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Everything posted by otolorin

  1. Not Diagnosed, However Need Advise

    Doubleup, something is definitely wrong,that's why your DAT Scan is abnormal.Are you saying,maybe the antidepressant you are taking,contributed to the DAT Scan result?For the doctor to have requested a retest in 6months,that's waiting for likely progression,if it is PD.PD can sometimes start with non-motor symptoms,followed by motor symptoms as the disease progresses in some people.I guess you don't have any choice,but to wait.Does wellbutrin help with your non- motor symptoms?
  2. depression

    TexasTom, was your PD diagnosed before you had depression or after?Could you say,if the life events you experienced triggered the depression,which was probably a slowly,developing non motor symptom of a pre-existing PD?Did taking paxil help with the depression at that time?Are you currently on antidepressant?If so is it helping with your symptom?The reason why I am asking is that,I have been prescribed an antidepressant for anxiety,but afraid to use it,so I am trying to use exercises and diet to treat my symptom.Your advice would be highly appreciated.
  3. fixing and fumbling

    PD slows you down, makes you struggle and concentrate more with activities that require fine motor skills.Great sense of humor is required,to function better,I agree.
  4. Not Diagnosed, However Need Advise

    Double up,did your doctor do a levodopa test?This is usually given to see if you'll react positively,in terms of conrolling your tremor or rigidity.A well experienced MDS would diagnose PD at the first visit,by physical examination.You are not crazy,it is the non motor symptoms that causes more anxiety.You've got to try and stay calm.I can tell you,that I have some of the non motor symptoms you mentioned,and I treat them with medications,others I use daily exercises.If you think,by doing a Dat scan,you will get relief,then it is worth it.Take it easy,you are not going to die.
  5. Not Diagnosed, However Need Advise

    Hi Double up, I can understand your situation.It is kind of stressful if a PD diagnosis hasn't been done yet.Even with insurance,Dat Scan could still be very expensive.After my insurance coverage last year,I am still paying off some thousands by installments.Shopguy is right,if you have a good movement disorder specialist,PD could be diagnosed without a Dat scan.My symptoms were very mild,when I was first diagnosed by a neurologist,but the doctor wasn't sure,he suspected parkinsonsm,so he requested a Dat scan.If I had seen a MDS,initially,I might have avoided a Dat scan.I would suggest to go ahead if you can afford to pay out of pocket,because the earlier,you confirm your diagnosis,the better.So you can '"MOVE FORWARD".
  6. Sorry for the delay

    Inspiring indeed Linda,he has really helped alot on this forum.More grease to your elbow sir.
  7. Good morning!!

    Accept my sympathy Em45, for the loss.
  8. Big News?

    Deadly diseases like Yellow fever,Malaria,Diptheria,Small pox, years ago were once incurable,but now curable.Arthritis of the hip and knees which were once incurable ,could now be eliminated by replacing the hip or knee through surgery.I can argue that great scientists like Einstein and Galileo did not seek breakthroughs,to get rich or fame,they did it to seek more knowledge.As a researcher,your goal is to seek breakthroughs,upon breakthroughs.I believe,we still have true scientists out there,it may take sometime,but the goals will be met.The awareness about PD, is increasing everyday.Thank GOD for MJ FOX and M ALI (RIP).
  9. Big News?

    Dancing Bear, remember scientists are working round the clock looking for cure globally,the cure might be found in other countries,which are not capitalist oriented,and the drugs might not be that expensive,so it will be within the reach of the average people.I am sure alot of people wouldn;t mind seeking the cure wherever it is available.
  10. Big News?

    EUREKA!!! this is a word I learnt as a science student in high school.It is not impossible for it to happen,for a cure to be found in our lifetime.When there is life there is hope they say.May GOD give us the strenght to continue to soldier on until it happens.When it happens,it will be a comprehensive cure for all stages of the disease.The signs are there,they are getting closer and closer.Some other disease that were incurable before has finally been cured.
  11. Not Diagnosed, However Need Advise

    Amen Doubleup..Good luck.
  12. scared

    Hi Scaredforhim, your boyfriend's signs may be or not be related to parkinson.However ,he needs to see a doctor, preferably a movement disorder specialist.A movement disorder specialist is a neurologist that specialise in diagnosing and treating parkinson disease and other related conditions.
  13. Not Diagnosed, However Need Advise

    Post as many questions as you can.Remember you are not alone.Even if you have not been diagnosed,you share some common symptoms with people on this forum,so your questions are welcome.
  14. Handwriting changes

    Superdecooper,this is the anxiety that comes with PD like symptoms.It changes lifestyle.Just try to do as much as you can do now,as per functioning,until you get a diagnosis.You may not have PD afterall.and if you do,you just have to readjust,and plan for the future.It will not be the end of life.
  15. For me exercise can trigger tremor in the Lt arm,then decreases and eventually stops with increased exercise intensity.Balance problems is more pronounced after exercise,mainly aerobics,but balance improves with increased exercise intensity and frequency.With weight lifting exercises,Lt arm shakes,after increased repetition due to fatigue.Sometimes,after bicycle exercise,I get tremor in my Lt arm for couple of minutesthen it stops.So some symtoms may get worse after exercise temporarily,then get better for some people.In general, exercise has been proven to be good for slowing PD progression.Too much caffeine may increase anxiety,tremor in some PWP.
  16. Dear Pharmacist, Please consider this article,just to continue the trend in my previous post to you concerning, old drugs used for other medical conditions,now being used in studies to treat PD symptoms.Check out this linkhttp://www.express.co.uk/life-style/health/851144/parkinsons-disease-drug-antidepressant-treatment.This study was done at the university of Michigan on rats.What is the rationale behind using a tricyclic antidepressant to stop PD?I should human trials should have been considered first,because this drug is already being used to treat depression.
  17. Hi S,Hold relax method of stretching is good for muscle rigidity that you have in PD,during off periods.Dynamic stretching may be good for on periods,because by then you have enough dopamine to enhance the functioning of your muscles.For dynamic stretching to be effective,you need adequate flexion and extension functions of your muscles.This is a very familiar field.Hope this helps.As per your second question, my MDS advised to cut the tablets in halves and take them at close intervals,if the "on" periods decreased.Say if you were taking one tablet every 4hrs before,you change your schedule to taking half tablet every two or three hrs.You can confirm with your Doctor of Dr Okun on this forum.
  18. Trying Sinemet

    Let"s all enjoy the medication honeymoon while it last.Whatever works in controlling symptoms with minimal side effects is welcome by me,as long as it is not debilitating.Enjoy your day everyone.
  19. Coffee intake triggers shaking

    Caffeine in coffee is a central nervous system stimulant,people metabolize caffiene differently depending on the quantity consumed.Some people who don't have PD get hyper, shake all over when they consume too much coffee.The confusing thing is that in some studies carried out among PWP and non PD people, who drank coffee ,they found out that heavy coffee drinkers were not likely to have deveoped PD.In other words,there is something in caffeine that might have prevented the development of PD.I guess more studies needs to be done in this area.Maybe a little coffee can slow down PD progression.
  20. Trying Sinemet

    Pdmanaz, sinemet and MM treatments of PD are symptomatic.None of these cures PD.I supposed it is the side effects of these treatments that matters.I am on low dose sinemet,because of the fear of developing the most dreaded dyskinesia side effects.Some people on this forum developed dyskinesia after one year of using sinemet.I have only been using it for 5months,1 and 1/2 tablet per day.1tab at 11:00am and 1/2 tab at 4;00pm.And exercises have helped alot.Now the off periods symptoms of rigidity/bradikenisia are getting worse,compared to before I started using sinemet.I think good sleep actually helps to relieve the symtoms.As per MM,there is alotof benefts yet to be discovered by the experts in medicine.Recently the CEO of Emblem pharmaceuticals,the company that makes oxycontin decided to research MM as a future replacement of oxycontin in treating chronic pain.Also there may be some studies ongoing for PD,on the benefits of MM.
  21. Hi Sconklin87, try some deep breathing exercise,after a warm shower before going to bed.Avoid,caffienated drinks close to bedtime.I take melatonin 5mg,magnesium 1/2 250mg and .25alprazolam to sleep and I get up to 6 or 7hrs of sleep.Some people take trazadone antidepressant or the herb ashwaganda,or valerian root to sleep.I would advise you seek your MD's opinion as regards sleeping pills for pwp.I believe your are still working,so occupy your mind with something else apart from worrying to much about your symptoms.I know it is not easy coping with all these symptoms,without a diagnosis.I hope they find a cure to PD and all other incurable disease.Be at ease with yourself.Take care.
  22. Can Parkinson's be stopped

    Dear Pharmacist, the more we learn from experts like you,the more we calm our nerves.Thanks very much.
  23. Dear Pharmacist, thanks again for your usual expert opinion.
  24. Yes,PWP means Person with Parkinson.In my late forties.Three different neurologists. Symptoms mainly non motor,like anxiety,apathy,occasional mild balance issues.
  25. Trying Sinemet

    PatriotM, welcome on board the sinemet users group.Did sinemet only help with tremor?it is supposed to help with rigidity and Bradykinesia.Did you see improvement right away?or you had to titrate from half a tablet up to three.I believe MM has it's advantages and disadvantages,likewise all medications.I think the reason why medications are usually approved by FDA is if the advantages outweigh the disadvantages.What are your PD symptoms that MM helped you treat?