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Twitchy mama

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About Twitchy mama

  • Rank
    Advanced Member

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  • Gender
    Female
  • Location
    Carnarvon Ontario- summer

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393 profile views
  1. Summer adventure season starting

    Have a wonderful trip!
  2. Summer adventure season starting

    Way to go, Stump! Quite an achievement
  3. Good morning Twitchy.  I am looking up Carnarvon.  No idea where that is, Big province, Ontario is.  How long do you spend here in in the summer?

    1. Show previous comments  1 more
    2. jb49

      jb49

      Hi Janie,,  

      How are you today?  Are you American or Canadian? American I thought, or rather presumed.  Hurricane Irma is supposed  to be coming up through Florida in a couple days.  Will your place in Florida be ok?  Must be a worry for you.  I hope your place will be fine. My wife is supposed to go to Sanibel, (Fort Meyers) for a Parkinson convention of Researchers on Friday the 15th, next weekend.  She is waiting and hoping that it gets cancelled.

      Summerville, where did you get that place?  Nope, my address is Frankford. About 7 miles north of Trenton, which is on the hwy 401 about 100 miles east of Toronto. There we live on a small farm. I looked up Carnarvon.  I have driven through that area, Bracebridge,. Orilla, Lindsay, and Haliburton. Your town is about a 3 hr drive from here I think. 

      I did have an MRI done in Belleville 2 days ago.  Next Friday, I meet with the neurologist  in Toronto.  I am surprised that I am getting the DBS done, but I do have too much off time.

      Take care Janie, hope the hurricanes leave you untouched. Good health to you. 

      jb

    3. Twitchy mama

      Twitchy mama

      Hi JB, I am Canadian born in Middleton NS. We have lived in the US since 1994. Florida is a big question mark but if the house blows away to Kansas we can stay here. Don't know why I thought of Summerville- don't know why I think of lots of things!! Do know Belleville and Trenton (my dad was Air Force).

      if we ever get down that way, we'll try to find you - I have a brother in Montreal 

      there is a new subcutaneous delivery system for c/l . I can't figure out how to post it here but if you give me your email address I can forward the article.

      is your wife a PD researcher? We are just an hour north of ft Myers hope her trip is smooth and safe

      your positive attitude is such a gift to me and many others! Keep up your good works,JB 

       

      janie

    4. jb49

      jb49

      Hello Twitchy,  I think that CFB Trenton is Canada's biggest Base. It was in place prior to WW2 and served as a training field.  It is home to a search and rescue squadron and the centre of air transport.  It is a major player in local economics. I picked up a cd of my MRI from the hospital in Belleville yesterday.  I will take that to my DBS consultation in Toronto next Friday.  My wife and a friend in Trenton have recently had DBS surgeries with good results.  I am heading down that path I think. Thank you for the input about the new delivery system.  I do know that many people with pumps are happy with the delivery of medicine.  My wife is expecting the conference to be postponed. Doesn't make much sense to be flying into an area that has been evacuated although the meeting is not until the 15th of September. She is not a researcher, but sits on a board as a dbs patient advocate.  That would be great to meet you if you were down this way sometime.  Have a good weekend TW.  jb   

  4. Good morning!!

    Lad, TSA is pretty good. Most recent flight I was slow and awkward but I just told them I had PD and they were very nice. In the X-ray thing I couldn't lift my arms high enough but after I explained, he backed off. I can't hide my symptoms anymore so I just tell folks and they are always kind and tolerant. Have a wonderful trip. Twitch
  5. Good morning!!

    Thanks for sharing, JB. Lots to ponder about the road ahead and making every day count!
  6. Good morning!!

    Happy Canada day! 150 years old!!
  7. Bucket list BEGINS!

    NN you are an inspiration to us all to keep going and find the joy in each day. Safe journey- we will look for your posts. Twitch
  8. Scammer alert

    Thanks for the heads up
  9. A little something to think about

    Ditto for me - 15 day trip through the Rockies with lots of hiking and only had one tough day. But I've been pretty tired since getting home and tomorrow we head tothe lake in Ontario for the summer. It's good to look ahead to fun things! twitchy mama
  10. Generic Ropinerole

    I am taking Ropinerole ER 4mg and my supplier has recently changed my medication to a Sandoz product from one made by Actavis Eliz. I am not tolerating the Sandoz product - headaches, nausea, foggy brain etc but I cannot find the Actavis product. I do know that Actavis has been taken over by Teva but I don't know if they are still producing Ropinerole. Ropinerole ER is also produced by Mylan, Dr Reddy and other companies. Does anyone have good results with these products? I also wonder whether anyone has tried Requip ER made by Smith Kline Beecham in Turkey? I can buy it for $132 for 84 pills. thanks for any help, Twitch
  11. Good morning!!

    Welcome home JB we have missed your smiles. I figured you were off visiting your publisher for your next book! i am off next week to visit British Columbia and the Rockies and maybe find a winery or two near Discovery! So excited- twitchy mama
  12. Good morning!!

    Oh boy! I need this button!! When folks tell me I look so good and they think my PD must be getting better - well, I just have to chuckle!! (Or scream)
  13. Good morning!!

    Enjoy! We'll miss you and your stories!
  14. Miralax works best for me. But I do understand the problem of your brain sending the wrong message and stopping things up! Haven't found a solution to that problem. Luckily I am beyond the menstrual issues and hormones. Good luck finding a knowledgeable gyn who will listen.
  15. Helping my Dad Transition to Assisted Living

    When we moved my parents to AL my sister took them for the day. They were very anxious about the move and my mother has dementia. The movers arrived at 8am, loaded the furniture that was going with them to AL. By 4pm we had their new home looking as similar as we could to their old home and we brought them over. They still marvel at how good it was to have their things with them right away. It was a huge transition for them but now they realize it was a good move for them and they are thriving. it might be helpful to have their old caregiver continue with them for a few days as they adjust to the new staff. good luck, it's a hard process for everyone Twitch
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