Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Hunter Dan

Members
  • Content count

    86
  • Joined

  • Last visited

  • Days Won

    5

Hunter Dan last won the day on February 23

Hunter Dan had the most liked content!

Community Reputation

68 Excellent

About Hunter Dan

  • Rank
    Advanced Member
  • Birthday 05/30/1964

Profile Information

  • Gender
    Male
  • Location
    Great Valley NY
  • Interests
    Hunting ,Fishing ,ice hockey,family

Recent Profile Visitors

225 profile views
  1. What people say that p... me off

    How about just rub some icy hot on those stiff muscles ! How about the constant bashing of our elected officials ! The other choices you had were no better ! how about at least it's not cancer ! plenty more out there Dan
  2. Social Security Disability - Trump's Budget

    Every time there is a big change in the political arena there is the sky is falling mentality . People work themselves up into a frenzy go into panic mode for about 6 months to a year . It happens with the republican sector when the democrats are in charge and It happens to the democrats when the republicans gain control . The reason the human species can't stand change ! Change happens everyday ,some call it progress some condemn change . What happens in politics is the change happens, people panic , change gets ingrained , no one notices the change when it finally goes full circle , then back to complacinsy until the next election ! Dan
  3. Need Your Input Please

    Sorry to hear of your what seems to be futile efforts to get answers ! My suggestion is ,if your not satisfied with your health care team it is time for a new one . When My Dr told me he wanted to send me to a neurologist he also asked if I had a preference . Is there a reason your Dr.won't give you a referral to an MDS of your choice ? The first neurologist I seen spent about 3 minutes with me and gave me a DX of essential tremor as she was walking down the hall ( made me feel like she was in a hurry ) .When I went to the one of my choice he spent around 25 or 30 minutes talking and testing my movements ,writing ,balance ,etc . then sent me for a brain scan to rule out a stroke or something obvious . On the follow up he redid all the previous tests to ensure that he was making the most accurate DX possible . If you didn't get that kind of attention I would go back to your primary and insist to see a different neurologist or MDS . If he /she won't give you a referral based on your concerns then it may be time to replace your primary ! just my 2 cents . Dan
  4. Unexplained foot/ankle pain and swelling

    I have had pain in my ankle Dr thought it was tendonitis , Had Xrays that reveled mild arthritis . Dr said it was so mild it shouldn't be an issue . sent me to physical therapy but that didn't help much . After reading some of the other responses I am also going to inquire with my Dr next week if it could possibly be dystonia . Dan
  5. New to Parkinson's

    welcome , I was DX at 50 but had symptoms well before . Telling people of your DX is a personal choice , I generally don't talk about it unless someone asks why my hand is shaking or why do you run off to the bathroom so much etc . I guess it is because I don't want people to look at me and say things like poor guy he has parkinson's or for people to treat me any different than they had before . That being said ,for work purposes it depends on what line of work you do and is it affecting your ability to perform your tasks ? I was a union Steamfitter (pipefitter ) and was having issues with balance and had a couple falls at work . Using my left hand for delicate tasks was becoming increasingly more difficult . The balance issue was a huge concern as most of our work is off of ladders or in some type of man lift . These are some of the same reasons I went to have my symptoms checked by my Doctor and eventually the neurologist . When I was 100 % sure what I had and how much it was affecting my abilty to perform I told my boss . In my case I was rather lucky as my boss was also a good friend that I had gone through the apprenticeship program with 24 years earlier so he was very concerned and supportive . I guess it comes down to Do they need to know now and if they will be supportive of you and do you feel they have a need to know . Dan
  6. Still In Limbo....No Dx

    Welcome to the forum ,not exactly the place you wanted to be welcomed to . But there is a lot of info to be had here .It has definitely helped me . Hopefully your stay here will be short and you have something a little more minor . But the sooner you get checked by a MDS the sooner you can find out for sure . A DX of PD will be a kick to the soul but at least you will know for sure and stop the daily wondering ! If it is you can start the acceptance portion of the DX ,which isn't always easy but with support and knowledge it can be worked through and soon you can get back to being you . Dan
  7. Newguy questions - Second opinion, and med changes

    kind of late to the party but welcome ,not that this is the place you wanted to be welcomed to . I don't know what your rating is at the VA nor do I know where or what you did in Vietnam . That being said if your rating is not 100% and you haven't filed a claim with the VA for your PD ,do so immediately ! Exposure to agent orange is almost a given for Vietnam vets as it pertains to PD . The VA will give you a general rating for the PD but will also assess your symptoms . Such as the tremor ,rigidity , constipation ,urinary problems ,depression, etc you can get information on filing a claim at the vfw , American legion , your local VA clinic should have a counsler or maybe your county building has a veterans department . Thank you for your service !!!! Dan
  8. Stage 3 & 4. Candid discussion. ??

    I am not stage 3 or 4 ,but I am a vet and the VA has a bunch of informative videos on PD for all stages and symptoms . Also a lot of the VA Neurologists are tops in there field . The one I see in Buffalo is only at the VA on Wednesdays . He is in charge of the University of Buffalo's neurological dept and also works at the Buffalo Brain and spine institute as well as a MDS . My point is that the VA is no longer a 2nd rate facility as stereotyped in the past . I believe all the videos are accessible on you tube . Just type in VA Parkinson's disease . Dan
  9. Heart

    I seen my Neurologist / MDS today 22 feb 2017 and asked him if PD effected the heart as it does the other muscles in the body ( stiffness ,rigidity , tremor etc ) . What he said is that the heart is an involuntary striated muscle which unlike a skeletal muscle is not effected by PD as is the skeletal muscle . He said people with PD are no more at risk to heart attacks or heart disease than the rest of the population . He explained it a lot more but I didn't tape the conversation so don't remember all the specifics . Just thought I'd pass it on . He also asked why I asked and said none of his patients in all the years have ever asked , I told him I was just curious as the heart is a muscle and I am still in the learning stage of the whole PD thing ! Dan
  10. vietnam veterans with PD

    I am not a Vietnam Vet , But to all who are welcome home and thank you for your service !!!!!!!!!!!! But I am a veteran that is 100% service connected for PD due to contaminated ground water at the installation I was stationed at . After being diagnosed with PD and no family history I wondered what may have kicked started it at my age (52 now ,symptoms for several years ) . I narrowed it down to the contaminated ground water . So I filed a claim , to do that you need to contact a VA counsler . There was one at the local VA clinic the vfw has them and there is one inside our county building at the department of veterans affairs . What I took to the counsler were all the reviews from my doctors appointments a hand written letter of my own explaining in my own words what I new happened . In that letter you have to be convincing , use words like I am certain and convinced instead of I think . dd214 and anything else they ask for . Then your claim will be reviewed and you will see one of there evaluators . At this appointment it is critical that you explain in detail all the symptoms that you have had due to your PD not how your feeling right then but your worst days and all the symptoms as the VA may rate your PD at 30% but they also rate each symptom and add them up .Anxiety ,depression ,tremor ,headache ,stiffness ,urination issues, any and all and always worse case . Then you will probably get more appointments with specialists that will rate each symptom . then a final rating if they determine that it is service connected . I go to the Buffalo NY VA the nuerologist is awesome and a mds also . I currently get all my health care at the VA and have no complaints. Dan
  11. How PD became the best thing that ever happened to me

    There is a line in the article that says " That outlook and attitude in the face of these things matter more than any drug or therapy ever could " I myself find this to be true . I find if I focus and dwell on my condition I feel crappy and get depressed and moody . If I move on like as if I don't have a condition and put the condition as far back in my brain as I can and focus on the positive , I feel better and can go about life as "normal " as possible . I can never put it completely out of my head with needing to be aware of the time so as not to miss the meds . When I first was diagnosed I fretted and let it control me . I was on the forum all the time ,researching ,reading things , listing to other peoples issues good and bad and I found that depression had set in and was letting it control my every thought . Now I check the forum from time to time , I research a bit still but only to see if there is something that will help . I no longer look to see what the disease has in store for my future . I found this to be almost pointless as everyone has a different path in this journey and I will find out what it has in store when I get there ! As of right now when I get on this or any other forum if a subject looks like it will be negative or self loathing I avoid it , not that I don't want to help someone else but because I don't want to go backwards . Staying positive and informed is the my key to moving forward . Dan
  12. Veterans Administration and Parkinson's

    I suppose it depends on which VA you are going to . Like any other treatment for anything it will depend on the staff and Dr that you see at the particular VA that you go to . I go to the one in Buffalo NY and find the care at this facility grade A . The Dr I see is a clinical professor at the University of Buffalo , a nuerologist at the Brain and spine center , and a staff nuerologist at the VA as well as a Movement disorder specialist . So I am fortunate to have quality care in the area . other VA's may be better or worse depending on staffing . https://medicine.buffalo.edu/content/medicine/faculty/profile.html?ubit=dlichter. Dan
  13. traveling

    When I was first diagnosed I went into full panic mode as many others have before me and unfortunatly to many after ! But after I settled down a bit I decided I was going to do as much as I can while I can . Yes there are meds and eating and fatigue amongst other things to deal with , but if or when the day comes that I can't do something I don't want to say to myself or anyone else " I wish I would have done that when I had the chance , now it's to late " my advice would be to make aplan and go ! yes it may be a bit taxing and it may be strenuous at times but it' will always beat the " IF I ONLY " scenario down the road . I'm sure with a good game plan you have little to worry about ! My 2 cents . Dan
  14. hiking ?

    thanks for the response , I am in the early planning stages . I am thinking of section hiking and doing a quarter of the trail each year , or at least the first year and see what if anything needs to be adjusted from that . i am close to the finger lakes trail here in NY and have considerable amounts of hiking opprotunity in the area . Dan
  15. hiking ?

    Hello all , Has anyone done any hiking after being diagnosed ? I know that walking is supposed to be good , and being active with any sort of activity is going to slow progression . But when all is said and done has anyone done serious hiking such as the Appalacian Trail or the Pacific crest Trail or any of that sort of hiking ? If so was there anything that you had to consider besides keeping medication dry ? I have thought about this for years and never had the time , now I have the time and am considering either a section hike of the Appalacian trail or a thru hike ! Any info would help ! Dan
×