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Hunter Dan

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Hunter Dan last won the day on February 23

Hunter Dan had the most liked content!

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About Hunter Dan

  • Rank
    Advanced Member
  • Birthday 05/30/1964

Profile Information

  • Gender
    Male
  • Location
    Great Valley NY
  • Interests
    Hunting ,Fishing ,ice hockey,family

Recent Profile Visitors

318 profile views
  1. Big News?

    I have been trying to do some research , there are over 600 neurological disorders . Most are treatable but so far I haven't found any information on any of them being cured . I'm not saying it hasn't happened i'm saying I haven't found evidence of any cured . I will keep hoping there will one day be a cure or at least a better treatment but won't hold my breath ! Dan
  2. newly diagnosed outdoor active female

    Hiker , coming to the party a bit late but welcome , But only for the fact that I don't do much computer time in the nicer weather ! When I was first DX I kind of went into a bit of a shell so to speak. For a short period I was leary of doing things for fear I might intensify the disease . But with a small bit of research realized that is exactly opposite of what I should have done . Once I realized that I went back to being active ,almost to active to the point I was getting tendonitis from over use . The key is not to panic stay active and reduce stress as much as possible .I find my tremor gets out of control when I get stressed . One of my goals is to hike the Appalacian Trail , I would love to do it next spring but have teenagers that are very active, in ice hockey ,baseball and other kid things . Plus leaving the family for 5 or 6 months not an option right now . It's all up to you as time frames go ( personal goals ). I like others don't want to put things off for fear of progression ,but at the same time can't cram it all in in a day either . My belief is that if you control the PD and stay positive ,exercise , eat right and not let the fear of having PD consume you that you might have a bit of a say in how fast the PD progresses . (My belief ) . It will progress but from all of my personal research I believe it can be kept at bay for a long period ! And it appears you have no problem finding ways to stay active . Another one of my goals is to do one more half marathon ( done 8 ) . Good Luck, Dan
  3. Antidepressants and Rasagiline and Pramipexola

    I use rasagiline Dr says they believe it may slow down the progression of Pd and supposed to aid the other drugs to prevent the wearing off effect as your dose wears off . I don't use any of the others though . Dan
  4. The Problems with Medical Marijuana

    Patriot , I don't use the medical marijuana . I have had family members that have suggested and even urged me to try but being a gun owner in a liberally controlled state like NY, If it prescribed I believe it is on the list that gets your guns taken ( hunter) . I have a friend in California with MS and the use of marijuana has allowed him to drop 22 pills a day from his daily intake . But he won't get a prescription for the fact that he enjoys the shooting sports ( Non hunter ). I do use a low dose sinement along with exercise to control muscle stiffness but it does nothing for the tremor . I had a procedure done a couple months ago where I was put under and the Dr said while I was out the tremor was not present . But I agree that anyone that considers The Marijuana road to do your research as each state has different regs . The Democrat controlled states seem to have more stringent regs than the others . Dan
  5. What people say that p... me off

    How about just rub some icy hot on those stiff muscles ! How about the constant bashing of our elected officials ! The other choices you had were no better ! how about at least it's not cancer ! plenty more out there Dan
  6. Social Security Disability - Trump's Budget

    Every time there is a big change in the political arena there is the sky is falling mentality . People work themselves up into a frenzy go into panic mode for about 6 months to a year . It happens with the republican sector when the democrats are in charge and It happens to the democrats when the republicans gain control . The reason the human species can't stand change ! Change happens everyday ,some call it progress some condemn change . What happens in politics is the change happens, people panic , change gets ingrained , no one notices the change when it finally goes full circle , then back to complacinsy until the next election ! Dan
  7. Need Your Input Please

    Sorry to hear of your what seems to be futile efforts to get answers ! My suggestion is ,if your not satisfied with your health care team it is time for a new one . When My Dr told me he wanted to send me to a neurologist he also asked if I had a preference . Is there a reason your Dr.won't give you a referral to an MDS of your choice ? The first neurologist I seen spent about 3 minutes with me and gave me a DX of essential tremor as she was walking down the hall ( made me feel like she was in a hurry ) .When I went to the one of my choice he spent around 25 or 30 minutes talking and testing my movements ,writing ,balance ,etc . then sent me for a brain scan to rule out a stroke or something obvious . On the follow up he redid all the previous tests to ensure that he was making the most accurate DX possible . If you didn't get that kind of attention I would go back to your primary and insist to see a different neurologist or MDS . If he /she won't give you a referral based on your concerns then it may be time to replace your primary ! just my 2 cents . Dan
  8. Unexplained foot/ankle pain and swelling

    I have had pain in my ankle Dr thought it was tendonitis , Had Xrays that reveled mild arthritis . Dr said it was so mild it shouldn't be an issue . sent me to physical therapy but that didn't help much . After reading some of the other responses I am also going to inquire with my Dr next week if it could possibly be dystonia . Dan
  9. New to Parkinson's

    welcome , I was DX at 50 but had symptoms well before . Telling people of your DX is a personal choice , I generally don't talk about it unless someone asks why my hand is shaking or why do you run off to the bathroom so much etc . I guess it is because I don't want people to look at me and say things like poor guy he has parkinson's or for people to treat me any different than they had before . That being said ,for work purposes it depends on what line of work you do and is it affecting your ability to perform your tasks ? I was a union Steamfitter (pipefitter ) and was having issues with balance and had a couple falls at work . Using my left hand for delicate tasks was becoming increasingly more difficult . The balance issue was a huge concern as most of our work is off of ladders or in some type of man lift . These are some of the same reasons I went to have my symptoms checked by my Doctor and eventually the neurologist . When I was 100 % sure what I had and how much it was affecting my abilty to perform I told my boss . In my case I was rather lucky as my boss was also a good friend that I had gone through the apprenticeship program with 24 years earlier so he was very concerned and supportive . I guess it comes down to Do they need to know now and if they will be supportive of you and do you feel they have a need to know . Dan
  10. Still In Limbo....No Dx

    Welcome to the forum ,not exactly the place you wanted to be welcomed to . But there is a lot of info to be had here .It has definitely helped me . Hopefully your stay here will be short and you have something a little more minor . But the sooner you get checked by a MDS the sooner you can find out for sure . A DX of PD will be a kick to the soul but at least you will know for sure and stop the daily wondering ! If it is you can start the acceptance portion of the DX ,which isn't always easy but with support and knowledge it can be worked through and soon you can get back to being you . Dan
  11. Newguy questions - Second opinion, and med changes

    kind of late to the party but welcome ,not that this is the place you wanted to be welcomed to . I don't know what your rating is at the VA nor do I know where or what you did in Vietnam . That being said if your rating is not 100% and you haven't filed a claim with the VA for your PD ,do so immediately ! Exposure to agent orange is almost a given for Vietnam vets as it pertains to PD . The VA will give you a general rating for the PD but will also assess your symptoms . Such as the tremor ,rigidity , constipation ,urinary problems ,depression, etc you can get information on filing a claim at the vfw , American legion , your local VA clinic should have a counsler or maybe your county building has a veterans department . Thank you for your service !!!! Dan
  12. Stage 3 & 4. Candid discussion. ??

    I am not stage 3 or 4 ,but I am a vet and the VA has a bunch of informative videos on PD for all stages and symptoms . Also a lot of the VA Neurologists are tops in there field . The one I see in Buffalo is only at the VA on Wednesdays . He is in charge of the University of Buffalo's neurological dept and also works at the Buffalo Brain and spine institute as well as a MDS . My point is that the VA is no longer a 2nd rate facility as stereotyped in the past . I believe all the videos are accessible on you tube . Just type in VA Parkinson's disease . Dan
  13. Heart

    I seen my Neurologist / MDS today 22 feb 2017 and asked him if PD effected the heart as it does the other muscles in the body ( stiffness ,rigidity , tremor etc ) . What he said is that the heart is an involuntary striated muscle which unlike a skeletal muscle is not effected by PD as is the skeletal muscle . He said people with PD are no more at risk to heart attacks or heart disease than the rest of the population . He explained it a lot more but I didn't tape the conversation so don't remember all the specifics . Just thought I'd pass it on . He also asked why I asked and said none of his patients in all the years have ever asked , I told him I was just curious as the heart is a muscle and I am still in the learning stage of the whole PD thing ! Dan
  14. vietnam veterans with PD

    I am not a Vietnam Vet , But to all who are welcome home and thank you for your service !!!!!!!!!!!! But I am a veteran that is 100% service connected for PD due to contaminated ground water at the installation I was stationed at . After being diagnosed with PD and no family history I wondered what may have kicked started it at my age (52 now ,symptoms for several years ) . I narrowed it down to the contaminated ground water . So I filed a claim , to do that you need to contact a VA counsler . There was one at the local VA clinic the vfw has them and there is one inside our county building at the department of veterans affairs . What I took to the counsler were all the reviews from my doctors appointments a hand written letter of my own explaining in my own words what I new happened . In that letter you have to be convincing , use words like I am certain and convinced instead of I think . dd214 and anything else they ask for . Then your claim will be reviewed and you will see one of there evaluators . At this appointment it is critical that you explain in detail all the symptoms that you have had due to your PD not how your feeling right then but your worst days and all the symptoms as the VA may rate your PD at 30% but they also rate each symptom and add them up .Anxiety ,depression ,tremor ,headache ,stiffness ,urination issues, any and all and always worse case . Then you will probably get more appointments with specialists that will rate each symptom . then a final rating if they determine that it is service connected . I go to the Buffalo NY VA the nuerologist is awesome and a mds also . I currently get all my health care at the VA and have no complaints. Dan
  15. How PD became the best thing that ever happened to me

    There is a line in the article that says " That outlook and attitude in the face of these things matter more than any drug or therapy ever could " I myself find this to be true . I find if I focus and dwell on my condition I feel crappy and get depressed and moody . If I move on like as if I don't have a condition and put the condition as far back in my brain as I can and focus on the positive , I feel better and can go about life as "normal " as possible . I can never put it completely out of my head with needing to be aware of the time so as not to miss the meds . When I first was diagnosed I fretted and let it control me . I was on the forum all the time ,researching ,reading things , listing to other peoples issues good and bad and I found that depression had set in and was letting it control my every thought . Now I check the forum from time to time , I research a bit still but only to see if there is something that will help . I no longer look to see what the disease has in store for my future . I found this to be almost pointless as everyone has a different path in this journey and I will find out what it has in store when I get there ! As of right now when I get on this or any other forum if a subject looks like it will be negative or self loathing I avoid it , not that I don't want to help someone else but because I don't want to go backwards . Staying positive and informed is the my key to moving forward . Dan
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