myself doing things and I don't know why. It seems irrational. Has anybody ever heard of this?
  14. Does anyone else have dreams ABOUT your PD?

    Yeah. I do all the time.
  15. Voice weakness

    I never said you don't need sinemet. In fact, my statement agrees with yours. My first sentence is addressing your comment that the DBS needs sinemet to work. The DBS is another tool. The DBS itself does not need sinemet to do its part. However, I don't understand why you can't titrate off meds. What is the "bite" in the end? What is the consequence in the long run for YOPD?
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