helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

otolorin

Members
  • Content count

    29
  • Joined

  • Last visited

Community Reputation

4 Neutral

About otolorin

  • Rank
    Member
  • Birthday
  1. Hi DaynaE, I sometimes experience the same symptoms you described above with my eyes.While driving,I try not to look directly at the sun and sometimes I wear a protective sun glass.You can buy a screen cover to reduce the glare from your computer or tablet.Please confirm with the doctor as regards your symptoms.You can ask Dr Okun,
  2. Healthcare should be a priority instead of defense,in terms of budget cuts and increase.But the politicians are not getting this.A healthy nation is a strong and wealthy one.
  3. I am worried about those impulse control disorders as well,does not intend to increase the does too much.Would be trying out Sinemet soon,because I will like to minimise the number of pills I am taking,as well as the side effects.Thanks for your response.
  4. Hi Doc,I am on ropinirole only,dosing up gradually from 0.5mg to 3mg/day,slowly withing several weeks.I usually have mild tremor while walking and swinging my left arm with dystonia when off medication.But snce I started using this medication,I have been noticing increased tingling,just slight improvement in the dystonia and increased tremor,within the first 45mins to an hour.The tingling usually last till the medication wears offf.I am wondering if this is normal with ropinirole.I understand,one of the side effects is tingling.I am currently on 2mg/day.1mg x2/day at intervals of 5 to 6hrs.
  5. Never tried antidepressants.I gathered some takes a long time (months) to start working.And some might make one's condition worse if you stop taking them.i guess they work differently for everybody.if only there is a way to cut down on medication cocktails,that would be nice and would reduce side effects.I am sure your wife knows better"BillBRNC".Please break into the light,darkness is not good for depression.
  6. Thanks again Dianne.Enjoy your day.
  7. Useful advice,will try the non meds treatment first.Does meds work for your anxiety and depression? Thanks Beau's mom.
  8. Hi eyeryone, are non-motor symptoms like anxiety and depression debilitating for anyone?If so,how do you cope with these symptoms?Is anyone on antidepressants?Do they help to alleviate the symptoms?.I will like to try as much as possible to minimise the medications.As I am currently on ropinirole 05mg x2 daily to up the dose to 6mg/day in 6wks as a monotherapy. Your answer will be appreciated..
  9. Hi all, I am new to this,congrats to all that kept on chasing their goals and the achievers,despite PD.Has anyone ever had to change careers due to PD, or apply for a new job? If so,did you inform your new employer about your PD before you got hired or after?Please share your experience.
  10. Hi everyone, I hold my left arm bent at the elbow to my side also,no arm swing,with tremor when I force the swinging.No resting tremor.Slow or fast progression as regards tremor dominant or non dominant,has anyone read any article about the speed of progression of parkinson?I understand it is unpredictable.
  11. Hi, Thanks again for your response.
  12. Hi lethe, good piece of breakthrough,hope the process would be sped up and put to use.Also all other studies should,be accelerated to find a cure.
  13. Hi Patriot M, I do appreciate all your replies.I guess I am still coming to terms with this disease gradually.With the support I am a getting here,I will adjust. I am not alone.Thanks again.
  14. Hi, I was diagnosed with early stage parkinson disease in march 2016,but has been having non motor symptoms and balance problems 5 or 6yrs before.The only symptoms I had then was dystonia in my left shoulder,thus no arm swing and very mild tremor,whenever i attempt to swing my arm while walking,I was started on 0.5mg Azilect once daily.The first pill I took,made all symptoms go away,like I was my normal self.But after 2months the Azilect stopped working and my MD increased the dose to 1mg daily.I was on this dose for another one month without any positive effect,except side effects of blood pressure fluctuations,anxiety and dizzziness,so my MD stopped medication during a visit.MD then suggested I should go off medication for a while,but after 2 or 3 months I started having more frequent dystonia,gait problems,slight stoopped posture.Could Azilect or any other parkinson medicaions increase the progression of parkinsons,especially,when they stop working?Why do some parkinson medications work for a short time and some do not work at all? Your response will be appreciated. Regards, Oto