Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  • Content count

  • Joined

  • Last visited

Community Reputation

2 Neutral

About kmr

  • Rank

Recent Profile Visitors

114 profile views
  1. Newly Diagnosed

    loveya1971, 6 years ago I was the same age as you are when I was diagnosed and I understand your challenges and fears as I'm sure do all here on the forum. So know you are not alone. Reading and talking about it with others who understand helps take away some of the fear so keep reaching out. With regards to your medication, you'll find that you will become the expert on you and what works. Keep a journal of what you're taking and the positives and negatives, and take that to your doctor to discuss. If a medication doesn't work discuss other alternatives. In the beginning I felt frustrated with my doctor because I wanted things to move quicker and wanted everyone to have the sense of urgency that I felt. However overtime you realize that there is a pacing to figure out whats right for you. At the end of the day though, if you feel as though your doctor is not listening to you and doesn't walk to work as a team to create the best care for your situation, then you may want to find another.
  2. Hi Mark, I am currently taking carb/levo ER 25-100, 4 times per day at 7a, 11:30a, 3:30p, 7:30p. It helps, however the last hour before I take the next dose, I have a wearing off period. I've heard that rytary would help with the off time or you've mentioned a combination of regular C/L combined with C/L ER. Which do you think would be a good place to start and could you explain the regular and ER combination method as I didn't quite understand the timing of that. Thanks for all your tireless help. Any help suggestions from others who have the same situation would be appreciated.
  3. pinkdaisy, I too was 45 which was 5 years ago when I was diagnosed and remember feeling the same scared thoughts as you are feeling and to be honest still feel from time to time. It does take time to process your thoughts and feelings and that's ok. The best advice I can share is to be open about all of your feelings to someone. Whether its a family member, friend, therapist, or even as you are doing so wonderfully here on this forum, being able to talk about them really helps me keep in a positive place. We are all in this together!