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papa57 last won the day on January 16 2016

papa57 had the most liked content!

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About papa57

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  1. Boy am I new to this

    Just be careful of what you read, and reading into it. It's very easy to think the worst. There's a lot of support out there. You'll find your way.
  2. Boy am I new to this

    There's a saying that it's okay to rest for the moment but never give up, you may succeed with next blow. Exercise, exercise, exercise. What ever type that works for you. Low impact stretching to high aerobic running. It's amazing how much better you feel after exercising. I agree PM. In the interim of waiting on what next to do. There are valuable exercise videos on You Tube. Just type in Parkinson's Exercise and go from there. A good starting point is the B.I.G. program which is supported by the docs. It gets you to kind of over exaggerate movements like walking, stretching, etc. You definitely need to be dealing with a MDS if it works out for you. I guess there are also neurologists that have interests or background in PD among other things. I haven't been to one. Just sharing the information that they exist. As was told to me from the beginning.....it's not curable.....but it's manageable. I think I'm in my 3rd year after diagnosis and that saying is holding true. It's unsettling when you're first told. But after you learn more about it and deal with the symptoms, life goes on! Sometimes its a day at a time, other times...... its time to be looking forward to something, a week out, a month out, etc......what ever it takes to change your perspective and keeps you going.
  3. A little something to think about

    Thanks for all the positive messages in this thread. I've been away from the forum for awhile, not on purpose, just been busy. I've been on a down slope lately and reading this thread of late is helping me make a turn I hope! I just need to break through this stretch of mental negativity.
  4. A little something to think about

    LAD, Yep still exercising. Saw my newest neurologist yesterday. She's fantastic! It's a 4 hour drive to see her and she's willing to spend quality time with her patients. I realize this will likely change again, meaning having to see a different neurologist. Insurance plan made the change for me. But for now…..I'll take it! Both she and my primary are adamant about keeping on the exercise path. Mostly because what it does for my situation. One of the things that came up in discussion was trying to plan to do things now and not put them off. Even though I'm on a positive path with PD…..no one knows how it will affect me in the long run. It could be minor, or major. The point was…..do it now…..because you don't want to be looking back in life wishing I would have done this or that!! My take on that is regardless of whether you have PD or not, life here is only so long for each of us. We just happen to have PD. Sounds silly, but this was an eye opener for me. It wasn't a dramatic statement made to someone with a terminal illness. It was just a matter-of-fact of wake up and do it now or in the near future……….because that's all we really have. I would guess we all have similar experiences with PD. It's a roller coaster with ups and downs. Today I happen to be on the up side.
  5. Newly diagnosed- any advice?

    It's interesting, for lack of a better word, that PD is different for everyone. Sort of taylor made. I guess that all that I have learned and continue to learn are the numerous possible symptoms and issues that one might face. It's an easy trap to fall into. Wondering what all the things you might face. Certainly one needs to be educated to the PD facts to be able to make the best decisions along the way. The sweet spot, which for me moves relatively slowly at the moment, is the right dosage of meds and continued vigorous exercise every other day. The other days I try to make sure to do PD stretching exercises. They're easily located on You Tube. The BIG program is a good place to start. Good luck!
  6. Good morning!!

    Had fun in the sun today with one of our sons, his son, my wife, her sister…..and other family. Lucky day! Finished off by a nice cookout by our son. Feeling very thankful.
  7. Good morning!!

  8. Peripheral Neuropathy In Parkinson

    Sorry I don't have an answer for you. Have in the past numbness in my right hand along with what appeared like poor circulation and swelling. That's gone away. Maybe due to regular cardio exercise. My right foot has a general low level of numbness. I don't really notice it unless I think about it. It might be totally unrelated to PD. That leg was banged up when I was a kid…..so maybe its nerve damage?
  9. A little something to think about

    Way to go Adam!
  10. A little something to think about

    LAD…..FYI personally I'm having one of those "bad" days. Seeing what you've written on the forum is up lifting, and we all need to support one another. Nice timing and thank you. For better or worse I'm headed out to exercise. It's a mainstay of my diet to combat PD. So maybe your message will "pay it forward" through me to someone else. Who ever you are if you're contemplating exercise but not quite there yet……do it for the ones you love and those who love you. A bad day of PD with exercise is better than a bad day with PD without exercise.
  11. Newly Diagnosed and scared

    Hi Thecount. Welcome to the forum. It's rough at the beginning learning you have PD. It DOES get better. Glad to hear you're on the exercise path. There is no comparison to bad days without exercise vs. bad days with exercise! I'm currently 59. Diagnosed at 57. As you'll learn there are usually hints of symptoms well in advance of diagnosis. We just don't recognize them as such. It would just make us a bunch of hypochondriacs. You'll ultimately find a groove. Best to you.
  12. Good morning!!

    jb….I tap a half dozen maple trees, and the sap is finally flowing! Make just enough for home use and gifts. I must admit I don't have the patience to boiling it down correctly so its usually a little watery. But its all for fun. On your menu choices I have to vote for putting in on vanilla ice cream. Even though it goes well on just about anything.
  13. exercise

    Best of luck Bill.
  14. Good morning!!

    Thanks for the post Jb. Its tough losing a friend. It was a quiet St Patricks day for us. However, my DW is 50% Irish so we had a beautiful dinner of corned beef and cabbage….with a little bit of Jameson and soda! Dear Lord I love that woman. I can have a blasé day and she can be a pick me up without even trying. Happy St. Patricks Day to all!
  15. Drifting....in faster waters

    All I can think is miracles do happen. I had an experience this past week involving a high level of cardio vascular exercise in which I was able to complete. I first checked with my PCP and she gave a thumbs up….which was encouraging in and of itself. Maybe we don't give ourselves enough credit that we, with help above, can still achieve great things. It doesn't matter whatever you use as a measuring stick. It's worth the fight back. If not for yourself, for the others around you. Sometimes it just means a little extra rest between I guess. It's still difficult to stop looking inward instead of outward. Life is all around us. Thanks for listening.