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Everything posted by otolorin

  1. otolorin

    Shot in the dark

    ChrisS. The earlier you get diagnosed the less stress you'll have.Make an appoinment asap as per Linda's advice.
  2. otolorin

    Good morning!!

    jb. Thanks for your insights as you heal.Get some hot packs for your shoulders.
  3. otolorin

    Social Security Disability...who has been denied w/PD?

    Thanks, Dan and Golden01. I will discuss extensively with my doctors.
  4. otolorin

    Social Security Disability...who has been denied w/PD?

    So I would suggest that it is better to go for SS disability screening when you are "off",for all the symptoms to be present.I understand that they consider the age of the PWP too,because at a certain age it may not be easy to secure a job outside one's profession even without PD,how much more with PD.
  5. otolorin

    Social Security Disability...who has been denied w/PD?

    Hi Dan, may I ask why you were denied,despite the fact that it wasn't safe for you to continue working,and considering all the falls you had.I am also considering applying,as my short term disability has expired.I have balance issues too.
  6. otolorin

    Good morning!!

    jb: Our prayers for you.
  7. I am just curious if anyone knows where to buy the best quality of mucuna puriens powder.To pwp using mucuna, has it been effective since you have been using this powder?What dose is most effective for you?Since mucuna is not FDA regulated,I am a little wary about the online sale.Please give your insight if you have been using this powder effectively.Thanks.
  8. otolorin

    Mucuna Extract vs Mucuna Whole Herb

    Hi Karunapod, I thought you tried the Mucuna whole herb too.Sorry for the misunderstanding.I wanted to know which one worked better.You were right,what worked for one person may not work for the other.Thanks for your insight.
  9. otolorin

    Mucuna Extract vs Mucuna Whole Herb

    Hi Karunapod, the nutrivitashop Mucuna powder, is it really 100% L-dopa as they claim?Did it work for you without the herb?Please confirm.I have tried some other brands which didn't work for me.Thanks again.
  10. otolorin

    Mucuna Extract vs Mucuna Whole Herb

    Karunapod, thanks for sharing this information.Lol.
  11. otolorin

    New to Sinemet

    Nosoupforyou, I feel exactly the same way with sinemet,the mental non motor symptoms of PD are not managed by sinemet,thus the uneasy feeling and a thousand thoughts going through your mind.I agree with Beau's mom,you can contact your MD for advice.He might adjust your dosing,timing or refer you to a mental health practitioner.Good luck.
  12. otolorin

    Mucuna Extract vs Mucuna Whole Herb

    Hi Karunapod, I am interested in getting the mucuna extract with 98-99% L-dopa.Please share the source.Worried about side effects of Sinemet.
  13. otolorin

    Dyskinesia vs Akinesia

    Hi Gardener,I am just curious,what type of dyskinesia have you experienced and have you been able to treat it successfuly?I am also non tremor dominant.
  14. otolorin

    Just Deny Everything

    I left the island of denial over a year ago.Couldn't cope with the demands of the job,my job was physically demanding.Still searching for a less physically demanding job.Listen to your body,it will let you know if you have to continue to deny or disclose.Remember PD affects everybody differently.
  15. Hi Debsten, you should try and occupy your time with something that takes your mind off PD.This way,you will be able to manage your anxiety and depression well.First you have to accept the disease.This I struggled with at first,when I was newly diagnosed.And be strict with the timing of your medication,because the wearing off of medication anxiety symptoms could be very uncomfortable,at least for me,compared to the anxiety due to stress.
  16. Dear Doc Okun, I read the link below and I find it interesting concerning the prognosis of PD.Despite the fact that a lot of studies is still required to demystify this disease,according to the article below,most doctors give prognosis based on subtypes of PD alone.Because,there is no one size fits all,as regards how PD affects people or reaction to medications,there should still be more categories of PD.In your practice,would you be more comfortable to give prognosis based on age at onset or subtypes? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4892002/
  17. otolorin

    dyskinesia free l-dopa

    Superdecooper. Dr Hinz's patients should be more vocal about the benefits of the therapy. I support your views.
  18. otolorin


    Dear Doc Okun, Your response is well appreciated.Keep doing the good work.Thanks.
  19. otolorin

    Good morning!!

    Hi Jb and Linda, I wish you both best of luck in your forthcoming important brain surgeries.May the good Lord see you through without complications.We will be waiting for the good news of quick recovery.And to those of us still contemplating on getting surgery help,may God give us the courage,and may cure be found for this terrible disease.Amen.
  20. otolorin

    Timing of Medication

    Dear Doc Okun, I will like to know the effect of lapses in medication timing on PD symptoms.Like if I am late in taking my sinemet by 10 to 15mins?This sometimes happen with my first dose of sinemet in the morning,whenever I get up late.Sometimes I find it hard to get up in the morning,even when I am awake.I understand this can cause motor fluctuations.I am on a Sinemet 25/100mg,1/2tab 4x/day at intervals of 3 1/2 hrs.My questions are; 1)If this happens,how long will it take to get control of the symptoms with good timing? 2)Will it take the same time by which there were lapses to get control of the symptoms with good timing? 3)Can motor fluctuations lead to dyskinesia? 4)Why do some people develop dyskinesia so early in their course of treatment with levodopa? 5)How do you manage mild forms of dyskinesia in your practice,apart from spacing of medication or adding Amantadine? Your kind response will be appreciated.
  21. Dear Doc Okun, I was wondering,if side to side,neck rotational head tremor with neck dystonia could be levodopa induced or a symptom of PD.If this is part of your patient's complaint,kindly tell me how you will treat this problem.Will you adjust medication dose,if you suspect that it is drug induce, recommend botox injections,or remove medication or add other medications?Please,kindly provide some insight.Thanks in advance sir.
  22. otolorin

    Anxiety causing tremors and off time

    Brian L. Deep breathing exercises works.Inhale through the nose,exhale through the mouth.
  23. otolorin

    Anxiety causing tremors and off time

    Tweets32. I do appreciate your explicit and thoughtful insight.You are right,there is a lot of scary articles online about antidepressants,and for someone like me who has no experience with the long acting,SSRI or SSNRs,you tend to want to hear and learn from people who have derived benefits from these drugs.I will definitely discuss this option with my MD,so I can get a referral.Lke you stated,medication and prayer goes together.Lol.
  24. otolorin

    dyskinesia free l-dopa

    Hi hercules957, how long did you do the Dr Hinz protocol?Will the Naturopath be the one to supply and dose the mucuna p?Can you describe the head bobbing dyskinesia,you claimed that you once experienced please?
  25. otolorin

    Anxiety causing tremors and off time

    Hi tweets32, I am contemplating trying an antidepressant.I hope it helps,because I have read online that sometimes,some help for a short term or do not help at all,then you would have to switch to another one.I will talk to my MD about it.What PD meds are you on?The disease is really humbling like you said.I try to avoid stressful situations as much as possible.Let's keep our hopes high,maybe there will be a breakthrough for cure,one day.