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About kmr

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  1. kmr

    Increasing Rytary dose

    Great. That makes perfect sense and will give that a try. Thank you.
  2. Hi Mark, I'm currently taking Rytary 23mg/95mg 3x daily. My tremors and stiffness are primarily on my right side but they are increasing and the current dosing doesn't seem to be working well. I'm not sure if I should add one more pill per day (4x day), which would shorten the time frame between pills, or increase the dose to to the 36/145mg but stay with 3x a day. Or any other suggestions you may have would be appreciated. Thank you.
  3. kmr

    Newly Diagnosed

    loveya1971, 6 years ago I was the same age as you are when I was diagnosed and I understand your challenges and fears as I'm sure do all here on the forum. So know you are not alone. Reading and talking about it with others who understand helps take away some of the fear so keep reaching out. With regards to your medication, you'll find that you will become the expert on you and what works. Keep a journal of what you're taking and the positives and negatives, and take that to your doctor to discuss. If a medication doesn't work discuss other alternatives. In the beginning I felt frustrated with my doctor because I wanted things to move quicker and wanted everyone to have the sense of urgency that I felt. However overtime you realize that there is a pacing to figure out whats right for you. At the end of the day though, if you feel as though your doctor is not listening to you and doesn't walk to work as a team to create the best care for your situation, then you may want to find another.
  4. Hi Mark, I am currently taking carb/levo ER 25-100, 4 times per day at 7a, 11:30a, 3:30p, 7:30p. It helps, however the last hour before I take the next dose, I have a wearing off period. I've heard that rytary would help with the off time or you've mentioned a combination of regular C/L combined with C/L ER. Which do you think would be a good place to start and could you explain the regular and ER combination method as I didn't quite understand the timing of that. Thanks for all your tireless help. Any help suggestions from others who have the same situation would be appreciated.
  5. pinkdaisy, I too was 45 which was 5 years ago when I was diagnosed and remember feeling the same scared thoughts as you are feeling and to be honest still feel from time to time. It does take time to process your thoughts and feelings and that's ok. The best advice I can share is to be open about all of your feelings to someone. Whether its a family member, friend, therapist, or even as you are doing so wonderfully here on this forum, being able to talk about them really helps me keep in a positive place. We are all in this together!