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About pinkdaisy

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  • LAD

  1. Hi LAD, Just tried it, so great . Thank you for sharing.
  2. Thank you Melissa and LAD for your support and tips. I have to check out Bryan Grant Foundation. POSITIVITY is all we need. PinkDaisy
  3. Hi all, I had 6 months follow up with my MDS today. All went well and will see her in another 6 months. My symptoms are still mild, no need for medication except my exercise. My hand cramp has been improved or I just get used to it; I have stopped taking Lyrica. I hope my progression will be slow..slower..slowest., a positive case in this forum to lift up the spirit of any young new members.. Warm wishes to all my dear friends and keep fighting. PinkDaisy
  4. Welcome Sean, I guess we are heading the same journey but I am about 10 yrs older than you. I had similar symptoms in 2015 plus left hand cramp and diagnosed 2016. I am doing ok, nothing change. Emotionally I am feeling better, somewhat accepting PD after 9 months I have been doing exercise almost daily at home and pushing myself to continue even I have two kids, full time job, full time wife , I will see my MDS , 3rd visit again in 2 weeks. Likely will no need medication base on mild symptoms I have. I have been told the progression is very slow, so be positive ( struggling with this) and exercise is the key for general health well-being that we can do. Good luck.
  5. Just found this video , hope you can open it. Click on the link and slowly scroll down to watch it. Beating Parkinson's disease - how a new invention has changed Emma's life. (Via BBC Stories)
  6. Welcome Lena, I'm new to this as well, not taking PD medication. My symptoms are mainly on my left hand . I will have my third follow up appointment with my MDS in 3 months, still struggling with accepting the diagnose at times. We briefly talked about Azilect because I brought up the subject. I am trying to run on treadmill daily but can make about 5 days a week due busy working, looking after my kids. I also enjoys playing ping pong with the robot. I like to have 8 hrs sleep at night. I keep myself busy until I go to bed. You take care, Pinkdaiy
  7. Hi Stump, My kids are 13 y-o boy an 10 y-o girl. I have not told them my diagnosis yet because my symptoms are very mild. I would like to keep it with me as long as possible. Just wanted to share this, my daughter saw me in this Forum a lot prior being diagnosed, she told her two teachers that I have P.D. I corrected her that it's still under investigation, mom just has some pain and left thumb moving when mom gets nervous. It seemed like they forget the whole thing over last couple months. My boy does not pay attention. Perhaps you could tell them the symptoms which come and go and don't say PD. I feel regretted of telling my parents. Whenever they see me , they always ask how is my hand? Any better ? Do this ? Do that? I m tired of answering the same thing . Once you disclose... the chance people not to tell others is %0.1 or less PinkDaisy
  8. Agreed, I am new to this forum and have found Discovery is a very caring person. I can feel her warm and caring support to me when I first joined this group. PinkDaisy
  9. Hi all, Just wanted to update my second visit with my MDS. All goes well, no need medication. Continue with EXCERCISE i.e. cardio exercise is recommended, the more sweat+++ the better. I parked my car and walked an hr to and 1 hr back from MDS . I will see her in 6 months. When I asked her about Azilect, her response was she has that back in her head but she would not prescribe it today. She mentioned there has been a 5 yr study on Azliect x since 2011. Hopefully will get more confirmed information on slowing the disease. Have a wonderful week-end. PinkDaisy
  10. great news that u didn't notice a difference. Rigidity --u would feel stiff, tender, kind of swollen feeling. Again hope this help. I was in your shoes couple months ago , searching every corner for info.
  11. I' m new to P.D. Maybe others can provide you better and reliable info. My thumb moves when resting, or typing or even walking. To answer your question I don't think so. Doctor will look for stiffness/rigidity of your hand. Doctor will look for slow movement of fingers. Try to tap your thumb and pointing fingers together fast and big, see any difference from left hand and right hand. My left hand would not move as fast and wide as the right. I have presented 1)slow movement of fingers, 2)hand tremor, and 3)hand rigidity = PD PinkDaisy
  12. Hi Nortstar 35, It does not sounded like PD base on what I have gone through. I am recently diagnosed with finger stiffness, cramp hand and feet, some hand tremor (mainly thumb twisting) all in left side. I feel fine most the mornings after I am up but evening I feel bit more cramp. I feel full of energy as before. I have no balance issue still running daily. Hope this ease your anxiety PinkDaisy
  13. Thank you so much Dr. Mahler Yes an evaluation from SLP is a go for me. Pinkdaisy
  14. Dear Dr. I am recently diagnosed with EOPD and my speech and swallowing are ok for now. I would like to be pro-active in terms of my mouth/throat/vocal exercise. When I play a sport i.e. hitting a ping pong ball, or bouncing a basket ball, I like to work on my vocal status as well i.e. shouting out very loud words " yes", "no' ' revenge" "what". Do you think it's good ideas for me to continue to do this? If yes any words that you would recommend for me to shout. I play a sport with a robot as such I can scream as loud as I want Thank you PinkDaisy
  15. Hi all, just quick update I finally saw MDS and has diagnosed me with early stage of PD. She seems very nice and I do get the feeling that she is someone I will trust and guide me through this journey. She has decided it's not time to put me on any medication. EXCERCISE is the only thing she has prescribed for me and continue to carry on with my daily activities. Will see her in 3 months. Here is my daily regime , please feel free to share any advice. Am I doing the right thing? Taking supplement : Q10, fish oil, Vit D, Calcium, Turmeric, drinking green tea, fruits and almond, green vet. Exercise Regime: have small black coffee before power jogging 1hr almost daily, playing ping pong with the robot mainly on left arm for about 30-45 min daily, just attending local Tai Chi 1W, stretching hand exercise while working at my desk. Force use/exercise left hand if remember. Try to aim at least 12000 steps daily. PinkDaisy