Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

  • Days Won


Everything posted by otolorin

  1. Are you happy with your PD healthcare

    Hi Gardener, I appreciate your response,after dx,initial monotherapy was with Azilect,worked only for 3months.Tried Miraplex as well,couldn't tolerate it.Then decided to go with sinemet after some hesitation,due to fear of dyskinesia.It's been good so far.Thank God and the pwp on this forum for all the support.Being dxed for roughly two years.I was curious about your mentioning of dyskinesia in your previous post.Thanks again.
  2. Hi everyone, I just want to share this link with you,please read. https://medicalxpress.com/news/2017-08-drugs-beta2-adrenoreceptor-linked-parkinson-disease.html.A lot of medications used to treat other conditions have been tested on pwp in other to find the one that will be most effective in stopping/curing the degeneration of neurons in PD.I am particularly concern about the speculation of beta blockers causing parkinson disease,although ,this has not be proven with subsequent trials,but a link has been found between people using beta blockers and the development of parkinson diease in one trial,and it has also been discovered that people who use a drug for the treatment of asthma are less likely to develop PD.Beta blockers like propananol,metropolol,atenolol are used mainly in the treatment of high blood pressure,they block the beta adrenernic receptors,reduce the heart rate,and cause vasoconstriction of blood vessels in the tissues.This medication has side effects like,depression,dementia,which are some of the symptoms of PD.The dementia which is a side effect of beta blockers is called pseudodementia by expets,but on a long term use of this drug,no one knows if pseudodementia will become dementia for real.The good old asthma medication salbutamol (inhaler) is a beta 2angonist which prevents vasoconstriction,and therefore enhances increased blood flow to the tissues.This asthma medication has been suspected to be beneficial in preventing or stopping the brain degeneration in PD, in a trial carried out by researchers,But more trials needs to be done.My main question is this,has anyone been on the blood pressure medications, beta blockers,most of which have names ending with "nol",and developed PD?If so ,according to the link above ,it may be wise to discuss an alternative medication with your MD for BP treatment.
  3. Are you happy with your PD healthcare

    Hi Gardener, How long have you been on sinemet please?
  4. New hope for parkinson disease patients.

    This person should go on TV with the proof.We are all looking for cure.
  5. Good morning!!

    Accept my sympathy Beau's mom,may his soul rest in perfect peace.Amen.
  6. Just got the news 😕

    I don;t take cymbalta either,but you can contact the parmacist on this web, if you have any question.
  7. Just got the news 😕

    Welcome Blue Lion,it is not the end of life.Mad,sad and fear of the future are all the emotions that comes with the diagnosis of PD.Like LAD stated,exercise has been the only weapon proven to slow down PD.Let's keep hoping for a breakthrough towards finding a cure.Keep exercising.
  8. Dear Doctor Okun, I will like to ask you sir, from your experience,how do you treat,fluctuating non motor symptoms like numbness,pain and paresthesia in your practice.I usually experience these symptoms,regardless of when I am off or on.Unless I sleep then they disappear,and reappear about 45mins to an hour later,after waking up.I am currently on sinemet 25/100mg,0.5 tab TID.Your usual kind response,would be highly appreciated sir.

    Thank you Doc.God bless you sir.
  10. 23 year old female worried about PD

    Hi Newtie, do as directed by LAD,and ask your MD to refer you to a neurologist for thorough hysical evaluation.PD could start with some of the symptoms you mentioned.My ymptoms started with panic attacks,and anxiety,and my MD attributed these symptoms to stress.Good luck.

    Hi Invisable, just read your thread here.Graflexmaster is right.I had similar experiences with non motor symptoms for many years since my early 20s,while different doctors were attributing these symptoms to anxiety and stress,until early last year before the dx of PD.I currently see a MDS .If I may ask anyone here,with symptoms of paresthesia,what gives you relief?Do you take any medication apart from PD medication for paresthesia?Your response would be appreciated please.
  12. Daylight Savings Time

    Superdecooper. Try meditation,avoid exercising too close to bedtime,avoid caffeine close to bedtime.What mg of melatonin do you use?Have you tried any herb like Valerian root?You may need to increase your melatonin dose if you are currently on a low dose.
  13. Not Diagnosed, However Need Advise

    Doubleup, something is definitely wrong,that's why your DAT Scan is abnormal.Are you saying,maybe the antidepressant you are taking,contributed to the DAT Scan result?For the doctor to have requested a retest in 6months,that's waiting for likely progression,if it is PD.PD can sometimes start with non-motor symptoms,followed by motor symptoms as the disease progresses in some people.I guess you don't have any choice,but to wait.Does wellbutrin help with your non- motor symptoms?
  14. depression

    TexasTom, was your PD diagnosed before you had depression or after?Could you say,if the life events you experienced triggered the depression,which was probably a slowly,developing non motor symptom of a pre-existing PD?Did taking paxil help with the depression at that time?Are you currently on antidepressant?If so is it helping with your symptom?The reason why I am asking is that,I have been prescribed an antidepressant for anxiety,but afraid to use it,so I am trying to use exercises and diet to treat my symptom.Your advice would be highly appreciated.
  15. fixing and fumbling

    PD slows you down, makes you struggle and concentrate more with activities that require fine motor skills.Great sense of humor is required,to function better,I agree.
  16. Not Diagnosed, However Need Advise

    Double up,did your doctor do a levodopa test?This is usually given to see if you'll react positively,in terms of conrolling your tremor or rigidity.A well experienced MDS would diagnose PD at the first visit,by physical examination.You are not crazy,it is the non motor symptoms that causes more anxiety.You've got to try and stay calm.I can tell you,that I have some of the non motor symptoms you mentioned,and I treat them with medications,others I use daily exercises.If you think,by doing a Dat scan,you will get relief,then it is worth it.Take it easy,you are not going to die.
  17. Not Diagnosed, However Need Advise

    Hi Double up, I can understand your situation.It is kind of stressful if a PD diagnosis hasn't been done yet.Even with insurance,Dat Scan could still be very expensive.After my insurance coverage last year,I am still paying off some thousands by installments.Shopguy is right,if you have a good movement disorder specialist,PD could be diagnosed without a Dat scan.My symptoms were very mild,when I was first diagnosed by a neurologist,but the doctor wasn't sure,he suspected parkinsonsm,so he requested a Dat scan.If I had seen a MDS,initially,I might have avoided a Dat scan.I would suggest to go ahead if you can afford to pay out of pocket,because the earlier,you confirm your diagnosis,the better.So you can '"MOVE FORWARD".
  18. Sorry for the delay

    Inspiring indeed Linda,he has really helped alot on this forum.More grease to your elbow sir.
  19. Good morning!!

    Accept my sympathy Em45, for the loss.
  20. Big News?

    Deadly diseases like Yellow fever,Malaria,Diptheria,Small pox, years ago were once incurable,but now curable.Arthritis of the hip and knees which were once incurable ,could now be eliminated by replacing the hip or knee through surgery.I can argue that great scientists like Einstein and Galileo did not seek breakthroughs,to get rich or fame,they did it to seek more knowledge.As a researcher,your goal is to seek breakthroughs,upon breakthroughs.I believe,we still have true scientists out there,it may take sometime,but the goals will be met.The awareness about PD, is increasing everyday.Thank GOD for MJ FOX and M ALI (RIP).
  21. Big News?

    Dancing Bear, remember scientists are working round the clock looking for cure globally,the cure might be found in other countries,which are not capitalist oriented,and the drugs might not be that expensive,so it will be within the reach of the average people.I am sure alot of people wouldn;t mind seeking the cure wherever it is available.
  22. Big News?

    EUREKA!!! this is a word I learnt as a science student in high school.It is not impossible for it to happen,for a cure to be found in our lifetime.When there is life there is hope they say.May GOD give us the strenght to continue to soldier on until it happens.When it happens,it will be a comprehensive cure for all stages of the disease.The signs are there,they are getting closer and closer.Some other disease that were incurable before has finally been cured.
  23. Not Diagnosed, However Need Advise

    Amen Doubleup..Good luck.
  24. scared

    Hi Scaredforhim, your boyfriend's signs may be or not be related to parkinson.However ,he needs to see a doctor, preferably a movement disorder specialist.A movement disorder specialist is a neurologist that specialise in diagnosing and treating parkinson disease and other related conditions.